Re: 5.0 freak out

[Guest guest]

Larry,

I'm not familiar with Wayne Dyer, but I practice meditation and

yoga. Is that similar? I think that's why the mood swings are so

atypical for me. I tend to be extremely centered so this is rather

distressing.

I'm glad the ldn is working so well for you!

Take Care,

--- In low dose naltrexone , " LarryGC " <larrygc@...>

wrote:

>

> I have those urges, but I've been absorbing Wayne Dyer's teachings

since 1993, so I return to center fairly quickly.

>

> Only in November 2003 was I called manic depressive.... po'd a lot

of people during that month. That was 7 months after starting.

>

> As time goes by, I love LDN and Me, more and more

[Guest guest]

Arlene,

That hadn't occurred to me. Perhaps there is some relation between

the mood swings and that and I are both on antidepressants

and ldn.

Thanks for mentioning that. It might be helpful if there could be a

poll that covered mood swings with ldn but also mood swings with ldn

and an antidepressant.

Take Care,

>

>

> In a message dated 3/17/2006 2:51:14 P.M. Eastern Standard Time,

> pomsaregreat@... writes:

>

> How would the elavil work against the ldn? I'm afraid to stop it

now but

> would if I knew the dynamics and understood them.

>

>

> Hi

> I don't know how the elavil would work against the ldn, but it

seems that

> both you and take anti-depressants, and you are both

going through

> these mood swings. I wonder if there is a correlation?

>

> I just wonder if there are other people on the ldn who also take

> anti-depressants, and don't have the mood swings?

>

> Maybe this could be a question on the poll. I have heard that

mood is

> usually elevated by the LDN.

>

> Arlene

>

[Guest guest]

Hi, I've been on 4.0 for three months and feel much better

physically. I have got enraged a few times, but I don't think it's

anything out of the ordinary. Definitely not a freak out.

The energy I have allows me to live normally, and I'm sure that

being fully aware, that anger might be more likely when taking LDN,

will help control it.

By the way: I'm also on the Best Bet Diet, but have cheated a few

times in the past weeks. I increasingly eat raw food too: I think

we need to maximise food-related positives as well as rely on LDN.

I'm more concerned about the problems concerning MedMex and Revia.

I can't rely on Japanese doctors to prescribe me LDN: they follow

rigid textbook formulae.

RW (in Tokyo)

[Guest guest]

Loraine,

I'm glad that you wrote. I'm sorry you're suffering from these

moods as well. They are very upsetting, and like you I am wondering

if there is anything that I can do to help this problem and yet stay

on the ldn.

It's interesting that you've never had depression until now, so it

may not be the combination of the antidepressants and ldn.

Hopefully someone out here as an answer for us. I really don't want

to stop the ldn.

Take Care,

>

> Hi

> I'd just like to add that I'm experiencing dreadful moods as well.

> I've been taking 4.5mg for 2 1/2 months. I started off great -

lots

> more energy and lots of get up and go. However over the last month

> my dark moods have gotten progressively worse and I don't seem to

> see the positives in much anymore, I also don't have the same

> patience with my 3 kids. My husband want's me to stop taking it as

> he thinks I'm very difficult to live with right now. I'd just like

> to understand why this is hapening and if there is anything I can

do

> about it without stoping the LDN. I'm not on anti-depressants and

> haven't had problems with depression in the past. I have never had

a

> disabling event but do suffer cognitive difficulty at times - I

> can't 'think on my feet' the way I used to.

>

> Loraine

[Guest guest]

--- In low dose naltrexone , " " <pomsaregreat@...>

wrote:

>

>

> Hi Crystal, I'm glad you had no problems with the ldn. I did go

down

> to 3mg. I was okay the first day and now I am back to the mood

swings

> and depression [] .

>

> I am curious as to how many people at this group are still on the

ldn?

> Meaning does everyone who is a member 2400 aproximately, still take

the

> ldn? I am just thinking that if I am experiencing mood swings and

> depression then more than 3 people who answered are experiancing it

> also.

>

> I wish there were some way to follow everyones experiances. I am

> questioning whether its safe for me to continue, so it's in my best

> interest to hear from others with the same problem. Maybe we can

find

> out how to rectify it.

>

> Thanks for answering Crystal!

>

> Take Care

>

--

,

I wouldn't automatically blame the LDN for your depression and mood

swings. It could be MS-related or maybe something else is going on?

Hope you feel better.

Artie

[Guest guest]

Hi , Hang In There Sweetie!!!! What other medications are you taking with the LDN? Are you taking anything with Opioid in it because anything such as Opioid Pain Killers or anything with Opioid in it will react against the LDN. Just a thought..... Always A Friend, Crystal <pomsaregreat@...> wrote: Hi Crystal, I'm glad you had no problems with the ldn. I did go down to 3mg. I was okay the first day and now I

am back to the mood swings and depression . I am curious as to how many people at this group are still on the ldn? Meaning does everyone who is a member 2400 aproximately, still take the ldn? I am just thinking that if I am experiencing mood swings and depression then more than 3 people who answered are experiancing it also. I wish there were some way to follow everyones experiances. I am questioning whether its safe for me to continue, so it's in my best interest to hear from others with the same problem. Maybe we can find out how to rectify it. Thanks for answering Crystal! Take Care > Hi Everyone,> I've had no problems with taking the LDN. I started out taking 3 mg for a few months then went up to 4.5 mg and no problems at all. Maybe you need to go back down to 3 mg and see how that does for you. Remember also that everyone is different and thing's effect everyone different. Did you have the same problem when you were taking just the 3 mg?> My MS &

TM WebSite www.crystalangel.org

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Hi , I looked up the side effects at the regular dose. Your bang on! Mood swings and depression are listed! Thanks so much for thinking of that! It also made me remember that earlier at a med. site it said not to mix elavil with ldn. Only trouble was it didn't say why!

Take Care > I think one of the side effects of taking Natrexone at full dose > (50MG) was a lack of feeling good or positive about things. I wonder > if some people might experience this even at lower doses.> >

[Guest guest]

Hi Ed, Thanks so much for answering! I hope you continue to have good success. How long have you been on it? Just be careful okay. The mood swings didn't hit me until month 3 and my increase to 4.5mg. I am now back down to 3mg. I hope it gets better.

Take Care > ,> I guess I'm one of the lucky ones. I've had no negative side effects. Over the last 4 weeks, I've had increased energy levels, better balance, less back pain. I've had no problems with depression or mood swings. Remember, LDN works for approximately 80% of those who use it. Good luck.> > Ed> > > pomsaregreat@... wrote:> Hi Crystal, I'm glad you had no problems with the ldn. I did go down to 3mg. I was okay the first day and now I am back to the mood swings and depression .> I am curious as to how many people at this group are still on the ldn? Meaning does everyone who is a member 2400 aproximately, still take the ldn? I am just thinking that if I am experiencing mood swings and depression then more than 3 people who answered are experiancing it also.> I wish there were some way to follow everyones experiances. I am questioning whether its safe for me to continue, so it's in my best interest to hear from others with the same problem. Maybe we can find out how to rectify it.> Thanks for answering Crystal!> Take Care > > > Hi Everyone,> > I've had no problems with taking the LDN. I started out taking 3 mg for a few months then went up to 4.5 mg and no problems at all. Maybe you need to go back down to 3 mg and see how that does for you. Remember also that everyone is different and thing's effect everyone different. Did you have the same problem when you were taking just the 3 mg?> >> > >

[Guest guest]

Believe me I doubt anyone could talk anyone out of these! It's not the type of think thats normal. I have never, ever experianced it and quite truthfully it scares the crap out of me.

I've never had mania or anything remotely close to it. I wish I had in a way. At least then I would know what I am up against!

Take Care :>> I have those urges, but I've been absorbing Wayne Dyer's teachings since 1993, so I return to center fairly quickly.> > Only in November 2003 was I called manic depressive.... po'd a lot of people during that month. That was 7 months after starting.> > As time goes by, I love LDN and Me, more and more>

[Guest guest]

Hi Arlene, I wish I knew the answer. Being that depression can be common with a chronic illness I am willing to bet quite a few people here are on an antidepresant. Also I am not taking elavil for it's antidepresant properties, I take it for pain. I wonder how many others are?

I would dump the elavil if I knew it would be the route to go now. I'm afraid to rock the boat.

Take Care >> I don't know how the elavil would work against the ldn, but it seems that > both you and take anti-depressants, and you are both going through > these mood swings. I wonder if there is a correlation?> > I just wonder if there are other people on the ldn who also take > anti-depressants, and don't have the mood swings?> > Maybe this could be a question on the poll. I have heard that mood is > usually elevated by the LDN.> > Arlene>

[Guest guest]

Thats what scares me. That someone feels that its appropriate given they have ms. Depression is a common symptom of ms because of what they disease does to your brain. That and situational. What isn't is, this rage and depression that came on, as a direct association with raising the ldn dose. Or shortly after starting it. This is not normal .>> I hope someone knows the answer too, . I hadn't even thought > about it being considered a symptom of the MS until you wrote that. > I have ALS, as you know, and mood swings or depression isn't one of > the symptoms of that disease.> > Crystal, I didn't go back to answer your e-mail and have gotten a > little lost. Did you drop your dosage yet, and if so, did it help? > I hate that you're going through this too.> > Take Care,> > > > > > > >> > > > My god ! I could have written this! I didn't realize it > had> > hit you this way! Hopefully someone somewhere knows the answer. > I know> > its not my ms or a figmant of my imagination.> > > > Take Care >

[Guest guest]

That could be it. I wish that article I read on ldn and elavil explained why you shouldn't take them together. I am also on celexa. I can't remember what antidepressant category they fall under. The elavil should not be hard to find out. If I find them I will post them.

Take Care >> I take Prozac with the LDN and my mood is good. There are different classes > of antidepressants so I'm wondering if it isn't a certain class that is > causing the mood changes when used in combination with the LDN?>

[Guest guest]

Hi Artie, Believe me I did not blame the ldn until I couldn't ignore it anymore. I so badly want to stay on it and have it work. The problem was I had not experianced mood swings before at all and my depression was fine until I increased to 4.5mg. I am also in contact with a few other ldn'ers who had to stop it due to depression. They told me about it but because everyone is so different, I figured it doesn't necessarily mean it will happen to me. I am now getting the I told ya so. I'm stubborn tho and plan to figure something out. I would think Dr. Bihari should know what to do? I can't help but think because this is happening to others that he must have come across it before in his practice.

Thanks for the well wishes.

Take Care > > > > --> > ,> > I wouldn't automatically blame the LDN for your depression and mood > swings. It could be MS-related or maybe something else is going on? > Hope you feel better.> > Artie>

[Guest guest]

Hi Crystal, Thanks sweetie I am hanging. Lol or trying. Before I started the ldn I was on tylenol 2's with codiene so I went off them and started the ldn a month later. I am not on anything opiate related. Thanks for the thought tho! Maybe we will find out certain antidepressants are?

Hugs >> Hi ,> Hang In There Sweetie!!!! What other medications are you taking with the LDN? Are you taking anything with Opioid in it because anything such as Opioid Pain Killers or anything with Opioid in it will react against the LDN. Just a thought.....> > Always A Friend,> Crystal> >

[Guest guest]

That is so good to hear that you are doing great Ed.

My best Aletha

.......................................

,

I guess I'm one of the lucky ones. I've had no negative side effects. Over the last 4 weeks, I've had increased energy levels, better balance, less back pain. I've had no problems with depression or mood swings. Remember, LDN works for approximately 80% of those who use it. Good luck.

Ed

[Guest guest]

I have been experiencing some of the same things you ladies are talking

about and I am going to keep a journal. I am going to do a few days on and

some days off to see if I can find a pattern and also see if I can relate it

to certain times of the month. It is a little disturbing as I am not

temperamental but it may be that I have to do 2.0mgs or something. I am not

even going to speculate at this point because it could just be another

symptom of a malfunctioning CNS.. Perhaps our immune systems do not have to

be regulated as much as other people but i am going to keep everyone posted

of my findings however relevant they maybe at least it may provide some type

of insight for a few of you out there. Best wishes, Kathy

[low dose naltrexone] Re: 5.0 freak out

> Hi

> I'd just like to add that I'm experiencing dreadful moods as well.

> I've been taking 4.5mg for 2 1/2 months. I started off great - lots

> more energy and lots of get up and go. However over the last month

> my dark moods have gotten progressively worse and I don't seem to

> see the positives in much anymore, I also don't have the same

> patience with my 3 kids. My husband want's me to stop taking it as

> he thinks I'm very difficult to live with right now. I'd just like

> to understand why this is hapening and if there is anything I can do

> about it without stoping the LDN. I'm not on anti-depressants and

> haven't had problems with depression in the past. I have never had a

> disabling event but do suffer cognitive difficulty at times - I

> can't 'think on my feet' the way I used to.

>

> Loraine

>

>

>

>

>>

>>

>> In a message dated 3/17/2006 2:51:14 P.M. Eastern Standard Time,

>> pomsaregreat@... writes:

>>

>> How would the elavil work against the ldn? I'm afraid to stop it

> now but

>> would if I knew the dynamics and understood them.

>>

>>

>> Hi

>> I don't know how the elavil would work against the ldn, but it

> seems that

>> both you and take anti-depressants, and you are both

> going through

>> these mood swings. I wonder if there is a correlation?

>>

>> I just wonder if there are other people on the ldn who also take

>> anti-depressants, and don't have the mood swings?

>>

>> Maybe this could be a question on the poll. I have heard that

> mood is

>> usually elevated by the LDN.

>>

>> Arlene

>>

>

>

>

>

>

>

>

>

[Guest guest]

I was also wondering that. I checked antidepressant drugs from

different classes to see if any of the are contra-indicated with

naltrexone at full dose, to see if that might work. I checked this at

drugs.com I didn't find any interaction at full dose naltrexone, but

perhaps there is at lower doses? I'm not sure.

Thanks for the idea!

>

> I take Prozac with the LDN and my mood is good. There are

different classes

> of antidepressants so I'm wondering if it isn't a certain class that

is

> causing the mood changes when used in combination with the LDN?

>

[Guest guest]

,

Given that I am also having these what I have now decided to

call " rages " for lack of a better term, I know what you mean. This

is definitely not a normal thing. I haven't experienced anything

like it before. I can't see that it could possibly be disease

related, given that I have had this illness for quite some time

now. Also, the fact that MS and ALS are very different diseases and

we seem to be describing the same symptoms.

I hope you find some answers as well.

Take Care,

>

> Thats what scares me. That someone feels that its appropriate

given

> they have ms. Depression is a common symptom of ms because of

what they

> disease does to your brain. That and situational. What isn't is,

this

> rage and depression that came on, as a direct association with

raising

> the ldn dose. Or shortly after starting it. This is not normal

[] .

[Guest guest]

Kathy,

That is a very good idea! Perhaps by experimentation and journaling

you can find something that might be causing these moods. Please

keep us updated as to what you find out...and good luck!

I have an appointment with my neurologist next Friday, and I hope he

might have some answers as well.

Take Care,

>

> I have been experiencing some of the same things you ladies are

talking

> about and I am going to keep a journal. I am going to do a few

days on and

> some days off to see if I can find a pattern and also see if I can

relate it

> to certain times of the month. It is a little disturbing as I am

not

> temperamental but it may be that I have to do 2.0mgs or something.

I am not

> even going to speculate at this point because it could just be

another

> symptom of a malfunctioning CNS.. Perhaps our immune systems do

not have to

> be regulated as much as other people but i am going to keep

everyone posted

> of my findings however relevant they maybe at least it may provide

some type

> of insight for a few of you out there. Best wishes, Kathy

[Guest guest]

I have been following the issue of LDN and MS for about two years since my wife started using it for MS with great success. There probably are a few people with MS that LDN does not work for and I suppose that is true of anything, but can I just suggest you give some though to mis diagnosis, in that the only reason for LDN not working so far reported is that people do not have MS but they have Lymes Disease. It is true that many who have now been diagnosed with Lymes Disease were originally diagnosed with MS, indeed if you ask questions on the Lyme and Rife message board you will probably be told as I was that MS does not exist and every one actually has Lyme which is much further than I would wish to go. The best book I found when checking the issue out for my wife was About Lyme Disease and Rife Machines (suppressed cancer cure from the 30's)

http://www.lymebook.com/

http://www.barrylynes.com/

Lyme-and-rife

Dave

Message: 5 Date: Fri, 17 Mar 2006 11:26:15 -0500 From: joanna epstein <zeet2000@...>Subject: Re: 5.0 freak outmy next manuver will be to go down a bit probably to 4mgs and see if it works that way. there has been a gradual increase in disability and symptoms for me. for 2 and a half months it was working like a charm. then the decline started. i was on 3 mgs then, so i increased to 3.5, then 4, and finally 4.5. now 4.5 seems to be a dose that my body is used to and so the disability proceeds.joanna[This message contained attachments]

[Guest guest]

Hi Kathy, Great idea! I would be interested in hearing or reading

your results. I wish I had the energy to do what you are doing. I

hurt my back and seem to be getting migraines without the headache.

So I can only read for so long then stop, take a break and come back.

I didn't take my ldn last night. I want to see if it stops the

headache type visual disturbances. Arghhhhhhh! Looks like a

migraine behaves like a migraine but no pain ;o0 Either the

previous ldn or elavil is masking that?

Take Care

>

> I have been experiencing some of the same things you ladies are

talking

> about and I am going to keep a journal. I am going to do a few

days on and

> some days off to see if I can find a pattern and also see if I can

relate it

> to certain times of the month. It is a little disturbing as I am

not

> temperamental but it may be that I have to do 2.0mgs or something.

I am not

> even going to speculate at this point because it could just be

another

> symptom of a malfunctioning CNS.. Perhaps our immune systems do

not have to

> be regulated as much as other people but i am going to keep

everyone posted

> of my findings however relevant they maybe at least it may provide

some type

> of insight for a few of you out there. Best wishes, Kathy

>

[Guest guest]

>,

I looked it up and it didn`t say anything about taking with anti

depressants. Where did you get this information? Do you think it is

just with full does naltrexone?This is so confusing. I wonder if a

doctor could answer this one. Help!

nne

>

> Hi , I looked up the side effects at the regular dose. Your

bang

> on! Mood swings and depression are listed! Thanks so much for

thinking

> of that! It also made me remember that earlier at a med. site it

said

> not to mix elavil with ldn. Only trouble was it didn't say why!

>

> Take Care

> > I think one of the side effects of taking Natrexone at full dose

> > (50MG) was a lack of feeling good or positive about things. I

wonder

> > if some people might experience this even at lower doses.

> >

> >

>

[Guest guest]

I am on paroxetine(generic Paxil)

I want to get off it. But its hard to do, ive heard. There are even support groups for ppltrying to get oof of it. Now that im on LDN i have hope, and since i started taking the DLP i feel much better-emotionally I mean.so Im thiking, if this continues maybe i wil lget the courage to slowly taper off the paxil.

Mood swings- ive had a very bad cold this last week, was barfing so didnt even try to take the DLP(those capsules are gigantic and there is no way i could have kept those down)abd since i stoppedthe DLP Ive felt weepy.I m going back on it today.Lets see if the weepy feeling goes away.So bottm line for me is :i think the DLP+LDN may help me to get off paxil

Nola in Calif

Re: [low dose naltrexone] Re: 5.0 freak out

In a message dated 3/17/2006 2:51:14 P.M. Eastern Standard Time, pomsaregreat@... writes:

How would the elavil work against the ldn? I'm afraid to stop it now but would if I knew the dynamics and understood them.

Hi

I don't know how the elavil would work against the ldn, but it seems that both you and take anti-depressants, and you are both going through these mood swings. I wonder if there is a correlation?

I just wonder if there are other people on the ldn who also take anti-depressants, and don't have the mood swings?

Maybe this could be a question on the poll. I have heard that mood is usually elevated by the LDN.

Arlene

[Guest guest]

LDN doesn't seem to have caused depression, it seems to have tamed and changed my depressionary feelings. More even keiled than ever before. I wouldn't say mood swings, but quick blips, and back. I felt it was SO much better than how things used to be.

[low dose naltrexone] Re: 5.0 freak out

Hi , I looked up the side effects at the regular dose. Your bang on! Mood swings and depression are listed! Thanks so much for thinking of that! It also made me remember that earlier at a med. site it said not to mix elavil with ldn. Only trouble was it didn't say why!

Take Care > I think one of the side effects of taking Natrexone at full dose > (50MG) was a lack of feeling good or positive about things. I wonder > if some people might experience this even at lower doses.> >

[Guest guest]

Hi nne,

I read it somewhere but can't find it. I'm sure you will be okay.

Most places say its compatiable. I am just trying to find out whats

causing me to feel this way. It may not be the elavil at all. I

did read it but the majority say its not a problem. I apologize if

I upset you. I sure didn't mean to.

Does anyone know who I could talk to?

Take Care

> >,

>

> I looked it up and it didn`t say anything about taking with anti

> depressants. Where did you get this information? Do you think it

is

> just with full does naltrexone?This is so confusing. I wonder if a

> doctor could answer this one. Help!

>

> nne

>

>

>

>

> >

> > Hi , I looked up the side effects at the regular dose.

Your

> bang

> > on! Mood swings and depression are listed! Thanks so much for

> thinking

> > of that! It also made me remember that earlier at a med. site

it

> said

> > not to mix elavil with ldn. Only trouble was it didn't say why!

> >

> > Take Care

> > > I think one of the side effects of taking Natrexone at full

dose

> > > (50MG) was a lack of feeling good or positive about things. I

> wonder

> > > if some people might experience this even at lower doses.

> > >

> > >

> >

>