tethered cord-scolosis-chiari

July 2, 2012

Hi,

Recently i have become aware that i do have tethered cord, because of symptoms

that are becomeing more noticable. A urologist who ran a urodynamtics test few

yrs ago wrote in his report i had it but for some reason i didn't really pay

attention to what it said. I looked up on the interntet the symptoms and now i

wonder why the dr hasn't sent me to a neuroligist.

I saw the urologist last week because my symptoms are becoming to a point my

life is revoloving around this. He perscribed a medication and i didnt take it

because i do not like takeing medication,

especially if i dont understand what is going on with my symptoms. Now i do

after reading about it more and i definitalyl will not take the med now because

the symptoms can change back and forth and the med is for a symptom i have that

does this.

I didnt realize tethered cord worsens.

I have seven kids who most of them have chiari and we lost one in 2000 after she

became symptomatic from a spinal for childabirth, and i dont totaly understand

how it happend that she should have died, as no atopsy was done.

For anyone who reads this, i dont think it occurs in this way often, but i dont

think all is exactly known either.

After reading today about tethered cord, i think my son 26 has it and possible

my other son, 22 and daughter 23. The have a chiari also. My sons have back pain

and or knee pain.

What is weird is my sons have been told no tethered cord is seen on MRI. My 26

yr old and my daughter we lost have the hairy patch on lower back and my son had

two surgeries for a pyianidial cyst, i spelled that wrong im sure!

I sure dont want them to have problems in the furture, so now im frustratedf!!!

Thanks,

Joyce in ca

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