Fwd: LDN / MS info?

[Guest guest]

Hi all,

My wife knows this guy that comes into her office a lot to pay his

bills. His symptoms are like MS but also very different. Below is

an email he sent briefly describing some of his symptoms. This poor

guy and his doctors have no idea what he has. Anyone here have any

suggestions? My wife and I would like to help him out in whatever

way we can.

Thanks,

Begin forwarded message:

> From: Amato <msbaron67@...>

> Date: March 7, 2006 1:16:57 PM EST

> Vaccaro <jaynbeth@...>

> Subject: Re: LDN / MS info

>

> HI JASON,MY NAME IS DONALD THANKS FOR THE INFO. THAT I RECEIVED

> YESTERDAY.YOU HAVE A NICE WIFE,AND I AM SURE THAT YOU KNOW THAT OF

> COURSE.YEAH I TOLD BETH ABOUT MY SO CALLED ILLNESSES,I HAVE HAD IN

> THE PAST FROM OPTIC NEURTIS TO BLADDER PROBLEMS,MOBILITY AND MORE

> THINGS TO BOOT.I HAVE A HISTORY OF TIAS,WHICH MEANS SMALL STROKE

> EPISODES,I TAKE PLAVIX I AM SO GRATEFUL FOR THAT TREATMENT ON

> THAT PART.I ALSO HAVE A RIGHT HEMI-DIAPHRAPM,I HAVE TO USE O2

> (OXYGEN) WHEN DOING ACTIVITIES EG.WALKING BUT VERY LIMITED,LEGS GET

> VERY FATIQUE.BUT BECAUSE I AM TAKING MEDS FOR OTHER REASONS THEY DO

> NOT WANT IT TO INTERACT.I HAVE A PACEMAKER BECAUSE OF SYNCOPE

> EPISODES IN THE PAST.SO ,UNFORTUNENATELY NO MRI.CAN BE DONE ,NO

> BRAINER.SO,I DO VOLUNTEERING WORK AT THE RED CROSS IN NEWBURYPORT

> ON FRIDAYS,SOME TIMES I DO BLOOD DRIVES ,LIKE THIS ONE COMING UP ON

> FRIDAY @FRIENDS MEETING HOUSE,TO REGISTER PEOPLE.I AM ALSO ON THE

> DISASTER TEAM JUST LOCAL,I HAVE HAD THE PAGER A FEW TIMES,I CALL

> OTHER TO RESPOND.I DO SOME VOLUNTEERING AT THE ANNA JAQUES TO KEEP

> MY MIND GOING AS WELL IS MY SANITY.WELL I GOT RUN,I MEAN GET OFF

> THIS PAGE BEFORE I RUN OUT OF ROOM.THANKS AGAIN JASON,AND HAPPY

> ST.PATTYS DAY.

>

> Vaccaro <jaynbeth@...> wrote: Hi, My name is

> and you spoke to my wife at Adelphia about LDN.

> You wanted me to send you some information about LDN (Low Dose

> Naltrexone.) Here are some links you can check out.

>

> http://www.ldners.org

> http://www.low dose naltrexone.org

> low dose naltrexone

>

> Here's other groups you might find interesting

>

> mscured

> multiplesclorosis

>

> I've been on Meds for MS for 3 years. I was recently diagnosed in Dec.

> 05'. Right now I'm taking one of the standard meds for MS called

> Avonex, but I'm thinking of switching to LDN. It sounds fairly

> promising. Let me know if you have any questions. I'd be happy to

> help or point you in the right direction. Good Luck.

>

> Thanks,

>

> Vaccaro

>

>

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