Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Not 20 years, but my wife started LDN 8 years after official diagnosis, 13 years after she thinks the symptoms started and has had nearly miraculous improvements. She's been taking it for 19 months, now. keith kowalis wrote: >Jules & everyone else > I will keep you posted with my results. I did want to >mention, I also did the ELISA food allergy blood >tests, and it came back with yeast and dairy as my >worst delayed immune reactions. I have no problem >cutting out dairy, and have for years, but the yeast >thing is killing me. Have you ever eaten a piece of >bread without yeast or gluten. It's horrible. and no >beer or wine after 30 years, tough! Thanks for >responding. I know brenda has mentioned supplements >she takes to keep the yeast at bay. What do you take? >Also , I have no bad symptoms from yeast at all. I >just am trying to get my LDN to work better for me. >Been on 3 mg for over 2 months with no symptom >improvement. I know if it stops progression, I would >be thrilled, but I'm a little concerned about LDN with >people like me that have had MS for 16 to 20 years. >When I hear a lot of succcess stories, it seems they >are from people that have not had the disease that >long. I remember the old days. That is just part of >RRMS. If anyone else is listening and has a good >inspiring story about some good success with LDN after >20 years of problems, please let me know. I think I'm >a little down because I talked to my nuerologist >again, and he gives me LDN, but he pretty much feels >it's no better than the placebo factor helping certain >people and not others.. All he says is it won't hurt >you at all, so pretty much knock yourself out. oh >well. Thanks again. >keith > low dose naltrexone >wrote: > > > >>There are 25 messages in this issue. >> >>Topics in this digest: >> >> 1. LDN and compounding pharmacies >> From: " bentleyfam26 " >><mclarke@...> >> 2. Re: Idebenone >> From: " mykittypaws " >><mykittypaws@...> >> 3. Re: Where to get LDN >> From: " mykittypaws " >><mykittypaws@...> >> 4. Re: Increased Myoclonus >> From: " Bren " <b63powell@...> >> 5. Re: LDN for cancer >> From: " Bren " <b63powell@...> >> 6. Re: kallawalla >> From: " towneorcountry1 " >><richstar@...> >> 7. Re: Re: LDN for cancer >> From: Michele Crozier >><zookpr56@...> >> 8. Re: Increased Myoclonus >> From: " Aletha Wittmann " >><Aletha@...> >> 9. Re: Re: kallawalla >> From: " Aletha Wittmann " >><Aletha@...> >> 10. LDN - UK National Institute for Neurology - >> From: " Iain " <pages@...> >> 11. Re: Where to get LDN/OT >> From: " jsgarvin " <jsgarvin@...> >> 12. Re: Where to get LDN >> From: annette464@... >> 13. Re: Re: Where to get LDN >> From: annette464@... >> 14. Re: LDN - UK National Institute for >>Neurology - >> From: " Aletha Wittmann " >><Aletha@...> >> 15. Re: LDN - UK National Institute for >>Neurology - >> From: Kathie Arnold >><randkarnold1@...> >> 16. Re: Third week on LDN >> From: Ed Rojewski <edroj2@...> >> 17. Re: Where to get LDN >> From: annette464@... >> 18. Re: Third week on LDN >> From: " Aletha Wittmann " >><Aletha@...> >> 19. Re: Increased Myoclonus >> From: " ANITA PHILLIPS " >><hacksawpuf@...> >> 20. Re: Digest Number 1862 >> From: keith kowalis <wescokk@...> >> 21. Re: LDN - UK National Institute for >>Neurology - >> From: " Ken Nubile " >><Ken_nubile@...> >> 22. yeast test >> From: keith kowalis <wescokk@...> >> 23. Re: yeast test >> From: " julespalaia " >><julespalaia@...> >> 24. Re: Optic Neuritis >> From: " julespalaia " >><julespalaia@...> >> 25. Re: Increased Myoclonus >> From: " " <pomsaregreat@...> >> >> >> >> >> >________________________________________________________________________ > > >________________________________________________________________________ > > >>Message: 1 >> Date: Sun, 19 Feb 2006 14:12:49 -0000 >> From: " bentleyfam26 " <mclarke@...> >>Subject: LDN and compounding pharmacies >> >>If you're having trouble finding a doctor who will >>prescribe LDN, you >>might try calling your local compounding pharmacy. >>(No one has >>mentioned this for a while, so I thought I'd mention >>it again for the >>newer people who might be having trouble finding an >>LDN-friendly >>doctor.) >> >>LDN is made by a compounding pharmacy, not by your >>corner pharmacy. >>You can locate your nearest CP in the yellow pages, >>or by calling your >>regular pharmacy and asking for the names of the >>nearest CP. >> >>Call the CP, and ask to speak to the pharmacist. >>Ask if they have a >>moment to chat. If they do, ask if they have >>experience with Low >>Dose Naltrexone. (Many do, since LDN is used for >>other things besides >>MS.) Get a friendly conversation going. Ask what >>they use for >>filler, and what dosage they usually compound. >> >>Then, once this nice little chat is underway, you >>can ask if the >>pharmacist knows the names of any doctors who >>prescribe LDN for MS. >> >>I have not yet heard of any Compounding Pharmacist >>refusing this >>request. They will NEVER give you a patient's >>name... but giving out >>doctors' names just seems to be good business for >>everyone. >> >>Just a thought. >> >>Maureen (Gazorpa) >> >> >> >> >> >> >> >> >> >________________________________________________________________________ > > >________________________________________________________________________ > > >>Message: 2 >> Date: Sun, 19 Feb 2006 07:00:11 -0800 >> From: " mykittypaws " <mykittypaws@...> >>Subject: Re: Idebenone >> >>I take it everyday if i am not mistaken it is just >>another name for COQ10 and supplies ATP to the >>mitochondria of the cell membrane acting as a >>cellular rejuvenator and helps vascular conditions >>as well. I take 60 mgs a day of QGEL. It can be >>obtained from Swanson's vitamins. Kathy >> Re: [low dose naltrexone] Idebenone >> >> >> In a message dated 2/18/2006 12:59:46 P.M. Pacific >>Standard Time, akiba@... writes: >> Hello, >> >> I was wondering if anybody here might have some >>experience using >> Idebenone as a supplement. My girlfriend and I >>are trying to get her >> supplements together while we wait for our LDN >>from Medsmex (still >> haven't ordered it successfully, but we're still >>trying) and she's >> started taking DL-Phenylalanine and >>Benfotiamine. Any experience on >> this list with Idebenone either with or without >>these other >> supplements, or LDN use, specifically for MS? I >>became curious after >> reading some promising statements from the >>following link: >> >> http://internaf.org/ataxia/Idebenone_desc.html >> >> Thanks in advance, >> >> >> >> >> >> >> Where do you get it? >> Thank you >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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