Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Hi I'd like to add that I'm GF/CF/SF and have been for the last 18 month's, I follow the Best Bet diet and have a child on the autistic spectrum as well. Interestingly, I 'cheat' once a week when we have chinese carry-out food on a Friday evening. I know there is wheat in the sauce. This is always a thoroughly enjoyable experience for me so maybe the fact that i'm not getting a 'hit' could be causing the moods but I wouldn't have thought they would be so profound with just 1 diet infringement per week?? I'll give the chinese a miss for a while and start the enzymes (which my duaghter takes as well) ans see how things go. > > Hi, I'm owner of the autism children's LDN group, and wanted to mention my ideas and experiences with mood swings in some of the autistic kids with whom I am working. As you all know, naltrexone is an opioid antagonist. In the early years of treating autism, many of us tried naltrexone in the regular doses (we didn't yet know about LDN) to try to offset the opioids produced in autistic children's brains because of their inability to break down the large peptides of casein, gluten, and usually soy and sometimes corn too. We hoped to avoid having to put them on special diets by this means. It never worked well except for a few SIB (Self Injurious Behavior) kids, and we recognized they were probably having opioid withdrawal symptoms but of course didn't know until Bihari's work that their immune systems were probably being made even worse by the regular 50mg doses. (Children who are unable to excrete heavy metals and got poisoned from 1991 until 2002 by the mercury in their newborn > vaccines sustained gut injuries and immune system injuries, the hallmarks of autism, and the primary cause of the huge epidemic of autism occurring in that decade. This high rate is finally starting to go down now as they have finally removed much of the mercury from newborn vaccines). > > However, even in the ultra-small doses we are using, some people not on GF/CF diets may have dietary opioids that are causing them the withdrawal phenomenon. And some people may have unusual endogenous opioids, but my suspicion is that these offenders often come from the diet, and a sizeable number of some people other than just autistic kids have the inability to digest the big peptides in some foods. This could be a genetic variation or some lack of gut enzymes that cause the large peptides to not break down into the amino acids but to circulate in the brain and get into the brain as caseo/gluteo-opioids. Some of these people will manifest the opioid antagonism as irritability and mood swings, like a drug addict that can't get the " fix. " > > When I did my first study with 15 of my own patients, all were on dietary restricted diets (no casein, gluten, or soy) and no one had a problem with mood swings. When it got out into the greater autism community and some kids were for various reasons not on the restricted diets, some reports started coming in about mood swings. If I could convince the parents to get their kids on the diet, many of those side effects abated. However, many people are addicted to wheat and milk, and would rather forego the benefits of LDN rather than not get their fix of these foods, particularly adults who have ages-long dietary habits and may not even know how it feels to feel good. With the autistic kids, 85-90% improve with just removing these foods, not even considering LDN, so many of the knowledgeable and sophisticated parents have their children on these restrictions already, so we do not get too many who have the mood reactions. And, some kids have recovered enough that they no longer > have this intolerance. I just thought I would mention this as some of you might really want to try taking casein and gluten (which are not really GOOD for anyone anyway), out of your diet and see if that helps LDN work without the moodiness. Sometimes just removing dairy will do the trick, or just gluten (wheat, rye, oats and barley). If that is an unbearable thought, and you don't want to give up your wheat and milk OR your LDN, you could at least try some excellent digestive enzymes that have been designed for autistic kids but have many of us adults using them, and for some people, this will be enough to break down the large peptides so they do not have to go on a strict diet. Klaire Labs makes an excellent one called Vital-Zymes Complete, and one with each meal or two with a heavy casein/gluten meal helps the digestion for many of us. Just some food for thought. > > (Klaire will not dispense to the public, only to doctors, but if you tell them I sent you (Dr. Jaquelyn McCandless) they will not only sell them to you but give you a 20% discount on any of their products and also donate 10% to Autism Research Institute for research. I helped them over two years develop this enzyme, and decided to donate all proceeds they wanted to give me directly to ARI for badly needed research money (none of which I have ever asked for). Klaire's phone is 866-216-6127). > Best wishes, Dr. JM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2006 Report Share Posted March 18, 2006 I did not change my diet in the past 4 months. The only change has been starting ldn. I never in my life experianced the mood swings I have as of late. If it was diet I would think I would have experianced it long before now. Take Care > > Hi, I'm owner of the autism children's LDN group, and wanted to mention my ideas and experiences with mood swings in some of the autistic kids with whom I am working. As you all know, naltrexone is an opioid antagonist. In the early years of treating autism, many of us tried naltrexone in the regular doses (we didn't yet know about LDN) to try to offset the opioids produced in autistic children's brains because of their inability to break down the large peptides of casein, gluten, and usually soy and sometimes corn too. We hoped to avoid having to put them on special diets by this means. It never worked well except for a few SIB (Self Injurious Behavior) kids, and we recognized they were probably having opioid withdrawal symptoms but of course didn't know until Bihari's work that their immune systems were probably being made even worse by the regular 50mg doses. (Children who are unable to excrete heavy metals and got poisoned from 1991 until 2002 by the mercury in their newborn > vaccines sustained gut injuries and immune system injuries, the hallmarks of autism, and the primary cause of the huge epidemic of autism occurring in that decade. This high rate is finally starting to go down now as they have finally removed much of the mercury from newborn vaccines). > > However, even in the ultra-small doses we are using, some people not on GF/CF diets may have dietary opioids that are causing them the withdrawal phenomenon. And some people may have unusual endogenous opioids, but my suspicion is that these offenders often come from the diet, and a sizeable number of some people other than just autistic kids have the inability to digest the big peptides in some foods. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2006 Report Share Posted March 18, 2006 Loraine, In 2000, when I first tried gfcfsf for our daughter I would never have believed that a small dietary infraction would produce such profound results. She had been suffering with many seizures per day that no medication relieved. She had opiods in her urine in high amounts. I thought why not try this diet. We went `cold turkey'. For the first 3 days of the gfcfsf diet our daughter had what looked like DT's; seizure after seizure until day 4 when they began to subside. They were gone by day 5. When we got our act together [we discovered among other things that even her seizure medicine had a milk product in it] we have seen that almost every seizure episode can be tied to a dietary infraction. They come 8-12 hours after she eats the offending food and will be gone in the next 24 hours. How many depends on how much of a forbidden product she ate [she's old enough that she plugs machines at school etc]. The searching mentality for gluten, casein and soy truly resembles an addict's; so she must be getting one heck of a `high' when she ingests these items. Mood irritability is certainly an aspect of this for our daughter as is insensitivity to pain, ataxia, glazed eyes with inappropriately dilated pupils. We used naltrexone at the time for several months to help her over the withdrawal. We use enzymes routinely. I would also say that for her, vaccine injury is a big player for inducing mercury related symptoms, one of which can be related to gfcfsf diet as mercury `inactivates' enzymes responsible for completely digesting gluten and casein. The incompletely digested proteins are left in an opiod state that can be measured in urine. Currently, for our daughter, major symptom relief depends upon diet. > > > > Hi, I'm owner of the autism children's LDN group, and wanted to > mention my ideas and experiences with mood swings in some of the > autistic kids with whom I am working. As you all know, naltrexone > is an opioid antagonist. In the early years of treating autism, > many of us tried naltrexone in the regular doses (we didn't yet know > about LDN) to try to offset the opioids produced in autistic > children's brains because of their inability to break down the large > peptides of casein, gluten, and usually soy and sometimes corn too. > We hoped to avoid having to put them on special diets by this means. > It never worked well except for a few SIB (Self Injurious Behavior) > kids, and we recognized they were probably having opioid withdrawal > symptoms but of course didn't know until Bihari's work that their > immune systems were probably being made even worse by the regular > 50mg doses. (Children who are unable to excrete heavy metals and > got poisoned from 1991 until 2002 by the mercury in their newborn > > vaccines sustained gut injuries and immune system injuries, the > hallmarks of autism, and the primary cause of the huge epidemic of > autism occurring in that decade. This high rate is finally starting > to go down now as they have finally removed much of the mercury from > newborn vaccines). > > > > However, even in the ultra-small doses we are using, some people > not on GF/CF diets may have dietary opioids that are causing them > the withdrawal phenomenon. And some people may have unusual > endogenous opioids, but my suspicion is that these offenders often > come from the diet, and a sizeable number of some people other than > just autistic kids have the inability to digest the big peptides in > some foods. This could be a genetic variation or some lack of gut > enzymes that cause the large peptides to not break down into the > amino acids but to circulate in the brain and get into the brain as > caseo/gluteo-opioids. Some of these people will manifest the opioid > antagonism as irritability and mood swings, like a drug addict that > can't get the " fix. " > > > > When I did my first study with 15 of my own patients, all were > on dietary restricted diets (no casein, gluten, or soy) and no one > had a problem with mood swings. When it got out into the greater > autism community and some kids were for various reasons not on the > restricted diets, some reports started coming in about mood swings. > If I could convince the parents to get their kids on the diet, many > of those side effects abated. However, many people are addicted to > wheat and milk, and would rather forego the benefits of LDN rather > than not get their fix of these foods, particularly adults who have > ages-long dietary habits and may not even know how it feels to feel > good. With the autistic kids, 85-90% improve with just removing > these foods, not even considering LDN, so many of the knowledgeable > and sophisticated parents have their children on these restrictions > already, so we do not get too many who have the mood reactions. > And, some kids have recovered enough that they no longer > > have this intolerance. I just thought I would mention this as > some of you might really want to try taking casein and gluten (which > are not really GOOD for anyone anyway), out of your diet and see if > that helps LDN work without the moodiness. Sometimes just removing > dairy will do the trick, or just gluten (wheat, rye, oats and > barley). If that is an unbearable thought, and you don't want to > give up your wheat and milk OR your LDN, you could at least try some > excellent digestive enzymes that have been designed for autistic > kids but have many of us adults using them, and for some people, > this will be enough to break down the large peptides so they do not > have to go on a strict diet. Klaire Labs makes an excellent one > called Vital-Zymes Complete, and one with each meal or two with a > heavy casein/gluten meal helps the digestion for many of us. Just > some food for thought. > > > > (Klaire will not dispense to the public, only to doctors, but if > you tell them I sent you (Dr. Jaquelyn McCandless) they will not > only sell them to you but give you a 20% discount on any of their > products and also donate 10% to Autism Research Institute for > research. I helped them over two years develop this enzyme, and > decided to donate all proceeds they wanted to give me directly to > ARI for badly needed research money (none of which I have ever asked > for). Klaire's phone is 866-216-6127). > > Best wishes, Dr. JM > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Hi This is very interesting - I have a feeling I am mercury poisoned so I may lack the enzymes you describe therefore the lack of my weekly 'hit' could be having a profound effect. I have a mouthful of amalgams and had one while expecting my daughter. I know she is mercury poisoned, we are starting chelation for her this week. However I'm questioning why I didn't experience these feelings in the first six weeks - I felt great, given this theory I should have felt worse. Also, given the ldn is blocking the opiod effect, in theory I should start to feel better soon as my system gets used to the lack of a hit, just like an addict. Or is it that because the naltraxone is low dose the hit is just diminished therefore the feelings will continue. I'm just trying to think this through logically as I don't have a medical background. Loraine > > > > > > Hi, I'm owner of the autism children's LDN group, and wanted to > > mention my ideas and experiences with mood swings in some of the > > autistic kids with whom I am working. As you all know, naltrexone > > is an opioid antagonist. In the early years of treating autism, > > many of us tried naltrexone in the regular doses (we didn't yet > know > > about LDN) to try to offset the opioids produced in autistic > > children's brains because of their inability to break down the > large > > peptides of casein, gluten, and usually soy and sometimes corn > too. > > We hoped to avoid having to put them on special diets by this > means. > > It never worked well except for a few SIB (Self Injurious > Behavior) > > kids, and we recognized they were probably having opioid > withdrawal > > symptoms but of course didn't know until Bihari's work that their > > immune systems were probably being made even worse by the regular > > 50mg doses. (Children who are unable to excrete heavy metals and > > got poisoned from 1991 until 2002 by the mercury in their newborn > > > vaccines sustained gut injuries and immune system injuries, the > > hallmarks of autism, and the primary cause of the huge epidemic of > > autism occurring in that decade. This high rate is finally > starting > > to go down now as they have finally removed much of the mercury > from > > newborn vaccines). > > > > > > However, even in the ultra-small doses we are using, some > people > > not on GF/CF diets may have dietary opioids that are causing them > > the withdrawal phenomenon. And some people may have unusual > > endogenous opioids, but my suspicion is that these offenders often > > come from the diet, and a sizeable number of some people other > than > > just autistic kids have the inability to digest the big peptides > in > > some foods. This could be a genetic variation or some lack of gut > > enzymes that cause the large peptides to not break down into the > > amino acids but to circulate in the brain and get into the brain > as > > caseo/gluteo-opioids. Some of these people will manifest the > opioid > > antagonism as irritability and mood swings, like a drug addict > that > > can't get the " fix. " > > > > > > When I did my first study with 15 of my own patients, all were > > on dietary restricted diets (no casein, gluten, or soy) and no one > > had a problem with mood swings. When it got out into the greater > > autism community and some kids were for various reasons not on the > > restricted diets, some reports started coming in about mood > swings. > > If I could convince the parents to get their kids on the diet, > many > > of those side effects abated. However, many people are addicted > to > > wheat and milk, and would rather forego the benefits of LDN rather > > than not get their fix of these foods, particularly adults who > have > > ages-long dietary habits and may not even know how it feels to > feel > > good. With the autistic kids, 85-90% improve with just removing > > these foods, not even considering LDN, so many of the > knowledgeable > > and sophisticated parents have their children on these > restrictions > > already, so we do not get too many who have the mood reactions. > > And, some kids have recovered enough that they no longer > > > have this intolerance. I just thought I would mention this as > > some of you might really want to try taking casein and gluten > (which > > are not really GOOD for anyone anyway), out of your diet and see > if > > that helps LDN work without the moodiness. Sometimes just > removing > > dairy will do the trick, or just gluten (wheat, rye, oats and > > barley). If that is an unbearable thought, and you don't want to > > give up your wheat and milk OR your LDN, you could at least try > some > > excellent digestive enzymes that have been designed for autistic > > kids but have many of us adults using them, and for some people, > > this will be enough to break down the large peptides so they do > not > > have to go on a strict diet. Klaire Labs makes an excellent one > > called Vital-Zymes Complete, and one with each meal or two with a > > heavy casein/gluten meal helps the digestion for many of us. Just > > some food for thought. > > > > > > (Klaire will not dispense to the public, only to doctors, but > if > > you tell them I sent you (Dr. Jaquelyn McCandless) they will not > > only sell them to you but give you a 20% discount on any of their > > products and also donate 10% to Autism Research Institute for > > research. I helped them over two years develop this enzyme, and > > decided to donate all proceeds they wanted to give me directly to > > ARI for badly needed research money (none of which I have ever > asked > > for). Klaire's phone is 866-216-6127). > > > Best wishes, Dr. JM > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 please unsubscribe me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 If you think you have mercury poisoning, you can safely take an oral chelation with the correct minerals in addition and it pulls the metals out of your body so slowly that it is less invasive to your condition than allowing them to remain and continue destroying your CNS. [low dose naltrexone] Re: Mood Swings on LDN > Hi > This is very interesting - I have a feeling I am mercury poisoned so > I may lack the enzymes you describe therefore the lack of my > weekly 'hit' could be having a profound effect. I have a mouthful of > amalgams and had one while expecting my daughter. I know she is > mercury poisoned, we are starting chelation for her this week. > > However I'm questioning why I didn't experience these feelings in > the first six weeks - I felt great, given this theory I should have > felt worse. Also, given the ldn is blocking the opiod effect, in > theory I should start to feel better soon as my system gets used to > the lack of a hit, just like an addict. Or is it that because the > naltraxone is low dose the hit is just diminished therefore the > feelings will continue. I'm just trying to think this through > logically as I don't have a medical background. > > Loraine > > > >> > > >> > > Hi, I'm owner of the autism children's LDN group, and wanted > to >> > mention my ideas and experiences with mood swings in some of the >> > autistic kids with whom I am working. As you all know, > naltrexone >> > is an opioid antagonist. In the early years of treating autism, >> > many of us tried naltrexone in the regular doses (we didn't yet >> know >> > about LDN) to try to offset the opioids produced in autistic >> > children's brains because of their inability to break down the >> large >> > peptides of casein, gluten, and usually soy and sometimes corn >> too. >> > We hoped to avoid having to put them on special diets by this >> means. >> > It never worked well except for a few SIB (Self Injurious >> Behavior) >> > kids, and we recognized they were probably having opioid >> withdrawal >> > symptoms but of course didn't know until Bihari's work that > their >> > immune systems were probably being made even worse by the > regular >> > 50mg doses. (Children who are unable to excrete heavy metals > and >> > got poisoned from 1991 until 2002 by the mercury in their newborn >> > > vaccines sustained gut injuries and immune system injuries, > the >> > hallmarks of autism, and the primary cause of the huge epidemic > of >> > autism occurring in that decade. This high rate is finally >> starting >> > to go down now as they have finally removed much of the mercury >> from >> > newborn vaccines). >> > > >> > > However, even in the ultra-small doses we are using, some >> people >> > not on GF/CF diets may have dietary opioids that are causing > them >> > the withdrawal phenomenon. And some people may have unusual >> > endogenous opioids, but my suspicion is that these offenders > often >> > come from the diet, and a sizeable number of some people other >> than >> > just autistic kids have the inability to digest the big peptides >> in >> > some foods. This could be a genetic variation or some lack of > gut >> > enzymes that cause the large peptides to not break down into the >> > amino acids but to circulate in the brain and get into the brain >> as >> > caseo/gluteo-opioids. Some of these people will manifest the >> opioid >> > antagonism as irritability and mood swings, like a drug addict >> that >> > can't get the " fix. " >> > > >> > > When I did my first study with 15 of my own patients, all > were >> > on dietary restricted diets (no casein, gluten, or soy) and no > one >> > had a problem with mood swings. When it got out into the > greater >> > autism community and some kids were for various reasons not on > the >> > restricted diets, some reports started coming in about mood >> swings. >> > If I could convince the parents to get their kids on the diet, >> many >> > of those side effects abated. However, many people are addicted >> to >> > wheat and milk, and would rather forego the benefits of LDN > rather >> > than not get their fix of these foods, particularly adults who >> have >> > ages-long dietary habits and may not even know how it feels to >> feel >> > good. With the autistic kids, 85-90% improve with just removing >> > these foods, not even considering LDN, so many of the >> knowledgeable >> > and sophisticated parents have their children on these >> restrictions >> > already, so we do not get too many who have the mood reactions. >> > And, some kids have recovered enough that they no longer >> > > have this intolerance. I just thought I would mention this > as >> > some of you might really want to try taking casein and gluten >> (which >> > are not really GOOD for anyone anyway), out of your diet and see >> if >> > that helps LDN work without the moodiness. Sometimes just >> removing >> > dairy will do the trick, or just gluten (wheat, rye, oats and >> > barley). If that is an unbearable thought, and you don't want > to >> > give up your wheat and milk OR your LDN, you could at least try >> some >> > excellent digestive enzymes that have been designed for autistic >> > kids but have many of us adults using them, and for some people, >> > this will be enough to break down the large peptides so they do >> not >> > have to go on a strict diet. Klaire Labs makes an excellent one >> > called Vital-Zymes Complete, and one with each meal or two with > a >> > heavy casein/gluten meal helps the digestion for many of us. > Just >> > some food for thought. >> > > >> > > (Klaire will not dispense to the public, only to doctors, > but >> if >> > you tell them I sent you (Dr. Jaquelyn McCandless) they will not >> > only sell them to you but give you a 20% discount on any of > their >> > products and also donate 10% to Autism Research Institute for >> > research. I helped them over two years develop this enzyme, and >> > decided to donate all proceeds they wanted to give me directly > to >> > ARI for badly needed research money (none of which I have ever >> asked >> > for). Klaire's phone is 866-216-6127). >> > > Best wishes, Dr. JM >> > > >> > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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