Re: new symptom- doc says rare

[Guest guest]

>

> just wondering if anyone has experienced a symptom that started for me

> 1 1/2 weeks ago. my neuro says that i have weakness in my soft

> palatte. it results in a hissing noise when i speak. in the early

> parts of the day, only i can hear it. but as the day progresses, it

> becomes audible. i've been in swallow therapy, and i cannot cough

> normally anymore. my swallow therapist says that i am doing great,

> but now came this. if anyone has had this, what was done for this? can

> anything be done? best to all,

>

> joanna

>

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I have slightly slurred speech since being paralyzed on the left side of my

face, mouth and tongue. LDN didn't touch this. I also have swallowing

difficulty due to bad spasticity in my throat muscles, esophagus muscles and

intestine muscles...LDN didn't touch these either...just way too severe damage

for LDN to help. I have a feeling it's you tongue muscles that's the problem

and not your soft palatte because your soft palatte has no muscles that I'm

aware of. Your tongue, jaws and mouth all do have muscles and can be affected

by MS. I get choked very easily and I can no longer pronounce my last name

properly...I have to spell it for people most of the time. The therapy you are

going through to strengthen certain muscles may be aggrevating other muscles

that are near. Did the slurring start shortly after you started this therapy?

[Guest guest]

calcium eap injections are so good for symptoms of the medulla oblongata.

That is breathing, swallowing and speech. It is part of the brain stem.

After the first shot, you can feel your throat more even if you didn't think

it was numb at all prior to.

[low dose naltrexone] new symptom- doc says rare

> just wondering if anyone has experienced a symptom that started for me

> 1 1/2 weeks ago. my neuro says that i have weakness in my soft

> palatte. it results in a hissing noise when i speak. in the early

> parts of the day, only i can hear it. but as the day progresses, it

> becomes audible. i've been in swallow therapy, and i cannot cough

> normally anymore. my swallow therapist says that i am doing great,

> but now came this. if anyone has had this, what was done for this? can

> anything be done? best to all,

>

> joanna

>

>

>

>

>

>

>

>

[Guest guest]

i don't really slur much. i did for a month here a month there but my

problem is with misswallows. either food drink or saliva go down my

trachea, and i cough violently( but it's hardly a cough. i lost the

ability to cough normally 5 months ago) until i settle down. what the

speech pathologist told me( i am in therapy with him, bio-feedback)

was that when we swallow our larynx rises to close our airway, and the

muscle responsible for this is weakened. this is a scary one because

if one of my next symptoms is continued problems in this area, there

is nothing that can be done that is not radical and just a chance at a

short extension on ones life. i really hate this disease.

joanna