hypoxia linked to delays?

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Chantelle

Hmmm, this is a hard one, because I only have the drs word to go on, and

I don't know that I believe them.

My daughter arrested 8 times at birth. At least 3 of those times were

cardiac arrest although she was on a ventilator at those times. None of

her arrests lasted more than 5-10 minutes each (like that should make me

feel better!)

According to the radiologist's report, her original MRI at 6 mos. shows

" cerebral hypoplasia most likely secondary to hypoxia " . However, 2

neurologists have told me that her brain is within the normal limits

(with the exception of a partial corpus callosum which shows up with

normal people). The first neurologist is notorious for telling parents

that everything is normal even when it's not and the 2nd neurologist

gave me that impression too.

Now as far as my child's development: she has very low muscle tone

(hypotonia), at 3 1/2yrs she is walking with an immature, toddler gait

and cannot run. She also has very poor motor planning skills

(dyspraxia). She has an incredible memory for learning speech by rote

such as songs, ABCs, counting, nursery rhymes, etc. But has great

difficulty with concepts and generalizing. She has very poor focusing

skills, very poor auditory and visual processing skills, and many

sensory integration problems. If you would like to contact me

personally for any questions relating to your study, feel free. I am so

thrilled that you have chosen CHARGE for your paper, even if you are

biased!

BTW, my personal feeling is that the 2 are related, however I feel that

the fact that many CHARGErs (if not most) spend so much of their

critical 1st year in the hospital flat on their back with tubes and

wires coming out of every limb, sedated a gazillion times, pricked a

million gazillion times with needles, that this also has a lot to do

with their delays. Maybe even more so. I think I've heard other

professionals say this as well.

Regarding the overabundence of emails, I receive mine in digest form and

it is more manageable that way, especially because I have a slow

computer. Digest form means that all messages arrive at the end of the

day in 1 long email as opposed to getting 30 emails a day.

Give credit where credit is due, thank YOU Casey for your true

definition of " normal " (thanks for the correction, please do I

have it right now?) The one disadvantage to getting them in digest, is

it's real easy to mix up names when you're replying. So my apologies

for my errors which I know I make quite a few of.

Jeanne mom to Caitlyn cHaRgEr age 3

jemcat@...