Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Chantelle: >What's adrenoleukodystrophy? Someone correct me if I'm wrong, but I believe it's better known as " ALD " . It is a degenerative nerve condition, also known as " Lou Gehrig's disease " . (Please correct me if I'm way off base guys!) Anyway, ALD was featured on ER for the past few weeks with a little boy who had it. Zaslow who played Thorpe on Guiding Light was also dx with it (and just recently passed away from it. I believe Caitlyn's hands and feet fall asleep often too. We're not sure because she can't tell us but we often catch her holding one hand with the other and alternating between flexing and making a fist as if the hand is bothering her. Her attitude when she does this makes us believe she's not doing it for the heck of it. And BTW, I just have to give kudos to for her advice to Korey. I do not get close to the respect I deserve from drs for what I've been through with Caitlyn and I think it's high time I start demanding it. Way to go ! Jeanne Quote Link to comment Share on other sites More sharing options...
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