Re: Quandary

[Guest guest]

Tess,

What about the cortisone shots? Are you able to do that? Some RA

sufferers get a lot of relief from that. Not as harsh on the stomach

that way. I used to do those but it got to where I was taking too many

to get any relief. B12 shots used to help me too. Can't get in to the

doc who used to do them or I would travel the 3 hours to have it done.

he wouldn't tell me what else he used probably fast acting cortisone

shots. Have you ever tried that. They helped me with the

inflammation. Of course all of this is temporary but trying to think

of some relief to buy time for you and your joints. I have been

watching what has been going on with you lately because I feel I am

right behind you. Only the high liver enzymes are keeping me off meds

this time. They won't go down. I am always at the doctor's office. I

have an appt tomorrow. Hopefully, they can tell me about the liver

enzymes, why they are staying high and what can I take to help with the

inflammation other than NSAIDs which I think is not helping with the

liver function.

Hopefully, your docs come up with something for you soon.

[Guest guest]

Sending healing thoughts your way.

Sierra

>

> Hi ... I saw my rheumy today. He is not a happy camper. He says

that my ra flare is severe and I have to get on my meds asap, or I

could have serious repercussions. We may have to try prednisone

again, though it also can make it difficult to heal (speaking of the

seroma), and in general prednisone has been almost a 100% no-no for

me. He aspirated a lot of fluid from my right knee, injected my left

wrist, and in the examination itself says things are changing rapidly

for the worse. The surgeon is not confident that I won't get an

infection, particularly if they have to insert a drain. Even with

the aspirations there is a chance of infection. So, Humira would be

risky at best. I have requested that the two dr's speak with each

other (they do know each other casually.) I feel caught between a

rock and a hard place. My right leg has not worked right since he

aspirated the fluid...it is stiff and hard to move...I don't recall

that happening after an aspiration before. I am hoping it will

resolve within a few hours.

>

> Sigh.

>

> Tess

>

>

[Guest guest]

OK Akiba,

You are on our tract now. We had similar close mindedness with LDN and our Nero. I have decided that we will go in when the 2nd year mark is over and tell her what we are doing. She does not know my husband got on it without her help. He has done great.

Your doctor is wrong, wrong wrong. If you just do what he wants you to do, then you would be like sheep and not think for your self.

I would ask you first doctor if you sign a waver, would he just let you try it for a few months and see how it goes. Give him the idea that you will go his direction if it does not work.

Aletha

[low dose naltrexone] Quandary

Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time "I'm trying to keep an open mind". SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all.

SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity

[Guest guest]

Horse poop is horse poop and probably always will be. I assume these

are your only 2 choices? My wife's last neurologist, before we moved,

wouldn't prescribe for the first 3 years we knew him. I asked about it

every visit, though. This was before I discovered this group and the

great resources available to help pursuade a doctor. The last time I

asked, he said he had prescribed it to 4 other patients and it's great.

Strangely, he wasn't going to offer it on his own since I asked as we

were leaving. We get Revia mail order, but I prefer to keep a nero that

prescribes in case that option is shut down by the feds. If I were in

your position, I would stick with Dr. I'll-string-you-along-for-awhile.

Akiba wrote:

> Ok all Y'all, I need some advice...I've been going to this Neuro for

> over a year, and I often wonder why, since he basically does nothing

> for me, we talk for a few minuted every three months or so and that's

> it, I have tried to get him to prescribe LDN, nope, nada, he just says

> the same thing every time " I'm trying to keep an open mind " . SO, I

> went to the only other Neuro in town, an older man who would have made

> a great ol'fashioned country Dr, buggy and all. He is a bit more

> proactive in his approach, is ordering new MRI's and even listened

> when I said it was too hard to do it all in one, so he is ordering

> three separate ones. All well, no? Except, when I mentioned LDN he

> basically called it horse poop. He likened us all to sheep who cannot

> think for ourselves but blindly follow whatever we hear someone else

> say, and strongly tried to talk me into Tysabri (thanks but NO THANKS)

> He said that until there is a double-blind study it is all a myth and

> there is NO PROOF it does any good at all.

> SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in

> a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN

> *myself* as soon as my order gets here BTW, I just will forget (you

> know our MS cognitive issues...we tend to forget these things) to

> mention it to either of them!!!

> Peace and Blessings

> ~*~ Akiba ~*~

> Pragmatic Visionary

> Thy Feet, My Feet

> Dance the Dance of Divinity

>

>

>

>

>

>

>

[Guest guest]

I think I will submit to the MRI's though, it has been a while and I'd Love a clear record of exactly where I am when I start it (LDN) Proof! But NONONO to the other meds!!! The thing that really concerns me about Tysabri (and he also poo-poo'd this) is this...if they stick you with a full month's worth of the stuff (at what? $1,500 or something equally outrageous??) and you have a bad reaction to it, then what? You die? End up in a coma? A nursing home? Thanks, I'll pass.

First Dr won't sign a waiver. I'll just do what I think is right...it is MY body after all...and tell him if/when the time is right.

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity

-- Re: [low dose naltrexone] Quandary

OK Akiba,

You are on our tract now. We had similar close mindedness with LDN and our Nero. I have decided that we will go in when the 2nd year mark is over and tell her what we are doing. She does not know my husband got on it without her help. He has done great.

Your doctor is wrong, wrong wrong. If you just do what he wants you to do, then you would be like sheep and not think for your self.

I would ask you first doctor if you sign a waver, would he just let you try it for a few months and see how it goes. Give him the idea that you will go his direction if it does not work.

Aletha

[Guest guest]

Yeah, those are the only two Neuro's in the area. WV is not conducive to finding the really good Dr's, if you know what I mean? They all go to 's Hopkins, about 90 miles away in Md.

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity

-- Re: [low dose naltrexone] Quandary

Horse poop is horse poop and probably always will be. I assume these are your only 2 choices? My wife's last neurologist, before we moved, wouldn't prescribe for the first 3 years we knew him. I asked about it every visit, though. This was before I discovered this group and the great resources available to help pursuade a doctor. The last time I asked, he said he had prescribed it to 4 other patients and it's great. Strangely, he wasn't going to offer it on his own since I asked as we were leaving. We get Revia mail order, but I prefer to keep a nero that prescribes in case that option is shut down by the feds. If I were in your position, I would stick with Dr. I'll-string-you-along-for-awhile.Akiba wrote:> Ok all Y'all, I need some advice...I've been going to this Neuro for > over a year, and I often wonder why, since he basically does nothing > for me, we talk for a few minuted every three months or so and that's > it, I have tried to get him to prescribe LDN, nope, nada, he just says > the same thing every time "I'm trying to keep an open mind". SO, I > went to the only other Neuro in town, an older man who would have made > a great ol'fashioned country Dr, buggy and all. He is a bit more > proactive in his approach, is ordering new MRI's and even listened > when I said it was too hard to do it all in one, so he is ordering > three separate ones. All well, no? Except, when I mentioned LDN he > basically called it horse poop. He likened us all to sheep who cannot > think for ourselves but blindly follow whatever we hear someone else > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) > He said that until there is a double-blind study it is all a myth and > there is NO PROOF it does any good at all.> SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN > *myself* as soon as my order gets here BTW, I just will forget (you > know our MS cognitive issues...we tend to forget these things) to > mention it to either of them!!! > Peace and Blessings> ~*~ Akiba ~*~> Pragmatic Visionary> Thy Feet, My Feet> Dance the Dance of Divinity> > >> > >>

[Guest guest]

We are now in a town of 3000 people. Green Bay is 30 miles away and the

closest town over 9500 people. We drive to Neenah, 60+ miles and 90

minutes away, to the closest neurologist that prescribes. We aren't

exactly pleased with their office policies and our next closest option

is in Milwaukee, 2 1/2 hours one way. Our new neighbor has cluster

headaches and fibromyalgia. She and her husband have advised us not to

bother with any neurologists in Green Bay. They've tried them all. If

they're correct, it rules out the most convenient options. Tough

decisions some of us have to make, unfortunately. The last neuro. where

we lived for many years was 3 miles from home and the best hospital in a

broad area was 1/2 mile from his office. From my perspective, s

Hopkins *only* 90 miiles away sounds promising.

Akiba wrote:

> Yeah, those are the only two Neuro's in the area. WV is not conducive

> to finding the really good Dr's, if you know what I mean? They all go

> to 's Hopkins, about 90 miles away in Md.

>

> Peace and Blessings

> ~*~ Akiba ~*~

> Pragmatic Visionary

> Thy Feet, My Feet

> Dance the Dance of Divinity

>

>

> -- Re: [low dose naltrexone] Quandary

>

> Horse poop is horse poop and probably always will be. I assume these

> are your only 2 choices? My wife's last neurologist, before we moved,

> wouldn't prescribe for the first 3 years we knew him. I asked about it

> every visit, though. This was before I discovered this group and the

> great resources available to help pursuade a doctor. The last time I

> asked, he said he had prescribed it to 4 other patients and it's great.

> Strangely, he wasn't going to offer it on his own since I asked as we

> were leaving. We get Revia mail order, but I prefer to keep a nero that

> prescribes in case that option is shut down by the feds. If I were in

> your position, I would stick with Dr. I'll-string-you-along-for-awhile.

>

> Akiba wrote:

>

> > Ok all Y'all, I need some advice...I've been going to this Neuro for

> > over a year, and I often wonder why, since he basically does nothing

> > for me, we talk for a few minuted every three months or so and that's

> > it, I have tried to get him to prescribe LDN, nope, nada, he just says

> > the same thing every time " I'm trying to keep an open mind " . SO, I

> > went to the only other Neuro in town, an older man who would have made

> > a great ol'fashioned country Dr, buggy and all. He is a bit more

> > proactive in his approach, is ordering new MRI's and even listened

> > when I said it was too hard to do it all in one, so he is ordering

> > three separate ones. All well, no? Except, when I mentioned LDN he

> > basically called it horse poop. He likened us all to sheep who cannot

> > think for ourselves but blindly follow whatever we hear someone else

> > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS)

> > He said that until there is a double-blind study it is all a myth and

> > there is NO PROOF it does any good at all.

> > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in

> > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN

> > *myself* as soon as my order gets here BTW, I just will forget (you

> > know our MS cognitive issues...we tend to forget these things) to

> > mention it to either of them!!!

> > Peace and Blessings

> > ~*~ Akiba ~*~

> > Pragmatic Visionary

> > Thy Feet, My Feet

> > Dance the Dance of Divinity

> >

> >

> >

> >

> >

> >

> >

>

>

>

>

>

>

> <http://www.incredimail.com/index.asp?id=96846>

>

>

[Guest guest]

Yes, except for one teeny tiny thing...my insurance does not cover it. SOOO, until I win the lotto or some other miracle I can't afford to go there.

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity

-- Re: [low dose naltrexone] Quandary> > Horse poop is horse poop and probably always will be. I assume these> are your only 2 choices? My wife's last neurologist, before we moved,> wouldn't prescribe for the first 3 years we knew him. I asked about it> every visit, though. This was before I discovered this group and the> great resources available to help pursuade a doctor. The last time I> asked, he said he had prescribed it to 4 other patients and it's great. > Strangely, he wasn't going to offer it on his own since I asked as we> were leaving. We get Revia mail order, but I prefer to keep a nero that> prescribes in case that option is shut down by the feds. If I were in> your position, I would stick with Dr. I'll-string-you-along-for-awhile.>> Akiba wrote:>> > Ok all Y'all, I need some advice...I've been going to this Neuro for> > over a year, and I often wonder why, since he basically does nothing> > for me, we talk for a few minuted every three months or so and that's> > it, I have tried to get him to prescribe LDN, nope, nada, he just says> > the same thing every time "I'm trying to keep an open mind". SO, I> > went to the only other Neuro in town, an older man who would have made> > a great ol'fashioned country Dr, buggy and all. He is a bit more> > proactive in his approach, is ordering new MRI's and even listened> > when I said it was too hard to do it all in one, so he is ordering> > three separate ones. All well, no? Except, when I mentioned LDN he> > basically called it horse poop. He likened us all to sheep who cannot> > think for ourselves but blindly follow whatever we hear someone else> > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS)> > He said that until there is a double-blind study it is all a myth and> > there is NO PROOF it does any good at all.> > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in> > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN> > *myself* as soon as my order gets here BTW, I just will forget (you> > know our MS cognitive issues...we tend to forget these things) to> > mention it to either of them!!! > > Peace and Blessings> > ~*~ Akiba ~*~> > Pragmatic Visionary> > Thy Feet, My Feet> > Dance the Dance of Divinity> > > > > >> > > > > >> >>> >> > >> <http://www.incredimail.com/index.asp?id=96846>>>

[Guest guest]

Why do you need a neuro at all? For me, they are only MRI orders to keep me posted on my progress. Otherwise, I don't need their naysaying in my life. My life attests to the fact that something which has nothing to do with a double-blind study is working for me and it also has nothing to do with fueling our economy in the manner they would like to scare and brainwash us into. Just get an MRI every 2 or 3 years to see what is going on. Your body will let you know the rest. You will know if you are getting better. Best wishes, Kathy

[low dose naltrexone] Quandary

Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time "I'm trying to keep an open mind". SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all.

SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity

[Guest guest]

Yeah, I think that will be the route I go too, My GP fills in for all my other issues. Seems I am just there to help the Neuro's make their car payments.

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity

-- Re: [low dose naltrexone] Quandary

Why do you need a neuro at all? For me, they are only MRI orders to keep me posted on my progress. Otherwise, I don't need their naysaying in my life. My life attests to the fact that something which has nothing to do with a double-blind study is working for me and it also has nothing to do with fueling our economy in the manner they would like to scare and brainwash us into. Just get an MRI every 2 or 3 years to see what is going on. Your body will let you know the rest. You will know if you are getting better. Best wishes, Kathy

[low dose naltrexone] Quandary

Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time "I'm trying to keep an open mind". SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all.

SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity