Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 well, he is running a temperature this evening and is quite grumpy. he also has an all over dry itchy skin thing going on, similar to an eczema outbreak. he has been fluctuating between lethargy and high energy today. i'm assuming these are good signs (i hope). i'm pretty paranoid right now - we are coming off of a horrible 4 weeks where he went from having RSV to strep throat. so, if anybody has any words of encouragement, i would love to hear them thanks again, jennie > > our boy started on valtrex about 6 days ago (he is 3). our DAN! is > having us start at 250mg twice a day and then increase to 3 times a > day after a week. after a couple days, he started to develop a red, > kinda dry/chapped look on his cheeks, close to his mouth. then he > developed a rash at the base of his neck, between his shoulder blades. > it all culminated last night when he had a slight increase in > seizures, one of his eyes looked like he had been punched, the red, > dry area got much worse, he fell asleep early and started sweating out > through his head. he's not a great sweater, so this was noticeable to > us. today he is back to baseline - even the dry, chapped look is > gone. does this sound like he may be a valtrex responder? and, if > so, should we continue with our plan to increase to the full dosage in > the morning? > > thanks for any input > jennie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Here is some encouragement for you.... It took us over 45 days to get the facial rash you observed. I would say your little guy is responding rapidly and dramatically. We had weepy crying for no reason off an on the first week. Then we had insomnia the third week. This is reaction to the meds. --penumbra > > well, he is running a temperature this evening and is quite grumpy. > he also has an all over dry itchy skin thing going on, similar to an > eczema outbreak. he has been fluctuating between lethargy and high > energy today. i'm assuming these are good signs (i hope). i'm pretty > paranoid right now - we are coming off of a horrible 4 weeks where he > went from having RSV to strep throat. so, if anybody has any words of > encouragement, i would love to hear them > > thanks again, > jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 thank you so much for your response - you definitely qualmed my fears jennie > > > > well, he is running a temperature this evening and is quite grumpy. > > he also has an all over dry itchy skin thing going on, similar to an > > eczema outbreak. he has been fluctuating between lethargy and high > > energy today. i'm assuming these are good signs (i hope). i'm pretty > > paranoid right now - we are coming off of a horrible 4 weeks where he > > went from having RSV to strep throat. so, if anybody has any words of > > encouragement, i would love to hear them > > > > thanks again, > > jennie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Jennie, I am so excited for you. We are starting Valtrex in 10 days ( trying to get the yeast under control first with Duflucan)........and I pray to have symptons like what you have. I pray for you and your little one . Are you also on Diflucan or some other anti-fungal and if so how much. My son is 6 and we are planning to get him on baord with 250mg of Valtrex 3 times a day, but by the sounds of what I read on our web group here, maybe we should consider more. Let me know about the Diflucan and keep us updated. > > > > > > well, he is running a temperature this evening and is quite grumpy. > > > he also has an all over dry itchy skin thing going on, similar to an > > > eczema outbreak. he has been fluctuating between lethargy and high > > > energy today. i'm assuming these are good signs (i hope). i'm pretty > > > paranoid right now - we are coming off of a horrible 4 weeks where he > > > went from having RSV to strep throat. so, if anybody has any words of > > > encouragement, i would love to hear them > > > > > > thanks again, > > > jennie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Team, One more question. When you get start valtrex, do you need to do Diflucan everyday or do you only use it when you see the yeast flare up ? Regards > > > > > > > > well, he is running a temperature this evening and is quite > grumpy. > > > > he also has an all over dry itchy skin thing going on, similar > to an > > > > eczema outbreak. he has been fluctuating between lethargy and > high > > > > energy today. i'm assuming these are good signs (i hope). > i'm pretty > > > > paranoid right now - we are coming off of a horrible 4 weeks > where he > > > > went from having RSV to strep throat. so, if anybody has any > words of > > > > encouragement, i would love to hear them > > > > > > > > thanks again, > > > > jennie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 our boy was on diflucan and then we switched to ketaconazole, which was the worst mistake of our lives - it basically blocked the absorption of his seizure med and most his supplements - his biomedical pathways shut down for a month. he ended up on a new seizure med which can't be taken with prescription antifungals. so, basically, since he does have a bad yeast problem, we are treating it with a LOT of probiotics, biotin and grapefruit seed extract. so far, so good we seem to be getting most of our symptoms in the evening and he seems to be fluctuating up and down. last night he again got the black circles and went from increased energy to lethargy and back and forth. he also kept running a low-grade temperature off and on and the mouth " rash " came back, but not as bad. i increase the dose today to our destination of 250 mg., 3 times per day. we are cautiously optimistic. he has most of the soft markers as a viral kid, but not the hard. well, i guess one hard marker was his french porphyrin test did come back indicating a viral issue, but his titers, etc. have always tested fine. he brought his daddy his jacket last night and it was obvious he was asking to go outside. jennie > > > > > > > > well, he is running a temperature this evening and is quite > grumpy. > > > > he also has an all over dry itchy skin thing going on, similar > to an > > > > eczema outbreak. he has been fluctuating between lethargy and > high > > > > energy today. i'm assuming these are good signs (i hope). > i'm pretty > > > > paranoid right now - we are coming off of a horrible 4 weeks > where he > > > > went from having RSV to strep throat. so, if anybody has any > words of > > > > encouragement, i would love to hear them > > > > > > > > thanks again, > > > > jennie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Why did the Nizoral do that? Can you provide me with more info.? My son is taking that now. thanks. > > > > > > > > > > well, he is running a temperature this evening and is quite > > grumpy. > > > > > he also has an all over dry itchy skin thing going on, similar > > to an > > > > > eczema outbreak. he has been fluctuating between lethargy and > > high > > > > > energy today. i'm assuming these are good signs (i hope). > > i'm pretty > > > > > paranoid right now - we are coming off of a horrible 4 weeks > > where he > > > > > went from having RSV to strep throat. so, if anybody has any > > words of > > > > > encouragement, i would love to hear them > > > > > > > > > > thanks again, > > > > > jennie > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 all i can really tell you is that i did find a paper (maybe somebody here provided it to me???) that showed that nizoral can block the absorption of taurine. taurine's been a big player for our son. i also found evidence that prescription antifungals can interact with anticonvulsants either by causing the anticonvulsant to be stronger in the blood stream or weaker. for us, getting our son's biomedical pathways opened up and functioning have been key for his health and we've worked hard to get him there (non-sweater, doesn't excrete toxins, etc.) and it really seemed to be a cascading affect that was very scary. i think that is what actually allowed his body to come down with RSV and then strep within two weeks of each other (after finally getting him to the point where he wasn't getting sick at the drop of a hat). i definitely think this could be very dependent per child, but i do believe that if your child is taking an anticonvulsant, you should think long and hard and do your research before administering prescription antifungals. i hope that helps. jennie > > > > > > > > > > > > well, he is running a temperature this evening and is quite > > > grumpy. > > > > > > he also has an all over dry itchy skin thing going on, > similar > > > to an > > > > > > eczema outbreak. he has been fluctuating between lethargy > and > > > high > > > > > > energy today. i'm assuming these are good signs (i hope). > > > i'm pretty > > > > > > paranoid right now - we are coming off of a horrible 4 > weeks > > > where he > > > > > > went from having RSV to strep throat. so, if anybody has > any > > > words of > > > > > > encouragement, i would love to hear them > > > > > > > > > > > > thanks again, > > > > > > jennie > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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