LDN - UK National Institute for Neurology -

[Guest guest]

I have been trying for over 12 months to get a sympathetic GP or

Consultant to prescribe LDN as an off-licence, informed consent

medication with no luck to date. Because I continued to ask the

questions I was referred to our National Hospital for Neurology

(used to be 'Nervous Diseases')to see an eminent Professor in the

field. As expected, I suppose, the bottom line response is " I

cannot support or recommend any treatment which has not been the

subject of clinical trials and published research " . Consequently at

times of overspent budgets on NHS prescriptions, there is no chance

of me getting a prescribing practitioner locally.

The really sad thing is that this applies to all treatments

including stem cell thertapy even though Cambridge is well advanced,

or even the world leader, in the development of 'Regenerative

Medicine'.

I was offered Amantedine as an attempt to deal with fatigue but on

reading his note to my GP snd the comment " has not YET become

incontinent " , that's not all I have to worry about!

Does any one have experience of taking LDN at the same time as

Amantedine?

(Perhaps I will persue Advanced Cell Therapeutics anyway. 19,000

Euros is after all, only money and I understand that they will offer

a rebate in certain cases.)

The good news is that I have been invited to trials on new

medication designed to stop the progress of the disease and this

will involve a minimum of 5 MRI scans over 2 or 3 years. It will

probably also mean that I have to NOT take LDN even if I can get it

from MedsMex and compound it myself. The good second bit of news is

that if the first trial is unsuccsessful, I have been offered a

second trial of a cannabinoid derivitive!

Roll on I say!

Iain