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Re: Re: NEW SYMPTOMS - Any advice?

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Hi , as stated a moment ago in another e-mail that I sent regarding

antibiotics:

" My daughter is at a college and her medial center puts her on antibiotics

for anything. Nothing was getting better for her, just worse (ear

infections and bladder infections). I finally went up there and got her on

a bunch of immune boosters from Longs Drug store (Zink with Echinacea,

acidophilus & garlic) and told here to alternate between them each day.

Also for bladder infections she is now taking cranberry juice and she is

doing much better than she did on the antibiotics. "

Aletha

[low dose naltrexone] Re: NEW SYMPTOMS - Any advice?

> HI Wesley,

> Thanks for your thoughts. I have been having some discomfort behind

> my ears. If it is a sinus infection, how does one treat this

> without antibiotics?

> THANKS!

>

>

>>

>> Possibilities that have been mentioned by some are sinus

> infection,

>> dental infection, recent dental work, even if successful, the

> culprit

>> *possibly* being the local anethesia, and stress. My wife

> recently had

>> yet another sinus infection that presented none of the ordinary

> symptoms

>> except fatigue and bloody tissue after blowing her nose. No

> drainage,

>> pain, headaches, congestion. This time it was in her ears, too.

> This

>> has been a recurring problem for her. Presumably, she doesn't

> realize

>> it's happening because she's semi-numb in her sinuses due to MS.

> Are

>> any of these issues affecting you?

>>

>> julespalaia wrote:

>>

>> >HI

>

>> >

>> >

>> >

>>

>

>

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's infections get so bad we don't mess around and she does

antibiotics. Yes, they are harsh and have many side effects and

problems, but they beat the alternatives when it gets bad. A *few*

thoughts...

I eat sunflower seeds in the shell when long distance driving. We love

to travel by driving and I do all the driving so can rest. I put

several in my mouth, shell them in my mouth, etc. Fidgeting with them

helps keep me awake and alert. When I eat too many for too long, the

salt regularly invokes sinus infections in me. I think it's because it

dries the tissue. Saline nasal spray helps. Not medicated, just a salt

solution of the same ionic concentration as in the human body. Winter

heat, whatever the means except maybe all solar, makes indoor air very

dry. Drying of our mucous tissues makes them less effective at fighting

air borne infection. We always sleep with a vaporizer on all winter. I

personally prefer vaporizers over humidifiers because they have no

moving parts and they make a warm mist. Humidifiers do the same job.

Some advocate pumping moisture into the air 24 hours a day in winter.

I've had a few mishaps w/ water filled electrical devices running

unattended :) and so no longer do so.

If you have a doctor you trust and have the means, it might be worth a

visit. The last bout for , our new doctor cringed when he looked

into 's ear canals. He was concerned her condition was on the

verge of bursting her ear drums. She didn't feel any pain in her ears

at the time.

Checking the size and tenderness of the glands in your neck, or having a

friend do it, is a good indicator. Healthy they're hard to find. With

an infection in the head area, they can be almost as big as a walnut and

very sore. Hope this helps.

julespalaia wrote:

>HI Wesley,

> Thanks for your thoughts. I have been having some discomfort behind

>my ears. If it is a sinus infection, how does one treat this

>without antibiotics?

>THANKS!

>

>

>

>

>

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,

I can offer my wife's experiences. Beyond that, I've read little

regarding new symptoms while on LDN versus progression. Sorry, you are

struggling with this. Is your official diagnosis relapsing remitting or

progressive? I have read that others noticed no benefit from LDN until

after as long as 9 months. There may be some for which the time frame

is longer, but I can't quote that for sure.

is relapsing remitting. For her, improvements were immediate and

they continued until summer 2005, 12 months after starting LDN. I've

posted this before, so for those who see this as redundant, my

apologies. The summer was unusually hot which I think started an

exacerbation for . From the time I woke up one morning and decided

it was time to move to the most beautiful place we've ever been instead

of just talking about it until it was done was less than 4 months --

very STRESSFUL (it was my decision because 's the impulsive one and

was already chomping at the bit). My opinion is the stress more than

anything induced the worst exacerbation she has ever had, while still on

LDN, despite the great things it had done for her. For 6 weeks after

the move was done, she hoped rest and relaxation would cure her, but it

did not. The exacerbation included one major symptom she had never had

before, the " MS hug " , numbness and a feeling of constriction around the

mid-section. It did take IV steroids to bring her back around, but the

" new " symptom is gone completely along with all the exacerbation related

symptoms and most she's ever had. Maybe she could have pulled out of it

w/out steroids if she weren't so far gone already. She's both very

stubborn and hates the steroids, not that I blame her.

Stress is a killer for anyone, 10 times as much for one with MS. Not to

pry, but maybe at least ask yourself is there unusual stress in your

life lately that you can take steps to reduce? Maybe even a

subconscious stressor(s)? Hope this helps -- I don't feel like I quite

said what I wanted to.

julespalaia wrote:

>--- In low dose naltrexone , " Bren " <b63powell@...>

>wrote:

>

>

>>

>>

>>>>Do you have any other thoughts on my new symptoms? Am I right

>>>>

>>>>

>in

>

>

>>>assuming that this means progression has not stopped? If so,

>>>

>>>

>what

>

>

>>>should my next step be?

>>>

>>>THANKS TO ANYONE WITH ADVICE!

>>>

>>>JUlia

>>>

>>>

>>>

>>Is your liquid LDN made from pure naltrexone powder or dissolved

>>

>>

>ReVia? If it's the ReVia consider getting you liquid LDN in pure

>naltrexone powder.

>

>

>>

>>

>>

>>

>, I get my 1.5mg tablets from Skips. I believe they are

>Naltrexone mixed with avicel. Would I just ask Skip for pure

>naltrexone?

>

>ANYONE- It seems no one wants to reply to my queries about MS

>progression. Is it likely that I am just going to be one of the

>people LDN is not going to help? HAs there been any past discussion

>or experience with new symptoms with minimal progression?

>Thanks.

>

>

>

>

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