Re: LDN - UK National Institute for Neurology -

[Guest guest]

Iain,

Please see about contacting Dr. ce's office. At least ask them who

you can call that will prescribe. He is in England. Also contact the LDN

Research Trust site from England that is trying to get testing done, they

may be able to help.

http://www.ldnresearchtrust.org

The other option is that maybe will know of someone as she is in

Ireland. If it were me, it would be worth taking a holiday over there to

get a scrip.

I would do what ever I could to try LDN first. I don't think I would do any

trials of new drugs first. What if LDN is the help that you need. It was a

miracle for my husband. I am so glad that he did not try the new drug that

ended up killing a few people. (I cant remember the name, was it Tisari?).

Let me know if there is anything else that I can do to help. I think I sent

you a welcome e-mail for LDN, but if not just let me know and I will send it

right along.

Thanks

Aletha

[low dose naltrexone] LDN - UK National Institute for Neurology -

>I have been trying for over 12 months to get a sympathetic GP or

> Consultant to prescribe LDN as an off-licence, informed consent

> medication with no luck to date. Because I continued to ask the

> questions I was referred to our National Hospital for Neurology

> (used to be 'Nervous Diseases')to see an eminent Professor in the

> field. As expected, I suppose, the bottom line response is " I

> cannot support or recommend any treatment which has not been the

> subject of clinical trials and published research " . Consequently at

> times of overspent budgets on NHS prescriptions, there is no chance

> of me getting a prescribing practitioner locally.

>

> The really sad thing is that this applies to all treatments

> including stem cell thertapy even though Cambridge is well advanced,

> or even the world leader, in the development of 'Regenerative

> Medicine'.

>

> I was offered Amantedine as an attempt to deal with fatigue but on

> reading his note to my GP snd the comment " has not YET become

> incontinent " , that's not all I have to worry about!

>

> Does any one have experience of taking LDN at the same time as

> Amantedine?

>

> (Perhaps I will persue Advanced Cell Therapeutics anyway. 19,000

> Euros is after all, only money and I understand that they will offer

> a rebate in certain cases.)

>

> The good news is that I have been invited to trials on new

> medication designed to stop the progress of the disease and this

> will involve a minimum of 5 MRI scans over 2 or 3 years. It will

> probably also mean that I have to NOT take LDN even if I can get it

> from MedsMex and compound it myself. The good second bit of news is

> that if the first trial is unsuccsessful, I have been offered a

> second trial of a cannabinoid derivitive!

>

> Roll on I say!

>

> Iain

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

If you are referring to the drug amantadine used for Parkinsons and as an

anti-viral (and maybe other uses too), my husband (with Parkinsons) was

on amantadine while on LDN, but we dropped the amantadine after awhile as

the LDN gave some symptomatic relief and the amantadine seemed to cause

some unwanted side effects. He quit taking the amantadine and took

selegeline with better result and still continued the LDN.

Kathie

On Sun, 19 Feb 2006 19:07:51 -0000 " Iain " <pages@...> writes:

>>

> Does any one have experience of taking LDN at the same time as

> Amantedine?

>

> Roll on I say!

>

> Iain

[Guest guest]

No it was Tysabri.

It is coming back in June 2006. But only can be taken by itself once a

month by IV not with any other injectionable A. B, C, R drug MS therapy.

Ken

[low dose naltrexone] LDN - UK National Institute for Neurology -

>

>

> >I have been trying for over 12 months to get a sympathetic GP or

> > Consultant to prescribe LDN as an off-licence, informed consent

> > medication with no luck to date. Because I continued to ask the

> > questions I was referred to our National Hospital for Neurology

> > (used to be 'Nervous Diseases')to see an eminent Professor in the

> > field. As expected, I suppose, the bottom line response is " I

> > cannot support or recommend any treatment which has not been the

> > subject of clinical trials and published research " . Consequently at

> > times of overspent budgets on NHS prescriptions, there is no chance

> > of me getting a prescribing practitioner locally.

> >

> > The really sad thing is that this applies to all treatments

> > including stem cell thertapy even though Cambridge is well advanced,

> > or even the world leader, in the development of 'Regenerative

> > Medicine'.

> >

> > I was offered Amantedine as an attempt to deal with fatigue but on

> > reading his note to my GP snd the comment " has not YET become

> > incontinent " , that's not all I have to worry about!

> >

> > Does any one have experience of taking LDN at the same time as

> > Amantedine?

> >

> > (Perhaps I will persue Advanced Cell Therapeutics anyway. 19,000

> > Euros is after all, only money and I understand that they will offer

> > a rebate in certain cases.)

> >

> > The good news is that I have been invited to trials on new

> > medication designed to stop the progress of the disease and this

> > will involve a minimum of 5 MRI scans over 2 or 3 years. It will

> > probably also mean that I have to NOT take LDN even if I can get it

> > from MedsMex and compound it myself. The good second bit of news is

> > that if the first trial is unsuccsessful, I have been offered a

> > second trial of a cannabinoid derivitive!

> >

> > Roll on I say!

> >

> > Iain

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Lain, I've tryed amantadine but it did nothing for me. I can't

think of any reason why you couldn't take ldn and amantadine.

Amantadine is an ativiral med. primarily used for parkinsons. It

was found to help some mser's with fatigue. Provigil worked better

for me.

Take Care

> I have been trying for over 12 months to get a sympathetic GP or

> Consultant to prescribe LDN as an off-licence, informed consent

> medication with no luck to date. Because I continued to ask the

> questions I was referred to our National Hospital for Neurology

> (used to be 'Nervous Diseases')to see an eminent Professor in the

> field. As expected, I suppose, the bottom line response is " I

> cannot support or recommend any treatment which has not been the

> subject of clinical trials and published research " . Consequently

at

> times of overspent budgets on NHS prescriptions, there is no

chance

> of me getting a prescribing practitioner locally.

>

> The really sad thing is that this applies to all treatments

> including stem cell thertapy even though Cambridge is well

advanced,

> or even the world leader, in the development of 'Regenerative

> Medicine'.

>

> I was offered Amantedine as an attempt to deal with fatigue but on

> reading his note to my GP snd the comment " has not YET become

> incontinent " , that's not all I have to worry about!

>

> Does any one have experience of taking LDN at the same time as

> Amantedine?

>

>

[Guest guest]

Thanks Ken,

Yes it was Tysabri. I would never want my husband to be a guinea pig.

Especially after what happened. And there is no need anyways as the LDN has

worked so very well for him.

Aletha

[low dose naltrexone] LDN - UK National Institute for Neurology -

>>

>>

>> >I have been trying for over 12 months to get a sympathetic GP or

>> > Consultant to prescribe LDN as an off-licence, informed consent

>> > medication with no luck to date. Because I continued to ask the

>> > questions I was referred to our National Hospital for Neurology

>> > (used to be 'Nervous Diseases')to see an eminent Professor in the

>> > field. As expected, I suppose, the bottom line response is " I

>> > cannot support or recommend any treatment which has not been the

>> > subject of clinical trials and published research " . Consequently at

>> > times of overspent budgets on NHS prescriptions, there is no chance

>> > of me getting a prescribing practitioner locally.

>> >

>> > The really sad thing is that this applies to all treatments

>> > including stem cell thertapy even though Cambridge is well advanced,

>> > or even the world leader, in the development of 'Regenerative

>> > Medicine'.

>> >

>> > I was offered Amantedine as an attempt to deal with fatigue but on

>> > reading his note to my GP snd the comment " has not YET become

>> > incontinent " , that's not all I have to worry about!

>> >

>> > Does any one have experience of taking LDN at the same time as

>> > Amantedine?

>> >

>> > (Perhaps I will persue Advanced Cell Therapeutics anyway. 19,000

>> > Euros is after all, only money and I understand that they will offer

>> > a rebate in certain cases.)

>> >

>> > The good news is that I have been invited to trials on new

>> > medication designed to stop the progress of the disease and this

>> > will involve a minimum of 5 MRI scans over 2 or 3 years. It will

>> > probably also mean that I have to NOT take LDN even if I can get it

>> > from MedsMex and compound it myself. The good second bit of news is

>> > that if the first trial is unsuccsessful, I have been offered a

>> > second trial of a cannabinoid derivitive!

>> >

>> > Roll on I say!

>> >

>> > Iain

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >