RE: Spam Alert: LDN funding for trials?

[Guest guest]

FYI, here's feedback I got from the President of MSAA, reacting to an email of complaint I sent him about his 'faux pas' in generalizing about MS patients...

Rae

Thank you for bringing this sample to our attention. We are not insensitive nor are we in any drug company’s pocket. Our Chief Medical Officer, Dr. Jack Burks is well known in the MS community and MSAA tried to make a case for patient safety. I regret the outpouring of animus that has been directed towards us. MSAA is pleased with the FDA panel’s recommendation to re-introduce Tysabri with strict safety guidelines. That is all we were advocating for. Thank you for sharing this with us.

Doug lin

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Russ MilesSent: Wednesday, March 15, 2006 4:34 AMlow dose naltrexone Subject: Spam Alert: [low dose naltrexone] LDN funding for trials?

I have to agree with Gigi on this one. For What? So they ( the traditional medicine men) can find some reason to take an effective , low cost, RX off the market? Bet on it!

Look what they did with Tysabri. Because a very few MSers had adverse reactions, they stopped its use for everone that the drug was helping. With the help of so called non-profits, MSers were made to look like idiots. Like I have posted on the front page of my website http://MilesBooks.com , MSers can't expect the non-profit establishment to want to help.

March 9th,2006

The Pres and CEO of MSAA (Multiple Sclerosis Association of America) testified that MS patients would not be able to fully consider the risks of Tysabri due to their cognative loss issues. What?! I'm sorry...Teva were you talking so loud because they were paying you? ... I couldn't hear you... For a minute, I thought you just alienated and insulted the majority of the MS patient population.

The same can be expected if LDN tests prove many can helped. There's no money in it...lol... Perhaps, athe money already collected for double-blind studies should be spent to have a party instead? Those who can afford to attend, can get up and talk about it effectiveness for them, and the press might even attend. Hey, it might provide more proof that MS victims openions can't be trusted due to our cognative loss issues...

Let's not forget that NO Major disease has been stomped out since the March Of Dimes knocked out the one that they were started for in the 1950s. Many Drs were put out of business. Some, likely became neuros....LOL...The iron lung people suffered a terrible setback. The vaccine's, developer was said to be a quack by traditional medcine's practioners, like the vitiman C advocate was, some years later...lol.. Just as Dr. Hulga is today by Drs in "Good standing" with the AMA.

I set here using a little nine volt home-made "Zapper" for 21 minutes a day, killing the parasites involved in MS, taking vitimans, herbs and supplements, sipping my "Silver water" (colloidal silver), with my wheelchair back in the car for use when walking is not convenient. Likely I am experiencing a "Remission." Or, perhaps it's just another proof of my "Cognative loss issues?"

~HUGS~

Russ:))

Visit http://MilesBooks.com for some alternatives

[Guest guest]

Good Job, RaeAndDoug Bower for taking action As I posted a close

variation of what I recieved by e-mail from an MS Tysabri activist,

I didn't bother to check it out I'm pleased that you did

I will, of course, now remove the untrue post from my landing page

and post the letter that you rieieved into the Tysabri area of

my " Activist Issues " section ~ as I was not able to find " Teva " or

his alledged statement by several methods of google search. Becoming

a part of spreding an untrue " SPAM " is in no way my intention for

http://MilesBooks.com ... Again, my sincere thanks!

~Respectfully and with hugs~ Russ:))

>

> FYI, here's feedback I got from the President of MSAA, reacting to

an email

> of complaint I sent him about his 'faux pas' in generalizing about

MS

> patients...

> Rae

>

> Thank you for bringing this sample to our attention. We are not

insensitive

> nor are we in any drug company's pocket. Our Chief Medical

Officer, Dr.

> Jack Burks is well known in the MS community and MSAA tried to

make a case

> for patient safety. I regret the outpouring of animus that has

been

> directed towards us. MSAA is pleased with the FDA panel's

recommendation to

> re-introduce Tysabri with strict safety guidelines. That is all

we were

> advocating for. Thank you for sharing this with us.

>

> Doug lin

>

>

> _____

>

> From: low dose naltrexone

> [mailto:low dose naltrexone ] On Behalf Of Russ Miles

> Sent: Wednesday, March 15, 2006 4:34 AM

> low dose naltrexone

> Subject: Spam Alert: [low dose naltrexone] LDN funding for trials?

>

>

>

> I have to agree with Gigi on this one. For What? So they ( the

traditional

> medicine men) can find some reason to take an effective , low

cost, RX off

> the market? Bet on it!

>

> Look what they did with Tysabri. Because a very few MSers had

adverse

> reactions, they stopped its use for everone that the drug was

helping. With

> the help of so called non-profits, MSers were made to look like

idiots. Like

> I have posted on the front page of my website

http://MilesBooks.com , MSers

> can't expect the non-profit establishment to want to help.

>

> March 9th,2006

>

> The Pres and CEO of MSAA (Multiple Sclerosis Association of

America)

> testified that MS patients would not be able to fully consider the

risks of

> Tysabri due to their cognative loss issues. What?! I'm

sorry...Teva were you

> talking so loud because they were paying you? ... I couldn't hear

you...

> For a minute, I thought you just alienated and insulted the

majority of the

> MS patient population.

>

> The same can be expected if LDN tests prove many can helped.

There's no

> money in it...lol... Perhaps, athe money already collected for

double-blind

> studies should be spent to have a party instead? Those who can

afford to

> attend, can get up and talk about it effectiveness for them, and

the press

> might even attend. Hey, it might provide more proof that MS

victims openions

> can't be trusted due to our cognative loss issues...

>

> Let's not forget that NO Major disease has been stomped out since

the March

> Of Dimes knocked out the one that they were started for in the

1950s. Many

> Drs were put out of business. Some, likely became

neuros....LOL...The iron

> lung people suffered a terrible setback. The vaccine's, developer

was said

> to be a quack by traditional medcine's practioners, like the

vitiman C

> advocate was, some years later...lol.. Just as Dr. Hulga is

today by

> Drs in " Good standing " with the AMA.

>

> I set here using a little nine volt home-made " Zapper " for 21

minutes a day,

> killing the parasites involved in MS, taking vitimans, herbs and

> supplements, sipping my " Silver water " (colloidal silver), with my

> wheelchair back in the car for use when walking is not convenient.

Likely I

> am experiencing a " Remission. " Or, perhaps it's just another proof

of my

> " Cognative loss issues? "

>

> ~HUGS~

>

> Russ:))

>

> Visit http://MilesBooks.com for some alternatives

>

>

> _____

>