Bad news

July 4, 2000

What is NASH?

July 4, 2000

Sorry,

Nash is Non alcoholic Steato Hepatitis

Regards,

Jude.

Re: rheumatic Bad News

> What is NASH?

>

July 4, 2000

Jude,

You might want to check into taking a natural good liver cleanse at

least once a week in addition to the daily milk thistle. Here's the one

I use -

Quarter a whole lemon and put in blender or Vita-Mix

Add: 8 oz. of water and 8 oz. organic apple juice

3 - 4 whole garlic cloves

3 - 4 TBS cold pressed olive oil

Strain well and drink.

Let me take this opportunity to express a concern I've had for some

time. I get alarmed when I see the number of medications some of the

people in this group are on. More is not better. Your liver has to not

only process all the toxins created by the disease, but it also has to

process these toxic medications you put in your body, and the more you

put in the harder that liver has to work. You need to research other

safer ways to deal with some of these problems whenever possible rather

than rely on another medication. These safer ways will demand more from

you than popping another pill.

I can say this because I've been at the bottom of that pit. Remember,

since 1972, I've had to deal with severe RA, polymyositis, Sjogren's

Syndrome and two bouts of lymphomatoid papulosis. Several times in the

years 1972 to 1989, before I found Dr. Brown's therapy, doctors

prescribed NSAIDS but if I didn't get results in ten days to two weeks

I stopped them. Once I learned the damage these drugs could cause, I

refused prescriptions altogether - including enteric-coated aspirin.

BTW, they can hinder progress on the AP. I did take prednisone for a

short time when I went into a Herxheimer at the start of AP and the

polymyositis (as well as the RA) was flaring out of control, but tapered

down quickly. I was totally incapacitated with pain raging in almost

every joint in my body. I got steadily worse for 14 straight months.

My husband put every affected joint through range of motion exercises

several times a day as I groaned and moaned, and I used DMSO and ice

packs several times a day for the inflammation to minimize damage to

joints. Yes, I suffered horrible pain and yes I had damage - lots of

it, but I made it as those of you who attended the 1998 support group

seminar we had in Riverside California can attest to.

Hopefully one of these days we will be able to present to you a better

way of treating these diseases without toxic drugs.

Ethel

> Jude wrote:

>

> Hi Group,

>

> I've been feeling so tired, but wanted to write and let you know how

> things are transpiring (or in my case - perspiring!) My

> appointment with the Professor went off - but not as good as I hoped.

> He confirmed the diagnosis of NASH and told me I am not allowed to

> have Minocycline ever again and am not allowed to have Methotrexate at

> all. So, unfortunately, I can't be taking my mino again, but on the

> other hand have no worries with MTX either My rheumatologist has

> now put me onto sulphasalazine.

>

> Just a little warning for anyone whose doc doesn't do regular blood

> tests - make sure they are done and every now and again have your

> liver function tests done as well. And when you diet, don't diet to

> take off weight quickly - it can affect the liver and help to cause

> fibrosis and scarring. A couple of pounds (1 to 1 1/2 kilos) a week

> is sufficient.

>

> Ethel, I've been taking my thistle milk and have to say that it has

> reduced the pain that I've had in that area (hopefully my LFT's may

> have gone down as well, but won't know until the next time the bloods

> are done). I thank you so much for telling me about that. I couldn't

> find the super alpha lipoic acid as no one knew what I was talking

> about. Never mind. I'm hoping that the milk thistle is doing a great

> job for me.

>

> For the last two weeks I've been on a fat and sugar free diet and so

> far have taken off ........................wait for it,

> guys,..............................nothing, zilch, not even a

> milligram, zero..........................cry, sob, kick,

> fight!!!!!!!!!! Last Sunday night, I broke my diet and had a roast

> dinner (sigh) and now I have such a guilty conscience it isn't funny.

> My brekky every morning consists of 2 slices toast with diabetic jam

> (no butter or marg), two weetbix with low fat high calcium milk (no

> sugar), 1 piece fruit and a cup of coffee (no sugar). Lunch consists

> of a salad sandwich and a cup of soup. Tea consists of a sachet of

> Modifast. Thats it - oops, forgot the water - just plenty of it!!!!

> The Modifast is some sort of powder mixed up in 600 mls of water and

> tasts like chocolate cardboard - really nice <sad smile>. Though, my

> exercising has sort of come to a halt - I seem to be sleeping instead

> zzzzzzzzz!!

>

> Anyway, I just thought I'd report in - please remember about your

> LFT's and weight loss (the weight loss goes for anyone who is wanting

> to go on a diet). My specialist seemed to be under the impression

> that the minocycline could have caused the NASH, but when I questioned

> him, he admitted that no one really knew what caused it, so be on the

> safe side and have regular Liver Function Tests.

>

> Take care everyone,

> Love and hugs,

> Jude.

>

> ----------------------------------------------------------------------

>

> ----------------------------------------------------------------------

> To unsubscribe, email: rheumatic-unsubscribeegroups

July 4, 2000

> LeavesHi Group,

>

> For the last two weeks I've been on a fat and sugar free diet and

so far have taken off ........................wait for it,

guys,..............................nothing, zilch, not even a

milligram, zero..........................cry, sob, kick,

fight!!!!!!!!!! Last Sunday night, I broke my diet and had a roast

dinner (sigh) and now I have such a guilty conscience it isn't

funny. My brekky every morning consists of 2 slices toast with

diabetic jam (no butter or marg), two weetbix with low fat high

calcium milk (no sugar), 1 piece fruit and a cup of coffee (no

sugar). Lunch consists of a salad sandwich and a cup of soup. Tea

consists of a sachet of Modifast. Thats it - oops, forgot the water -

just plenty of it!!!!

Jude,

Try the Zone Diet (http://www.enterthezone.com). It is extremely

sensible and in it you will discover that your body needs fat to lose

fat. Eating low fat meals with lots of grain carbos will just make

you fat. I lost 18 lbs on this diet in about 3 months without

exercise and my wife lost 15 lbs (which is remarkable for most

women). It relies on eating balanced meals - some protein, some

monounsaturated fats, and carbos in the form of veggies and some

fruit. It eliminates most grain products which by their nature are

quickly converted to sugar and cause one to become insulin resistant

and thus fat. I do not sell this stuff - I just found it to be a

lifetime diet that makes a whole lot of sense. I have recently gone

off of it and back to grains with the rapid onset of 10 of the 18 lbs

I lost. Laziness and some depression caused me to stop cutting up

those veggies - not a wise move. Check it out - it's been around

quite a while.

Mark

SW Virginia

http://Mark_Holmes.tripod.com

methotrexate 15mg/week

folic acid 1.2mg/6 days/week

Lodine 400 mg - 2-3x/day

July 5, 2000

Thanks Ethel for this, will definately give this a go - LOL - don't quite

know about the olive oil(????? but will take it anyway. Have a nice

holiday.

Jude.

Re: rheumatic Bad News

> Jude,

>

> You might want to check into taking a natural good liver cleanse at

> least once a week in addition to the daily milk thistle. Here's the one

> I use -

>

> Quarter a whole lemon and put in blender or Vita-Mix

> Add: 8 oz. of water and 8 oz. organic apple juice

> 3 - 4 whole garlic cloves

> 3 - 4 TBS cold pressed olive oil

> Strain well and drink.

>

> Let me take this opportunity to express a concern I've had for some

> time. I get alarmed when I see the number of medications some of the

> people in this group are on. More is not better. Your liver has to not

> only process all the toxins created by the disease, but it also has to

> process these toxic medications you put in your body, and the more you

> put in the harder that liver has to work. You need to research other

> safer ways to deal with some of these problems whenever possible rather

> than rely on another medication. These safer ways will demand more from

> you than popping another pill.

>

> I can say this because I've been at the bottom of that pit. Remember,

> since 1972, I've had to deal with severe RA, polymyositis, Sjogren's

> Syndrome and two bouts of lymphomatoid papulosis. Several times in the

> years 1972 to 1989, before I found Dr. Brown's therapy, doctors

> prescribed NSAIDS but if I didn't get results in ten days to two weeks

> I stopped them. Once I learned the damage these drugs could cause, I

> refused prescriptions altogether - including enteric-coated aspirin.

> BTW, they can hinder progress on the AP. I did take prednisone for a

> short time when I went into a Herxheimer at the start of AP and the

> polymyositis (as well as the RA) was flaring out of control, but tapered

> down quickly. I was totally incapacitated with pain raging in almost

> every joint in my body. I got steadily worse for 14 straight months.

>

> My husband put every affected joint through range of motion exercises

> several times a day as I groaned and moaned, and I used DMSO and ice

> packs several times a day for the inflammation to minimize damage to

> joints. Yes, I suffered horrible pain and yes I had damage - lots of

> it, but I made it as those of you who attended the 1998 support group

> seminar we had in Riverside California can attest to.

>

> Hopefully one of these days we will be able to present to you a better

> way of treating these diseases without toxic drugs.

>

> Ethel

>

> > Jude wrote:

> >

> > Hi Group,

> >

> > I've been feeling so tired, but wanted to write and let you know how

> > things are transpiring (or in my case - perspiring!) My

> > appointment with the Professor went off - but not as good as I hoped.

> > He confirmed the diagnosis of NASH and told me I am not allowed to

> > have Minocycline ever again and am not allowed to have Methotrexate at

> > all. So, unfortunately, I can't be taking my mino again, but on the

> > other hand have no worries with MTX either My rheumatologist has

> > now put me onto sulphasalazine.

> >

> > Just a little warning for anyone whose doc doesn't do regular blood

> > tests - make sure they are done and every now and again have your

> > liver function tests done as well. And when you diet, don't diet to

> > take off weight quickly - it can affect the liver and help to cause

> > fibrosis and scarring. A couple of pounds (1 to 1 1/2 kilos) a week

> > is sufficient.

> >

> > Ethel, I've been taking my thistle milk and have to say that it has

> > reduced the pain that I've had in that area (hopefully my LFT's may

> > have gone down as well, but won't know until the next time the bloods

> > are done). I thank you so much for telling me about that. I couldn't

> > find the super alpha lipoic acid as no one knew what I was talking

> > about. Never mind. I'm hoping that the milk thistle is doing a great

> > job for me.

> >

> > For the last two weeks I've been on a fat and sugar free diet and so

> > far have taken off ........................wait for it,

> > guys,..............................nothing, zilch, not even a

> > milligram, zero..........................cry, sob, kick,

> > fight!!!!!!!!!! Last Sunday night, I broke my diet and had a roast

> > dinner (sigh) and now I have such a guilty conscience it isn't funny.

> > My brekky every morning consists of 2 slices toast with diabetic jam

> > (no butter or marg), two weetbix with low fat high calcium milk (no

> > sugar), 1 piece fruit and a cup of coffee (no sugar). Lunch consists

> > of a salad sandwich and a cup of soup. Tea consists of a sachet of

> > Modifast. Thats it - oops, forgot the water - just plenty of it!!!!

> > The Modifast is some sort of powder mixed up in 600 mls of water and

> > tasts like chocolate cardboard - really nice <sad smile>. Though, my

> > exercising has sort of come to a halt - I seem to be sleeping instead

> > zzzzzzzzz!!

> >

> > Anyway, I just thought I'd report in - please remember about your

> > LFT's and weight loss (the weight loss goes for anyone who is wanting

> > to go on a diet). My specialist seemed to be under the impression

> > that the minocycline could have caused the NASH, but when I questioned

> > him, he admitted that no one really knew what caused it, so be on the

> > safe side and have regular Liver Function Tests.

> >

> > Take care everyone,

> > Love and hugs,

> > Jude.

> >

> > ----------------------------------------------------------------------

> >

> > ----------------------------------------------------------------------

> > To unsubscribe, email: rheumatic-unsubscribeegroups

>

October 28, 2004

Sue,

It¹s hard to loose a trusted physician. Finding new doctors was one of the

hardest things for me to do when I moved to another state. I hope you find

a replacement that measures up to your current rheumy.

a

> I had an appointment with my rheumy today and got terrible news. He is

> leaving, relocating to somewhere in Georgia, for family reasons. He

> will be closer to his daughters in Georgia.

>

> The news saddened me, because I like him more than any other doctor

> I've ever been to. He is so compassionate and caring and accessible.

> I'll never find another rheumatologist like him. They are merging the

> practice into another one that is also associated with Wake Forest

> University. As hard as it is to get in to see a rheumatologist, I don't

> know how that is going to work.

>

> Today I saw a different Fellow, who said that there's a possibility

> that he'll stay on, once his Fellowship is over. I hope he does,

> because I did like him. He listened to what I had to say and answered

> all of my questions. I believe he will also be accessible, because he

> told me if I ever needed to come in between appointments to call him,

> not the schedulers. My next appointment is in four months to see him

> and the rheumy in the practice they're merging into.

>

> We'll see how it goes.

>

> Sue

>

October 29, 2004

June, I consider that rheumatologist one of my earthly angels. I will

never find another doctor like him. Another thing I like about him is

his sense of humor. Yesterday when the nurse took me to an examining

room, we passed by him standing in the hall. I heard him say, " Let me

go in and say hello to my girlfriend. (I'm old enough to be his mother,

LOL.) He came in, shook my hand, and asked me how I was. He always made

me feel like his most important patient, and I'm sure he made most of

his patients feel the same. I wish I could clone him.

Sue

On Thursday, October 28, 2004, at 09:33 PM, June Dixon wrote:

>

> Sorry you are going to lose your rheumatologist, especially when you

> like him so much. Let's keep our fingers crossed that the Fellow you

> like will decide to stay.

October 29, 2004

Sue, I'm sorry that your losing your rheumy, that is BAD NEWS! Maybe

he can refer you to someone that he highly recommends, I know it

won't be the same, we just have our favorites.

I really like my rheumy, he is a very nice gentle man. He comes in,

sits with you, and makes you feel important. He will explain to you

what's going on, and what he can do. He doesn't run you in like a

bunch of cattle going to a sale, I have to put my sense of humor

in once in awhile:)

There are a lot of us Okie girls on the board that go to Dr.C, and

all you ever hear is wonderful comments about him.

Don't give up though, you will find another kind doctor that will

take good care of you, T

> I had an appointment with my rheumy today and got terrible news. He

is

> leaving, relocating to somewhere in Georgia, for family reasons. He

> will be closer to his daughters in Georgia.

>

> The news saddened me, because I like him more than any other doctor

> I've ever been to. He is so compassionate and caring and

accessible.

> I'll never find another rheumatologist like him. They are merging

the

> practice into another one that is also associated with Wake Forest

> University. As hard as it is to get in to see a rheumatologist, I

don't

> know how that is going to work.

>

> Today I saw a different Fellow, who said that there's a possibility

> that he'll stay on, once his Fellowship is over. I hope he does,

> because I did like him. He listened to what I had to say and

answered

> all of my questions. I believe he will also be accessible, because

he

> told me if I ever needed to come in between appointments to call

him,

> not the schedulers. My next appointment is in four months to see

him

> and the rheumy in the practice they're merging into.

>

> We'll see how it goes.

>

> Sue

March 23, 2006

Another strike! Today I found out my GP won't prescribe LDN. He also

told me I should talk to my Neuro because he felt uncomfortable

prescribing it. My Neuro told me no last week.

Now for the good news. My doctor agreed to write me a referral to see

another Neuro who I know prescribes LDN. I'll be making the

appointment tomorrow! Wish me luck.

Thanks,

August 7, 2009

,

I'm sorry to hear this news. I wish I knew someone in Mass who could help you.

Are you being treated at a large cancer center?

ar

>

> Hello,

> I just got back from the doctors who told me that chemo is not working and

that I have no other options. I am just turning 31 and I have a very rare,

aggressive form of thyroid cancer that has metastasized. I have been looking

into alternatives but have not followed a consistent protocol as of yet. I am

not sure what direction to take and I am afraid it might be too late. I have

huge tumors and swelling in the neck and now I am having extreme difficulty

swallowing. I know that if I can't shrink these tumors relatively quickly, I am

in trouble. Any suggestions. Does anyone know a practioner that might help me in

the Massachussetts area?

> --

>

August 12, 2009

Hi Nicol,

Electro treatment

http://www.diagnosticimaging.com/imaging-trends-advances/tumor-ablation-clinic/d\

isplay/article/113619/1284828

http://www.springerlink.com/content/j234100047x513l0/

http://www.sciencedaily.com/releases/2005/04/050420090105.htm

http://www.jvir.org/article/S1051-0443(07)01108-6/abstract

Alcohol injection

http://www.mayoclinic.com/health/liver-cancer/DS00399/DSECTION=treatments-and-dr\

ugs

http://cat.inist.fr/?aModele=afficheN & cpsidt=1061394

http://www.medicinenet.com/percutaneous_ethanol_injection_of_liver/article.htm

http://www.ncbi.nlm.nih.gov/pubmed/15505315

http://clinicaltrials.gov/ct2/show/NCT00001417

http://www.livercancer.com/treatments/alcohol.html

http://www3.interscience.wiley.com/journal/119315104/abstract?CRETRY=1 & SRETRY=0

http://www.orienttumor.com/en_asp_new/show_info.asp?typename=Therapies & typename2\

= & article_showid=1151

There is also the Rick Simpson story if that does not scare you.

With kind regards, Slavek

Gilbert wrote:

>

> Hello,

> I just got back from the doctors who told me that chemo is not

> working and that I have no other options. I am just turning 31 and I

> have a very rare, aggressive form of thyroid cancer that has

> metastasized. I have been looking into alternatives but have not

> followed a consistent protocol as of yet. I am not sure what

> direction to take and I am afraid it might be too late. I have huge

> tumors and swelling in the neck and now I am having extreme difficulty

> swallowing. I know that if I can't shrink these tumors relatively

> quickly, I am in trouble. Any suggestions. Does anyone know a

> practioner that might help me in the Massachussetts area?

> --

>

August 12, 2009

Hi Nicol,

Ops, I forgot the cesium chloride.

http://www.killcancercells.com/