LDN - UK National Institute for Neurology -

[Guest guest]

Clearly what you do must be your decision, I would be very careful of being swayed by experts now that our govement has confirmed that key opinion leaders are in the pockets of the drug industry. The 'Influence of the Pharmaceutical Industry House of Commons Health Committee 5.4.05

http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/42/42.pdf

For the vast majority of people with MS LDN this is safe, effect and cheap and that is the only thing against it, the drug companies can not make any money out of it. If the house of commons report is taken seriously the drug industry is bribing the doctors to stop them prescribing it. It has been confirmed in the house of commons in March 2005 that any doctors can prescribe it for MS (just search for Low Dose Natrexone on the house of commons web site)

Fact:- many UK doctors are prescribing LDN for MS some on the NHS. NHS prescriptions are fulfilled by dales in Essex At about £1000 per year the rest of us who can only get private prescriptions pay £60 - £250. The vast majority of drugs routinely prescribed for MS in the UK have not been subject to clinical trials. You are being lied to.

If you want to try LDN then email me privately and I will do what I can to help. Medsmex is one of many routes you can use. Make sure you decide what to do about your problem, since you not the doctors will be left with the results.

Dave

Message: 10 Date: Sun, 19 Feb 2006 19:07:51 -0000 From: "Iain" <pages@...>Subject: LDN - UK National Institute for Neurology -I have been trying for over 12 months to get a sympathetic GP or Consultant to prescribe LDN as an off-licence, informed consent medication with no luck to date. Because I continued to ask the questions I was referred to our National Hospital for Neurology (used to be 'Nervous Diseases')to see an eminent Professor in the field. As expected, I suppose, the bottom line response is "I cannot support or recommend any treatment which has not been the subject of clinical trials and published research". Consequently at times of overspent budgets on NHS prescriptions, there is no chance of me getting a prescribing practitioner locally. The really sad thing is that this applies to all treatments including stem cell thertapy even though Cambridge is well advanced, or even the world leader, in the development of 'Regenerative Medicine'. I was offered Amantedine as an attempt to deal with fatigue but on reading his note to my GP snd the comment "has not YET become incontinent", that's not all I have to worry about! Does any one have experience of taking LDN at the same time as Amantedine?(Perhaps I will persue Advanced Cell Therapeutics anyway. 19,000 Euros is after all, only money and I understand that they will offer a rebate in certain cases.)The good news is that I have been invited to trials on new medication designed to stop the progress of the disease and this will involve a minimum of 5 MRI scans over 2 or 3 years. It will probably also mean that I have to NOT take LDN even if I can get it from MedsMex and compound it myself. The good second bit of news is that if the first trial is unsuccsessful, I have been offered a second trial of a cannabinoid derivitive!Roll on I say!