using ldn for ALS--great news!

February 28, 2006

I am in my ninth week of taking ldn. I was diagnosed with motor

neuron disease/ALS in November of '04.

I have felt that my ALS hasn't progressed since starting the ldn,

and over the last week or so I was noticing some increased tone in

my muscles...something that hasn't happened since almost a year

prior to my diagnosis.

Yesterday, I went ahead and measured my thigh muscles. In the last

two months, I have actually gained a 1/4 inch in circumference of my

left thigh, and 1/2 inch in the circumference of my right thigh. I

realize these could be incendental findings, but I did measure at

the same time during my menses cycle, and have had no dietary

changes so I doubt there is any chance of fluid retention affecting

the results. This is the only time that there has not been muscle

loss, let alone gain, since my diagnosis.

Since I started the ldn, I have been doing a light stretching/yoga

tape six days a week, and trying to ride a stationary bike three

minutes per day. However, prior to the ldn I was unable to do these

things.

I honestly believe that the combination of ldn and exercising is

perhaps arresting or even slightly turning back the course of my

disease! I would strongly encourage anyone with ALS to try the

ldn...I am not aware of anyone else who has actually stopped

progressing in this manner!

I was also thinking about all of you who have MS. Because it

generally is not a steady course like ALS, to me this is a good

indicator that the ldn works! We have been tracking my muscle

wasting by measurements as well as other means since diagnosis. In

some ways, I am fortunate to have a disease that can actually be

quantifiably measured in it's progression. So if it's causing

visible results with ALS, I would think it is doing something very

similar with MS!

Thanks for allowing me to share my good news!

Take Care,

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