Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 > > Doc and I decided to try LDN for mycotoxicosis (looks, acts like, and > is CFS - except that we know the cause in my case). I was on darvoset > for a long time, but had started to develop tolerance for it. I've > been on LDN at 4.5 mg for a week now. Pain control is incomplete even > with celebrex, and myoclonus is downright scary. What used to be legs > jumping at sleep time, or legs jerking when calves along shin were > touched has turned into crawly, itching skin and myoclonus of the > trunk strong enough to nearly put me right out of my chair. Limbs > jerk enough when asleep that it wakes me right up. > > I get that the darvon is a pretty ordinary treatment for both > myoclonus and pain, but now I'm without it. I wouldn't be bothered if > the symptoms were only mild. I could live with that. And I liked the > idea of not taking any mind or mood-altering drugs at all. But the > symptoms are worse than they ever were before. I'm not necessarily > blaming the LDN, but I've got to be able to get some effective pain > control and treatment for the myoclonus back in place - and by all > reports, the LDN is actually going to be in my way, since the darvon > is a mild opiate. Absolutely can't do any ergot alkyloids. > > So. There it is. I need to do something, and quickly. Any > suggestions? > ========== This is not uncommon at all for long-term opiate users when they start LDN. You need to start with 1.5mg LDN for 1 month then up to 2.0mg for 1 month and then to 2.5mg for 2 to 3 to 4 weeks and then up to 3.0mg for 2 to 3 months and then try upping from there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi " Pushcrash " , I looked up Myolonus on the net and my understanding is that it means mussel twitching, is that right? One strange thing that seems to be working for many people for pain and spasms has been to put a bar of soap in bed with you near the areas that are affected. Don't use Dove or Dial. But apparently all other soaps work. So many people have said they have been surprised but really it worked. is right that it seems that it takes longer for LDN to work in most people that have been taking opiates. So just hang in there. You have made a good choice to give LDN a try. If you would like, I can send you a copy of the " welcome e-mail " for LDN. It is mainly geared for MS, but you might find some helpful info in there for your condition. Take care, and we are all here with you. Keep us posted Aletha [low dose naltrexone] Increased Myoclonus > Doc and I decided to try LDN for mycotoxicosis (looks, acts like, and > is CFS - except that we know the cause in my case). I was on darvoset > for a long time, but had started to develop tolerance for it. I've > been on LDN at 4.5 mg for a week now. Pain control is incomplete even > with celebrex, and myoclonus is downright scary. What used to be legs > jumping at sleep time, or legs jerking when calves along shin were > touched has turned into crawly, itching skin and myoclonus of the > trunk strong enough to nearly put me right out of my chair. Limbs > jerk enough when asleep that it wakes me right up. > > I get that the darvon is a pretty ordinary treatment for both > myoclonus and pain, but now I'm without it. I wouldn't be bothered if > the symptoms were only mild. I could live with that. And I liked the > idea of not taking any mind or mood-altering drugs at all. But the > symptoms are worse than they ever were before. I'm not necessarily > blaming the LDN, but I've got to be able to get some effective pain > control and treatment for the myoclonus back in place - and by all > reports, the LDN is actually going to be in my way, since the darvon > is a mild opiate. Absolutely can't do any ergot alkyloids. > > So. There it is. I need to do something, and quickly. Any > suggestions? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 YES. THE BAR OF SOAP WORKS. HAVE NO RHYM OR REASON, BUT I USE IT IN MY BED AT HOME AND IN MY RV WHEN WE GO PLACES. WOULDN'T BE WITHOUT IT. DR. GOTT WROTE AN ARTICLE IN OUR FRESNO BEE IN FRESNO, CA. ABOUT THE SOAP REMEDY WORKING. NOTHING TO LOSE BY TRYING. GOOD LUCK. GOD BLESS. -- Re: [low dose naltrexone] Increased Myoclonus Hi "Pushcrash",I looked up Myolonus on the net and my understanding is that it means mussel twitching, is that right?One strange thing that seems to be working for many people for pain and spasms has been to put a bar of soap in bed with you near the areas that are affected. Don't use Dove or Dial. But apparently all other soaps work. So many people have said they have been surprised but really it worked. is right that it seems that it takes longer for LDN to work in most people that have been taking opiates. So just hang in there. You have made a good choice to give LDN a try.If you would like, I can send you a copy of the "welcome e-mail" for LDN. It is mainly geared for MS, but you might find some helpful info in there for your condition.Take care, and we are all here with you.Keep us postedAletha [low dose naltrexone] Increased Myoclonus> Doc and I decided to try LDN for mycotoxicosis (looks, acts like, and> is CFS - except that we know the cause in my case). I was on darvoset> for a long time, but had started to develop tolerance for it. I've> been on LDN at 4.5 mg for a week now. Pain control is incomplete even> with celebrex, and myoclonus is downright scary. What used to be legs> jumping at sleep time, or legs jerking when calves along shin were> touched has turned into crawly, itching skin and myoclonus of the> trunk strong enough to nearly put me right out of my chair. Limbs> jerk enough when asleep that it wakes me right up.>> I get that the darvon is a pretty ordinary treatment for both> myoclonus and pain, but now I'm without it. I wouldn't be bothered if> the symptoms were only mild. I could live with that. And I liked the> idea of not taking any mind or mood-altering drugs at all. But the> symptoms are worse than they ever were before. I'm not necessarily> blaming the LDN, but I've got to be able to get some effective pain> control and treatment for the myoclonus back in place - and by all> reports, the LDN is actually going to be in my way, since the darvon> is a mild opiate. Absolutely can't do any ergot alkyloids.>> So. There it is. I need to do something, and quickly. Any> suggestions?>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 It seems to me I read somewhere an article about valtrex and myoclonus. Not sure though - maybe worth a google though. Valtrex has been very effective against my CFS. > > YES. THE BAR OF SOAP WORKS. HAVE NO RHYM OR REASON, BUT I USE IT IN MY > BED AT HOME AND IN MY RV WHEN WE GO PLACES. WOULDN'T BE WITHOUT IT. DR. > GOTT WROTE AN ARTICLE IN OUR FRESNO BEE IN FRESNO, CA. ABOUT THE SOAP REMEDY > WORKING. NOTHING TO LOSE BY TRYING. GOOD LUCK. GOD BLESS. > > -- Re: [low dose naltrexone] Increased Myoclonus > > Hi " Pushcrash " , > > I looked up Myolonus on the net and my understanding is that it means mussel > > twitching, is that right? > One strange thing that seems to be working for many people for pain and > spasms has been to put a bar of soap in bed with you near the areas that are > > affected. Don't use Dove or Dial. But apparently all other soaps work. So > > many people have said they have been surprised but really it worked. > > is right that it seems that it takes longer for LDN to work in most > people that have been taking opiates. So just hang in there. You have made > > a good choice to give LDN a try. > > If you would like, I can send you a copy of the " welcome e-mail " for LDN. > It is mainly geared for MS, but you might find some helpful info in there > for your condition. > > Take care, and we are all here with you. > > Keep us posted > Aletha > > > > [low dose naltrexone] Increased Myoclonus > > > > Doc and I decided to try LDN for mycotoxicosis (looks, acts like, and > > is CFS - except that we know the cause in my case). I was on darvoset > > for a long time, but had started to develop tolerance for it. I've > > been on LDN at 4.5 mg for a week now. Pain control is incomplete even > > with celebrex, and myoclonus is downright scary. What used to be legs > > jumping at sleep time, or legs jerking when calves along shin were > > touched has turned into crawly, itching skin and myoclonus of the > > trunk strong enough to nearly put me right out of my chair. Limbs > > jerk enough when asleep that it wakes me right up. > > > > I get that the darvon is a pretty ordinary treatment for both > > myoclonus and pain, but now I'm without it. I wouldn't be bothered if > > the symptoms were only mild. I could live with that. And I liked the > > idea of not taking any mind or mood-altering drugs at all. But the > > symptoms are worse than they ever were before. I'm not necessarily > > blaming the LDN, but I've got to be able to get some effective pain > > control and treatment for the myoclonus back in place - and by all > > reports, the LDN is actually going to be in my way, since the darvon > > is a mild opiate. Absolutely can't do any ergot alkyloids. > > > > So. There it is. I need to do something, and quickly. Any > > suggestions? > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Some that have the feelings you describe are helped with the diazepams. Valium, xanax, loreazepam ect... The crawling, jerking and itching. Elavil an old antidepressant works well with some types of pain. They may sustain you until the ldn helps with your pain. Take Care > Doc and I decided to try LDN for mycotoxicosis (looks, acts like, and > is CFS - except that we know the cause in my case). I was on darvoset > for a long time, but had started to develop tolerance for it. I've > been on LDN at 4.5 mg for a week now. Pain control is incomplete even > with celebrex, and myoclonus is downright scary. What used to be legs > jumping at sleep time, or legs jerking when calves along shin were > touched has turned into crawly, itching skin and myoclonus of the > trunk strong enough to nearly put me right out of my chair. Limbs > jerk enough when asleep that it wakes me right up. > > I get that the darvon is a pretty ordinary treatment for both > myoclonus and pain, but now I'm without it. I wouldn't be bothered if > the symptoms were only mild. I could live with that. And I liked the > idea of not taking any mind or mood-altering drugs at all. But the > symptoms are worse than they ever were before. I'm not necessarily > blaming the LDN, but I've got to be able to get some effective pain > control and treatment for the myoclonus back in place - and by all > reports, the LDN is actually going to be in my way, since the darvon > is a mild opiate. Absolutely can't do any ergot alkyloids. > > So. There it is. I need to do something, and quickly. Any > suggestions? > Quote Link to comment Share on other sites More sharing options...
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