Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 HI, I AM NEW HERE, IN NOVEMBER OF 05 I WAS DIAGNOSED WITH OPTIC NEURITIS IN MY RIGHT EYE I WAS HOSPITALIZED AND TREATED WITH IV STEROIDS AND I STILL HAVE THIS PROBLEM AND IT HAS BEEN A WAIT AND SEE SINCE THEN MY NEUROLOGIST SAYS THAT MY SIGHT MAY COME BACK IN ABOUT SIX MONTHS TO A YEAR, WHICH AT THAT TIME I DIDN'T KNOW WHAT TO DO HE SAYS THAT IM NOT A CANDIDATE FOR ANY MEDICATION FOR TREATMENT FOR MS AT THIS TIME I FEEL REALLY LOST,CONFUSED, COGNITIVLY IMPARIED, I GOT AN EMAIL FROM REALLLY NICE LADY WHO HAS MS AND TOLD ME ABOUT NALPREXONE IS THERE ANYONE WHO HAS TAKEN NALPREXONE FOR OPTIC NEURITIS AND WHAT HAVE THE RESULTS BEEN I WOULD APPRECIATE SOME INFO. I AM AT MY WITS END. I WILL SEE MY NEURO IN 2 WKS. AND I WILL ASK ABOUT NALPREXONE FOR THIS, ITS BEEN A REAL CHALLENGE NOT BEING ABLE TO SEE OUT OF MY EYE CLEARLY. THANKS SANDRA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2006 Report Share Posted March 18, 2006 Hi , Many people with your symptoms have been helped with LDN. Cognitive problems and Optic problems are typical MS symptoms. You have come to the right place. I will send you a copy of the " welcome e-mail " in a moment. Kind regards Aletha [low dose naltrexone] OPTIC NEURITIS > HI, I AM NEW HERE, IN NOVEMBER OF 05 I WAS DIAGNOSED WITH OPTIC > NEURITIS IN MY RIGHT EYE I WAS HOSPITALIZED AND TREATED WITH IV > STEROIDS AND I STILL HAVE THIS PROBLEM AND IT HAS BEEN A WAIT AND SEE > SINCE THEN MY NEUROLOGIST SAYS THAT MY SIGHT MAY COME BACK IN ABOUT > SIX MONTHS TO A YEAR, WHICH AT THAT TIME I DIDN'T KNOW WHAT TO DO HE > SAYS THAT IM NOT A CANDIDATE FOR ANY MEDICATION FOR TREATMENT FOR MS > AT THIS TIME I FEEL REALLY LOST,CONFUSED, COGNITIVLY IMPARIED, I GOT > AN EMAIL FROM REALLLY NICE LADY WHO HAS MS AND TOLD ME ABOUT NALPREXONE > IS THERE ANYONE WHO HAS TAKEN NALPREXONE FOR OPTIC NEURITIS AND WHAT > HAVE THE RESULTS BEEN I WOULD APPRECIATE SOME INFO. I AM AT MY WITS > END. I WILL SEE MY NEURO IN 2 WKS. AND I WILL ASK ABOUT NALPREXONE FOR > THIS, ITS BEEN A REAL CHALLENGE NOT BEING ABLE TO SEE OUT OF MY EYE > CLEARLY. THANKS > SANDRA > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Hi Jo, I have had every eye test imaginable. I haven't been diagnosed with optic neurtitis, but when I googled it, I realize that's what I have. I have been diagnosed w/ high intraocular pressure and loss of vision in my left eye. The good news is that it has improved dramatically. At first my vision was so poor that I ran into the vacuum and was tripping over everything. I was afraid to drive. Over the last 5 months it has improved but I am still bothered by it occasionally. I believe it is yeast-related because since going on Nystatin, my vision has been even better. Diet also plays a huge role and I've been very strict with it, avoiding all sugar, and limiting fruit to one serving a day until I get this yeast under control. What abnormal MRI are you talking about...a brain scan? Mine was normal but I know Patty's wasn't and she is fully recovered. What is the IV antibiotic for? Hang in there...it will improve with time, diet and getting your gut straight. - PH > > has anyone had optic neuritis and abnormal mris due to implants? i just had mine removed and lost partial vision to my left eye. i am on iv antibiotics. thanks. jo > > -------------- Original message -------------- > From: DGRAHAMA@... > Sandy ~ > Please have someone take you > to the doctor. Soon, you are > in my prayers.....Dede > > > > > > > See what's new at AOL.com and Make AOL Your Homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 PH, Nystatin is a prescribed med, correct? Thanks, Lynn Re: Optic neuritis Hi Jo, I have had every eye test imaginable. I haven't been diagnosed with optic neurtitis, but when I googled it, I realize that's what I have. I have been diagnosed w/ high intraocular pressure and loss of vision in my left eye. The good news is that it has improved dramatically. At first my vision was so poor that I ran into the vacuum and was tripping over everything. I was afraid to drive. Over the last 5 months it has improved but I am still bothered by it occasionally. I believe it is yeast-related because since going on Nystatin, my vision has been even better. Diet also plays a huge role and I've been very strict with it, avoiding all sugar, and limiting fruit to one serving a day until I get this yeast under control.What abnormal MRI are you talking about...a brain scan? Mine was normal but I know Patty's wasn't and she is fully recovered. What is the IV antibiotic for? Hang in there...it will improve with time, diet and getting your gut straight. - PH>> has anyone had optic neuritis and abnormal mris due to implants? i just had mine removed and lost partial vision to my left eye. i am on iv antibiotics. thanks. jo> > ------------ -- Original message ------------ -- > From: DGRAHAMA@... > Sandy ~ > Please have someone take you> to the doctor. Soon, you are> in my prayers..... Dede> > > > > > > See what's new at AOL.com and Make AOL Your Homepage.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 How are you feeling today Lynn? Love Traci --- Lynn <spinkscl@...> wrote: > PH, > Nystatin is a prescribed med, correct? > > Thanks, Lynn > > > Re: Optic neuritis > > Hi Jo, I have had every eye test imaginable. I > haven't been > diagnosed with optic neurtitis, but when I googled > it, I realize > that's what I have. I have been diagnosed w/ high > intraocular > pressure and loss of vision in my left eye. The good > news is that it > has improved dramatically. At first my vision was so > poor that I ran > into the vacuum and was tripping over everything. I > was afraid to > drive. Over the last 5 months it has improved but I > am still > bothered by it occasionally. I believe it is > yeast-related because > since going on Nystatin, my vision has been even > better. Diet also > plays a huge role and I've been very strict with it, > avoiding all > sugar, and limiting fruit to one serving a day until > I get this yeast > under control. > What abnormal MRI are you talking about...a brain > scan? Mine was > normal but I know Patty's wasn't and she is fully > recovered. What is > the IV antibiotic for? Hang in there...it will > improve with time, > diet and getting your gut straight. - PH > > > > > > has anyone had optic neuritis and abnormal mris > due to implants? i > just had mine removed and lost partial vision to my > left eye. i am > on iv antibiotics. thanks. jo > > > > ------------ -- Original message ------------ -- > > From: DGRAHAMA@... > > Sandy ~ > > Please have someone take you > > to the doctor. Soon, you are > > in my prayers..... Dede > > > > > > > > > > > > > > See what's new at AOL.com and Make AOL Your > Homepage. > > > > > No hour of life is wasted that is spent in the saddle. ~Winston Churchill ________________________________________________________________________________\ ____ Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Hi Traci! How are you? Thank you for sharing the photos, even though you still have an open wound you still look happy when you are with your horses. I am so happy they bring you so much joy. I am better than I was last night. I am thinking it might be fibromyalgia. I had a long work at week and I think I needed to slow down and rest. I also did a foot bath on Wednesday and typically for the first two or three days after, I feel pretty weak (and then much better). So far, I am pretty good today though (knock on wood). Last night was another dip in the rollar coaster and my mood was not good - very sad. I am going bowling and to dinner with some friends tonight. We should be home fairly early, so I hope all goes well. I am now the Designated Driver since I can't drink - fun fun... I hope you are feeling better today. Love and hugs, Lynn Re: Optic neuritis> > Hi Jo, I have had every eye test imaginable. I> haven't been > diagnosed with optic neurtitis, but when I googled> it, I realize > that's what I have. I have been diagnosed w/ high> intraocular > pressure and loss of vision in my left eye. The good> news is that it > has improved dramatically. At first my vision was so> poor that I ran > into the vacuum and was tripping over everything. I> was afraid to > drive. Over the last 5 months it has improved but I> am still > bothered by it occasionally. I believe it is> yeast-related because > since going on Nystatin, my vision has been even> better. Diet also > plays a huge role and I've been very strict with it,> avoiding all > sugar, and limiting fruit to one serving a day until> I get this yeast > under control.> What abnormal MRI are you talking about...a brain> scan? Mine was > normal but I know Patty's wasn't and she is fully> recovered. What is > the IV antibiotic for? Hang in there...it will> improve with time, > diet and getting your gut straight. - PH> > > >> > has anyone had optic neuritis and abnormal mris> due to implants? i > just had mine removed and lost partial vision to my> left eye. i am > on iv antibiotics. thanks. jo> > > > ------------ -- Original message ------------ -- > > From: DGRAHAMA@... > > Sandy ~ > > Please have someone take you> > to the doctor. Soon, you are> > in my prayers..... Dede> > > > > > > > > > > > > > See what's new at AOL.com and Make AOL Your> Homepage.> >> > > No hour of life is wasted that is spent in the saddle. ~Winston Churchill____________ _________ _________ _________ _________ _________ _Shape in your own image. Join our Network Research Panel today! http://surveylink. / gmrs/_ panel_invite. asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Thank you for this great information. I have used everything in the book: Nystatin tablets, liquid Nystatin and vaginal Nystatin suppositories, even though I never had vaginal yeast. My dentist told me to suck these tablets, and they worked the well, powder is the best. Diflucan is the best medication for me; however, I am on blood thinners and it means that I have to have my bloodwork done three times a week. Oh, what a pain to have to go through all this, because of some greedy grubs. Love always..........Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```````` Re: Optic neuritis Yes, it is a prescribed med which I was reluctant to do but I was to the point my headaches and blurry vision were nonstop. I found relief after two doses. Dr. Kolb has taken this herself for years. I plan to stay on it for a while and then rotate capryllic acid and other more natural antifungals. Nystatin is an antifungal obtained from the bacteria Streptomyces nursei...so I felt that because it's natural in a sense and there are more benefits than side effects, I'd try it. Side effects are nausea and vomiting for some. I haven't experienced either. It's somewhat safer than other prescribed antifungals because it remains in the gut where most of my problems are. If you do talk to your doc about it, make sure you get the sugar-free ORAL powder. Sometimes docs just write up powder and then pharmacists give the patient foot powder which can be dangerous if ingested. - PH http://nourishedmagazine.com.au/blog/articles/how-to-overcome-candida-pt3 NystatinNystatin is a broad spectrum fungicidal (kills fungus) drug available only by prescription in some countries. It is fast-acting and well tolerated, killing candida on contact. It is not absorbed past the intestines to any significant degree, therefore it a very safe drug, compared to the others which cause severe liver problems. Nystatin is virtually free of side effects or drug interactions, and does not cause resistance. Nystatin can only be obtained by prescription in most countries. It is available as a cream or powder for topical use, suspension (liquid), and tablets, but powder is the purest form and it can be used both externally and internally. However, there is a powdered form of nystatin that is not intended for internal use so please ensure the pharmacist knows what he is dispensing. There is a powder for external use only which also contains talcum powder.The suspension form is usually prescribed in amounts of 2 ml 2-4 times per day for infants and children. The tablets are prescribed in the amount of 2-3 tablets 2-4 times per day for older children and adults. Be sure it does not contain sugar! Powdered Nystatin is preferable since it is more easily tolerated than the tablet form and as it is swallowed it kills Candida in the mouth, throat and esophagus. However, some people cannot tolerate the bad taste and have to resort to taking the tablets. Be sure to buy tablets that do not contain sugar! Nystatin Dose: Nystatin powder is taken orally four times a day. Start with 1/8th teaspoon of dry powder added to 4 ounces of water. Stir well. This mixture must be used immediately after mixing. Do not mix and store it for later use. Take one mouthful and swish it around in your mouth for as long as possible, gargle, and swallow. Be sure to use all the liquid to get the full dose of medicine. Gradually increase the amount of Nystatin over a month's period of time or more, up to a maximum of one teaspoon four times a day. Nystatin may have to be taken for months and sometimes years, along with the diet. Even if symptoms disappear completely continue taking Nystatin until the full prescribed amount is finished. Stopping it too early may allow the Candida to get the upper hand again. Keep Nystatin powder refrigerated, free of moisture, and away from heat and light. Nystatin may be stored for 90 days after opening, but any unused portion should be discarded after that time. Nystatin powder can kill Candida in many different ways: Sniffing or inhaling Nystatin for nasal passages and sinuses. Many Candida sufferers can clear nasal congestion, postnasal drip and mental and nervous symptoms by inhaling or sniffing Nystatin. Here's how to do it: Shake your bottle of Nystatin powder vigorously. Remove the cap and hold the bottle just under your nose. Sniff or inhale very cautiously. Another method is to hold one nostril and put a dot of Nystatin powder on your index finger and sniff gently. Repeat for the other nostril. The number of sniffs or inhales can be gradually increased to 3 or 4 in a row up to three times a day or more, depending upon how well it is tolerated. Mouth (thrush) - mix 1/4 teaspoon of Nystatin powder in 1-2 ounces of water. Hold it in the mouth up to 2 minutes, swishing it around and then swallow. Athlete's foot, nail fungus, diaper rash, dry skin spots or rashes - For athlete's foot the powder can be dusted on the feet, and inside shoes and socks. For diaper rash the powder can also be dusted, carefully, onto the affected areas. To make a cream that can be rubbed into affected areas mix one teaspoon of Nystatin powder into two teaspoons of a very mild cold cream or a coconut based cream. Apply two times a day or more. Rectal and vaginal suppository - fill gelatin capsules (available at health food stores) with Nystatin powder. Push one capsule high up into the rectum at bedtime. For vaginal yeast infection use one or two capsules at bedtime. Vaginal douche - mix one teaspoon in one quart of water and douche once or twice a week, and alternate with a powdered acidophilus douche (one teaspoon to one quart of water) the same number of times a week. Enema - The benefits of a Nystatin enema cannot be overemphasized. Many people have experienced tremendous relief of their symptoms and renewed energy levels after having an enema. The main purpose a Nystatin enema is to kill Candida in the lower bowel because it is not easily reached by antifungal agents. Nystatin enemas should be alternated with probiotic enemas, and enemas should never be done more than once every 4-5 days to allow the bowel to return to normal. The large bowel is responsible for balancing water and electrolytes in the body, and it makes some B vitamins and vitamin K, along with other important functions. For instructions on how to administer an enema see the Section "Antifungal, Probiotic and Coffee Enemas" later on in this article. > >> > has anyone had optic neuritis and abnormal mris due to implants? i > just had mine removed and lost partial vision to my left eye. i am > on iv antibiotics. thanks. jo> > > > ------------ -- Original message ------------ -- > > From: DGRAHAMA@ > > Sandy ~ > > Please have someone take you> > to the doctor. Soon, you are> > in my prayers..... Dede> > > > > > > > > > > > > > See what's new at AOL.com and Make AOL Your Homepage.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Bloodwork three times a week! I feel for you, Lea, as I hate getting draws. I used to worry about having too much blood drawn but my husband and uncle reminded me of all the tribes that do bloodletting to cure illness. So, in some ways right now you're getting the toxic blood out and your body will replace it with new fresh blood! - PH > > > > > > has anyone had optic neuritis and abnormal mris due to implants? i > > just had mine removed and lost partial vision to my left eye. i am > > on iv antibiotics. thanks. jo > > > > > > ------------ -- Original message ------------ -- > > > From: DGRAHAMA@ > > > Sandy ~ > > > Please have someone take you > > > to the doctor. Soon, you are > > > in my prayers..... Dede > > > > > > > > > > > > > > > > > > > > > See what's new at AOL.com and Make AOL Your Homepage. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Hi Lynn, Good to hear from you. Yes, the horses keep me happy and sane. I will go out to see them as soon as I'm up to it. In the meantime, I've taken a lot of photos so that helps too. Unfortunately the breast infection seems to be back. My nurse noticed it today when she repacked my breast. I'm now on antibiotics so I hope that will help. If she sees it again tomorrow, we will page the ps on call. I don't have a fever. Just am very fatigued. I'm hanging in there. Hope you had a great time tonight with bowling and dinner. Please continue to take care of yourself and get lots of rest. Love & hugs, Traci --- Lynn <spinkscl@...> wrote: > Hi Traci! How are you? Thank you for sharing the > photos, even though you still have an open wound you > still look happy when you are with your horses. I > am so happy they bring you so much joy. > > I am better than I was last night. I am thinking it > might be fibromyalgia. I had a long work at week > and I think I needed to slow down and rest. I also > did a foot bath on Wednesday and typically for the > first two or three days after, I feel pretty weak > (and then much better). > > So far, I am pretty good today though (knock on > wood). Last night was another dip in the rollar > coaster and my mood was not good - very sad. > > I am going bowling and to dinner with some friends > tonight. We should be home fairly early, so I hope > all goes well. I am now the Designated Driver since > I can't drink - fun fun... > > I hope you are feeling better today. > > Love and hugs, Lynn > > > Re: Optic neuritis > > > > Hi Jo, I have had every eye test imaginable. I > > haven't been > > diagnosed with optic neurtitis, but when I googled > > it, I realize > > that's what I have. I have been diagnosed w/ high > > intraocular > > pressure and loss of vision in my left eye. The > good > > news is that it > > has improved dramatically. At first my vision was > so > > poor that I ran > > into the vacuum and was tripping over everything. > I > > was afraid to > > drive. Over the last 5 months it has improved but > I > > am still > > bothered by it occasionally. I believe it is > > yeast-related because > > since going on Nystatin, my vision has been even > > better. Diet also > > plays a huge role and I've been very strict with > it, > > avoiding all > > sugar, and limiting fruit to one serving a day > until > > I get this yeast > > under control. > > What abnormal MRI are you talking about...a brain > > scan? Mine was > > normal but I know Patty's wasn't and she is fully > > recovered. What is > > the IV antibiotic for? Hang in there...it will > > improve with time, > > diet and getting your gut straight. - PH > > > > > > > > > > has anyone had optic neuritis and abnormal mris > > due to implants? i > > just had mine removed and lost partial vision to > my > > left eye. i am > > on iv antibiotics. thanks. jo > > > > > > ------------ -- Original message ------------ -- > > > > From: DGRAHAMA@... > > > Sandy ~ > > > Please have someone take you > > > to the doctor. Soon, you are > > > in my prayers..... Dede > > > > > > > > > > > > > > > > > > > > > See what's new at AOL.com and Make AOL Your > > Homepage. > > > > > > > > > > > No hour of life is wasted that is spent in the > saddle. ~Winston Churchill > > ____________ _________ _________ _________ _________ > _________ _ > Shape in your own image. Join our Network > Research Panel today! http://surveylink. / > gmrs/_ panel_invite. asp?a=7 > > > No hour of life is wasted that is spent in the saddle. ~Winston Churchill ________________________________________________________________________________\ ____ Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos & more. http://mobile./go?refer=1GNXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Traci, I am so happy to know you have a RN taking care of you!! I am glad the fever isn't back but it concerns me that the infection is coming back - darn it!! I will continue to pray for you. I do need to remember to rest more!! I have been feeling so much better that I try to go go go, like the old me and I am just not ready for that yet. Bowling was fun. My hand, arm and hip cooperated!! Thanks be to God. I am glad to be home in my PJs though. : ) Love, Lynn Re: Optic neuritis> > > > Hi Jo, I have had every eye test imaginable. I> > haven't been > > diagnosed with optic neurtitis, but when I googled> > it, I realize > > that's what I have. I have been diagnosed w/ high> > intraocular > > pressure and loss of vision in my left eye. The> good> > news is that it > > has improved dramatically. At first my vision was> so> > poor that I ran > > into the vacuum and was tripping over everything.> I> > was afraid to > > drive. Over the last 5 months it has improved but> I> > am still > > bothered by it occasionally. I believe it is> > yeast-related because > > since going on Nystatin, my vision has been even> > better. Diet also > > plays a huge role and I've been very strict with> it,> > avoiding all > > sugar, and limiting fruit to one serving a day> until> > I get this yeast > > under control.> > What abnormal MRI are you talking about...a brain> > scan? Mine was > > normal but I know Patty's wasn't and she is fully> > recovered. What is > > the IV antibiotic for? Hang in there...it will> > improve with time, > > diet and getting your gut straight. - PH> > > > > > >> > > has anyone had optic neuritis and abnormal mris> > due to implants? i > > just had mine removed and lost partial vision to> my> > left eye. i am > > on iv antibiotics. thanks. jo> > > > > > ------------ -- Original message ------------ --> > > > From: DGRAHAMA@... > > > Sandy ~ > > > Please have someone take you> > > to the doctor. Soon, you are> > > in my prayers..... Dede> > > > > > > > > > > > > > > > > > > > > See what's new at AOL.com and Make AOL Your> > Homepage.> > >> > > > > > > > No hour of life is wasted that is spent in the> saddle. ~Winston Churchill> > ____________ _________ _________ _________ _________> _________ _> Shape in your own image. Join our Network> Research Panel today! http://surveylink. /> gmrs/_ panel_invite. asp?a=7 > > > No hour of life is wasted that is spent in the saddle. ~Winston Churchill____________ _________ _________ _________ _________ _________ _Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos & more. http://mobile. / go?refer= 1GNXIC Quote Link to comment Share on other sites More sharing options...
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