Re: Newbie getting scripted today

[Guest guest]

Bret,

Two things. You need to get more sleep at night! You should be

getting more sleep.

You can't take Rebif or any of the interferons while taking LDN.

On Mar 9, 2006, at 2:56 AM, Brett wrote:

> Hi all,

> I just notice the group and joined this early a.m. I read about

> this stuff about a month ago. I have a few questions if anyone would

> like to help me. I'm know as a secondary progressive type. Diagnosed

> in

> 2002 still walking, but not far and with a cane. If you're reading

> this

> know the drill on some of the other side effects, so I won't bore with

> details.

>

> Does anyone think body weight might determine the best amount of LDN

> to

> take? What I read at the website and with testmonials is seems 3 mg is

> the ticket.

>

> I just told my doc about this last month and he is willing to script

> it

> for me. He has given it only one other patient and she reported nausia

> troubles and got off it.

>

> I am male, my body weight is 200 lbs. As you may see by the time code

> I'm pretty much a night owl with 5 hours a good nights sleep. Any

> thoughts or pointers you might like to share or suggestions on doeage.

> I was thinking start with 3mg and kick it up if nothing happens.

>

> Also I'm on Zanaflex and Rebif right now, anyone notice a conflict

> with

> those?

>

> Open and grateful for your thoughts and or suggestions.

>

> Brett

>

>

>

>

>

>

[Guest guest]

Brett,

I have been on ldn 4.5 mg for almost 3 yrs. I weight about 235. No

progression, the only side effect was interrupted sleep the first 2 or 3

weeks. Also vivid dreams during that time. Nothing negative. I am also

secondary.

There is a conflict with all the ms drugs except copaxone.

Regards,

Tom

[low dose naltrexone] Newbie getting scripted today

> Hi all,

> I just notice the group and joined this early a.m. I read about

> this stuff about a month ago. I have a few questions if anyone would

> like to help me. I'm know as a secondary progressive type. Diagnosed in

> 2002 still walking, but not far and with a cane. If you're reading this

> know the drill on some of the other side effects, so I won't bore with

> details.

>

> Does anyone think body weight might determine the best amount of LDN to

> take? What I read at the website and with testmonials is seems 3 mg is

> the ticket.

>

> I just told my doc about this last month and he is willing to script it

> for me. He has given it only one other patient and she reported nausia

> troubles and got off it.

>

> I am male, my body weight is 200 lbs. As you may see by the time code

> I'm pretty much a night owl with 5 hours a good nights sleep. Any

> thoughts or pointers you might like to share or suggestions on doeage.

> I was thinking start with 3mg and kick it up if nothing happens.

>

> Also I'm on Zanaflex and Rebif right now, anyone notice a conflict with

> those?

>

> Open and grateful for your thoughts and or suggestions.

>

> Brett

>

>

>

>

>

>

>

[Guest guest]

Hi Brett,

I will send you a " welcome e-mail " in a moment.

Aletha

[low dose naltrexone] Newbie getting scripted today

> Hi all,

> I just notice the group and joined this early a.m. I read about

> this stuff about a month ago. I have a few questions if anyone would

> like to help me. I'm know as a secondary progressive type. Diagnosed in

> 2002 still walking, but not far and with a cane. If you're reading this

> know the drill on some of the other side effects, so I won't bore with

> details.

>

> Does anyone think body weight might determine the best amount of LDN to

> take? What I read at the website and with testmonials is seems 3 mg is

> the ticket.

>

> I just told my doc about this last month and he is willing to script it

> for me. He has given it only one other patient and she reported nausia

> troubles and got off it.

>

> I am male, my body weight is 200 lbs. As you may see by the time code

> I'm pretty much a night owl with 5 hours a good nights sleep. Any

> thoughts or pointers you might like to share or suggestions on doeage.

> I was thinking start with 3mg and kick it up if nothing happens.

>

> Also I'm on Zanaflex and Rebif right now, anyone notice a conflict with

> those?

>

> Open and grateful for your thoughts and or suggestions.

>

> Brett

>

>

>

>

>

>

>

[Guest guest]

Thanks Aletha,

Got the welcome pack, but haven't had time to look into the links. A couple

of people posted that LDN conflicts with Rebif, but my doctor said there is

no conflict. Right now I have to go with his assessment, I know him and he

is a very leading edge MS neurologist here in Texas. (Unlike the first

three I went to.)

Does anyone here have personal experience doing LDN while on Rebif? I am

interested in your experience if you have been there done that. I hate to

get off the shots now that I'm used to them. Also I'm finishing the monthly

Solumedrol infusion this week, anyone think that I should wait a few days to

start the LDN?

Forgive my many questions, but I would love to hear from someone who has

actually done it, lived through it, not just hearsay opinions. Thanks to all

that responded to my post.

Brett

[low dose naltrexone] Newbie getting scripted today

>

>

>> Hi all,

>> I just notice the group and joined this early a.m. I read about

>> this stuff about a month ago. I have a few questions if anyone would

>> like to help me. I'm know as a secondary progressive type. Diagnosed in

>> 2002 still walking, but not far and with a cane. If you're reading this

>> know the drill on some of the other side effects, so I won't bore with

>> details.

>>

>> Does anyone think body weight might determine the best amount of LDN to

>> take? What I read at the website and with testmonials is seems 3 mg is

>> the ticket.

>>

>> I just told my doc about this last month and he is willing to script it

>> for me. He has given it only one other patient and she reported nausia

>> troubles and got off it.

>>

>> I am male, my body weight is 200 lbs. As you may see by the time code

>> I'm pretty much a night owl with 5 hours a good nights sleep. Any

>> thoughts or pointers you might like to share or suggestions on doeage.

>> I was thinking start with 3mg and kick it up if nothing happens.

>>

>> Also I'm on Zanaflex and Rebif right now, anyone notice a conflict with

>> those?

>>

>> Open and grateful for your thoughts and or suggestions.

>>

>> Brett

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

In a message dated 3/10/2006 3:10:12 A.M. Eastern Standard Time, bpforrester@... writes:

but my doctor said there is no conflict. Right now I have to go with his assessment, I know him and he is a very leading edge MS neurologist here in Texas.

Brett

Just wondering, how much did your doc know about low dose naltrexone (LDN) when you asked him about it? Has he prescribed it for other patients?

That would be great if he has had previous patients' experience with LDN. That would mean that we are finally getting to the allopathic doctors.

Be well

Arlene

[Guest guest]

Bret,

Rebif is a immune suppressant. LDN boosts the immune system. How

could they not conflict? I believe Dr. Bahiri (Spelling?) states on

his web site that one should not take the interferons with LDN. You

might want to print that out for your Doc and fax it to him.

All the best,

On Mar 10, 2006, at 3:09 AM, Brett wrote:

> Thanks Aletha,

> Got the welcome pack, but haven't had time to look into the links. A

> couple

> of people  posted that LDN conflicts with Rebif, but my doctor said

> there is

> no conflict. Right now I have to go with his assessment, I know him

> and he

> is a very leading edge MS neurologist  here in Texas. (Unlike the

> first

> three I went to.)

>

> Does anyone here have personal experience doing LDN while on Rebif? I

> am

> interested in your experience if you have been there done that. I

> hate to

> get off the shots now that I'm used to them. Also I'm finishing the

> monthly

> Solumedrol infusion this week, anyone think that I should wait a few

> days to

> start the LDN?

>

> Forgive my many questions, but I would love to hear from someone who

> has

> actually done it, lived through it, not just hearsay opinions. Thanks

> to all

> that responded to my post.

>

> Brett

>

>

> [low dose naltrexone] Newbie getting scripted today

> >

> >

> >> Hi all,

> >> I just notice the group and joined this early a.m. I read

> about

> >> this stuff about a month ago. I have a few questions if anyone

> would

> >> like to help me. I'm know as a secondary progressive type.

> Diagnosed in

> >> 2002 still walking, but not far and with a cane. If you're reading

> this

> >> know the drill on some of the other side effects, so I won't bore

> with

> >> details.

> >>

> >> Does anyone think body weight might determine the best amount of

> LDN to

> >> take? What I read at the website and with testmonials is seems 3

> mg is

> >> the ticket.

> >>

> >> I just told my doc about this last month and he is willing to

> script it

> >> for me. He has given it only one other patient and she reported

> nausia

> >> troubles and got off it.

> >>

> >> I am male, my body weight is 200 lbs. As you may see by the time

> code

> >> I'm pretty much a night owl with 5 hours a good nights sleep. Any

> >> thoughts or pointers you might like to share or suggestions on

> doeage.

> >> I was thinking start with 3mg and kick it up if nothing happens.

> >>

> >> Also I'm on Zanaflex and Rebif right now, anyone notice a conflict

> with

> >> those?

> >>

> >> Open and grateful for your thoughts and or suggestions.

> >>

> >> Brett

> >>

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Either your neuro doesn't know what he is talking about or he is

deliberately setting you up for failure so he can say " See, I told you

LDN wouldn't work! " . Neither way is good news........... :-(

Brett wrote:

> A couple of people posted that LDN conflicts with Rebif, but my

> doctor said there is no conflict. Right now I have to go with his

> assessment, I know him and he is a very leading edge MS neurologist

> here in Texas. (Unlike the first three I went to.)