Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 yesterday i had a horrible hissing noise when i spoke and i could hear it other times. my neuro said that i could have some soft pallette weakness last time i saw him as this has happenned before. last time i raised my dose of LDN to 5.0 mgs for 4 days. it worked but i could see it reappearing with each passing day. at first it was transient( after i took the increased dose, and yesterday, i felt that sometimes i did not have the breath to get words out. i am kind of scared because LDN worked so well for me for 3 months. i had no fatigue or troubling symptoms. since that time i have noticed a steady decline if i look at my notes, and i have taken all suggestions that have been made except for the 25mg one, and i plan on trying that this weekend. what, other than this stupid disease could be the reason for the LDN to stop working? my doc is a joke and seems to get pleasure out of my seeming failure. he gave me copaxone at my last visit even though i have been on it for extended periods and progressed horribly while on it. i made an appt with a new one but he is not a specialist so i don't expect much. has anyone experienced what i am? it was a wonder drug at first for me. i had such great results, i don't understand. any thoughts would be appreciated. i feel so lost. stem cells anyone? joanna Quote Link to comment Share on other sites More sharing options...
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