Naltrexone and Lyme Disease Questions...

[Guest guest]

Hi. I have been on LDN since Aug 2005. It has helped me tremendously,

but I still often deal with a good bit of pain, neurological stuff,

and fatigue. Also, since taking LDN my platelets crashed to 13,000

(but later went back up) and I seem to deal with much more easy

bruising with multiple and massive bruises. Remarkably, I have been

able to give up pain meds since Naltrexone. That was unthinkable

previously. I seem to think more clearly now and keep track of my

life better. While I do still have neurological problems, they have

lessoned since LDN overall. The one symptom that worsened since LDN

is fasciculations. I have had them throughout the day since LDN. This

has not abated in the 6+ months I have taken it.

My question is this: are you sure that Naltrexone has no use in

Lyme's disease? My Dr. now thinks that is what I have. I have been

tested and retested for MS and they are confident that I do not have

it. Lyme is the only thing now that remotely makes sense. But I am

curious as to how Naltrexone could help me because I have read that

it has no use in Lyme's. If Naltrexone strenghten's the immune

system, wouldn't that help my immune system fight Lyme's? Or, do you

think the fact that Naltrexone has helped me is indicative that I am

not dealing with Lyme's at all.

I have been frustrated since my symptoms are quite varied and don't

seem to 100% fall into 1 category. Any thoughts or guesses are

appreciated.

[Guest guest]

>

> Hi. I have been on LDN since Aug 2005. It has helped me tremendously,

> but I still often deal with a good bit of pain, neurological stuff,

> and fatigue. Also, since taking LDN my platelets crashed to 13,000

> (but later went back up) and I seem to deal with much more easy

> bruising with multiple and massive bruises. Remarkably, I have been

> able to give up pain meds since Naltrexone. That was unthinkable

> previously. I seem to think more clearly now and keep track of my

> life better. While I do still have neurological problems, they have

> lessoned since LDN overall. The one symptom that worsened since LDN

> is fasciculations. I have had them throughout the day since LDN. This

> has not abated in the 6+ months I have taken it.

>

> My question is this: are you sure that Naltrexone has no use in

> Lyme's disease? My Dr. now thinks that is what I have. I have been

> tested and retested for MS and they are confident that I do not have

> it. Lyme is the only thing now that remotely makes sense. But I am

> curious as to how Naltrexone could help me because I have read that

> it has no use in Lyme's. If Naltrexone strenghten's the immune

> system, wouldn't that help my immune system fight Lyme's? Or, do you

> think the fact that Naltrexone has helped me is indicative that I am

> not dealing with Lyme's at all.

>

> I have been frustrated since my symptoms are quite varied and don't

> seem to 100% fall into 1 category. Any thoughts or guesses are

> appreciated.

>

========

You can have Lyme and an autoimmune problem at the same time. Some people with

Lyme have had to come off the LDN in the beginning since the LDN was making

matters much worse but many months later after proper lyme treatment was able to

add the LDN back in as an immune system protector.

Get yourself tested for Lyme and get it behind you and off your mind if you test

negative.

Some here and at GoodShape's can help you with their lyme and LDN stories.