Re: Quandary, now OFF TOPIC

[Guest guest]

This is something I've contemplated, but my wife, , is very

conventional. It's taken some time to convince her not to consider

everything any doctor says as the gospel truth. In her mind, a person

with a neurological disease should have a neurologist. Who reads your

MRIs? I'm well educated in many fields, but seeing neurological

problems on an MRI I truly believe is specialized knowledge. My last

general doc., who I respected very much and was well versed on many

medical topics (I'm one of those pesky patients that asks MANY

" intelligent " , sometimes hard questions), admitted he didn't feel

qualified to read a brain MRI. Also, what about if/when you do IV

steroids? Who prescribes and administers that? hates them,

understandably, but they've pulled her out of an exacerbation every

time, 7 times in 9 years, I think. I'm not meaning to sound combative.

I'm truly interested in any responses. Neurologists are a different

breed in my experiences and the new one may not be a fit for us,

either. I would love to be able to convince not to feel the need

for a neurologist, and to feel comfortable with the notion myself. They

have always been the weak link in 's medical chain.

mykittypaws wrote:

> Why do you need a neuro at all? For me, they are only MRI orders to

> keep me posted on my progress. Otherwise, I don't need their naysaying

> in my life. My life attests to the fact that something which has

> nothing to do with a double-blind study is working for me and it also

> has nothing to do with fueling our economy in the manner they would

> like to scare and brainwash us into. Just get an MRI every 2 or 3

> years to see what is going on. Your body will let you know the rest.

> You will know if you are getting better. Best wishes, Kathy

>

> [low dose naltrexone] Quandary

>

> Ok all Y'all, I need some advice...I've been going to this Neuro

> for over a year, and I often wonder why, since he basically does

> nothing for me, we talk for a few minuted every three months or so

> and that's it, I have tried to get him to prescribe LDN, nope,

> nada, he just says the same thing every time " I'm trying to keep

> an open mind " . SO, I went to the only other Neuro in town, an

> older man who would have made a great ol'fashioned country Dr,

> buggy and all. He is a bit more proactive in his approach, is

> ordering new MRI's and even listened when I said it was too hard

> to do it all in one, so he is ordering three separate ones. All

> well, no? Except, when I mentioned LDN he basically called it

> horse poop. He likened us all to sheep who cannot think for

> ourselves but blindly follow whatever we hear someone else say,

> and strongly tried to talk me into Tysabri (thanks but NO THANKS)

> He said that until there is a double-blind study it is all a myth

> and there is NO PROOF it does any good at all.

> SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance

> in a couple-of-years or do I go with Dr Horsepoop? I AM going on

> LDN *myself* as soon as my order gets here BTW, I just will forget

> (you know our MS cognitive issues...we tend to forget these

> things) to mention it to either of them!!!

> Peace and Blessings

> ~*~ Akiba ~*~

> Pragmatic Visionary

> Thy Feet, My Feet

> Dance the Dance of Divinity

>

>

>

>

>

>

> <http://www.incredimail.com/index.asp?id=96846>

>

>

[Guest guest]

As for myself, I am fairly asymptomatic right now, and have been all along. I've only had one bad exacerbation, a couple of years ago I lost all feeling below the chest, for about three months, my Neuro at the time did nothing, I have never had to have the IV steroids (TG!!!) The low-key of the two Neuro's is loathe to prescribe them, anyway, he said they cause more problems then they help. I don't know about the horsepoop one, I have the feeling he'll slap an IV into me every chance he gets, which I also don't totally agree with. So it seems they teeter between pro-action and no-action. I think I'll stick with Mr no-action for now, he is the one who would be the Neuro on record, other then that he will continue to do what he has been doing, which is nothing. I'll just space the visits out a bit more....like once a year or so...

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

Thy Feet, My Feet

Dance the Dance of Divinity

-- Re: [low dose naltrexone] Quandary, now OFF TOPIC

This is something I've contemplated, but my wife, , is very conventional. It's taken some time to convince her not to consider everything any doctor says as the gospel truth. In her mind, a person with a neurological disease should have a neurologist. Who reads your MRIs? I'm well educated in many fields, but seeing neurological problems on an MRI I truly believe is specialized knowledge. My last general doc., who I respected very much and was well versed on many medical topics (I'm one of those pesky patients that asks MANY "intelligent", sometimes hard questions), admitted he didn't feel qualified to read a brain MRI. Also, what about if/when you do IV steroids? Who prescribes and administers that? hates them, understandably, but they've pulled her out of an exacerbation every time, 7 times in 9 years, I think. I'm not meaning to sound combative. I'm truly interested in any responses. Neurologists are a different breed in my experiences and the new one may not be a fit for us, either. I would love to be able to convince not to feel the need for a neurologist, and to feel comfortable with the notion myself. They have always been the weak link in 's medical chain.mykittypaws wrote:> Why do you need a neuro at all? For me, they are only MRI orders to > keep me posted on my progress. Otherwise, I don't need their naysaying > in my life. My life attests to the fact that something which has > nothing to do with a double-blind study is working for me and it also > has nothing to do with fueling our economy in the manner they would > like to scare and brainwash us into. Just get an MRI every 2 or 3 > years to see what is going on. Your body will let you know the rest. > You will know if you are getting better. Best wishes, Kathy>> [low dose naltrexone] Quandary>> Ok all Y'all, I need some advice...I've been going to this Neuro> for over a year, and I often wonder why, since he basically does> nothing for me, we talk for a few minuted every three months or so> and that's it, I have tried to get him to prescribe LDN, nope,> nada, he just says the same thing every time "I'm trying to keep> an open mind". SO, I went to the only other Neuro in town, an> older man who would have made a great ol'fashioned country Dr,> buggy and all. He is a bit more proactive in his approach, is> ordering new MRI's and even listened when I said it was too hard> to do it all in one, so he is ordering three separate ones. All> well, no? Except, when I mentioned LDN he basically called it> horse poop. He likened us all to sheep who cannot think for> ourselves but blindly follow whatever we hear someone else say,> and strongly tried to talk me into Tysabri (thanks but NO THANKS)> He said that until there is a double-blind study it is all a myth> and there is NO PROOF it does any good at all.> SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance> in a couple-of-years or do I go with Dr Horsepoop? I AM going on> LDN *myself* as soon as my order gets here BTW, I just will forget> (you know our MS cognitive issues...we tend to forget these> things) to mention it to either of them!!! > Peace and Blessings> ~*~ Akiba ~*~> Pragmatic Visionary> Thy Feet, My Feet> Dance the Dance of Divinity> > >> > >> <http://www.incredimail.com/index.asp?id=96846>>>

[Guest guest]

Oh I am sorry I didn't communicate that so well. I do have one of the best

neuros in our area to read my MRI's. He also knows about the LDN and the

calcium EAP injections I use. He even admitted one down in a very soft voice

he did believe that is why I have done so well. He trusts me or he would

have never said that as he is very connected to the industry and is still

working in his 80's. He has quite a reputation and I would never betray that

trust. He does know some alternative therapies work very well but he cannot

go around talking about it so freely or he risks losing everything. Such a

shame.

[low dose naltrexone] Quandary

>>

>> Ok all Y'all, I need some advice...I've been going to this Neuro

>> for over a year, and I often wonder why, since he basically does

>> nothing for me, we talk for a few minuted every three months or so

>> and that's it, I have tried to get him to prescribe LDN, nope,

>> nada, he just says the same thing every time " I'm trying to keep

>> an open mind " . SO, I went to the only other Neuro in town, an

>> older man who would have made a great ol'fashioned country Dr,

>> buggy and all. He is a bit more proactive in his approach, is

>> ordering new MRI's and even listened when I said it was too hard

>> to do it all in one, so he is ordering three separate ones. All

>> well, no? Except, when I mentioned LDN he basically called it

>> horse poop. He likened us all to sheep who cannot think for

>> ourselves but blindly follow whatever we hear someone else say,

>> and strongly tried to talk me into Tysabri (thanks but NO THANKS)

>> He said that until there is a double-blind study it is all a myth

>> and there is NO PROOF it does any good at all.

>> SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance

>> in a couple-of-years or do I go with Dr Horsepoop? I AM going on

>> LDN *myself* as soon as my order gets here BTW, I just will forget

>> (you know our MS cognitive issues...we tend to forget these

>> things) to mention it to either of them!!!

>> Peace and Blessings

>> ~*~ Akiba ~*~

>> Pragmatic Visionary

>> Thy Feet, My Feet

>> Dance the Dance of Divinity

>>

>>

>>

>>

>>

>>

>> <http://www.incredimail.com/index.asp?id=96846>

>>

>>

[Guest guest]

Ok, thanks.

mykittypaws wrote:

>Oh I am sorry I didn't communicate that so well. I do have one of the best

>neuros in our area to read my MRI's. He also knows about the LDN and the

>calcium EAP injections I use. He even admitted one down in a very soft voice

>he did believe that is why I have done so well. He trusts me or he would

>have never said that as he is very connected to the industry and is still

>working in his 80's. He has quite a reputation and I would never betray that

>trust. He does know some alternative therapies work very well but he cannot

>go around talking about it so freely or he risks losing everything. Such a

>shame.

> [low dose naltrexone] Quandary

>>>

>>> Ok all Y'all, I need some advice...I've been going to this Neuro

>>> for over a year, and I often wonder why, since he basically does

>>> nothing for me, we talk for a few minuted every three months or so

>>> and that's it, I have tried to get him to prescribe LDN, nope,

>>> nada, he just says the same thing every time " I'm trying to keep

>>> an open mind " . SO, I went to the only other Neuro in town, an

>>> older man who would have made a great ol'fashioned country Dr,

>>> buggy and all. He is a bit more proactive in his approach, is

>>> ordering new MRI's and even listened when I said it was too hard

>>> to do it all in one, so he is ordering three separate ones. All

>>> well, no? Except, when I mentioned LDN he basically called it

>>> horse poop. He likened us all to sheep who cannot think for

>>> ourselves but blindly follow whatever we hear someone else say,

>>> and strongly tried to talk me into Tysabri (thanks but NO THANKS)

>>> He said that until there is a double-blind study it is all a myth

>>> and there is NO PROOF it does any good at all.

>>> SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance

>>> in a couple-of-years or do I go with Dr Horsepoop? I AM going on

>>> LDN *myself* as soon as my order gets here BTW, I just will forget

>>> (you know our MS cognitive issues...we tend to forget these

>>> things) to mention it to either of them!!!

>>> Peace and Blessings

>>> ~*~ Akiba ~*~

>>> Pragmatic Visionary

>>> Thy Feet, My Feet

>>> Dance the Dance of Divinity

>>>

>>>

>>>

>>>

>>>

>>>

>>> <http://www.incredimail.com/index.asp?id=96846>

>>>

>>>