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Hi and welcome to the group. Are you taking an RA meds. Pain meds

will help with the pain, but there are RA drugs that seek to control

the pain, stiffness, fatigue and overall progression of the disease

(to prevent joint destruction and disability). Usually the first

drugs tried are Plaquinil or Methotrexate (mtx), or a combination.

If those fail, there are biological drugs that can be used in

combination with mtx that are very good. There are other options as

well.

Jennie

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> I was just recently diagnosed with RA and Scoliosis. The RA is

> mainly in my upper back, shoulders and neck. I am currently taking

> Day Pro for the pain. I have been prescribed 600mg. 2X a day, but

> am afraid of what it will do to my kidneys, since I also have a

> danger of kidney disease from diabetes, so I usually take it only

> once a day, unless the pain gets unbearable.

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Welcome to the group! Are you seeing a rheumatologist?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Hi, I'm new!

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> I was just recently diagnosed with RA and Scoliosis. The RA is

> mainly in my upper back, shoulders and neck. I am currently taking

> Day Pro for the pain. I have been prescribed 600mg. 2X a day, but

> am afraid of what it will do to my kidneys, since I also have a

> danger of kidney disease from diabetes, so I usually take it only

> once a day, unless the pain gets unbearable.

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Welcome to our group. Sorry for the reason you¹re here, but glad you found

us. Is your back, neck and shoulder pain coming from the scoliosis? I

hope you are seeing a rheumatologist. They will do regular blood tests to

monitor your kidneys and liver. Is your doctor going to start you on meds

for the RA? The Daypro is just an anti-inflammatory that is helping with

the inflammation and pain, but not treating the disease.

Hope to get to know you better.

a

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>

> I was just recently diagnosed with RA and Scoliosis. The RA is

> mainly in my upper back, shoulders and neck. I am currently taking

> Day Pro for the pain. I have been prescribed 600mg. 2X a day, but

> am afraid of what it will do to my kidneys, since I also have a

> danger of kidney disease from diabetes, so I usually take it only

> once a day, unless the pain gets unbearable.

>

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  • 1 year later...
Guest guest

Hi Everybody,

My name is and I am new to this site. I have sent lots of info

to my neuro about LDN. I am so ready to not stick myself anymore and

not have to do the chemo. What I don't know is how many of the other

meds I might be able to not take if I am able to get the Doc to write a

script for LDN. Right now I take Neurontin, Baclofen, Provigil,

Lexapro, Ditropan and (vicodin prn for back pain). I would love to not

have my dresser look like a pharmacy.

Also, my neuro is considered a specialist in MS and does a speaking

circuit for the MS Society. How likely is he to consider this

treatment...I know that that speaking gig is often funded by the pharm.

companies.

Thanks for your help,

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  • 1 year later...

Hi Allyson,

Welcome! I have no experience with older children (my son is 5), but my

first thought was regarding your son's hormones. Are they in balance?

Kristy

Hi, I'm new!

My name is Allyson, and my step son has Asperger's Syndrome. He's 17,

in Grade 11 at school, and currently struggling (he was doing *really*

well until this year). For the past five years, he's seemed to be

improving, vastly, and we've been so proud of him. He has kept his

grades up, participated (voluntarily!) in creating an after-school

social group, and made some friends (very difficult for him). He is

also fairly popular at school as a work partner and aquaintance,

although he doesn't have many close friends. Then, this year, it seems

like he's suddenly begun to regress. His grades dropped, he's taken on

behaviors from years ago, and some of the symptoms he had successfully

reduced have become prominent again.

Has anyone else experienced this? Are we moving backwards? Is he just

going through a phase?

Hi all... While #1Son isn't my bio son, he's very much a loveable kid,

and I love him as my own flesh and blood. I hope this is an okay

introduction! Please feel free to ask questions - I respond better to

being grilled, than to writing a cold intro. ;)

Allyson

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On Jan 28, 2008 11:33 PM, Kristy Nardini <krnardini@...> wrote:

> Welcome! I have no experience with older children (my son is 5), but my

> first thought was regarding your son's hormones. Are they in balance?

Thanks for the welcome! :)

I have no idea about his hormones. He's a normal, 17 year old boy in

that he likes to look at pretty girls, and all the (ahem) equipment

works fine, or so I've been told. He has facial hair and all that

jazz, and he sure smells like a 17 yr old boy.

However, all those are just indicators. Perhaps I ought to suggest his

dad have that checked. Thanks!

Allyson

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