Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 I don't know if anyone on this site deals with any cancers at all. I wish we had more tools at our disposal to promote the benefits of this treatment, so I'm posting again. (I'm still hoping for more detailed testimonials about fibromyalgia that I asked for a few weeks ago--I've received one.) I build medical foundations for launching clinical research into LDN for treating serious diseases, and my daughter has one (see previous posts). That means developing pathways to collect scientifically respectable clinical case studies for later presentation to a reputable researcher in the target disease. I've collected dozens of medical research abstracts on various subjects, that serve to educate docs and researchers on the potential of LDN for treating serious diseases, both cancers and immune disorders. I don't have time to try to give someone the information that could change their prognosis if they're not interested. It's already happened too many times, so to not dwell in frustration too often, I withdraw my energy until I run into another possible way to help--like the water searching its way thru obstacles in the I-Ching. My latest chink in the obstacles to revamping medical treatment by adding LDN is this: in 10 minutes during my yearly urology appointment, I convinced my alternative-pitching urologist, Cantwell (Daytona Beach FL--if you know someone in that area in danger of PC), that LDN would be worth a try on patients with nascent prostate cancer who want to watch and wait before jumping into standard treatment, and handed him about 30p of abstracts, correspondence & website info, so there may be a way for the promise of LDN to make headway on that cancer treatment. I firmly believe that there are enough of us with LDN experience to design, finance, and get doctors to monitor careful case studies that would provide medically respectable evidence that LDN could be a godsend for many many diseases. But we need to be better organized than we are now. My model for how to do this was accepted by the clinical trials activism subcommittee at last June's LDN conference, and NOT ONE person from that committee or anywhere else has contacted me about working together to make that happen. (MS has a raft of organizers, no other disease has ANY.) So perhaps I am that committee. Who wants to organize and help? Write me off list nphbrown@... and copy to the list, so this can grow. Norman Brown, Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Hi Norman, What exactly in a nutshell is it that you are asking for here? I think you are saying that you would like medical research abstracts from those with other ailments than MS that are utilizing LDN. First of all it is very cool that you are doing this. A more scientific approach or significant research and studies that back LDN as a viable treatment would be extremely helpful in advancing it use. And if anything like that is available it would be great if someone on our chat site has that info would see your post and share it. But I think it is important to note that most of us are " users " of LDN and are not necessarily science minded or have this info available. I think the biggest key on this site is antidotal evidence and sharing all of our experiences. In fact as far as a person with no science or study back ground I have found this far far more useful. It is like our own science study if you think about it. We are not isolating the events or creating hypothesis we are a whole group with many problems associated with what ever our ailments are and as a whole group in each ailment we are finding out " overall " what works and what does not with a LDN and that disease. We are finding out that everybody is different and that there are many reactions to LDN, and that there are many solutions that work for different people. This as a user has been so much more valuable than a scientific study in which a doctor prescribes the med and does not have all of these different scenarios in which to share with you to look at when things go wrong or things could be enhanced. In my opinion, every patient in the future (for every drug) would benefit highly from having such a resource available with other users of that drug signing in and sharing their experiences. I will look and see what earlier chats I have saved in regards cancer and other ailments. I hope I have anything that you are looking for. As far as putting things together to help with your project, that would be great if anyone has the time and recourses, but I think many of us have just don't have the resources or the time to do that. I had gathered some links and some attachments from the chat site and put them together in a sort of " welcome e-mail " for those with MS and asked the group if there was anyone with other ailments that would mind putting their valuable info in a similar " welcome e-mail " for cancer, Lupus, Parkinson's, Fibro etc. but I have had no one able to do that yet. It is all time consuming. Just responding to chats, sending out welcome e-mails to new people and trying to find saved chats on different things to those in need has cost me so much time and some of my own business dollars. But I can't help but want to help those in need. Besides that others had taken the time to help myself and my husband out with LDN and it completely changed my husbands life. I must help others in anyway that I can. I'll see what I can find for you. Aletha [low dose naltrexone] LDN & Prostate Cancer >I don't know if anyone on this site deals with any cancers at all. I > wish we had more tools at our disposal to promote the benefits of > this treatment, so I'm posting again. (I'm still hoping for more > detailed testimonials about fibromyalgia that I asked for a few weeks > ago--I've received one.) > > I build medical foundations for launching clinical research into LDN > for treating serious diseases, and my daughter has one (see previous > posts). That means developing pathways to collect scientifically > respectable clinical case studies for later presentation to a > reputable researcher in the target disease. > > I've collected dozens of medical research abstracts on various > subjects, that serve to educate docs and researchers on the potential > of LDN for treating serious diseases, both cancers and immune > disorders. I don't have time to try to give someone the information > that could change their prognosis if they're not interested. It's > already happened too many times, so to not dwell in frustration too > often, I withdraw my energy until I run into another possible way to > help--like the water searching its way thru obstacles in the I-Ching. > > My latest chink in the obstacles to revamping medical treatment by > adding LDN is this: in 10 minutes during my yearly urology > appointment, I convinced my alternative-pitching urologist, > Cantwell (Daytona Beach FL--if you know someone in that area in > danger of PC), that LDN would be worth a try on patients with nascent > prostate cancer who want to watch and wait before jumping into > standard treatment, and handed him about 30p of abstracts, > correspondence & website info, so there may be a way for the promise > of LDN to make headway on that cancer treatment. > > I firmly believe that there are enough of us with LDN experience to > design, finance, and get doctors to monitor careful case studies that > would provide medically respectable evidence that LDN could be a > godsend for many many diseases. But we need to be better organized > than we are now. > > My model for how to do this was accepted by the clinical trials > activism subcommittee at last June's LDN conference, and NOT ONE > person from that committee or anywhere else has contacted me about > working together to make that happen. (MS has a raft of organizers, > no other disease has ANY.) So perhaps I am that committee. Who wants > to organize and help? > > Write me off list nphbrown@... and copy to the list, so > this can grow. > > Norman Brown, Ph.D. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Hi Folks! I am a newby trawling the list for info re: the subject line. My history is briefy Dx'd 10 years ago age 49 with a very poor prognosis. Surgery followed by salvage radiotherapy with a rising PSA followed by repeated bouts of Zoladex (castration therapy) to keep PSA under control. In the end I gave up Zoladex because it was making me sick. Some of my friends have died from 'unexpected' heart failure when on Zoladex and I am pretty sure that is the way I would go if I kept up the conventional treatment. For the last three years I have been OFF treatments and maximising my testosterone level. A recent MRI scan confirmed no recurrence in the prostatic bed, but since I do have a PSA it must be coming from somewhere, and I want to get rid of thre source of that PSA. I have not had a bone scan recently because of the high dose radiation associated with the procedure. [ A bone scintigraphy scan is ~ 1000 > than a single chest x-ray, even a CAT scan is > 100 a single x-ray. I figure with all the x-ray therapy I have had in the past I can do without more and will just rely on MRI.] My take on the " LDA for 'untreated' prostate cancer only " which I read on the LDA website, is that castration therapy disables the LDN effect. [ Similar to castration therapy disabling vitamin D therapy.] I infer that anyone with a near-normal testosterone level will respond to LDN. Presumably having had various kinds of chemotherapy with other cancers does not interfere with LDN ? Am I on the right track here or is there something I have missed ? Thanks for being here. Sammy. > > Hi Norman, > > What exactly in a nutshell is it that you are asking for here? I think you > are saying that you would like medical research abstracts from those with > other ailments than MS that are utilizing LDN. First of all it is very cool > that you are doing this. A more scientific approach or significant research > and studies that back LDN as a viable treatment would be extremely helpful > in advancing it use. And if anything like that is available it would be > great if someone on our chat site has that info would see your post and > share it. But I think it is important to note that most of us are " users " > of LDN and are not necessarily science minded or have this info available. > > I think the biggest key on this site is antidotal evidence and sharing all > of our experiences. In fact as far as a person with no science or study > back ground I have found this far far more useful. It is like our own > science study if you think about it. We are not isolating the events or > creating hypothesis we are a whole group with many problems associated with > what ever our ailments are and as a whole group in each ailment we are > finding out " overall " what works and what does not with a LDN and that > disease. We are finding out that everybody is different and that there are > many reactions to LDN, and that there are many solutions that work for > different people. This as a user has been so much more valuable than a > scientific study in which a doctor prescribes the med and does not have all > of these different scenarios in which to share with you to look at when > things go wrong or things could be enhanced. In my opinion, every patient > in the future (for every drug) would benefit highly from having such a > resource available with other users of that drug signing in and sharing > their experiences. > > I will look and see what earlier chats I have saved in regards cancer and > other ailments. I hope I have anything that you are looking for. As far as > putting things together to help with your project, that would be great if > anyone has the time and recourses, but I think many of us have just don't > have the resources or the time to do that. I had gathered some links and > some attachments from the chat site and put them together in a sort of > " welcome e-mail " for those with MS and asked the group if there was anyone > with other ailments that would mind putting their valuable info in a similar > " welcome e-mail " for cancer, Lupus, Parkinson's, Fibro etc. but I have had > no one able to do that yet. It is all time consuming. Just responding to > chats, sending out welcome e-mails to new people and trying to find saved > chats on different things to those in need has cost me so much time and some > of my own business dollars. But I can't help but want to help those in > need. Besides that others had taken the time to help myself and my husband > out with LDN and it completely changed my husbands life. I must help others > in anyway that I can. > > I'll see what I can find for you. > > Aletha > > > > [low dose naltrexone] LDN & Prostate Cancer > > > >I don't know if anyone on this site deals with any cancers at all. I > > wish we had more tools at our disposal to promote the benefits of > > this treatment, so I'm posting again. (I'm still hoping for more > > detailed testimonials about fibromyalgia that I asked for a few weeks > > ago--I've received one.) > > > > I build medical foundations for launching clinical research into LDN > > for treating serious diseases, and my daughter has one (see previous > > posts). That means developing pathways to collect scientifically > > respectable clinical case studies for later presentation to a > > reputable researcher in the target disease. > > > > I've collected dozens of medical research abstracts on various > > subjects, that serve to educate docs and researchers on the potential > > of LDN for treating serious diseases, both cancers and immune > > disorders. I don't have time to try to give someone the information > > that could change their prognosis if they're not interested. It's > > already happened too many times, so to not dwell in frustration too > > often, I withdraw my energy until I run into another possible way to > > help--like the water searching its way thru obstacles in the I-Ching. > > > > My latest chink in the obstacles to revamping medical treatment by > > adding LDN is this: in 10 minutes during my yearly urology > > appointment, I convinced my alternative-pitching urologist, > > Cantwell (Daytona Beach FL--if you know someone in that area in > > danger of PC), that LDN would be worth a try on patients with nascent > > prostate cancer who want to watch and wait before jumping into > > standard treatment, and handed him about 30p of abstracts, > > correspondence & website info, so there may be a way for the promise > > of LDN to make headway on that cancer treatment. > > > > I firmly believe that there are enough of us with LDN experience to > > design, finance, and get doctors to monitor careful case studies that > > would provide medically respectable evidence that LDN could be a > > godsend for many many diseases. But we need to be better organized > > than we are now. > > > > My model for how to do this was accepted by the clinical trials > > activism subcommittee at last June's LDN conference, and NOT ONE > > person from that committee or anywhere else has contacted me about > > working together to make that happen. (MS has a raft of organizers, > > no other disease has ANY.) So perhaps I am that committee. Who wants > > to organize and help? > > > > Write me off list nphbrown@... and copy to the list, so > > this can grow. > > > > Norman Brown, Ph.D. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 That is a very nice web site Bruce. Generally informative and a good Google search engine incorporated, but I did not find the info I was looking for as per the limitations for use with prostate cancer. While I am on the subject of limitations, are there any restrictions for use if say you have a cold? [Or is 'having a cold' an oxymoron with LDN users?] I read the bit about restricting LDN if opoids are in use (even codeine by the look of it). I wonder, do MS sufferers who use cannabis to control pain have difficulty with LDN ? How about mild narco-hallucinogens like nutmeg ? Is LDN contraindicated with ibuprofen or aspirin ? Sammy [low dose naltrexone] LDN & Prostate Cancer> > > >I don't know if anyone on this site deals with any cancers at all. I> > wish we had more tools at our disposal to promote the benefits of> > this treatment, so I'm posting again. (I'm still hoping for more> > detailed testimonials about fibromyalgia that I asked for a few weeks> > ago--I've received one.)> >> > I build medical foundations for launching clinical research into LDN> > for treating serious diseases, and my daughter has one (see previous> > posts). That means developing pathways to collect scientifically> > respectable clinical case studies for later presentation to a> > reputable researcher in the target disease.> >> > I've collected dozens of medical research abstracts on various> > subjects, that serve to educate docs and researchers on the potential> > of LDN for treating serious diseases, both cancers and immune> > disorders. I don't have time to try to give someone the information> > that could change their prognosis if they're not interested. It's> > already happened too many times, so to not dwell in frustration too> > often, I withdraw my energy until I run into another possible way to> > help--like the water searching its way thru obstacles in the I-Ching.> >> > My latest chink in the obstacles to revamping medical treatment by> > adding LDN is this: in 10 minutes during my yearly urology> > appointment, I convinced my alternative-pitching urologist, > > Cantwell (Daytona Beach FL--if you know someone in that area in> > danger of PC), that LDN would be worth a try on patients with nascent> > prostate cancer who want to watch and wait before jumping into> > standard treatment, and handed him about 30p of abstracts,> > correspondence & website info, so there may be a way for the promise> > of LDN to make headway on that cancer treatment.> >> > I firmly believe that there are enough of us with LDN experience to> > design, finance, and get doctors to monitor careful case studies that> > would provide medically respectable evidence that LDN could be a> > godsend for many many diseases. But we need to be better organized> > than we are now.> >> > My model for how to do this was accepted by the clinical trials> > activism subcommittee at last June's LDN conference, and NOT ONE> > person from that committee or anywhere else has contacted me about> > working together to make that happen. (MS has a raft of organizers,> > no other disease has ANY.) So perhaps I am that committee. Who wants> > to organize and help?> >> > Write me off list nphbrown@... and copy to the list, so> > this can grow.> >> > Norman Brown, Ph.D.> >> >> >> >> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 Prostate cancer is one of the cancers listed on the LDN Homepage that LDN is useful for (provided it has not had "prior treatment"...by that I believe the treatment referred to is hormonal treatment). http://www.ldninfo.org/index.htm#What_diseases_has_it_been_useful_for Anita Meyers wrote: Has anyone ever heard of LDN helping prostate cancer? A friend has recently been diagnosed with it and the cancer is beyond surgery. Thanks, Anita Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.