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Re: Mood Swings on LDN

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Hi

I'd like to add that I'm GF/CF/SF and have been for the last 18

month's, I follow the Best Bet diet and have a child on the autistic

spectrum as well. Interestingly, I 'cheat' once a week when we have

chinese carry-out food on a Friday evening. I know there is wheat in

the sauce. This is always a thoroughly enjoyable experience for me

so maybe the fact that i'm not getting a 'hit' could be causing the

moods but I wouldn't have thought they would be so profound with

just 1 diet infringement per week??

I'll give the chinese a miss for a while and start the enzymes

(which my duaghter takes as well) ans see how things go.

>

> Hi, I'm owner of the autism children's LDN group, and wanted to

mention my ideas and experiences with mood swings in some of the

autistic kids with whom I am working. As you all know, naltrexone

is an opioid antagonist. In the early years of treating autism,

many of us tried naltrexone in the regular doses (we didn't yet know

about LDN) to try to offset the opioids produced in autistic

children's brains because of their inability to break down the large

peptides of casein, gluten, and usually soy and sometimes corn too.

We hoped to avoid having to put them on special diets by this means.

It never worked well except for a few SIB (Self Injurious Behavior)

kids, and we recognized they were probably having opioid withdrawal

symptoms but of course didn't know until Bihari's work that their

immune systems were probably being made even worse by the regular

50mg doses. (Children who are unable to excrete heavy metals and

got poisoned from 1991 until 2002 by the mercury in their newborn

> vaccines sustained gut injuries and immune system injuries, the

hallmarks of autism, and the primary cause of the huge epidemic of

autism occurring in that decade. This high rate is finally starting

to go down now as they have finally removed much of the mercury from

newborn vaccines).

>

> However, even in the ultra-small doses we are using, some people

not on GF/CF diets may have dietary opioids that are causing them

the withdrawal phenomenon. And some people may have unusual

endogenous opioids, but my suspicion is that these offenders often

come from the diet, and a sizeable number of some people other than

just autistic kids have the inability to digest the big peptides in

some foods. This could be a genetic variation or some lack of gut

enzymes that cause the large peptides to not break down into the

amino acids but to circulate in the brain and get into the brain as

caseo/gluteo-opioids. Some of these people will manifest the opioid

antagonism as irritability and mood swings, like a drug addict that

can't get the " fix. "

>

> When I did my first study with 15 of my own patients, all were

on dietary restricted diets (no casein, gluten, or soy) and no one

had a problem with mood swings. When it got out into the greater

autism community and some kids were for various reasons not on the

restricted diets, some reports started coming in about mood swings.

If I could convince the parents to get their kids on the diet, many

of those side effects abated. However, many people are addicted to

wheat and milk, and would rather forego the benefits of LDN rather

than not get their fix of these foods, particularly adults who have

ages-long dietary habits and may not even know how it feels to feel

good. With the autistic kids, 85-90% improve with just removing

these foods, not even considering LDN, so many of the knowledgeable

and sophisticated parents have their children on these restrictions

already, so we do not get too many who have the mood reactions.

And, some kids have recovered enough that they no longer

> have this intolerance. I just thought I would mention this as

some of you might really want to try taking casein and gluten (which

are not really GOOD for anyone anyway), out of your diet and see if

that helps LDN work without the moodiness. Sometimes just removing

dairy will do the trick, or just gluten (wheat, rye, oats and

barley). If that is an unbearable thought, and you don't want to

give up your wheat and milk OR your LDN, you could at least try some

excellent digestive enzymes that have been designed for autistic

kids but have many of us adults using them, and for some people,

this will be enough to break down the large peptides so they do not

have to go on a strict diet. Klaire Labs makes an excellent one

called Vital-Zymes Complete, and one with each meal or two with a

heavy casein/gluten meal helps the digestion for many of us. Just

some food for thought.

>

> (Klaire will not dispense to the public, only to doctors, but if

you tell them I sent you (Dr. Jaquelyn McCandless) they will not

only sell them to you but give you a 20% discount on any of their

products and also donate 10% to Autism Research Institute for

research. I helped them over two years develop this enzyme, and

decided to donate all proceeds they wanted to give me directly to

ARI for badly needed research money (none of which I have ever asked

for). Klaire's phone is 866-216-6127).

> Best wishes, Dr. JM

>

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Guest guest

I did not change my diet in the past 4 months. The only change has

been starting ldn. I never in my life experianced the mood swings I

have as of late. If it was diet I would think I would have

experianced it long before now.

Take Care >

> Hi, I'm owner of the autism children's LDN group, and wanted to

mention my ideas and experiences with mood swings in some of the

autistic kids with whom I am working. As you all know, naltrexone

is an opioid antagonist. In the early years of treating autism,

many of us tried naltrexone in the regular doses (we didn't yet know

about LDN) to try to offset the opioids produced in autistic

children's brains because of their inability to break down the large

peptides of casein, gluten, and usually soy and sometimes corn too.

We hoped to avoid having to put them on special diets by this means.

It never worked well except for a few SIB (Self Injurious Behavior)

kids, and we recognized they were probably having opioid withdrawal

symptoms but of course didn't know until Bihari's work that their

immune systems were probably being made even worse by the regular

50mg doses. (Children who are unable to excrete heavy metals and

got poisoned from 1991 until 2002 by the mercury in their newborn

> vaccines sustained gut injuries and immune system injuries, the

hallmarks of autism, and the primary cause of the huge epidemic of

autism occurring in that decade. This high rate is finally starting

to go down now as they have finally removed much of the mercury from

newborn vaccines).

>

> However, even in the ultra-small doses we are using, some people

not on GF/CF diets may have dietary opioids that are causing them

the withdrawal phenomenon. And some people may have unusual

endogenous opioids, but my suspicion is that these offenders often

come from the diet, and a sizeable number of some people other than

just autistic kids have the inability to digest the big peptides in

some foods.

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Guest guest

Loraine,

In 2000, when I first tried gfcfsf for our daughter I would never

have believed that a small dietary infraction would produce such

profound results. She had been suffering with many seizures per day

that no medication relieved. She had opiods in her urine in high

amounts. I thought why not try this diet. We went `cold turkey'. For

the first 3 days of the gfcfsf diet our daughter had what looked

like DT's; seizure after seizure until day 4 when they began to

subside. They were gone by day 5. When we got our act together [we

discovered among other things that even her seizure medicine had a

milk product in it] we have seen that almost every seizure episode

can be tied to a dietary infraction. They come 8-12 hours after she

eats the offending food and will be gone in the next 24 hours. How

many depends on how much of a forbidden product she ate [she's old

enough that she plugs machines at school etc]. The searching

mentality for gluten, casein and soy truly resembles an addict's; so

she must be getting one heck of a `high' when she ingests these

items. Mood irritability is certainly an aspect of this for our

daughter as is insensitivity to pain, ataxia, glazed eyes with

inappropriately dilated pupils. We used naltrexone at the time for

several months to help her over the withdrawal. We use enzymes

routinely. I would also say that for her, vaccine injury is a big

player for inducing mercury related symptoms, one of which can be

related to gfcfsf diet as mercury `inactivates' enzymes responsible

for completely digesting gluten and casein. The incompletely

digested proteins are left in an opiod state that can be measured in

urine. Currently, for our daughter, major symptom relief depends

upon diet.

> >

> > Hi, I'm owner of the autism children's LDN group, and wanted to

> mention my ideas and experiences with mood swings in some of the

> autistic kids with whom I am working. As you all know, naltrexone

> is an opioid antagonist. In the early years of treating autism,

> many of us tried naltrexone in the regular doses (we didn't yet

know

> about LDN) to try to offset the opioids produced in autistic

> children's brains because of their inability to break down the

large

> peptides of casein, gluten, and usually soy and sometimes corn

too.

> We hoped to avoid having to put them on special diets by this

means.

> It never worked well except for a few SIB (Self Injurious

Behavior)

> kids, and we recognized they were probably having opioid

withdrawal

> symptoms but of course didn't know until Bihari's work that their

> immune systems were probably being made even worse by the regular

> 50mg doses. (Children who are unable to excrete heavy metals and

> got poisoned from 1991 until 2002 by the mercury in their newborn

> > vaccines sustained gut injuries and immune system injuries, the

> hallmarks of autism, and the primary cause of the huge epidemic of

> autism occurring in that decade. This high rate is finally

starting

> to go down now as they have finally removed much of the mercury

from

> newborn vaccines).

> >

> > However, even in the ultra-small doses we are using, some

people

> not on GF/CF diets may have dietary opioids that are causing them

> the withdrawal phenomenon. And some people may have unusual

> endogenous opioids, but my suspicion is that these offenders often

> come from the diet, and a sizeable number of some people other

than

> just autistic kids have the inability to digest the big peptides

in

> some foods. This could be a genetic variation or some lack of gut

> enzymes that cause the large peptides to not break down into the

> amino acids but to circulate in the brain and get into the brain

as

> caseo/gluteo-opioids. Some of these people will manifest the

opioid

> antagonism as irritability and mood swings, like a drug addict

that

> can't get the " fix. "

> >

> > When I did my first study with 15 of my own patients, all were

> on dietary restricted diets (no casein, gluten, or soy) and no one

> had a problem with mood swings. When it got out into the greater

> autism community and some kids were for various reasons not on the

> restricted diets, some reports started coming in about mood

swings.

> If I could convince the parents to get their kids on the diet,

many

> of those side effects abated. However, many people are addicted

to

> wheat and milk, and would rather forego the benefits of LDN rather

> than not get their fix of these foods, particularly adults who

have

> ages-long dietary habits and may not even know how it feels to

feel

> good. With the autistic kids, 85-90% improve with just removing

> these foods, not even considering LDN, so many of the

knowledgeable

> and sophisticated parents have their children on these

restrictions

> already, so we do not get too many who have the mood reactions.

> And, some kids have recovered enough that they no longer

> > have this intolerance. I just thought I would mention this as

> some of you might really want to try taking casein and gluten

(which

> are not really GOOD for anyone anyway), out of your diet and see

if

> that helps LDN work without the moodiness. Sometimes just

removing

> dairy will do the trick, or just gluten (wheat, rye, oats and

> barley). If that is an unbearable thought, and you don't want to

> give up your wheat and milk OR your LDN, you could at least try

some

> excellent digestive enzymes that have been designed for autistic

> kids but have many of us adults using them, and for some people,

> this will be enough to break down the large peptides so they do

not

> have to go on a strict diet. Klaire Labs makes an excellent one

> called Vital-Zymes Complete, and one with each meal or two with a

> heavy casein/gluten meal helps the digestion for many of us. Just

> some food for thought.

> >

> > (Klaire will not dispense to the public, only to doctors, but

if

> you tell them I sent you (Dr. Jaquelyn McCandless) they will not

> only sell them to you but give you a 20% discount on any of their

> products and also donate 10% to Autism Research Institute for

> research. I helped them over two years develop this enzyme, and

> decided to donate all proceeds they wanted to give me directly to

> ARI for badly needed research money (none of which I have ever

asked

> for). Klaire's phone is 866-216-6127).

> > Best wishes, Dr. JM

> >

>

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Guest guest

Hi

This is very interesting - I have a feeling I am mercury poisoned so

I may lack the enzymes you describe therefore the lack of my

weekly 'hit' could be having a profound effect. I have a mouthful of

amalgams and had one while expecting my daughter. I know she is

mercury poisoned, we are starting chelation for her this week.

However I'm questioning why I didn't experience these feelings in

the first six weeks - I felt great, given this theory I should have

felt worse. Also, given the ldn is blocking the opiod effect, in

theory I should start to feel better soon as my system gets used to

the lack of a hit, just like an addict. Or is it that because the

naltraxone is low dose the hit is just diminished therefore the

feelings will continue. I'm just trying to think this through

logically as I don't have a medical background.

Loraine

> > >

> > > Hi, I'm owner of the autism children's LDN group, and wanted

to

> > mention my ideas and experiences with mood swings in some of the

> > autistic kids with whom I am working. As you all know,

naltrexone

> > is an opioid antagonist. In the early years of treating autism,

> > many of us tried naltrexone in the regular doses (we didn't yet

> know

> > about LDN) to try to offset the opioids produced in autistic

> > children's brains because of their inability to break down the

> large

> > peptides of casein, gluten, and usually soy and sometimes corn

> too.

> > We hoped to avoid having to put them on special diets by this

> means.

> > It never worked well except for a few SIB (Self Injurious

> Behavior)

> > kids, and we recognized they were probably having opioid

> withdrawal

> > symptoms but of course didn't know until Bihari's work that

their

> > immune systems were probably being made even worse by the

regular

> > 50mg doses. (Children who are unable to excrete heavy metals

and

> > got poisoned from 1991 until 2002 by the mercury in their newborn

> > > vaccines sustained gut injuries and immune system injuries,

the

> > hallmarks of autism, and the primary cause of the huge epidemic

of

> > autism occurring in that decade. This high rate is finally

> starting

> > to go down now as they have finally removed much of the mercury

> from

> > newborn vaccines).

> > >

> > > However, even in the ultra-small doses we are using, some

> people

> > not on GF/CF diets may have dietary opioids that are causing

them

> > the withdrawal phenomenon. And some people may have unusual

> > endogenous opioids, but my suspicion is that these offenders

often

> > come from the diet, and a sizeable number of some people other

> than

> > just autistic kids have the inability to digest the big peptides

> in

> > some foods. This could be a genetic variation or some lack of

gut

> > enzymes that cause the large peptides to not break down into the

> > amino acids but to circulate in the brain and get into the brain

> as

> > caseo/gluteo-opioids. Some of these people will manifest the

> opioid

> > antagonism as irritability and mood swings, like a drug addict

> that

> > can't get the " fix. "

> > >

> > > When I did my first study with 15 of my own patients, all

were

> > on dietary restricted diets (no casein, gluten, or soy) and no

one

> > had a problem with mood swings. When it got out into the

greater

> > autism community and some kids were for various reasons not on

the

> > restricted diets, some reports started coming in about mood

> swings.

> > If I could convince the parents to get their kids on the diet,

> many

> > of those side effects abated. However, many people are addicted

> to

> > wheat and milk, and would rather forego the benefits of LDN

rather

> > than not get their fix of these foods, particularly adults who

> have

> > ages-long dietary habits and may not even know how it feels to

> feel

> > good. With the autistic kids, 85-90% improve with just removing

> > these foods, not even considering LDN, so many of the

> knowledgeable

> > and sophisticated parents have their children on these

> restrictions

> > already, so we do not get too many who have the mood reactions.

> > And, some kids have recovered enough that they no longer

> > > have this intolerance. I just thought I would mention this

as

> > some of you might really want to try taking casein and gluten

> (which

> > are not really GOOD for anyone anyway), out of your diet and see

> if

> > that helps LDN work without the moodiness. Sometimes just

> removing

> > dairy will do the trick, or just gluten (wheat, rye, oats and

> > barley). If that is an unbearable thought, and you don't want

to

> > give up your wheat and milk OR your LDN, you could at least try

> some

> > excellent digestive enzymes that have been designed for autistic

> > kids but have many of us adults using them, and for some people,

> > this will be enough to break down the large peptides so they do

> not

> > have to go on a strict diet. Klaire Labs makes an excellent one

> > called Vital-Zymes Complete, and one with each meal or two with

a

> > heavy casein/gluten meal helps the digestion for many of us.

Just

> > some food for thought.

> > >

> > > (Klaire will not dispense to the public, only to doctors,

but

> if

> > you tell them I sent you (Dr. Jaquelyn McCandless) they will not

> > only sell them to you but give you a 20% discount on any of

their

> > products and also donate 10% to Autism Research Institute for

> > research. I helped them over two years develop this enzyme, and

> > decided to donate all proceeds they wanted to give me directly

to

> > ARI for badly needed research money (none of which I have ever

> asked

> > for). Klaire's phone is 866-216-6127).

> > > Best wishes, Dr. JM

> > >

> >

>

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Guest guest

If you think you have mercury poisoning, you can safely take an oral

chelation with the correct minerals in addition and it pulls the metals out

of your body so slowly that it is less invasive to your condition than

allowing them to remain and continue destroying your CNS.

[low dose naltrexone] Re: Mood Swings on LDN

> Hi

> This is very interesting - I have a feeling I am mercury poisoned so

> I may lack the enzymes you describe therefore the lack of my

> weekly 'hit' could be having a profound effect. I have a mouthful of

> amalgams and had one while expecting my daughter. I know she is

> mercury poisoned, we are starting chelation for her this week.

>

> However I'm questioning why I didn't experience these feelings in

> the first six weeks - I felt great, given this theory I should have

> felt worse. Also, given the ldn is blocking the opiod effect, in

> theory I should start to feel better soon as my system gets used to

> the lack of a hit, just like an addict. Or is it that because the

> naltraxone is low dose the hit is just diminished therefore the

> feelings will continue. I'm just trying to think this through

> logically as I don't have a medical background.

>

> Loraine

>

>

>

>> > >

>> > > Hi, I'm owner of the autism children's LDN group, and wanted

> to

>> > mention my ideas and experiences with mood swings in some of the

>> > autistic kids with whom I am working. As you all know,

> naltrexone

>> > is an opioid antagonist. In the early years of treating autism,

>> > many of us tried naltrexone in the regular doses (we didn't yet

>> know

>> > about LDN) to try to offset the opioids produced in autistic

>> > children's brains because of their inability to break down the

>> large

>> > peptides of casein, gluten, and usually soy and sometimes corn

>> too.

>> > We hoped to avoid having to put them on special diets by this

>> means.

>> > It never worked well except for a few SIB (Self Injurious

>> Behavior)

>> > kids, and we recognized they were probably having opioid

>> withdrawal

>> > symptoms but of course didn't know until Bihari's work that

> their

>> > immune systems were probably being made even worse by the

> regular

>> > 50mg doses. (Children who are unable to excrete heavy metals

> and

>> > got poisoned from 1991 until 2002 by the mercury in their newborn

>> > > vaccines sustained gut injuries and immune system injuries,

> the

>> > hallmarks of autism, and the primary cause of the huge epidemic

> of

>> > autism occurring in that decade. This high rate is finally

>> starting

>> > to go down now as they have finally removed much of the mercury

>> from

>> > newborn vaccines).

>> > >

>> > > However, even in the ultra-small doses we are using, some

>> people

>> > not on GF/CF diets may have dietary opioids that are causing

> them

>> > the withdrawal phenomenon. And some people may have unusual

>> > endogenous opioids, but my suspicion is that these offenders

> often

>> > come from the diet, and a sizeable number of some people other

>> than

>> > just autistic kids have the inability to digest the big peptides

>> in

>> > some foods. This could be a genetic variation or some lack of

> gut

>> > enzymes that cause the large peptides to not break down into the

>> > amino acids but to circulate in the brain and get into the brain

>> as

>> > caseo/gluteo-opioids. Some of these people will manifest the

>> opioid

>> > antagonism as irritability and mood swings, like a drug addict

>> that

>> > can't get the " fix. "

>> > >

>> > > When I did my first study with 15 of my own patients, all

> were

>> > on dietary restricted diets (no casein, gluten, or soy) and no

> one

>> > had a problem with mood swings. When it got out into the

> greater

>> > autism community and some kids were for various reasons not on

> the

>> > restricted diets, some reports started coming in about mood

>> swings.

>> > If I could convince the parents to get their kids on the diet,

>> many

>> > of those side effects abated. However, many people are addicted

>> to

>> > wheat and milk, and would rather forego the benefits of LDN

> rather

>> > than not get their fix of these foods, particularly adults who

>> have

>> > ages-long dietary habits and may not even know how it feels to

>> feel

>> > good. With the autistic kids, 85-90% improve with just removing

>> > these foods, not even considering LDN, so many of the

>> knowledgeable

>> > and sophisticated parents have their children on these

>> restrictions

>> > already, so we do not get too many who have the mood reactions.

>> > And, some kids have recovered enough that they no longer

>> > > have this intolerance. I just thought I would mention this

> as

>> > some of you might really want to try taking casein and gluten

>> (which

>> > are not really GOOD for anyone anyway), out of your diet and see

>> if

>> > that helps LDN work without the moodiness. Sometimes just

>> removing

>> > dairy will do the trick, or just gluten (wheat, rye, oats and

>> > barley). If that is an unbearable thought, and you don't want

> to

>> > give up your wheat and milk OR your LDN, you could at least try

>> some

>> > excellent digestive enzymes that have been designed for autistic

>> > kids but have many of us adults using them, and for some people,

>> > this will be enough to break down the large peptides so they do

>> not

>> > have to go on a strict diet. Klaire Labs makes an excellent one

>> > called Vital-Zymes Complete, and one with each meal or two with

> a

>> > heavy casein/gluten meal helps the digestion for many of us.

> Just

>> > some food for thought.

>> > >

>> > > (Klaire will not dispense to the public, only to doctors,

> but

>> if

>> > you tell them I sent you (Dr. Jaquelyn McCandless) they will not

>> > only sell them to you but give you a 20% discount on any of

> their

>> > products and also donate 10% to Autism Research Institute for

>> > research. I helped them over two years develop this enzyme, and

>> > decided to donate all proceeds they wanted to give me directly

> to

>> > ARI for badly needed research money (none of which I have ever

>> asked

>> > for). Klaire's phone is 866-216-6127).

>> > > Best wishes, Dr. JM

>> > >

>> >

>>

>

>

>

>

>

>

>

>

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