Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 i don't remember if i replied to this already, but here goes in case i didn't: it will be a year this month that i started LDN. i have been following the BBD for a couple of months now. i eat as organically as i can. i have not tried putting the capsule into a liquid yet because honestly, i have trouble shopping now and my Boyfriend keeps forgetting the distilled water. i take DLP, on your reccomendation from a couple of months ago. i have panic disorder, have had it all my life, so i am only taking one pill a day, unlike your partner who takes 2. i noticed improvment from it, but had an anxious few weeks and stopped it for a week or so. that week i was not on it was so emotionally draining on me that i went back on it and i feel normal mood wise again. i take a multi, Vit D, flax oil, fish oil, will be starting copper soon, i know i am forgetting alot. i have optic neuritis in my right eye. it has been a while since it started. i am very tired, i have vertigo for 2 years now that i have been trying to lessen by ways of balance therapy and occ. therapy. it helped to a degree but not enough to make my life less stressful. i have cold hands and feet at certain times and they turn white. i have cognitive problems, memory, etc. there are parts of my body that are numb and my hands feel like i am wearing wool gloves all the time. i saw my neuro today and he seems to get pleasure from telling me that i am wrong. he even asked a doc to come into my visit today from the same practicce that happenned to be there. he watched and smiled as this other doc tore me down. i am so discouraged now, i don't know what to do. the appt ended with him telling me that getting an elisa test is a scam. i asked him if he knew what it was and he walked away. i need a new neuro in the long island new york area. if you know of any please let me know. my neuro belongs to a practice that seems to have a monopoly on the area. they have 4 offices spanning 40 miles in area and they are mismanaged. ugh. thanks for your interest in my health. i hope all is well with you and yours. joanna [low dose naltrexone] LDN Funraiser - Please read!!!! > > > My name is Vicki and I live in No. CA. On Sept. 17, 06 I am hosting a > hugh benefit for Research on LDN and the Accelerated Cure Project. My > question to all you viewers does anyone live in California or close that > would like to become involved either by attending and speaking or helping > sending letters for donations. Also if anyone has ALS or AIDS that is on > LDN that is willing to share. I am working hard on the local TV, Radio > stations and news papers. Look for more info. on the fund raiser in about > 2 weeks. But keep in mind we do have a DATE and PLACE also live music, > raffles and much more. I look forward to your help > Thanks Vicki > > > ------------------------------------------------------------------------------ > Brings words and photos together (easily) with > PhotoMail - it's free and works with . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Joanna, I am so sorry that your doctor is so insensitive. It sounds like he has lost his since of really helping people. Even my husbands very wonderful Nero (in that she is very sweet and caring towards him), will not let me speak, she cuts me off in visits. She never looked at the LDN information that I presented and she seems to resent my asking questions and being involved, even though she says she would not have it any other way when I ask if she minds my coming in to the office visit. I love our general practitioner. She was not available right after was diagnosed with MS due to pregnancy leave. Upon her return I told her about LDN and how everything went with that product and she was very open minded and said that was great. She has her skeptical side, which I think is good because she is thinking, and not just following blindly. Her name is Joanna too. She is awesome and does a lot of research on everything. Just remember that there are wonderful doctors out there too and you just need to find a better one. Hang in there kiddo, we are all here for you Aletha [low dose naltrexone] LDN Funraiser - Please read!!!! >> >> >> My name is Vicki and I live in No. CA. On Sept. 17, 06 I am hosting a >> hugh benefit for Research on LDN and the Accelerated Cure Project. My >> question to all you viewers does anyone live in California or close that >> would like to become involved either by attending and speaking or helping >> sending letters for donations. Also if anyone has ALS or AIDS that is on >> LDN that is willing to share. I am working hard on the local TV, Radio >> stations and news papers. Look for more info. on the fund raiser in about >> 2 weeks. But keep in mind we do have a DATE and PLACE also live music, >> raffles and much more. I look forward to your help >> Thanks Vicki >> >> >> ------------------------------------------------------------------------------ >> Brings words and photos together (easily) with >> PhotoMail - it's free and works with . >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Jody, Regarding the voltage. Unless your defibrillator is being used on a regular basis as a pacer, then the voltage setting most likely doesn't make a difference. I think that most of us have the defibrillator as an emergency unit and it doesn't do anything to us except when we need it to intervene in an event of fibrillation or tachycardia. Especially in the beginning I felt run down and such after EP visits, because it was a new thing to get used to; this way of life that includes having boxes in our chests that need constant monitoring and adjustment because we have conditions that can kill us otherwise. That's a lot to take on and take in for a new defibrillator patient. The voltage adjustment is the voltage that they will use to pace you if you need bradycardia pacing -- which is a low voltage therapy. When you first get your defibrillator, things change around where the electrodes are placed. As your heart tissues adjust to electrodes being there, the resistance around them changes and the voltage needed for your defibrillator to capture and control the heart rhythm gradually decreases. They can lower the setting which should save battery life in case any pacing is needed. I dislike the feeling I get when they start pacing my heart to test the unit and I find a panic rising in me as my heart accelerates during the test. I've learned to be a bit more blasé about it lately. But don't underestimate the tiring effect of that experience and the newness of this all. Take care – God Bless – Ken McCormick Quote Link to comment Share on other sites More sharing options...
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