New here

[Guest guest]

Hi! My name is Jen, and I'm new here. A friend just told me about LDN

as a possible treatment for Fibromyalgia, and told me to come here to

check it out.

A little bit about me...as I said, I have Fibromyalgia, triggered by a

very severe reaction to the antibiotic Levaquin, followed by a 2 month

bout of colitis from a pre-op dose of another antibiotic, Ancef. The

Levaquin also caused chronic tendonitis and peripheral

neuropathy....needless to say, I steer clear of antibiotics anymore! I

also have sacroiliitis, which is a chronic inflammation and dysfunction

of the sacroiliac joints, as well as bipolar II disorder. Oh, and I

have PLMD, or periodic limb movement disorder, which is similar to

Restless Leg Syndrome.

I have to take a lot of meds and supplements to keep myself

functional. Currently, I am taking Celexa, Lyrica, and Celebrex as

daily meds, Klonopin at night for the PLMD, and Oxycontin, Soma, and

Lidoderm patches for the pain and spasms. I also take a daily multi,

flax seed oil, and Fibroplex (a specialized supplement for Fibro

containing magnesium, malic acid, manganese, and 2 B-vitamins). I've

also had 2 sets of nerve root blocks for the SI joint problem, both a

miserable failure. I just quit taking Plaquenil because I was fed up

with my hair falling out. My C-reactive protein level stays at " high

normal " to elevated all the time, and no one seems to know why.

Needless to say, I am not happy with my current treatment....especially

on those days when I'm wracked with pain and nothing I have is

helping. I'm also not thrilled with having to rely on a strong

narcotic just to be able to work. So when my friend told me that I

should research LDN, it led me here.

I would love to hear from people who are taking it for Fibro, and how

it's working for you. Was it hard to convince your doctor to prescribe

it? Is there any literature I can print out and take to my doctor to

explain to him what it is, and how it works? I would appreciate ANY

information, or being pointed to where I can more info about the use of

LDN for Fibro. This really sounds like a treatment I would like to

try!

Thanks in advance,

Jen