Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Jules & everyone else I will keep you posted with my results. I did want to mention, I also did the ELISA food allergy blood tests, and it came back with yeast and dairy as my worst delayed immune reactions. I have no problem cutting out dairy, and have for years, but the yeast thing is killing me. Have you ever eaten a piece of bread without yeast or gluten. It's horrible. and no beer or wine after 30 years, tough! Thanks for responding. I know brenda has mentioned supplements she takes to keep the yeast at bay. What do you take? Also , I have no bad symptoms from yeast at all. I just am trying to get my LDN to work better for me. Been on 3 mg for over 2 months with no symptom improvement. I know if it stops progression, I would be thrilled, but I'm a little concerned about LDN with people like me that have had MS for 16 to 20 years. When I hear a lot of succcess stories, it seems they are from people that have not had the disease that long. I remember the old days. That is just part of RRMS. If anyone else is listening and has a good inspiring story about some good success with LDN after 20 years of problems, please let me know. I think I'm a little down because I talked to my nuerologist again, and he gives me LDN, but he pretty much feels it's no better than the placebo factor helping certain people and not others.. All he says is it won't hurt you at all, so pretty much knock yourself out. oh well. Thanks again. keith low dose naltrexone wrote: > There are 25 messages in this issue. > > Topics in this digest: > > 1. LDN and compounding pharmacies > From: " bentleyfam26 " > <mclarke@...> > 2. Re: Idebenone > From: " mykittypaws " > <mykittypaws@...> > 3. Re: Where to get LDN > From: " mykittypaws " > <mykittypaws@...> > 4. Re: Increased Myoclonus > From: " Bren " <b63powell@...> > 5. Re: LDN for cancer > From: " Bren " <b63powell@...> > 6. Re: kallawalla > From: " towneorcountry1 " > <richstar@...> > 7. Re: Re: LDN for cancer > From: Michele Crozier > <zookpr56@...> > 8. Re: Increased Myoclonus > From: " Aletha Wittmann " > <Aletha@...> > 9. Re: Re: kallawalla > From: " Aletha Wittmann " > <Aletha@...> > 10. LDN - UK National Institute for Neurology - > From: " Iain " <pages@...> > 11. Re: Where to get LDN/OT > From: " jsgarvin " <jsgarvin@...> > 12. Re: Where to get LDN > From: annette464@... > 13. Re: Re: Where to get LDN > From: annette464@... > 14. Re: LDN - UK National Institute for > Neurology - > From: " Aletha Wittmann " > <Aletha@...> > 15. Re: LDN - UK National Institute for > Neurology - > From: Kathie Arnold > <randkarnold1@...> > 16. Re: Third week on LDN > From: Ed Rojewski <edroj2@...> > 17. Re: Where to get LDN > From: annette464@... > 18. Re: Third week on LDN > From: " Aletha Wittmann " > <Aletha@...> > 19. Re: Increased Myoclonus > From: " ANITA PHILLIPS " > <hacksawpuf@...> > 20. Re: Digest Number 1862 > From: keith kowalis <wescokk@...> > 21. Re: LDN - UK National Institute for > Neurology - > From: " Ken Nubile " > <Ken_nubile@...> > 22. yeast test > From: keith kowalis <wescokk@...> > 23. Re: yeast test > From: " julespalaia " > <julespalaia@...> > 24. Re: Optic Neuritis > From: " julespalaia " > <julespalaia@...> > 25. Re: Increased Myoclonus > From: " " <pomsaregreat@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sun, 19 Feb 2006 14:12:49 -0000 > From: " bentleyfam26 " <mclarke@...> > Subject: LDN and compounding pharmacies > > If you're having trouble finding a doctor who will > prescribe LDN, you > might try calling your local compounding pharmacy. > (No one has > mentioned this for a while, so I thought I'd mention > it again for the > newer people who might be having trouble finding an > LDN-friendly > doctor.) > > LDN is made by a compounding pharmacy, not by your > corner pharmacy. > You can locate your nearest CP in the yellow pages, > or by calling your > regular pharmacy and asking for the names of the > nearest CP. > > Call the CP, and ask to speak to the pharmacist. > Ask if they have a > moment to chat. If they do, ask if they have > experience with Low > Dose Naltrexone. (Many do, since LDN is used for > other things besides > MS.) Get a friendly conversation going. Ask what > they use for > filler, and what dosage they usually compound. > > Then, once this nice little chat is underway, you > can ask if the > pharmacist knows the names of any doctors who > prescribe LDN for MS. > > I have not yet heard of any Compounding Pharmacist > refusing this > request. They will NEVER give you a patient's > name... but giving out > doctors' names just seems to be good business for > everyone. > > Just a thought. > > Maureen (Gazorpa) > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Sun, 19 Feb 2006 07:00:11 -0800 > From: " mykittypaws " <mykittypaws@...> > Subject: Re: Idebenone > > I take it everyday if i am not mistaken it is just > another name for COQ10 and supplies ATP to the > mitochondria of the cell membrane acting as a > cellular rejuvenator and helps vascular conditions > as well. I take 60 mgs a day of QGEL. It can be > obtained from Swanson's vitamins. Kathy > Re: [low dose naltrexone] Idebenone > > > In a message dated 2/18/2006 12:59:46 P.M. Pacific > Standard Time, akiba@... writes: > Hello, > > I was wondering if anybody here might have some > experience using > Idebenone as a supplement. My girlfriend and I > are trying to get her > supplements together while we wait for our LDN > from Medsmex (still > haven't ordered it successfully, but we're still > trying) and she's > started taking DL-Phenylalanine and > Benfotiamine. Any experience on > this list with Idebenone either with or without > these other > supplements, or LDN use, specifically for MS? I > became curious after > reading some promising statements from the > following link: > > http://internaf.org/ataxia/Idebenone_desc.html > > Thanks in advance, > > > > > > > Where do you get it? > Thank you > > > > Quote Link to comment Share on other sites More sharing options...
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