Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Hi, I just started LDN with my copaxone and I am also on cytoxin (chemotherapy) for MS. I have RRMS and was DX'd in 2000. A few of my friends are having good results with LDN so they thought I should try it. I know that I can not take any narcodic pain med's with LDN is there anything else I should know? Thanks for all your help, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 , I am not sure that you should be taking LDN with chemotherapy. Hopefully someone on the chat site will get back to you on this that knows better than myself. I will send you a copy of the welcome e-mail if you would like. Just let me know. Kind regards Aletha [low dose naltrexone] Just Started LDN > Hi, > I just started LDN with my copaxone and I am also on cytoxin > (chemotherapy) for MS. I have RRMS and was DX'd in 2000. A few of my > friends are having good results with LDN so they thought I should try > it. > I know that I can not take any narcodic pain med's with LDN is there > anything else I should know? > Thanks for all your help, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 'anyone' or nearly everyone? I think I wrote about it in my journaling. http://www.larrygc.com/mystory With me it was the most bizarre when I realized what was going on with me. I started it in 2003 and my 2002 symptoms returned, of course, scaring the heck outta me... and then it went away... and then my 2001 sx started, and it went away; and my 2000 sx started, and it went away. When my double biinguinal hernias started hurting me I was really freaking out because I didn't DO anything to cause pain there! But after a few days, that pain went away. Then my 1998 sx came back for a few days. It was at that point it hit me all my symptoms were returning in Reverse Order! AND I developed those hernias in 1999!!!! Now THAT is bizarre! What do my hernias have to do with MS? Even more strange? My hernias have NOT bothered me SINCE those 3 days! It's like the body has a check list and checks out each sorespot in order of their occurrence starting with the latest. Another "has anyone else experienced this" which may be more like "has anyone NOT experienced this" is something very hard to describe. It's muscle twitching, in various places, that happens in one spot for a while, and then Another spot, and then another spot.. you can even see it if you're watching when it happens. It doesn't hurt and was pretty funny after the fear went away of what was going on. The other thing that most everyone notices is that their hair and nails start growing faster than ever before. The biggest "problem" with LDN, esp for people with MS, is "the fear factor"... when these things happen it scares a lot of people off it. I'm glad I never got scared off it, the last 3 1/4 years have been great, esp compared to the few years prior. [low dose naltrexone] just started LDN hi my dad has just started ldn 3mg and his condition has got a little worse, i am told by the doctor that prescribed the ldn that this sometimes happens before you see an improvement. Has anyone else experienced this. Quote Link to comment Share on other sites More sharing options...
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