Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 I have chiari 7mm (not decompressed), had TCS 6 years ago and it took my 6 1/2 years to get SSD and finally get insurance! I was just diagnosed with cervical cancer and am looking at a hysterectomy. For my biopsy the dr was able to keep my head elevated but explained for the hysterectomy I would be in a position where my head would be lower than my feet. This is so that my intestines and other organs will be " out of the way " for this robotic procedure. I try to follow all chiari suggestions, keeping my head elevated, not hyper-extending, etc and when I do try to lay flat it feels like I am drowning in my spinal fluid. He explained to me that if I cannot lay in this position that my other option would be to get " cut open " which is a longer healing process (and one that I really dont want to do). I do not have a Neurologist locally - last dr I saw for chairi was 6 yrs ago at TCI. (I have yet to find a dr here who " believes " in chiari!!!) With all that being said - have any women out there had a hysterectomy where they were in a position like this and if so, how did it go? Any responses would be greatly appreciated! Sally G. Quote Link to comment Share on other sites More sharing options...
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