Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi , Welcome to our group. I am Penny, and I have Hepatitis C since 1983, and I had a liver transplant on January 6, 2008. I have no idea where my Hepatitis C came from, but that isn't important. What's important is to do whatever I can to get rid of it. I am now doing the treatment for the Hep C, which I will be doing for 52 weeks. Tomorrow night will be my 5th shot (5th week). It's good that all your tests are holding steady. You never know how this will progress. I've always had a very low viral load (under 100,000) of the Hepatitis C, but ended up needing a new liver. My friend, who also has Hepatitis C, has had it since the 70's, and her viral load has always been 6 million, but her liver is still in very good shape. I hope it stays that way. It is very important to do whatever you can to keep up your health. I never did the treatment for the Hepatitis C before the transplant even though the doctors wanted me to. I was mostly afraid of the side effects, plus I always felt ok except for being tired and didn't think I needed the treatment, especially since my viral load was always so low. Once I got so sick and needed a liver, it was too late to do the treatment, so all I could hope for was a new liver. Now that I am doing the treatment, I wonder why I was so stubborn about not doing it before. Now I have to do whatever I can to be healthy again since I was so lucky and blessed to get a new liver. Have you done the treatment for the Hepatitis C? Penny > > Thanks to the moderator for letting me join this most sort after liver > group. > > I live in Chicago, I have hep c with cirrhosis, each 6 months I am very > scared of testing for tumor marking, etc., so far for the last 10 years > everything has been study. > > Doctors says there is no need to be on the waiting list for donor because I > don't have none of the symptom that warrant me to be put on it. I am excited > and glad that their determination testing have proved such, however I am > worried that if the liver becomes worse, and God forbid it, it would be fatal > for me. > > I think that each and every one of us should be worried about getting a > needed liver if things get worse. we must do and see that all that can be done > should be done on time not later. > > I got hep c through a blood transfusion in the 80ty. > > there are so many ways we can harm ourselves and not no it, by having hep c. > > I read of the posts and I have to agree, no one really knows the pain we > suffers. > > Along with hepc, I have diabetes type 2, so i have to be worried, but I > strong, I just don't want to let things happen medically that could have been > prevented. > > That is why each and every one of us should be searching for the truth. > > I plan to form a support group here in Chicago, for patients living with > cirrhosis. I am sure there are some but they are not visible. > > Thanks to everyone for reading my article, please keep up the good works. > > always, in Chicago > **************One site keeps you connected to all your email: AOL Mail, > Gmail, and Yahoo Mail. Try it now. > (http://www.aol.com/?optin=new- dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 welcome thomas ,chicago brrrrrrrrr lol. you have came to a great place ,chime in whenever you want to we are always her to listen and support you. my husband also has hep.c and esld, we dont know from where, its still a nagging feeling but we just keep looking towards the future.its a good thing you are doing there in the windy city,people suffer, sometimes silently, so a support group is a great step towards helping with their pain,i know this wonderful group of souls has saved me many many times.i am glad you have joined us.peace be with you ,much love barby > > Thanks to the moderator for letting me join this most sort after liver > group. > > I live in Chicago, I have hep c with cirrhosis, each 6 months I am very > scared of testing for tumor marking, etc., so far for the last 10 years > everything has been study. > > Doctors says there is no need to be on the waiting list for donor because I > don't have none of the symptom that warrant me to be put on it. I am excited > and glad that their determination testing have proved such, however I am > worried that if the liver becomes worse, and God forbid it, it would be fatal > for me. > > I think that each and every one of us should be worried about getting a > needed liver if things get worse. we must do and see that all that can be done > should be done on time not later. > > I got hep c through a blood transfusion in the 80ty. > > there are so many ways we can harm ourselves and not no it, by having hep c. > > I read of the posts and I have to agree, no one really knows the pain we > suffers. > > Along with hepc, I have diabetes type 2, so i have to be worried, but I > strong, I just don't want to let things happen medically that could have been > prevented. > > That is why each and every one of us should be searching for the truth. > > I plan to form a support group here in Chicago, for patients living with > cirrhosis. I am sure there are some but they are not visible. > > Thanks to everyone for reading my article, please keep up the good works. > > always, in Chicago > **************One site keeps you connected to all your email: AOL Mail, > Gmail, and Yahoo Mail. Try it now. > (http://www.aol.com/?optin=new- dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Hi , I don't take anywhere near as many pills now as I did right after my transplant. Right after the transplant, I took about 25 pills a day. Most of the pills taken after a transplant eventually don't have to be taken anymore after a while, but the anti rejection meds have to be taken for the rest of your life. Right now I just take the anti rejection meds, a med for heartburn, which I don't think I need anymore. I only needed that before my transplant, and they have cut it back because they don't think I really need it anymore. I also take a pill to prevent migraines, which I had long before I had cirrhosis. So the anti rejection meds are all I take now besides a multivitamin, extra calcium and extra magnesium because the anti rejection meds deplete those from the body. Of course, I take the Ribavarin pills, and Interferon injections for the Hepatitis C treatment for 52 weeks. It started out being 48 weeks, but my hepatologist wants me to do 52 weeks of treatment now. I became undetectable of the Hepatitis C virus after only 6 days of treatment, and I have genotype 1a, which is the hardest to treat of all the genotypes for Hepatitis C. Yes, Hepatitis C comes back after a transplant. A transplant is not a cure for Hepatitis C. It comes back faster and stronger than before the transplant, so it has to be treated after a transplant. Before my transplant, my kidneys were messed up a bit, but they were able to straighten them out so I didn't have any permanent damage to them. Hepatitis C can be passed on to a child through the mother, but it is pretty rare. It does happen, but many women give birth after having Hepatitis C, and their kids don't have it. It's very rare to pass Hepatitis C through sex, so if the man has it, the woman shouldn't get it, so it shouldn't affect her child through birth. As long as all blood to blood contact is avoided such as having sex during a woman's menstrual period, or having anal sex, the risk of contracting it through sex is almost non existant. Don't hold me to that because it is possible, but unlikely. That is what I have been told by doctors and through research. Hepatitis C is spread through blood, not other bodily fluids. Hepatitis C is more likely to be spread through sharing toothbrushes, razors, needles, having blood transfusions before they started screening it, having tattoos, anythiing involving blood to blood contact. Hepatitis B, on the other hand, is known to be spread through sexual contact. I hope that answers your questions. Penny > > there aren't that many male member so guess I wall have to do my best to > fill the gap with you lovely ladies. Lolololol If there are questions about the > male, I will be glad to answer. > > penny, wow, you are a super star, you had the transplants, you are so > blessed. how many pills are you taking? you are one great big inspiration to us > all. > > when i went for my blood work, i ask the doctor to let me meet a > transplantee, as usual a refusal. we need to know the in and out of a liver > transplant sooner or later we could be facing the same procedure. it would make things > a little easier for those who might in the near future be facing a > transplant. > > i got tons of questions so dont let me bore you out. after the transplant > do you still have the hep c virus, how many pills are you taking, i am sure > you will be on them the rest of your life right? > > before the surgery penny did any of your other organs mess up, like the > kidneys etc: personal question " . > > " anyone can answer that knows : what are the chances of one passing hepc on > to the child, if the wife or girlfriends get pregnant and the wife don't > have hepc? > > waiting? > > **************One site keeps you connected to all your email: AOL Mail, > Gmail, and Yahoo Mail. Try it now. > (http://www.aol.com/?optin=new- dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) > > > Quote Link to comment Share on other sites More sharing options...
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