Re: Fourth month on LDN - a little more

[Guest guest]

Hi Sheng, Having taken care of my mom who had cancer when I was seventeen I remember trying to learn all I could while at the same time feeling helpless to "make her better". That was a long time ago when there was no one to talk with, poor prognosis, little support and no computers~eeek! We've come a long way.......so, I'll throw a little more of what I learned so far, then I'll shut up until or if you ask. Pain, stiffness, and bowel and bladder problems seem to be pretty universal among MSers. Frequent UTIs often treated with antibiotics disrupts the natural flora and the cycle continues. Aletha, Bren and others have stressed to be watchful of candida yeast and posted the addy for candida test and remedy. The natural preventatives and remedies are much gentler on our compromised

systems. Promoting homeostasis in this manner appears to reduce the physical and emotional stress B & B problems cause. It has required some study and a few dietary changes but I am healthier for this than keeping on that doctor visit/antibiotic/nystatin wheel. I still slip up, end up at the doc. for UTI or sinus infection meds, but at least now, I, feel like I have more control and my doctor visits for these problems have become fewer as I've become more vigilant about testing, eating right and supplementing along with the LDN. Pain is a tough one, I too weaned from the pain meds, aspirin and masage with muscle rub or essential oils help me. I occasionally get a reduced dose shot for the worst pain in left hip. It's down from every two weeks through October 05' to last week being the first shot in three months. I'm trying to rebuild the dab of

cartilage left with twice daily Knox gelatin in juice. If it has worked for years on hair, nails and skin, it will work for joint cartilage as well. Stiffness..........I'm still stiff, some days better than others not necessarily dependent on what I did the day before! I can live with that. Faith, the need to continue parenting my teen son, my sideways humor, and having a supportive network (family, friends, LDNers) keeps me going. Hugs, Prayers and Laughter GigiSheng Lin <ssliun@...> wrote: Gigi: Thank you

for your email. It is always helpfulto know other's progress on LDN. It gives one hope tokeep going. I appreciate you sharing your experienceon LDN. From all indications, we know that we need togive LDN at least three months and my Mom is committedto doing it. She had a hard time to wean off narcoticsduring the first month. Right now, it is more of apain management issue. She also has issues withurination/bm controls and fatique. I was told thatstiff legs would go away after about three month. Sheis on 3 mg/night LDN from Skip's. With the support ofthis group, it is easier to travel down this road. Thanks and kind regards, Sheng Lin--- gigi held <georgina374@...> wrote:> Good Morning Sheng Lin, > > I am happy to know your mom slept better. Sleep> is refreshing and every gain is new hope.

That is> how it is for me. > > Each person is unique and each has a different> experience with LDN. I noticed cognitive benefits> first, after about a week I knew for certain I could> concentrate better. I increased my dosage a little> to fast and began feeling very stiff. My son called> me "enmom"......., so I backed down to 3mg and> have very gradually increased, now at 4mg for the> last couple of days.....so far so good. > > My energy level picked up gradually and I lost> that "constant exhaustion". I still have to rest,> but everything seems to be balancing and the> positive effects are kind of sneaking up on me as I> notice I'm able to do more.> > I don't think there is any way to determine who> will "turn the corner

when" since we are battling so> many different problems. I was guilty of looking at> my dropper of LDN like a magic potion at first, I'd> tell it, "OK now...tomorrow I'll be all> better".....then waking up still feeling like I'd> been in a stampede I realized it was the wrong> approach. > > Now I look at it kind of like weight loss, I> didn't gain it fast....so it will take a while to> get rid of it, but I have faith, I'm doing the right> things and I believe I'll get there!> > I hope this helps, I don't know how to better> explain it since it is different for each of us. I> hope your mom feels better and keeps positive.> > Hugs> > Gigi> > >

> ---------------------------------> > Use Photomail to share photos without annoyingattachments.__________________________________________________

[Guest guest]

Hi Gigi, Thank you for your kind email. What is in

your " shot " ? My Mom used to get the cortizone (sp?)

shot once a month or so. She hasn't had it since

starting LDN. She would dearly want a shot if

" allowed. " She is just toughing out the pain for now.

You have a great outlook on life. I must learn from

you. Thank you for your support. Warm regards, Sheng

--- gigi held <georgina374@...> wrote:

> Hi Sheng,

>

> Having taken care of my mom who had cancer when I

> was seventeen I remember trying to learn all I could

> while at the same time feeling helpless to " make her

> better " . That was a long time ago when there was no

> one to talk with, poor prognosis, little support and

> no computers~eeek! We've come a long way.......so,

> I'll throw a little more of what I learned so far,

> then I'll shut up until or if you ask.

>

> Pain, stiffness, and bowel and bladder problems

> seem to be pretty universal among MSers. Frequent

> UTIs often treated with antibiotics disrupts the

> natural flora and the cycle continues. Aletha, Bren

> and others have stressed to be watchful of candida

> yeast and posted the addy for candida test and

> remedy. The natural preventatives and remedies are

> much gentler on our compromised systems. Promoting

> homeostasis in this manner appears to reduce the

> physical and emotional stress B & B problems cause.

>

> It has required some study and a few dietary

> changes but I am healthier for this than keeping on

> that doctor visit/antibiotic/nystatin wheel. I

> still slip up, end up at the doc. for UTI or sinus

> infection meds, but at least now, I, feel like I

> have more control and my doctor visits for these

> problems have become fewer as I've become more

> vigilant about testing, eating right and

> supplementing along with the LDN.

>

> Pain is a tough one, I too weaned from the pain

> meds, aspirin and masage with muscle rub or

> essential oils help me. I occasionally get a

> reduced dose shot for the worst pain in left hip.

> It's down from every two weeks through October 05'

> to last week being the first shot in three months.

> I'm trying to rebuild the dab of cartilage left

> with twice daily Knox gelatin in juice. If it has

> worked for years on hair, nails and skin, it will

> work for joint cartilage as well.

>

> Stiffness..........I'm still stiff, some days

> better than others not necessarily dependent on what

> I did the day before! I can live with that. Faith,

> the need to continue parenting my teen son, my

> sideways humor, and having a supportive network

> (family, friends, LDNers) keeps me going.

>

> Hugs, Prayers and Laughter

>

> Gigi

>

> Sheng Lin <ssliun@...> wrote:

> Gigi: Thank you for your email. It is always

> helpful

> to know other's progress on LDN. It gives one hope

> to

> keep going. I appreciate you sharing your

> experience

> on LDN. From all indications, we know that we need

> to

> give LDN at least three months and my Mom is

> committed

> to doing it. She had a hard time to wean off

> narcotics

> during the first month. Right now, it is more of a

> pain management issue. She also has issues with

> urination/bm controls and fatique. I was told that

> stiff legs would go away after about three month.

> She

> is on 3 mg/night LDN from Skip's. With the support

> of

> this group, it is easier to travel down this road.

> Thanks and kind regards, Sheng Lin

>

> --- gigi held <georgina374@...> wrote:

>

> > Good Morning Sheng Lin,

> >

> > I am happy to know your mom slept better. Sleep

> > is refreshing and every gain is new hope. That is

> > how it is for me.

> >

> > Each person is unique and each has a different

> > experience with LDN. I noticed cognitive benefits

> > first, after about a week I knew for certain I

> could

> > concentrate better. I increased my dosage a

> little

> > to fast and began feeling very stiff. My son

> called

> > me " enmom " ......., so I backed down to 3mg

> and

> > have very gradually increased, now at 4mg for the

> > last couple of days.....so far so good.

> >

> > My energy level picked up gradually and I lost

> > that " constant exhaustion " . I still have to rest,

> > but everything seems to be balancing and the

> > positive effects are kind of sneaking up on me as

> I

> > notice I'm able to do more.

> >

> > I don't think there is any way to determine who

> > will " turn the corner when " since we are battling

> so

> > many different problems. I was guilty of looking

> at

> > my dropper of LDN like a magic potion at first,

> I'd

> > tell it, " OK now...tomorrow I'll be all

> > better " .....then waking up still feeling like I'd

> > been in a stampede I realized it was the wrong

> > approach.

> >

> > Now I look at it kind of like weight loss, I

> > didn't gain it fast....so it will take a while to

> > get rid of it, but I have faith, I'm doing the

> right

> > things and I believe I'll get there!

> >

> > I hope this helps, I don't know how to better

> > explain it since it is different for each of us. I

> > hope your mom feels better and keeps positive.

> >

> > Hugs

> >

> > Gigi

> >

> >

> >

> > ---------------------------------

> >

> > Use Photomail to share photos without annoying

> attachments.

>

>

> __________________________________________________

>

[Guest guest]

Hello Sheng Ling, Sorry for the long delay in answering, computer problems and away. I'm guilty! My "shot" is a reduced dose of corticosteroid and lidocain, it had been about three months since the last one and I just gave in. I had been doing more than I should have and I guess it aggravated the hip. I have to learn moderation even on days I feel better. Hope your mom is feeling better. Gigi Sheng Lin <ssliun@...> wrote: Hi Gigi, Thank you for your kind email. What is inyour "shot"? My Mom used to get the cortizone (sp?)shot once a month or so. She hasn't

had it sincestarting LDN. She would dearly want a shot if"allowed." She is just toughing out the pain for now.You have a great outlook on life. I must learn fromyou. Thank you for your support. Warm regards, Sheng--- gigi held <georgina374@...> wrote:> Hi Sheng, > > Having taken care of my mom who had cancer when I> was seventeen I remember trying to learn all I could> while at the same time feeling helpless to "make her> better". That was a long time ago when there was no> one to talk with, poor prognosis, little support and> no computers~eeek! We've come a long way.......so,> I'll throw a little more of what I learned so far,> then I'll shut up until or if you ask.> > Pain, stiffness, and bowel and bladder problems> seem to be pretty universal among

MSers. Frequent> UTIs often treated with antibiotics disrupts the> natural flora and the cycle continues. Aletha, Bren> and others have stressed to be watchful of candida> yeast and posted the addy for candida test and> remedy. The natural preventatives and remedies are> much gentler on our compromised systems. Promoting> homeostasis in this manner appears to reduce the> physical and emotional stress B & B problems cause.> > It has required some study and a few dietary> changes but I am healthier for this than keeping on> that doctor visit/antibiotic/nystatin wheel. I> still slip up, end up at the doc. for UTI or sinus> infection meds, but at least now, I, feel like I> have more control and my doctor visits for these> problems have become fewer as I've become more> vigilant about testing, eating right

and> supplementing along with the LDN.> > Pain is a tough one, I too weaned from the pain> meds, aspirin and masage with muscle rub or> essential oils help me. I occasionally get a> reduced dose shot for the worst pain in left hip.> It's down from every two weeks through October 05'> to last week being the first shot in three months. > I'm trying to rebuild the dab of cartilage left> with twice daily Knox gelatin in juice. If it has> worked for years on hair, nails and skin, it will> work for joint cartilage as well.> > Stiffness..........I'm still stiff, some days> better than others not necessarily dependent on what> I did the day before! I can live with that. Faith,> the need to continue parenting my teen son, my> sideways humor, and having a supportive

network> (family, friends, LDNers) keeps me going.> > Hugs, Prayers and Laughter> > Gigi> > Sheng Lin <ssliun@...> wrote:> Gigi: Thank you for your email. It is always> helpful> to know other's progress on LDN. It gives one hope> to> keep going. I appreciate you sharing your> experience> on LDN. From all indications, we know that we need> to> give LDN at least three months and my Mom is> committed> to doing it. She had a hard time to wean off> narcotics> during the first month. Right now, it is more of a> pain management issue. She also has issues with> urination/bm controls and fatique. I was told that> stiff legs would go away after about three month. > She> is on 3 mg/night LDN

from Skip's. With the support> of> this group, it is easier to travel down this road. > Thanks and kind regards, Sheng Lin> > --- gigi held <georgina374@...> wrote:> > > Good Morning Sheng Lin, > > > > I am happy to know your mom slept better. Sleep> > is refreshing and every gain is new hope. That is> > how it is for me. > > > > Each person is unique and each has a different> > experience with LDN. I noticed cognitive benefits> > first, after about a week I knew for certain I> could> > concentrate better. I increased my dosage a> little> > to fast and began feeling very stiff. My son> called> > me "enmom"......., so I backed down to 3mg> and> > have very gradually

increased, now at 4mg for the> > last couple of days.....so far so good. > > > > My energy level picked up gradually and I lost> > that "constant exhaustion". I still have to rest,> > but everything seems to be balancing and the> > positive effects are kind of sneaking up on me as> I> > notice I'm able to do more.> > > > I don't think there is any way to determine who> > will "turn the corner when" since we are battling> so> > many different problems. I was guilty of looking> at> > my dropper of LDN like a magic potion at first,> I'd> > tell it, "OK now...tomorrow I'll be all> > better".....then waking up still feeling like I'd> > been in a stampede I realized it was the wrong> > approach. > >

> > Now I look at it kind of like weight loss, I> > didn't gain it fast....so it will take a while to> > get rid of it, but I have faith, I'm doing the> right> > things and I believe I'll get there!> > > > I hope this helps, I don't know how to better> > explain it since it is different for each of us. I> > hope your mom feels better and keeps positive.> > > > Hugs> > > > Gigi> > > > > > > > ---------------------------------> > > > Use Photomail to share photos without annoying> attachments.> > > __________________________________________________>

[Guest guest]

Hi Gigi, Thanks for your email. My Mom uses Lidocain

patches on her lower back and hips to help her number

the pain a bit. She has Rheumatoid Arthritis and

MS-like symptoms. She is hanging in there. I just

hope that LDN helps her with her trips to the

bathrooms some, not to mention the pain. We know that

RA, MS, Crohns's (sp?), and interstitial cystitis...

are all auto immune illnesses. And many doctors use

the same immune suppressive meds to treat these

diseases. My Mom refused to use immune suppresive

drugs. Take care! Sheng-Shih

--- gigi held <georgina374@...> wrote:

> Hello Sheng Ling,

>

> Sorry for the long delay in answering, computer

> problems and away.

>

> I'm guilty! My " shot " is a reduced dose of

> corticosteroid and lidocain, it had been about three

> months since the last one and I just gave in. I had

> been doing more than I should have and I guess it

> aggravated the hip. I have to learn moderation even

> on days I feel better.

>

> Hope your mom is feeling better.

>

> Gigi

>

> Sheng Lin <ssliun@...> wrote:

> Hi Gigi, Thank you for your kind email. What is in

> your " shot " ? My Mom used to get the cortizone

> (sp?)

> shot once a month or so. She hasn't had it since

> starting LDN. She would dearly want a shot if

> " allowed. " She is just toughing out the pain for

> now.

> You have a great outlook on life. I must learn from

> you. Thank you for your support. Warm regards,

> Sheng

>

> --- gigi held <georgina374@...> wrote:

>

> > Hi Sheng,

> >

> > Having taken care of my mom who had cancer when

> I

> > was seventeen I remember trying to learn all I

> could

> > while at the same time feeling helpless to " make

> her

> > better " . That was a long time ago when there was

> no

> > one to talk with, poor prognosis, little support

> and

> > no computers~eeek! We've come a long

> way.......so,

> > I'll throw a little more of what I learned so far,

> > then I'll shut up until or if you ask.

> >

> > Pain, stiffness, and bowel and bladder problems

> > seem to be pretty universal among MSers. Frequent

> > UTIs often treated with antibiotics disrupts the

> > natural flora and the cycle continues. Aletha,

> Bren

> > and others have stressed to be watchful of candida

> > yeast and posted the addy for candida test and

> > remedy. The natural preventatives and remedies

> are

> > much gentler on our compromised systems.

> Promoting

> > homeostasis in this manner appears to reduce the

> > physical and emotional stress B & B problems cause.

> >

> > It has required some study and a few dietary

> > changes but I am healthier for this than keeping

> on

> > that doctor visit/antibiotic/nystatin wheel. I

> > still slip up, end up at the doc. for UTI or sinus

> > infection meds, but at least now, I, feel like I

> > have more control and my doctor visits for these

> > problems have become fewer as I've become more

> > vigilant about testing, eating right and

> > supplementing along with the LDN.

> >

> > Pain is a tough one, I too weaned from the pain

> > meds, aspirin and masage with muscle rub or

> > essential oils help me. I occasionally get a

> > reduced dose shot for the worst pain in left hip.

> > It's down from every two weeks through October 05'

> > to last week being the first shot in three months.

>

> > I'm trying to rebuild the dab of cartilage left

> > with twice daily Knox gelatin in juice. If it has

> > worked for years on hair, nails and skin, it will

> > work for joint cartilage as well.

> >

> > Stiffness..........I'm still stiff, some days

> > better than others not necessarily dependent on

> what

> > I did the day before! I can live with that.

> Faith,

> > the need to continue parenting my teen son, my

> > sideways humor, and having a supportive network

> > (family, friends, LDNers) keeps me going.

> >

> > Hugs, Prayers and Laughter

> >

> > Gigi

> >

> > Sheng Lin <ssliun@...> wrote:

> > Gigi: Thank you for your email. It is always

> > helpful

> > to know other's progress on LDN. It gives one

> hope

> > to

> > keep going. I appreciate you sharing your

> > experience

> > on LDN. From all indications, we know that we

> need

> > to

> > give LDN at least three months and my Mom is

> > committed

> > to doing it. She had a hard time to wean off

> > narcotics

> > during the first month. Right now, it is more of

> a

> > pain management issue. She also has issues with

> > urination/bm controls and fatique. I was told

> that

> > stiff legs would go away after about three month.

> > She

> > is on 3 mg/night LDN from Skip's. With the

> support

> > of

> > this group, it is easier to travel down this road.

>

> > Thanks and kind regards, Sheng Lin

> >

> > --- gigi held <georgina374@...> wrote:

> >

> > > Good Morning Sheng Lin,

> > >

> > > I am happy to know your mom slept better.

> Sleep

> > > is refreshing and every gain is new hope. That

> is

> > > how it is for me.

> > >

> > > Each person is unique and each has a different

> > > experience with LDN. I noticed cognitive

> benefits

> > > first, after about a week I knew for certain I

> > could

> > > concentrate better. I increased my dosage a

> > little

> > > to fast and began feeling very stiff. My son

> > called

> > > me " enmom " ......., so I backed down to 3mg

> > and

> > > have very gradually increased, now at 4mg for

> the

> > > last couple of days.....so far so good.

> > >

> > > My energy level picked up gradually and I lost

> > > that " constant exhaustion " . I still have to

> rest,

> > > but everything seems to be balancing and the

> > > positive effects are kind of sneaking up on me

> as

> > I

> > > notice I'm able to do more.

> > >

> > > I don't think there is any way to determine

> who

> > > will " turn the corner when " since we are

> battling

> > so

> > > many different problems. I was guilty of looking

> > at

> > > my dropper of LDN like a magic potion at first,

> > I'd

> > > tell it, " OK now...tomorrow I'll be all

> > > better " .....then waking up still feeling like

> I'd

> > > been in a stampede I realized it was the wrong

> > > approach.

> > >

> > > Now I look at it kind of like weight loss, I

> > > didn't gain it fast....so it will take a while

> to

> > > get rid of it, but I have faith, I'm doing the

> > right

> > > things and I believe I'll get there!

> > >

> > > I hope this helps, I don't know how to better

> > > explain it since it is different for each of us.

> I

> > > hope your mom feels better and keeps positive.

> > >

> > > Hugs

> > >

> > > Gigi

> > >

> > >

> > >

> > > ---------------------------------

> > >

> > > Use Photomail to share photos without annoying

> > attachments.

> >

> >

> > __________________________________________________

> >