Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 > > Are LDN and Campath doable together? > > Does anyone know treatment plans for Campath? (i.e. How and how long is it taken? Is it forever or short-term? I haven't found this info on the net yet.) > > My neuro (a new NHS doctor whom I haven't seen before) has just changed my dx to 'Progressive Relapsing MS' and wants to sign me up for Campath treatment. He says I am 'beyond betaseron' (which is fine by me!). > > I've been on LDN since 10/1/05 and have gotten worse while on ir. (ReVia from medsmex mixed w/dist water. Took 4.5mg for about a month after working my way up to it quickly after starting out. Went down to 3.0mg for about the last 2 wks because of spasticity/stiffness. Now I have been off for 3 days because I am taking oral Pred 500mg/day for 5 days because I can no longer walk.) > > Info from a friend: Campath-1 is a totally different type of drug than what people are accustomed to. it's a " magic bullet " type therapy that only targets one >specific type of receptor. it is actually just an antibody that has been >altered so the patient's immune system doesnt think it's foreign. > > MS is generally thought of as an immune system disorder...your immune >systems start attacking your own neuron's protective coat. so to treat you >have to balance destruction of the immune system with allowing MS to >progress. Campath is simply a way of turning off the immune system by >shutting down a specific cell type. it is very potent...hence it's used in >immune system cancer treatment. since you become immunosupressed you need >to watch out for opportunistic infections, but some patients respond well to it. > > Thanks for info/opinions! > > > ======== When I started LDN I was Progressive-Relapsing for 14 years. I started out on 4.5mg LDN with my capsules made with Pure Naltrexone Powder so there would be no guessing as to whether or not I was getting the right amount of LDN with each dose. I tried to use only 3.0mg and my symptoms started to return so I immediately went back up. Most of us Progressive-relapsing usually only halt progression at the optimal dose of 4.5mg and even then sometimes that fails in PRMS. It's a shame you cannot tolerate 4.5mg but I understand about the stiffness problem. Is there any way you can get liquid LDN mixed with Pure Naltrexone Powder or if not could you possibly survive on 3.5mg or 3.75mg of the ReVia? Make sure your body is free of Candida as that will help also. Quote Link to comment Share on other sites More sharing options...
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