Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 mY LOVE AND THOUGHTS ARE WITH YOU AS ALWAYS! hUGS, AND DOUBLE HUGS! Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: Update on Terry To: livercirrhosissupport Date: Sunday, December 28, 2008, 11:58 PM Hi everyone. I'm sorry I haven't posted in a while. Terry is not well at all and is almost totally unresponsive at this point. He has been awake enough and alert enough to get to the bathroom a couple of times today with my help. He has had little more than a couple of bites of food each day since Christmas Day. He has been unable to take any meds whatsoever. He has an appointment with his doctor tomorrow and I know he won't be able to go. Before Christmas, we had agreed that everything would be put off till after Christmas and if things weren't better and he could not go to his doctor's appointment, he would go into the hospital. So, if I can, I will wait until morning and will call his doctor and ask him to arrange for a direct admit so we won't have to wait in the ER. If he can't wait that long, I will call the paramedics. One way or the other, we will be in the hospital by tomorrow night. I will post when I can to let you know how things are going. If you pray and believe in the power of prayer, I ask you to please pray for us. I love each of you and pray each of you are doing as well as humanly possible. May God bless you all. Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 diane i am lifting you and terry up to the lord in prayer honey, i am so worried but know we must trust in jesus christ our lord. keep me posted .i love you barby > > Hi everyone. I'm sorry I haven't posted in a while. Terry is not well at all and is almost totally unresponsive at this point. He has been awake enough and alert enough to get to the bathroom a couple of times today with my help. He has had little more than a couple of bites of food each day since Christmas Day. He has been unable to take any meds whatsoever. He has an appointment with his doctor tomorrow and I know he won't be able to go. > > Before Christmas, we had agreed that everything would be put off till after Christmas and if things weren't better and he could not go to his doctor's appointment, he would go into the hospital. So, if I can, I will wait until morning and will call his doctor and ask him to arrange for a direct admit so we won't have to wait in the ER. If he can't wait that long, I will call the paramedics. One way or the other, we will be in the hospital by tomorrow night. > > I will post when I can to let you know how things are going. If you pray and believe in the power of prayer, I ask you to please pray for us. I love each of you and pray each of you are doing as well as humanly possible. May God bless you all. > > Hugs.......... > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi Diane, I'm sorry to hear about Terry. I will be praying for both of you. Penny > > Hi everyone. I'm sorry I haven't posted in a while. Terry is not well at all and is almost totally unresponsive at this point. He has been awake enough and alert enough to get to the bathroom a couple of times today with my help. He has had little more than a couple of bites of food each day since Christmas Day. He has been unable to take any meds whatsoever. He has an appointment with his doctor tomorrow and I know he won't be able to go. > > Before Christmas, we had agreed that everything would be put off till after Christmas and if things weren't better and he could not go to his doctor's appointment, he would go into the hospital. So, if I can, I will wait until morning and will call his doctor and ask him to arrange for a direct admit so we won't have to wait in the ER. If he can't wait that long, I will call the paramedics. One way or the other, we will be in the hospital by tomorrow night. > > I will post when I can to let you know how things are going. If you pray and believe in the power of prayer, I ask you to please pray for us. I love each of you and pray each of you are doing as well as humanly possible. May God bless you all. > > Hugs.......... > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 My prayers, love and hugs are with you and Terry. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: Update on Terry To: livercirrhosissupport Date: Monday, December 29, 2008, 7:03 PM Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. Love you all! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Thank you Lyncia. I appreciate it more than I can say. Hugs......... Diane ________________________________ To: livercirrhosissupport Sent: Monday, December 29, 2008 7:42:44 PM Subject: Re: Update on Terry My prayers, love and hugs are with you and Terry. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: diane chandler <dianechandler@ att.net> Subject: Update on Terry To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Monday, December 29, 2008, 7:03 PM Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. Love you all! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Thank you Penny. I hope he will go too. That's all I want is for him to be as comfortable as possible. Hugs......... Diane ________________________________ To: livercirrhosissupport Sent: Monday, December 29, 2008 8:05:15 PM Subject: Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I'm so sorry. I guess he isn't all in his right mind or else he would go to please you. I would go to please my wife.--------------------------------- I did call 911 against Ardis' wishes, and have zero regrets over it now, but it isn't something I can advise someone else to do. At the time, I guess I felt like the " hell " of her being mad wasn't nearly as bad as the " hell " of seeing her helplessly suffering. Human suffering is inevitible. There are entire religions built on this premise, but there are things here put here for us to relieve our suffering. But we have to be willing. And Terry sounds unwilling. Big hug, Diane. Love, Bobby Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 You caregiversrs are the movst loving and giving people. There is no way that I can think of to sing your praises!!!!!!!!!!!!!!!! Maybe Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: Re: Re: Update on Terry To: " Livercirrhosissupport " <livercirrhosissupport > Date: Monday, December 29, 2008, 10:15 PM I'm so sorry. I guess he isn't all in his right mind or else he would go to please you. I would go to please my wife.--------------------------------- I did call 911 against Ardis' wishes, and have zero regrets over it now, but it isn't something I can advise someone else to do. At the time, I guess I felt like the " hell " of her being mad wasn't nearly as bad as the " hell " of seeing her helplessly suffering. Human suffering is inevitible. There are entire religions built on this premise, but there are things here put here for us to relieve our suffering. But we have to be willing. And Terry sounds unwilling. Big hug, Diane. Love, Bobby Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 You caregiversrs are the movst loving and giving people. There is no way that I can think of to sing your praises!!!!!!!!!!!!!!!! Maybe at 59 I can find that type of tyoe of love to give and receive, Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: Re: Re: Update on Terry To: " Livercirrhosissupport " <livercirrhosissupport > Date: Monday, December 29, 2008, 10:15 PM I'm so sorry. I guess he isn't all in his right mind or else he would go to please you. I would go to please my wife.--------------------------------- I did call 911 against Ardis' wishes, and have zero regrets over it now, but it isn't something I can advise someone else to do. At the time, I guess I felt like the " hell " of her being mad wasn't nearly as bad as the " hell " of seeing her helplessly suffering. Human suffering is inevitible. There are entire religions built on this premise, but there are things here put here for us to relieve our suffering. But we have to be willing. And Terry sounds unwilling. Big hug, Diane. Love, Bobby Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Thank you for understanding Bobby. I think he's a bit afraid and that's at least part of why he won't go. He's never had the paracentesis before and the thought of that needle is more than a bit daunting to him. He's asked me lots of questions tonight and I've tried to be honest and tell him all I know about it. He told me he knew he needed to do it, but was afraid of what would come afterwards. I think maybe he's afraid it's the beginning of a slide he can't stop and he's not ready for that yet. I love him, I'm frustrated with him and yet I find myself feeling so heart broken for him! I'm telling you, this is one heck of a roller coaster ride! Hugs........ Diane ________________________________ To: Livercirrhosissupport <livercirrhosissupport > Sent: Monday, December 29, 2008 10:15:37 PM Subject: Re: Re: Update on Terry I'm so sorry. I guess he isn't all in his right mind or else he would go to please you. I would go to please my wife.--------------------------------- I did call 911 against Ardis' wishes, and have zero regrets over it now, but it isn't something I can advise someone else to do. At the time, I guess I felt like the " hell " of her being mad wasn't nearly as bad as the " hell " of seeing her helplessly suffering. Human suffering is inevitible. There are entire religions built on this premise, but there are things here put here for us to relieve our suffering. But we have to be willing. And Terry sounds unwilling. Big hug, Diane. Love, Bobby Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Tell him what Chief said, that the only pain is the numbing needle, which is tiny like a diabetes needle. They give you an injection of lidocain to numb you up, like when you get stitches. So, if you believe Chief, there should only be a tiny pinch with the numbing needle. Chief wouldn't lie, and besides, you can make that a demand, and I am 100% sure that they will do every thing in thier power to make him comfortable. You have no pain during the procedure, but afterward they just have to make sure you are all good before you go home, so they might draw blood. I don't know if drawing labs is routine, but even that is something we get kinda used to. Maybe he will go if you tell him all of this. Tell him you heard it from Chief, which you did, but it was last summer. Love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Monday, December 29, 2008 11:00:05 PM Subject: Re: Re: Update on Terry Thank you for understanding Bobby. I think he's a bit afraid and that's at least part of why he won't go. He's never had the paracentesis before and the thought of that needle is more than a bit daunting to him. He's asked me lots of questions tonight and I've tried to be honest and tell him all I know about it. He told me he knew he needed to do it, but was afraid of what would come afterwards. I think maybe he's afraid it's the beginning of a slide he can't stop and he's not ready for that yet. I love him, I'm frustrated with him and yet I find myself feeling so heart broken for him! I'm telling you, this is one heck of a roller coaster ride! Hugs........ Diane ____________ _________ _________ __ From: " robwalkingeagle@ yahoo.com " <robwalkingeagle@ yahoo.com> To: Livercirrhosissuppo rt <livercirrhosissuppo rtyahoogroups (DOT) com> Sent: Monday, December 29, 2008 10:15:37 PM Subject: Re: Re: Update on Terry I'm so sorry. I guess he isn't all in his right mind or else he would go to please you. I would go to please my wife.------- --------- --------- -------- I did call 911 against Ardis' wishes, and have zero regrets over it now, but it isn't something I can advise someone else to do. At the time, I guess I felt like the " hell " of her being mad wasn't nearly as bad as the " hell " of seeing her helplessly suffering. Human suffering is inevitible. There are entire religions built on this premise, but there are things here put here for us to relieve our suffering. But we have to be willing. And Terry sounds unwilling. Big hug, Diane. Love, Bobby Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 We've talked at length about it and I believe he understands it much better now. I don't think it was as much the possibility of pain as it was the thought of having to be in the hospital a couple of days. His doctor has told us that the first time will have to be inpatient so they can be sure how his body is going to respond to it. He just cannot stand the hospital, probably because he has spent so much time in one. Anyway, he's talking much more positibe about the procedure now and keeps asking me which would be the best way to go to the hospital. He would like to go in the car, but I keep telling him I think he will bet quicker attention if he arrives by ambulance. I don't know how it works at other ERs, but at the one we go to, it seems to me if you arrive by ambulance you go directly to a bed and if you arrive by car, you're stuck in the waiting area to get triaged and they do not take you first just because you're sicker, unless you're having chest pains or bleeding profusely. He also doesn't like the ambulance, which is totally understandable. But, I've told him it would ultimately be worth the inconvenience when he got to go directly to a bed at the hospital instead of being stuck in the waiting room. We'll see how it goes, I guess. Thanks for your concern Bobby. You're a great friend! Hugs.......... Diane ________________________________ To: livercirrhosissupport Sent: Tuesday, December 30, 2008 12:33:34 AM Subject: Re: Re: Update on Terry Tell him what Chief said, that the only pain is the numbing needle, which is tiny like a diabetes needle. They give you an injection of lidocain to numb you up, like when you get stitches. So, if you believe Chief, there should only be a tiny pinch with the numbing needle. Chief wouldn't lie, and besides, you can make that a demand, and I am 100% sure that they will do every thing in thier power to make him comfortable. You have no pain during the procedure, but afterward they just have to make sure you are all good before you go home, so they might draw blood. I don't know if drawing labs is routine, but even that is something we get kinda used to. Maybe he will go if you tell him all of this. Tell him you heard it from Chief, which you did, but it was last summer. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, December 29, 2008 11:00:05 PM Subject: Re: Re: Update on Terry Thank you for understanding Bobby. I think he's a bit afraid and that's at least part of why he won't go. He's never had the paracentesis before and the thought of that needle is more than a bit daunting to him. He's asked me lots of questions tonight and I've tried to be honest and tell him all I know about it. He told me he knew he needed to do it, but was afraid of what would come afterwards. I think maybe he's afraid it's the beginning of a slide he can't stop and he's not ready for that yet. I love him, I'm frustrated with him and yet I find myself feeling so heart broken for him! I'm telling you, this is one heck of a roller coaster ride! Hugs........ Diane ____________ _________ _________ __ From: " robwalkingeagle@ yahoo.com " <robwalkingeagle@ yahoo.com> To: Livercirrhosissuppo rt <livercirrhosissupp o rtyahoogroups (DOT) com> Sent: Monday, December 29, 2008 10:15:37 PM Subject: Re: Re: Update on Terry I'm so sorry. I guess he isn't all in his right mind or else he would go to please you. I would go to please my wife.------- --------- --------- -------- I did call 911 against Ardis' wishes, and have zero regrets over it now, but it isn't something I can advise someone else to do. At the time, I guess I felt like the " hell " of her being mad wasn't nearly as bad as the " hell " of seeing her helplessly suffering. Human suffering is inevitible. There are entire religions built on this premise, but there are things here put here for us to relieve our suffering. But we have to be willing. And Terry sounds unwilling. Big hug, Diane. Love, Bobby Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Diane - when my husband has his procedure - our doctor made an appointment - specific time - to go to the lab. Had to wait for the paperwork, etc. - but NO hanging around the emergency room. If the Doc wants you to be in a room - then they need to do all the pre- admittance stuff - so all you and Terry should have to do is show up and check in !! We all know how hard this is for you - and your Doctor should make it easy for you to get Terry the help he needs with as little hassle as possible! Good luck.. Dotty > > > > Well, I just don't want to know what to say. Terry did not go to > the hospital. He began to feel just a bit better and, yes you > guessed it, he wouldn't go! I am so upset with him I don't even know > how to feel or what to say! I had worked all day talking to doctors > and trying to make arrangements and now I am, to say the least, > totally outdone with him! I love this man more than I love my own > life, but he won't let me help him! Heck, I know I can't give him a > longer life, but I could try to help him have a more comfortable life > while he's here! But, noooooooooo, we're not having that! I guess > you can tell I'm pretty exasperated righth now! So, I have no idea > what we're doing or when we're doing it. I'll just be here and > either he'll go while he still has an option to choose, or he'll go > after he's so out of his head he has no say in the matter. I just > hope it's not too late by that time! > > > > Thank you all for your prayers and support, especially the > support. I'm just very frustrated right now and not very good > company, I'm afraid. > > > > Love you all! > > > > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 I called their office yesterday to ask them to do just that. They didn't seem eager to help yesterday, but after thinking about it, it probably had to do with it being their first day back after the holidays and they were probably swamped with people wanting something from them. Since Terry has decided to put it off for a day or so, I'll just give them a call maybe tomorrow and maybe they will have more time to make the arrangements and will be more willing to help. I know it shouldn't make a difference, but I also know they are just human and they have bad days at work too! Thanks for your support Dottie! I appreciate it so very much. Hugs.......... Diane ________________________________ From: dotty_giusti <no_reply > To: livercirrhosissupport Sent: Tuesday, December 30, 2008 12:45:52 PM Subject: Re: Update on Terry Diane - when my husband has his procedure - our doctor made an appointment - specific time - to go to the lab. Had to wait for the paperwork, etc. - but NO hanging around the emergency room. If the Doc wants you to be in a room - then they need to do all the pre- admittance stuff - so all you and Terry should have to do is show up and check in !! We all know how hard this is for you - and your Doctor should make it easy for you to get Terry the help he needs with as little hassle as possible! Good luck.. Dotty > > > > Well, I just don't want to know what to say. Terry did not go to > the hospital. He began to feel just a bit better and, yes you > guessed it, he wouldn't go! I am so upset with him I don't even know > how to feel or what to say! I had worked all day talking to doctors > and trying to make arrangements and now I am, to say the least, > totally outdone with him! I love this man more than I love my own > life, but he won't let me help him! Heck, I know I can't give him a > longer life, but I could try to help him have a more comfortable life > while he's here! But, noooooooooo, we're not having that! I guess > you can tell I'm pretty exasperated righth now! So, I have no idea > what we're doing or when we're doing it. I'll just be here and > either he'll go while he still has an option to choose, or he'll go > after he's so out of his head he has no say in the matter. I just > hope it's not too late by that time! > > > > Thank you all for your prayers and support, especially the > support. I'm just very frustrated right now and not very good > company, I'm afraid. > > > > Love you all! > > > > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Hi Diane, Tell him the paracentesis isn't anything to be afraid of. I was so miserable the first time I had one that I couldn't even roll over in bed. I was like a beached whale. The paracentesis is such a huge relief! He has had a biopsy, hasn't he? The biopsy hurts just a little, but not really, when they snap that piece out of your liver, but a paracentesis doesn't hurt at all. He will feel sooooo much better after having one. I've noticed that men seem to be more afraid of needles than women, for some reason. My husband is afraid of needles. The comfort he will feel will outweigh the fear of the procedure, I think. I hope he will have it done, for his sake, and for yours. Penny > > > > Well, I just don't want to know what to say. Terry did not go to > the hospital. He began to feel just a bit better and, yes you > guessed it, he wouldn't go! I am so upset with him I don't even know > how to feel or what to say! I had worked all day talking to doctors > and trying to make arrangements and now I am, to say the least, > totally outdone with him! I love this man more than I love my own > life, but he won't let me help him! Heck, I know I can't give him a > longer life, but I could try to help him have a more comfortable life > while he's here! But, noooooooooo, we're not having that! I guess > you can tell I'm pretty exasperated righth now! So, I have no idea > what we're doing or when we're doing it. I'll just be here and > either he'll go while he still has an option to choose, or he'll go > after he's so out of his head he has no say in the matter. I just > hope it's not too late by that time! > > > > Thank you all for your prayers and support, especially the > support. I'm just very frustrated right now and not very good > company, I'm afraid. > > > > Love you all! > > > > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 I totally agree with getting an ambulance. They aren't just for lights and sirens screaming emergencies. Whenever Ardis was moved, it was done by ambulance. They used a private ambulance company for transporting her every time. Out here a trip to the ER via ambulance will acomplish the same thing, not having to wait in the germ, uh, I mean waiting room. Heh. Love B. Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 hi diane, i am sorry about all this, i know terry is freaked out but just stick with your instincts, keep talking to him,showing your concern maybe he will give in just to calm your nerves. if not we can always go back to that hog tieing ,apple in mouth bit teehee. seriously i am very concerned about you and terry and i pray god speaks to him and gives him the strenghth he needs to get this done. i agree i think the ambulance ride would get him better results, i love you girl hang in there .all my love barby > > > > Well, I just don't want to know what to say. Terry did not go to > the hospital. He began to feel just a bit better and, yes you > guessed it, he wouldn't go! I am so upset with him I don't even know > how to feel or what to say! I had worked all day talking to doctors > and trying to make arrangements and now I am, to say the least, > totally outdone with him! I love this man more than I love my own > life, but he won't let me help him! Heck, I know I can't give him a > longer life, but I could try to help him have a more comfortable life > while he's here! But, noooooooooo, we're not having that! I guess > you can tell I'm pretty exasperated righth now! So, I have no idea > what we're doing or when we're doing it. I'll just be here and > either he'll go while he still has an option to choose, or he'll go > after he's so out of his head he has no say in the matter. I just > hope it's not too late by that time! > > > > Thank you all for your prayers and support, especially the > support. I'm just very frustrated right now and not very good > company, I'm afraid. > > > > Love you all! > > > > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 hi dotti how are you honey ,hope you had a great christmas ,and wishing you a very happy new year too! much love barby > > > > > > Well, I just don't want to know what to say. Terry did not go to > > the hospital. He began to feel just a bit better and, yes you > > guessed it, he wouldn't go! I am so upset with him I don't even > know > > how to feel or what to say! I had worked all day talking to doctors > > and trying to make arrangements and now I am, to say the least, > > totally outdone with him! I love this man more than I love my own > > life, but he won't let me help him! Heck, I know I can't give him a > > longer life, but I could try to help him have a more comfortable > life > > while he's here! But, noooooooooo, we're not having that! I guess > > you can tell I'm pretty exasperated righth now! So, I have no idea > > what we're doing or when we're doing it. I'll just be here and > > either he'll go while he still has an option to choose, or he'll go > > after he's so out of his head he has no say in the matter. I just > > hope it's not too late by that time! > > > > > > Thank you all for your prayers and support, especially the > > support. I'm just very frustrated right now and not very good > > company, I'm afraid. > > > > > > Love you all! > > > > > > Diane > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Thank you Penny! I will definitely pass this information along to him. He just got out of his chair to go to the restroom. He said " I'm getting really tired of this. I can't do it much longer. " He was referring to the effort it takes just to get up out of his chair! He doesn't want to go till after New Years because he says no one will know what they're doing till they're sober again! So, I called the afterhours appointment line and made him an appointment with his doctor for next Tuesday afternoon. Again, we have an agreement (yeah, right!). Either he will keep the appointment or we'll go directly to the ER. We'll see! Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Tuesday, December 30, 2008 3:06:18 PM Subject: Re: Update on Terry Hi Diane, Tell him the paracentesis isn't anything to be afraid of. I was so miserable the first time I had one that I couldn't even roll over in bed. I was like a beached whale. The paracentesis is such a huge relief! He has had a biopsy, hasn't he? The biopsy hurts just a little, but not really, when they snap that piece out of your liver, but a paracentesis doesn't hurt at all. He will feel sooooo much better after having one. I've noticed that men seem to be more afraid of needles than women, for some reason. My husband is afraid of needles. The comfort he will feel will outweigh the fear of the procedure, I think. I hope he will have it done, for his sake, and for yours. Penny > > > > Well, I just don't want to know what to say. Terry did not go to > the hospital. He began to feel just a bit better and, yes you > guessed it, he wouldn't go! I am so upset with him I don't even know > how to feel or what to say! I had worked all day talking to doctors > and trying to make arrangements and now I am, to say the least, > totally outdone with him! I love this man more than I love my own > life, but he won't let me help him! Heck, I know I can't give him a > longer life, but I could try to help him have a more comfortable life > while he's here! But, noooooooooo, we're not having that! I guess > you can tell I'm pretty exasperated righth now! So, I have no idea > what we're doing or when we're doing it. I'll just be here and > either he'll go while he still has an option to choose, or he'll go > after he's so out of his head he has no say in the matter. I just > hope it's not too late by that time! > > > > Thank you all for your prayers and support, especially the > support. I'm just very frustrated right now and not very good > company, I'm afraid. > > > > Love you all! > > > > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Thanks for the validation Bobby. I need to know that someone thinks I know what I'm talking about! LOL! Hugs......... Diane ________________________________ To: Livercirrhosissupport <livercirrhosissupport > Sent: Tuesday, December 30, 2008 3:46:08 PM Subject: Re: Re: Update on Terry I totally agree with getting an ambulance. They aren't just for lights and sirens screaming emergencies. Whenever Ardis was moved, it was done by ambulance. They used a private ambulance company for transporting her every time. Out here a trip to the ER via ambulance will acomplish the same thing, not having to wait in the germ, uh, I mean waiting room. Heh. Love B. Sent via BlackBerry from T-Mobile Re: Update on Terry I'm so sorry. That has to be so frustrating! I can't imagine not going to the hospital when not feeling well. It scared me so much when I had my little episodes like throwing up blood. There's no other place I wanted to be but at the hospital. I hope he will go to the hospital. They will make him more comfortable, at least. Penny > > Well, I just don't want to know what to say. Terry did not go to the hospital. He began to feel just a bit better and, yes you guessed it, he wouldn't go! I am so upset with him I don't even know how to feel or what to say! I had worked all day talking to doctors and trying to make arrangements and now I am, to say the least, totally outdone with him! I love this man more than I love my own life, but he won't let me help him! Heck, I know I can't give him a longer life, but I could try to help him have a more comfortable life while he's here! But, noooooooooo, we're not having that! I guess you can tell I'm pretty exasperated righth now! So, I have no idea what we're doing or when we're doing it. I'll just be here and either he'll go while he still has an option to choose, or he'll go after he's so out of his head he has no say in the matter. I just hope it's not too late by that time! > > Thank you all for your prayers and support, especially the support. I'm just very frustrated right now and not very good company, I'm afraid. > > Love you all! > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Thank you Barby. I appreciate your prayers, encouragement and understanding. I love you too sweetie! Hugs........ Diane ________________________________ To: livercirrhosissupport Sent: Tuesday, December 30, 2008 4:53:44 PM Subject: Re: Update on Terry hi diane, i am sorry about all this, i know terry is freaked out but just stick with your instincts, keep talking to him,showing your concern maybe he will give in just to calm your nerves. if not we can always go back to that hog tieing ,apple in mouth bit teehee. seriously i am very concerned about you and terry and i pray god speaks to him and gives him the strenghth he needs to get this done. i agree i think the ambulance ride would get him better results, i love you girl hang in there .all my love barby > > > > Well, I just don't want to know what to say. Terry did not go to > the hospital. He began to feel just a bit better and, yes you > guessed it, he wouldn't go! I am so upset with him I don't even know > how to feel or what to say! I had worked all day talking to doctors > and trying to make arrangements and now I am, to say the least, > totally outdone with him! I love this man more than I love my own > life, but he won't let me help him! Heck, I know I can't give him a > longer life, but I could try to help him have a more comfortable life > while he's here! But, noooooooooo, we're not having that! I guess > you can tell I'm pretty exasperated righth now! So, I have no idea > what we're doing or when we're doing it. I'll just be here and > either he'll go while he still has an option to choose, or he'll go > after he's so out of his head he has no say in the matter. I just > hope it's not too late by that time! > > > > Thank you all for your prayers and support, especially the > support. I'm just very frustrated right now and not very good > company, I'm afraid. > > > > Love you all! > > > > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Hi everyone! Just wanted to let you all know that we are doing okay. Terry was brought into the hospital yesterday and before even taking him to his room, they took him to the interventional radition dept. for his paracentesis. The removed nearly 3 gallons of fluid from his abdominal cavity. He is so much more comfortable now and can breathe so much more easily. I don't know for sure what the plans are from here. I haven't spoken to the doctor as yet today. I think they may be going to be a colonoscopy because his BMs have been very dark and grainy and he is having pain in his lowe abdomen. Also, they are giving him lactulose every 2 hours because his ammonia levels were so high. He hasn't been able to take his meds at home for some time because he couldn't stand to put anything in his tummy. Is it any wonder?! He is sleeping at present and has been since the wee hours of the morning. I so much appreciate all your prayers and support. I believe he is weaker than even he was completely aware of. So, I'm just letting him rest. The staff have petty much been doing the same. I will update again tomorrow if I have the opportunity. Please continue to pray for us. I have my little office set up her and am just going about my business! Internet connectivty at the hospital is such a great blessing! I am praying for each of you and asking the Lord to bless you today. Hugs........... Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 oh diane i have tears streaming down my cheeks i am so happy he is resting and feeling alittle more comfortable. i am so thankful for knowing you must have a sence of relief knowing he is safe and getting the medicial attention he needed!!!i am so thrilled you stuck with your gut and got him to that hospital. you are such wonderful sence of inspiration for me ,just to know you has enriched my life beyond words!!!!i pray all goes well with the testing and they puff and stuff good ole terry and send him home with you good as new!!!!i love you my friend and i am not that far away if you need me, i WILL come and help you ,so please if you need anything please dont be to proud to ask, i am here for you i promise!all my love prayers and support,barby > > Hi everyone! Just wanted to let you all know that we are doing okay. Terry was brought into the hospital yesterday and before even taking him to his room, they took him to the interventional radition dept. for his paracentesis. The removed nearly 3 gallons of fluid from his abdominal cavity. He is so much more comfortable now and can breathe so much more easily. > > I don't know for sure what the plans are from here. I haven't spoken to the doctor as yet today. I think they may be going to be a colonoscopy because his BMs have been very dark and grainy and he is having pain in his lowe abdomen. Also, they are giving him lactulose every 2 hours because his ammonia levels were so high. He hasn't been able to take his meds at home for some time because he couldn't stand to put anything in his tummy. Is it any wonder?! > > He is sleeping at present and has been since the wee hours of the morning. I so much appreciate all your prayers and support. I believe he is weaker than even he was completely aware of. So, I'm just letting him rest. The staff have petty much been doing the same. > > I will update again tomorrow if I have the opportunity. Please continue to pray for us. I have my little office set up her and am just going about my business! Internet connectivty at the hospital is such a great blessing! I am praying for each of you and asking the Lord to bless you today. > > Hugs........... > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 I'm so happy to hear he had the procedure done,my what a releif he is in. I take 2 water pills a day now to releive the fluid,and havent gotten that bad,but I can relate. Last spring when I got real sick I could hardly breath,eat or talk or walk because of my fluid retension.My prayers are with you and Terry,it's nice to know they have internet at the hospitals,I go to my first appointment to try to get on the list on Jan.20th,you are a very strong lady,hang in there:):) Hugs, Subject: RE: Update on Terry To: " Cirrhosis Support Group " <livercirrhosissupport > Date: Wednesday, January 7, 2009, 2:23 PM Hi everyone! Just wanted to let you all know that we are doing okay. Terry was brought into the hospital yesterday and before even taking him to his room, they took him to the interventional radition dept. for his paracentesis. The removed nearly 3 gallons of fluid from his abdominal cavity. He is so much more comfortable now and can breathe so much more easily. I don't know for sure what the plans are from here. I haven't spoken to the doctor as yet today. I think they may be going to be a colonoscopy because his BMs have been very dark and grainy and he is having pain in his lowe abdomen. Also, they are giving him lactulose every 2 hours because his ammonia levels were so high. He hasn't been able to take his meds at home for some time because he couldn't stand to put anything in his tummy. Is it any wonder?! He is sleeping at present and has been since the wee hours of the morning. I so much appreciate all your prayers and support. I believe he is weaker than even he was completely aware of. So, I'm just letting him rest. The staff have petty much been doing the same. I will update again tomorrow if I have the opportunity. Please continue to pray for us. I have my little office set up her and am just going about my business! Internet connectivty at the hospital is such a great blessing! I am praying for each of you and asking the Lord to bless you today. Hugs........ ... Diane Quote Link to comment Share on other sites More sharing options...
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