Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Are seizures common with chiari? ________________________________ To: Sent: Tue, March 20, 2012 5:07:22 PM Subject: seizure like activity Hi Everyone, I've been having some different things happening. I don't remember days at a time, or get really confused. I had an EEG that showed tons of seizure activity, but I'm not showing the typical seizure symptoms. I had my neurostim turned on at that time. I just had another EEG without the neurostym off. I had just about as much activity. Has anyone had the same type of EEG? This time I was told it could be medication related. My local neurologist would like me to stop taking Neurontin, Nortriptyline, muscle relaxants, and Ambien. I only take 15 mg if oxycodone, and that is as needed. He also said with as much hardware as I have, that could be interrupting brain waves. Just confused, thanks in advance for any help that is sent. Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Are seizures common with chiari? ________________________________ I don't know if we have a higher rate of seizures than the normal population or not. I have talked to people that have seizures and have had them go away after a decompression, especially children. I will put that on our list to ask the experts. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I had the same sort of things. I knew when they were happening but my brain would totally blank out otherwise. I also had a lot of " brain wiping " where things would just suddenly be gone. I never had any tests for the seizures and never even mentioned them to my doctor's because they thought I was nuts already! Then I was in the ER once and suddenly started having them with the doctor standing right there! My thought was, " You need to stop! He's gonna think you've lost it! " But of course I couldn't do anything about it. The next morning, the released me without saying a word and a few days later told me they were letting me go as they'd done all they could. It was only when I got the hospital bill that I found out they had actually given me a anti-seizure medication in the ER. I continued to have them until decompression. After surgery they were worse for a while then slowly improved. 3 years later they very rarely occur. Cortney Quote Link to comment Share on other sites More sharing options...
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