Wish me Luck

January 29, 2004

Good luck, ! Sad that your current rheumatologist isn't more

compassionate. I'm glad you found a new one.

Please let us know what happens.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Wish Me Luck

> Hi All,

> Last week I called my rhemy with aquestion bout my meds. I have

> been on this mixture at this dosage for about a month now. My

> swelling is still the same, pain is returning, hands are numb, and

> meds are making me sick enough to miss an average of 2-3 days of

> work each week and the shut off notices are stacking up. Basically I

> wanted to know if I should be seeing some results from this

> medication that is making me so sick at this point or if possibly

> its time to try something different. I start back to school this

> week.

> After 6 hours the nurse calls me back and says, well Dr. says you

> need carpal tunnel surgery. I say allright what about the meds. She

> says well thats all he said you shouldget in touch with your family

> Dr about the surgery I guess cuz Dr. didnt write anything else in

> your chart. So I hang up the phone in shock sort of. This Dr not

> only didnt answer my question but didnt feel the need to notify me

> that I needed surgery for over three weeks (I had an EMG done at his

> office Jan 2). It stands to reason he wouldnt have bothered to

> mention anything at all until my appointment in March. After the

> shock wore off I got angry how dare this man who is supposed to have

> my best interest in mind allow me to go on suffering with this

> condition for even one moment longer than I have to. If I had known

> about the surgery three weeks ago I may have either already had it

> done or at least had something scheduled by now. How can a human

> being be so uncaring. If it was his life or his mothers or sisters

> or wifes I think thestory wouldplay out a little different.

> Anyhow on a brighter note a few people pulled some strings and

> got me an appointment with a new rhemy. I am hoping it works out a

> little better with the new Dr. soeveryone wish me luck and Ill let

> you know how it works out.

> Feeling hopefull,

>

January 29, 2004

:

I wish you positive thoughts regarding your appointment with the new Rheumy. A

good doctor makes all the difference and I have done my share of trying to find

a good doctor, whether they are my internist or my Rheumy. After a lot of hits

and misses, I finally have a good set of drs working with me. Even though they

are not affiliated with each other, they do have a network of communications

going between them.

Take care and hope all works out for you and personally, I know it will.

Jan

[ ] Wish Me Luck

Hi All,

Last week I called my rhemy with aquestion bout my meds. I have

been on this mixture at this dosage for about a month now. My

swelling is still the same, pain is returning, hands are numb, and

meds are making me sick enough to miss an average of 2-3 days of

work each week and the shut off notices are stacking up. Basically I

wanted to know if I should be seeing some results from this

medication that is making me so sick at this point or if possibly

its time to try something different. I start back to school this

week.

After 6 hours the nurse calls me back and says, well Dr. says you

need carpal tunnel surgery. I say allright what about the meds. She

says well thats all he said you shouldget in touch with your family

Dr about the surgery I guess cuz Dr. didnt write anything else in

your chart. So I hang up the phone in shock sort of. This Dr not

only didnt answer my question but didnt feel the need to notify me

that I needed surgery for over three weeks (I had an EMG done at his

office Jan 2). It stands to reason he wouldnt have bothered to

mention anything at all until my appointment in March. After the

shock wore off I got angry how dare this man who is supposed to have

my best interest in mind allow me to go on suffering with this

condition for even one moment longer than I have to. If I had known

about the surgery three weeks ago I may have either already had it

done or at least had something scheduled by now. How can a human

being be so uncaring. If it was his life or his mothers or sisters

or wifes I think thestory wouldplay out a little different.

Anyhow on a brighter note a few people pulled some strings and

got me an appointment with a new rhemy. I am hoping it works out a

little better with the new Dr. soeveryone wish me luck and Ill let

you know how it works out.

Feeling hopefull,

December 8, 2005

Goos Luck, hope everything goes well, and that you get some answers, In WI

marina_troi <marina_troi@...> wrote: I saw my orthopedist today. After

reviewing the MRI I had done while

I was hospitalized last week and all the pain I've been having with my

knee, he has decided to do a knee scope. He got me in today and I go

in at 4pm. I will be leaving hime in about an hour to head over to

the hospital. Not lookig forward to it, but I am looking forward to

pain relief. I'm so tired of the pain and my knee giving out on me.

There have been time where I couldn't even get off the toilet because

my knee wouldn't suport me. I have to go up my stairs by hoping on my

left leg and holding on to the rail!! So, I would appreciate all the

prayers I know I will get from all of you......Marina

December 8, 2005

Marina,

You know your on my prayer list always. Hope they can help you, and

get you some relief, Tawny

--- In , " marina_troi " <marina_troi@y...>

wrote:

>

> I saw my orthopedist today. After reviewing the MRI I had done

while

> I was hospitalized last week and all the pain I've been having with

my

> knee, he has decided to do a knee scope. He got me in today and I

go

> in at 4pm. I will be leaving hime in about an hour to head over to

> the hospital. Not lookig forward to it, but I am looking forward

to

> pain relief. I'm so tired of the pain and my knee giving out on

me.

> There have been time where I couldn't even get off the toilet

because

> my knee wouldn't suport me. I have to go up my stairs by hoping on

my

> left leg and holding on to the rail!! So, I would appreciate all

the

> prayers I know I will get from all of you......Marina

>

December 9, 2005

Marina,

glad to hear it went well....... hope you begin to feel better soon.

kerri sue

marina_troi <marina_troi@...> wrote:

Well, I had my surgery last night. Went in about 730pm and came out

about 900pm. I got home around 1100pm. They wanted me to stay, but

I couldn't afford it. I was an inpatient all last week and I have a

copay of $250 for that. If I stayed last night, then it would have

been another $250. So, I decided to go home. Actually, it was

anesthesia that wanted me to stay because of all the medications

they gave me. They were just looking after me, my mother hens, so

to speak!! It took 3 of them to finally get an IV in me. My veins

are still shot from last week. They had to put a new IV in me

nearly every day last week because they kept infiltrating (going bad)

and my one and only " good " veing is still recovering from phlebitis

from last week. Oh well.

They finally did get one in, after multiple sticks!! When I said it

took 3 people, I ment 3 anesthesiologist. Then one of the nurses

tried as well, so I guess that make it 4 people! I think the

prednisone has made my veins bad as well as the fact that I was

dehydrated. <sigh>>>.

Well, my surgeon had told me that my MRI showed fluid buil up in my

knee and some synovitis (inflammation of the synovium, the soft

tissue surrounding the knee bones) as well as a little wear on the

patela which he said is from the RA. But, since it has been getting

more and more painful, he said it was time to scope it. Since I

hadnt' eaten or drank anything that morning and that I am off owrk

util Monday, he said he would try and get me in right away. So, his

office called my surgery department and they said that they would

make room for me. It's so nice to have friends like that!!

So, he did my surgery, and I have to say that it feels so much

better, already. I have the usuall surgical pain, but the knife

jabbing pain I had all around my knee is gone, so far. I looked at

the pictures he took during the surgery and I have to say that it

looked worse than what the MRI had said. There was a cartlige tear

and some errosion on the lower patela. I also had a lot of

inflammation, probably from the RA, in the synovium and he shaved

that done a little, as well.

I need to call his office today to go in for a dressing change. I

also need to get my return to work release from him, as well. I'm

not looking forward to go there in the snow. Hopefully the roads

have been cleared off. I need to fill my prescription, as well.

Yes, I have someone to drive me. His office is over 40 miles away,

but since his nurse will be changing the dressing, I'm hoping they

will let me go to the office that's 30 miles away.

Thank you for the prayers and voiced concern. I truely do

appreciate it so much. I am so blessed to have friends and family

like you. Thanks again........Gentle hugs to all, Marina

December 9, 2005

Glad everything went well for you. I was wondering this morning how things went

for you. Be carefull out there in the snow, don't fall.

We had another couple of inches of snow last night, although my brother-in-law

cleaned my car off for me, I think I will just stay put. in WI