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hi all. a cou8ple of months ago, i posted regarding symptoms. thank

you to all who replied. unfortunately, it seems that the exacerbation

is still with me. i had raised the LDN to 5 mgs for only one night

because i got so sick the following day, and for the whole day. other

than being extremely nauseated, i felt great compared to normal. now i

can't seem to focus my eyes. everything is blurry, i can't even see

the computer screen clearly anymore. problem is that i cannot tolerate

steroids which knocked out the optic neuritis earlier in my disease. i

am now considered allergic to steroids. everyone here is so good at

supplements and such so i am wondering if there is something tyhat

might make a difference. thanks in advance for reading my post.

joanna

PS- thanks althea and paul. DL-phenylalanine is a good thing: )

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  • 1 month later...
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Hi Polly . . .

I'm originally from South Dakota! . . . It's bit cold

up there right now, isn't it?

Knowing people in that part of the country, I have a

feeling that, if you gather information from our

archives and take it to a ND plastic surgeon, AND IF

you find him/her receptive to discussing the en

bloc/capsule/drain issue AND the surgeon commits to

doing the surgery properly, you should have a winner.

Ladies - there are so few folks in the Dakotas and

word spreads so rapidly if they don't treat each other

right, it would make ones head spin!

Polly, it's likely that, even though I left SD in

1955, we know some people in common! . . . Here in

Arkansas, we are friends with one couple who taught

one of my HS teachers . . . another who taught two of

my HS classmates in college! SD/ND is a very small

place,population wise! One of my classmates (son)

handbuilt a wooden church in the style used in Norway

many years ago. You're probably familiar with it.

Hugs and prayers,

Rogene

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