Guest guest Posted February 14, 1999 Report Share Posted February 14, 1999 Lucille- Jeanne mentioned getting a second opinion, perhaps at St. Louis. My daughter, Aubrie, has been treated by a long list of specialists at St. Louis Children's Hospital since birth. She had heart surgery, Gtube placement, ear tubes, tons of tests, etc. I have been very happy with the care she has received there. We live 2 hours away and for many months we traveled there atleast once a week. Now we follow up with docs every few months. If Lance's parents are interested in making the trip, the Mc House is wonderful! We stayed for about a month at first and then have gone back for overnight surgeries. It's a great supportive place to stay if you will be there for longer than a day. If you want more info on St. Louis, feel free to email me privately. Good luck! Michele mom to Aubrie (14.5 mos) CHargE and (7 yrs) wife to DJ IL westml@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 1999 Report Share Posted February 16, 1999 Ditto to the praise for St. Louis Children's Hospital. Many of my medically fragile students (CHARGE, Battens Disease and ALD) were treated there with great expertise and care. Families and our school staff were always treated with respect and they spent a great deal of time answering questions/concerns again and again until we were all comfortable with the answers. They also impressed me with being willing to say " we don't know, or we're not sure " . . . sometimes very difficult for the professionals to say but also many times it's the truth at that point in time. As long as I'm talking about hospital care in the St. Louis area (I lived there for 15 years) I can also say AVOID Cardinal Glennon Children's Hospital. >>> Michele Westmaas 02/14 3:19 PM >>> Lucille- Jeanne mentioned getting a second opinion, perhaps at St. Louis. My daughter, Aubrie, has been treated by a long list of specialists at St. Louis Children's Hospital since birth. She had heart surgery, Gtube placement, ear tubes, tons of tests, etc. I have been very happy with the care she has received there. We live 2 hours away and for many months we traveled there atleast once a week. Now we follow up with docs every few months. If Lance's parents are interested in making the trip, the Mc House is wonderful! We stayed for about a month at first and then have gone back for overnight surgeries. It's a great supportive place to stay if you will be there for longer than a day. If you want more info on St. Louis, feel free to email me privately. Good luck! Michele mom to Aubrie (14.5 mos) CHargE and (7 yrs) wife to DJ IL westml@... ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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