Increased Myoclonus

[Guest guest]

Doc and I decided to try LDN for mycotoxicosis (looks, acts like, and

is CFS - except that we know the cause in my case). I was on darvoset

for a long time, but had started to develop tolerance for it. I've

been on LDN at 4.5 mg for a week now. Pain control is incomplete even

with celebrex, and myoclonus is downright scary. What used to be legs

jumping at sleep time, or legs jerking when calves along shin were

touched has turned into crawly, itching skin and myoclonus of the

trunk strong enough to nearly put me right out of my chair. Limbs

jerk enough when asleep that it wakes me right up.

I get that the darvon is a pretty ordinary treatment for both

myoclonus and pain, but now I'm without it. I wouldn't be bothered if

the symptoms were only mild. I could live with that. And I liked the

idea of not taking any mind or mood-altering drugs at all. But the

symptoms are worse than they ever were before. I'm not necessarily

blaming the LDN, but I've got to be able to get some effective pain

control and treatment for the myoclonus back in place - and by all

reports, the LDN is actually going to be in my way, since the darvon

is a mild opiate. Absolutely can't do any ergot alkyloids.

So. There it is. I need to do something, and quickly. Any

suggestions?