Where to get LDN

[Guest guest]

Thanks so much for you story and quick response. What's scary is not being able to walk any distance. I have seen 6, yes, 6 neurologists. I have a feeling it's just not showing up yet?? I paid for 3 of the neurologists. My mom and I have spent $7,000 on traveling expenses, tests, etc. out of pocket. I have Kaiser (LOUSY insurance, incompetent docs.)

Hope you get some answers too. Annette

[Guest guest]

You are the bomb!!!! I live 2 miles from West Covina. I'll call Monday. Do you know if I need an MS diagnosis to get LDN from him? Do you have MS? If so, are you having any sucess with the LDN? Thanks a million for your reply!!!!

[Guest guest]

Hi all. I am new here, and I don't yet have a diagnosis, but it looks

and feels like a very aggressive PPMS. Symptoms came on sudden in

April 2005, and I already have very numb rearend and stiffnes

everywhere and crampy calves. Feeling harder to walk any distance. No

attacks, just getting worse.

Anybody know where I can get LDN here in Los Angeles California?? I

am anxious to get anything to slow progression.

All my tests have been negative, VEP, LP and all MRI's. My

grandmother had PPMS, very bad case. It's so frustrating because the

doctors act like nothing is wrong with me because of the tests.

Anybody heard of an experience like this?? Had most recent MRI's in

December. Mom and I will pay for more here soon, but how long should I

wait, 3 months? 6 months? Wonder why nothing is showing up and I

have soooo many bad symptoms. Any advice or experiences would be so

helpful to me. Sincerely, Annette

[Guest guest]

Hi Annette,

This is as close as I remember anyone having a neuro in the southern

part of the state. There are others farther north, and I'm in the San

Joaquin Valley along with several others.

Hope this helps.

Jim

(cap'n caveman)

Neurologist who has prescribed LDN.Dr. Geleris West Covina. CA 626-331-6411

[low dose naltrexone] Where to get LDN

[Guest guest]

Annette,

I understand how you feel. I have been having my symptons for years,

but because of bad insurance, I rarely go to the doctor, so he seems

to think that I don't have a problem, because I don't come see him

that much...(seems like my deliquent account would prove to him I

can't afford it..those little orange stickers demanding money are

SOOOO scary).

I am not so definate in what I have(but we are leaning towards lupus

and/or scar tissue). Keep going. Track your symptoms, make a journal

if you need to. Also, start checking what foods you eat(like, are

your symptoms worse when you eat chocolate or consume caffiene?). If

you can start figuring out triggers and helpers, you may not worry

as much. All these things may seem tedious, but they can show the

doctor things you may not be telling him when you go. Also, you may

want to try some stress relief. Your worries about being sick can

increase your symptoms, making things worse (I learned from this

site that stress is apparantly a cause for flare ups in MS and

Lupus, it can make symptoms worse)You sound like you are on the

right track going for the LDN. If it helps you, great. But don't let

that be your only verification...LDN helps SO much stuff. My father

just wanted me to see if I could get a script for LDN, and not worry

about finding out what's wrong(I have overactive bladder and IBS, so

I have reason enough there to get it), but, I don't think he

understands how I feel. I know how horrible it is not knowing, and

feeling like no one believes you. Does your insurance allow for

another doctor? Perhaps getting a second opinion? I wish you luck!

Anri

>

> Hi all. I am new here, and I don't yet have a diagnosis, but it

looks

> and feels like a very aggressive PPMS. Symptoms came on sudden in

> April 2005, and I already have very numb rearend and stiffnes

> everywhere and crampy calves. Feeling harder to walk any

distance. No

> attacks, just getting worse.

> Anybody know where I can get LDN here in Los Angeles

California?? I

> am anxious to get anything to slow progression.

> All my tests have been negative, VEP, LP and all MRI's. My

> grandmother had PPMS, very bad case. It's so frustrating because

the

> doctors act like nothing is wrong with me because of the tests.

> Anybody heard of an experience like this?? Had most recent MRI's

in

> December. Mom and I will pay for more here soon, but how long

should I

> wait, 3 months? 6 months? Wonder why nothing is showing up and

I

> have soooo many bad symptoms. Any advice or experiences would be

so

> helpful to me. Sincerely, Annette

>

[Guest guest]

Wow....I will pray for you!

Are there any gentle stretches that help(don't do anything too

extreme...would hate to have more damage caused)? I lay with my legs

indian style to get relief at night...(can't do it for

long...circulation cuts off..but it provide temporary relief..enough

to help me relax some.....knee joints don't like it...but I ignore

them )?

The only reason I was able to find any answers, supplements, and

stretches is because my uncle is a pharmacist, and my father READS a

LOT of nutritional information. I can't imagine I would have lasted

this long without them....Please stay with the list..they have so much

helpful stuff here, some one is bound to help you get some relief for

now with their suggestions and methods!

Anri

>

> Thanks so much for you story and quick response. What's scary is

not being

> able to walk any distance. I have seen 6, yes, 6 neurologists. I

have a

> feeling it's just not showing up yet?? I paid for 3 of the

neurologists. My mom

> and I have spent $7,000 on traveling expenses, tests, etc. out of

pocket. I

> have Kaiser (LOUSY insurance, incompetent docs.)

> Hope you get some answers too. Annette

>

[Guest guest]

You can order from:

www.medsmex.com

50mgs of Revia from Mexico

Lillian

fjennings@...

fldofdrms@...

[low dose naltrexone] Where to get LDN

> Hi all. I am new here, and I don't yet have a diagnosis, but it looks

> and feels like a very aggressive PPMS. Symptoms came on sudden in

> April 2005, and I already have very numb rearend and stiffnes

> everywhere and crampy calves. Feeling harder to walk any distance. No

> attacks, just getting worse.

> Anybody know where I can get LDN here in Los Angeles California?? I

> am anxious to get anything to slow progression.

> All my tests have been negative, VEP, LP and all MRI's. My

> grandmother had PPMS, very bad case. It's so frustrating because the

> doctors act like nothing is wrong with me because of the tests.

> Anybody heard of an experience like this?? Had most recent MRI's in

> December. Mom and I will pay for more here soon, but how long should I

> wait, 3 months? 6 months? Wonder why nothing is showing up and I

> have soooo many bad symptoms. Any advice or experiences would be so

> helpful to me. Sincerely, Annette

>

>

>

>

>

>

>

[Guest guest]

Hi Annette,

I haven't read your whole situation but upon this

message I feel I should let you know that I was

getting the same way with my walking. My Dr had

prescibed me home physical therapy so that I wouldn't

have to travel. At first I thought he was just trying

to screw the ins comp. but when I met with the

therapist, she evaluated me and came to a conclusion

that I should start out by practicing to sit on one of

those large excercise balls.Let me tell you!! That

was the best thing that was ever told to me! I

started sitting on it. The learn to be able to lean

from side to side. and raise your foot off the floor

(one at a time of course). Point being it helps you

regain your balance. I haven't had my cane in a week.

its is definately worth the 11-20 dollars (depending

on brand) to try this and maybe start working very

gradually on this........also try to have someone

around to assist you at first....if you can't do

this next to a couch for stability.

--- annette464@... wrote:

> Thanks so much for you story and quick response.

> What's scary is not being

> able to walk any distance. I have seen 6, yes, 6

> neurologists. I have a

> feeling it's just not showing up yet?? I paid for 3

> of the neurologists. My mom

> and I have spent $7,000 on traveling expenses,

> tests, etc. out of pocket. I

> have Kaiser (LOUSY insurance, incompetent docs.)

> Hope you get some answers too. Annette

>

__________________________________________________

[Guest guest]

Thanks a million!!

[Guest guest]

Thanks. I planned on asking my doc for physical therapy next visit. Annette

[Guest guest]

Thanks a million!!

[Guest guest]

Don't wait another week. Find a compassionate and open minded physician to

write you a script for 3.0 LDN. Get it from Skip's in Boca Raton Florida.

Get your self on turmeric, a large amount of fishoil (4000mg), lecithin,

Alpha lipoic acid, a good multi like Longevital, cut out sweets , gluten

dairy and basically eat protein, fruit veggies, nuts and brown rice. I can

give you more info on another protocol if you e-mail me personally. It is

not anything I profit from either except for the joy of sharing it with

another person. Control this thing before it controls you. Don't listen to

your doctor. They have not studied the condition the way many of us have in

this chat. They are prescriptions writers and tell people the same things

over and over. We know now there are at least four different kinds of ms.

The doctors just want to write the script and send you on your way. You have

a body to preserve. Don't get on the meds right away if at all. Give your

body a chance to do what God intended it to do. HEAL. Blessings, Kathy

[low dose naltrexone] Where to get LDN

> Hi all. I am new here, and I don't yet have a diagnosis, but it looks

> and feels like a very aggressive PPMS. Symptoms came on sudden in

> April 2005, and I already have very numb rearend and stiffnes

> everywhere and crampy calves. Feeling harder to walk any distance. No

> attacks, just getting worse.

> Anybody know where I can get LDN here in Los Angeles California?? I

> am anxious to get anything to slow progression.

> All my tests have been negative, VEP, LP and all MRI's. My

> grandmother had PPMS, very bad case. It's so frustrating because the

> doctors act like nothing is wrong with me because of the tests.

> Anybody heard of an experience like this?? Had most recent MRI's in

> December. Mom and I will pay for more here soon, but how long should I

> wait, 3 months? 6 months? Wonder why nothing is showing up and I

> have soooo many bad symptoms. Any advice or experiences would be so

> helpful to me. Sincerely, Annette

>

>

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