Re: Re: VSL#3 probiotic

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We have been using VSL#3 for a year, my son had an immediate improvement with yeast and the behaviors associated with yeast.

I ran out once and used something cheaper and his sensory issues got worse. Once I put him back on the vsl, he improved noticeably.

I have had not adverse reactions using this, although all children respond diffrently.

I have tried quite a few different probiotics and this has worked the best for us.

Subject: Re: VSL#3 probioticTo: mb12 valtrex Date: Thursday, November 20, 2008, 3:00 PM

I don't know what VSL#3 is. We are going to start on colostrum - with the casein removed - soon. So I can't help with that yet. We may be taking folopro at one point.xo>> Is anyone using vsl#3, Folapro, phoscol, colostrum, evening primrose oil, or Bio Body Oil? Any input would be great. These are all things I have not tried yet. The Spectrum Supplements website is a great one! It has almost everything. Also, is everyone out there doing a minimum of 150 billion org./day with probioitcs? I havn't. Maybe that's one reason why we are still having gut issues. He definitely is a gut kid. We did metrodiazonole and diflucan almost 2 years ago for his

diarrhea. It helped tremendously. Stool was still not quite normal until we started SCD. I didn't start it right away because he wouldn't eat anything. So, I did gf/cf. If I could have done SCD right away, I think he would be alot better today than what he is. He is now doing oral DMSA, which I question only because I wonder if it is to much for his gi. I am thinking about trying TD DMPS. We have a DAN! Dr. and we like her alot, but I don't> think we are doing enough. > > Amy>

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We have seen nothing but good when using VSL#3C in San DiegoWe have been using VSL#3 for a year, my son had an immediate improvement with yeast and the behaviors associated with yeast.I ran out once and used something cheaper and his sensory issues got worse. Once I put him back on the vsl, he improved noticeably.I have had not adverse reactions using this, although all children respond diffrently.I have tried quite a few different probiotics and this has worked the best for us.Subject: Re: VSL#3 probioticTo: mb12 valtrex Date: Thursday, November 20, 2008, 3:00 PMI don't know what VSL#3 is. We are going to start on colostrum - with the casein removed - soon. So I can't help with that yet. We may be taking folopro at one point.xo>> Is anyone using vsl#3, Folapro, phoscol, colostrum, evening primrose oil, or Bio Body Oil? Any input would be great. These are all things I have not tried yet. The Spectrum Supplements website is a great one! It has almost everything. Also, is everyone out there doing a minimum of 150 billion org./day with probioitcs? I havn't. Maybe that's one reason why we are still having gut issues. He definitely is a gut kid. We did metrodiazonole and diflucan almost 2 years ago for his diarrhea. It helped tremendously. Stool was still not quite normal until we started SCD. I didn't start it right away because he wouldn't eat anything. So, I did gf/cf. If I could have done SCD right away, I think he would be alot better today than what he is. He is now doing oral DMSA, which I question only because I wonder if it is to much for his gi. I am thinking about trying TD DMPS. We have a DAN! Dr. and we like her alot, but I don't> think we are doing enough. > > Amy>

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Does anyone know idi should still give my son his b12 nose spray and glutathione cream. He's been running a fever for a few days so I wasnt sure. Also is there a natural way to bring a fever down other than tylenol or Motrin ? Thanks Sent via BlackBerry by AT&TDate: Thu, 20 Nov 2008 21:59:32 -0000To: <mb12 valtrex >Subject: Re: VSL#3 probiotic Hi Amy, The most common varieties of probiotics are Acidophilus/Bifidus. This is made with and without dairy, depending on the brand (some have casein, some do not). As more and more strains of bacteria are added to the mix, you will begin to see healthy (non-pathogenic) strains of streptococcus (but not always - there are several full-bodied probiotics that omit strep). Additionally, just like yogurt starter cultures, probiotics are available in non-dairy (vegan). > > Don't most probiotics have strep and casein strains of bacteria in them?  My son is not PANDAS.  Should I still be concerned about these strains? > > Amy >

[Guest guest]

Thank you for your response. I tend to agree with about the probiotics. My son was getting around 75 billion org./day. I found out about vsl#3 from a mother whose child is recovered. I will definitely look into those d.enzymes you mentioned. With my son, I feel healing his gut is the most important thing. If I can do that, I know my son will recover too! I can't wait to get it.

Amy

To: mb12 valtrex Sent: Thursday, November 20, 2008 6:53:33 PMSubject: Re: VSL#3 probiotic

One thing I have learned over the past few months while lurking on ulcerative colitis forums is that the level of probiotics that most parents use are useless. Yes, useless. When somebody usually makes such a black and white statement as I have just made, my BS meter immediately goes off. However in this case, to say that the current products and dosages are useless appear to be accurate with MOST (not all) of the parents that I have consulted. In the general autism biomed commumity products such as Super Pro Bio are thought to be mega doses for our children. It is easy to understand why that is when you look at the contents of many of the common products and you see 5, 10 and 15 billion count products and then compare to Super Pro Bio which has 75 billion. I noticed early on that the 15 billion counts were not yielding any noticeable results so I went to products like Super Pro thinking that this

was definitely going to have an effect. Of course, I noticed nothing. No real discernable results. Then I remembered an old principle about learning and doing so from the professionals. Who are the professional clients in GI Distress? It is folks who have the really horrific conditions like ulcerative colitis and crohns. 30 minutes on one board I realized that my 75 billion was actually a relatively small amount for those who have MAJOR distress. What product where they talking about on these boards...mostly VSL #3. What is the product count for one package of VSL #3...450 billion. One serving is 450 billion which is 6 times what I felt was a mega dose. Long story short, when I started giving my 22 month old and 10 month old (yes, 10 month old and I am sad I wasted 10 months of his young life) 450 billion a day and sometimes more, things changed immediately. All the GI distress with yeast and

bacteria has significantly subsided...stimming has come way down. During times of chelation, I raise the level and have nothing but great things to say about the results. So, while as a parent I think it is wise to be cautious with the "wild west" protocols of some DAN doctors like Bradstreet and others who have a tendency fetishize all that is MEGADOSE, there are times when more is just more. One more thing, for those of you interested in oxalates and suspect your child may have difficulties, VSL #3 is the only recommended probiotic contained in the vitamin K protocol.PS After this discovery with probiotics I sought out the "professional clients" in the area of enzymes (see cystic fibrosis and pancreatitis forums) and found I was making similar mistakes. Do yourself a favor and read up on enzymes like Creon 10/20, Pancreacarb, and Sucraid. Now I know my sons are getting their enzymes.

BTW, my sons are Gf/CF/Sf and have never had a problem with the trace amounts of casein in VSL #3. >> Is anyone using vsl#3, Folapro, phoscol, colostrum, evening primrose oil, or Bio Body Oil? Any input would be great. These are all things I have not tried yet. The Spectrum Supplements website is a great one! It has almost everything. Also, is everyone out there doing a minimum of 150 billion org./day with probioitcs? I havn't. Maybe that's one reason why we are still having gut issues. He definitely is a gut kid. We did metrodiazonole and diflucan almost 2 years ago for his diarrhea. It helped

tremendously. Stool was still not quite normal until we started SCD. I didn't start it right away because he wouldn't eat anything. So, I did gf/cf. If I could have done SCD right away, I think he would be alot better today than what he is. He is now doing oral DMSA, which I question only because I wonder if it is to much for his gi. I am thinking about trying TD DMPS. We have a DAN! Dr. and we like her alot, but I don't> think we are doing enough. > > Amy>

[Guest guest]

VSL#3 is usually $50.00 from cvs and walgreens and most other chain pharmacies.

I found that Walmart has only been charging us $35.00 a month for the past year.

I do not know if that is all Walmarts or not, or if Target would be similar.

I know that alot of pharmacies take the AAA card discount, which can save alot sometimes. They just don't go around advertising for you to do this.

You do NOT need a prescription for VSL #3.

You can also purchase it direct from the company online but its slightly more money than buying it at your pharmacy, at least it use to be.

Also, when I started calling around to get VSL#3 none of the pharmacies ever heard of it but all of them said they could special order it in for the next day.

Subject: Re: VSL#3 probioticTo: mb12 valtrex Date: Thursday, November 20, 2008, 7:43 PM

All are prescription and all are heavy duty. My son has sucrase/isomaltase deficiency dx by a Buie endoscopy and while he failed to prescribe it, I found another doctor who would. Problem is that it costs 5k a month!!!! Can you believe that??? I all but gave up hope but then I kept asking folks at the company, how do poor folks get this (as many autistic parents indeed qualify as "financially challenged") ? Where do they go??? Again, poor folks are the "professionals" who know how to get a lot for a little. So what the real poor folks have in many of these companies is a program where they get to pay a copay and the company handles the rest with their insurance, that is, if they have insurance. When it was all said and done, we got Sucraid for 75 dollars a month. A far cry from the 5k they straight-faced quoted us intially.> > >> > > Is anyone using vsl#3, Folapro, phoscol, colostrum, evening> > primrose oil, or Bio Body Oil? Any input would be great. These> are> > all things I have not tried yet. The Spectrum Supplements website> is> > a great one! It has almost everything. Also, is everyone out there> > doing a minimum of 150 billion org./day with probioitcs? I> havn't. > > Maybe that's

one reason why we are still having gut issues. He> > definitely is a gut kid. We did metrodiazonole and diflucan almost> 2> > years ago for his diarrhea. It helped tremendously. Stool was> still> > not quite normal until we started SCD. I didn't start it right> away> > because he wouldn't eat anything. So, I did gf/cf. If I could> have> > done SCD right away, I think he would be alot better today than what> > he is. He is now doing oral DMSA, which I question only because> I> > wonder if it is to much for his gi. I am thinking about trying> TD> > DMPS. We have a DAN! Dr. and we like her alot, but I don't> > > think we are doing enough. > > >> > > Amy> > >>

>>

[Guest guest]

you can try asking the folks on

autism insurance information@yahoogroups

for help/answers

vicki

Re: VSL#3 probiotic

All are prescription and all are heavy duty. My son has

sucrase/isomaltase deficiency dx by a Buie endoscopy and while he

failed to prescribe it, I found another doctor who would. Problem is

that it costs 5k a month!!!! Can you believe that??? I all but gave

up hope but then I kept asking folks at the company, how do poor

folks get this (as many autistic parents indeed qualify

as "financially challenged")? Where do they go??? Again, poor folks

are the "professionals" who know how to get a lot for a little. So

what the real poor folks have in many of these companies is a program

where they get to pay a copay and the company handles the rest with

their insurance, that is, if they have insurance. When it was all

said and done, we got Sucraid for 75 dollars a month. A far cry from

the 5k they straight-faced quoted us intially.

> > >

> > > Is anyone using vsl#3, Folapro, phoscol, colostrum, evening

> > primrose oil, or Bio Body Oil? Any input would be great. These

> are

> > all things I have not tried yet. The Spectrum Supplements website

> is

> > a great one! It has almost everything. Also, is everyone out

there

> > doing a minimum of 150 billion org./day with probioitcs? I

> havn't.

> > Maybe that's one reason why we are still having gut issues. He

> > definitely is a gut kid. We did metrodiazonole and diflucan

almost

> 2

> > years ago for his diarrhea. It helped tremendously. Stool was

> still

> > not quite normal until we started SCD. I didn't start it right

> away

> > because he wouldn't eat anything. So, I did gf/cf. If I could

> have

> > done SCD right away, I think he would be alot better today than

what

> > he is. He is now doing oral DMSA, which I question only because

> I

> > wonder if it is to much for his gi. I am thinking about trying

> TD

> > DMPS. We have a DAN! Dr. and we like her alot, but I don't

> > > think we are doing enough.

> > >

> > > Amy

> > >

> >

>

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[Guest guest]

it actually HAS trace milk in it,

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: VSL#3 probiotic

If your child is off milk is the lactic acid bacteria bad? VSL #3: Ingredients: Lactic acid bacteria, microcrystalline cellulose, stearic acid, silicon dioxide.> >> > Is anyone using vsl#3, Folapro, phoscol, colostrum, evening > primrose oil, or Bio Body Oil? Any input would be great. These are > all things I have not tried yet. The Spectrum Supplements website is > a great one! It has almost everything. Also, is everyone out there > doing a minimum of 150 billion org./day with probioitcs? I havn't. > Maybe that's one reason why we are still having gut issues. He > definitely is a gut kid. We did metrodiazonole and diflucan almost 2 > years ago for his diarrhea. It helped tremendously. Stool was still > not quite normal until we started SCD. I didn't start it right away > because he wouldn't eat anything. So, I did gf/cf. If I could have > done SCD right away, I think he would be alot better today than what > he is. He is now doing oral DMSA, which I question only because I > wonder if it is to much for his gi. I am thinking about trying TD > DMPS. We have a DAN! Dr. and we like her alot, but I don't> > think we are doing enough. > > > > Amy> >>

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