Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Abijann - for some reason, my mom can't get the flu shot. She has told me many times why she doesn't get them, but just remember that she was advised by a doctor not to get one. I haven't had one this year yet, but should have. Switching doctors in the middle of the flu shot season probably. Jan H On Fri, Feb 6, 2009 at 3:41 PM, abijann <no_reply > wrote: > I'm happy to hear your mom is getting better. I bet she will > be glad to be home again. I wonder if they give people flu > shots when they are so far up in years. > > They want liver patients to have the flu shot and also the > pneumovac and tetanus shot. I'm really starting to wonder > how good these shots are...I heard that it only covers > maybe three of the worst flu virus and there are tons of > different viruses around. Someone, I know, had the pneumovac > shot and 6 months later had pneumonia. Makes you wonder. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Jan, I am praying for you sweetie. I cannot imagine the stress you are feeling! I know you will play beautifully but I do understand your anxiety. I am so glad your brother is able to be there with your Mom. Enjoy the opportunity to meet Mr. Harness and don't stress too much over your own abilities. The Lord will lift you up and play through you. Mr. Harness will blessed, I am sure. Love you and praying! Hugs............ Diane ________________________________ To: livercirrhosissupport Sent: Friday, February 6, 2009 2:32:40 PM Subject: Re: Jan Thanks Diane - I am sure my mother will be okay until she can get the surgery to fix it. My brother will stay with her until he knows she can make it on her own. She has a walker and a cane from when she had the original hip replacement, so if she can get out of the chair, she can move around. Right now, I am fighting something, cold, allergies, mild flu. Yesterday seems to have been the worst day, better today. Problem is that I have to play the communion songs in church on Sunday. Sunday night we are having a special performance in our church. Some of you may have heard of Harness, the opera singer. He is going to be at our church on Sunday night, and may be at church with us on Sunday morning. Hard songs to start with, cut down on practicing because I haven't been feeling well, and Harness may be in the congregation when I am playing. I really feel that God has been helping me because I have been playing better lately than I ever did before, especially songs for church. But, I may have to take an extra 1/2 Xanax before church starts. And I am asking for prayers so I don't goof up badly. Jan H On Fri, Feb 6, 2009 at 12:30 AM, diane chandler <dianechandler@ att.net>wrote: > Jan, I am so sorry your Mom has the flu and has ato go through surgery, > but at least your brother is there and can take care of her. I will be > praying for her return to health and strength so she can have her surgery > and start the healing process. I hope the chair is helpful to her. I > believe it will be. I'm praying for you as well, cause I know your heart is > there with her. Love you sweetie! > > Warm hugs........ ....... > Diane > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup s.com> > Sent: Friday, February 6, 2009 12:49:24 AM > Subject: Re: Jan > > Mom is going home tomorrow. She caught the flu while in the hospital, can't > take the flu shot for some reason. Getting better now. It was just what it > seemed like, the prior replacement was loose. They will be redoing it when > she has fully regained her strength. My brother did get the chair for her, > it was delivered today, placed just where she had her other recliner, in a > color which goes with the rest of her furniture. They were aware that > medicare would pay for part of it. My brother will be staying with her > until she can be left alone, luckily, he is a farmer, grain only, so he is > free to do what needs to be done. They have also looked into some home > health care. I am sure when she does have her surgery to fix it, she will > have it near where my brother lives. She lives in a small town, 15 bed > hospital. She seemed in pretty good spirits when I called today. > > G=Thanks for your concern. Jan H > On Thu, Feb 5, 2009 at 12:53 AM, diane chandler <dianechandler@ att.net > >wrote: > > > You're welcome Jan. How is she doing? > > > > Hugs........ .. > > Diane > > > > ____________ _________ _________ __ > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp > ort%40yahoogroup s.com> > > Sent: Thursday, February 5, 2009 1:36:00 AM > > Subject: Re: Jan > > > > I don't know if my mom had thought of getting financial help from > Medicare. > > She would be able to pay for it herself, but every little bit helps for > > everybody. Thanks for the info. Jan H > > > > On Wed, Feb 4, 2009 at 8:32 PM, diane chandler <dianechandler@ att.net > > >wrote: > > > > > When Terry entered Hospice, I ordered one of these type chairs for him, > > > but they had to special order due to his size. Unfortunately, he did > not > > > live long enough to get it or need it. However, my BIL has one for his > > Dad > > > who lives in a nursing home. They absolutely love it. It took some time > > > for his Dad to get used to it, but now that he is he loves it too. BTW, > > > Medicare helped to pay for his. > > > > > > Hugs........ .... > > > Diane > > > > > > ____________ _________ _________ __ > > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp > > ort%40yahoogroup s.com> > > > Sent: Wednesday, February 4, 2009 5:15:53 PM > > > Subject: Re: Jan > > > > > > Abijann - I will try to remember to let you know if she does get one > and > > > how > > > it works, they have one picked out, but will depend on what they can do > > for > > > her in the way of surgery. But, i wouldn't mind haiving one myself to > get > > > out of my recliner. After my surgery, I had to have help to get out. I > > > mentioned the chair around here and it seems there are quite a few of > > them > > > in this town with an average age of 67. Jan H > > > > > > On Wed, Feb 4, 2009 at 4:08 PM, abijann <no_reply@yahoogrou p s.com> > > wrote: > > > > > > > I hope your Mom does okay. It is good to know that your brother is > > > > helping her. Can you let me know if those chairs work for her... > > > > I have seen them but never tried one. My husband's mother has > > > > a hard time now getting up from the chair in the nursing home and > > > > I was thinking maybe we should get one for her, when we can afford > it. > > > > She is about 87 now, I think. > > > > > > > > > > > > > > > > > > -- > > > Jan H > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Actually, my mother takes some of the same medicines I do. And some of her dosages are less than mine. We have finally found something in common when she got into her 80s and I am in my 60s. I have had pesky medical problems all my life, but she never believed me. I started my treatment for hypothyroidism in my early 30's. I told her. She was 20 years older, so shouldn't have been a memory problem. Then about 15 years or so ago, my oldest brother started treatment for it. She was all upset and told me about it. When I told her I had been treated for years already and at a higher level than my brother, she was surprised. Then she started treatment a few years ago. Until I got cirrhosis and then had 14 to 16 angiograms/angioplasties with stents and the triple bypass last April, she really didn't think I had anything wrong with me. She was always telling me to just forget about it and get up and do what I had to do. I thought we had gotten over that, and then a couple months ago she told me the same thing, to get off of groups like this, not tell people I had medical problems. I just swallowed and ignored it. These groups, especially this one are the support I need, and my friends know when I am in the hospital and what is wrong. Usually, I am not the one who puts out the word, just tell one person and then it gets all through my social/church circle of friends. And, because my friends know, I have been able to help other people, get them to go to the doctor for diagnosis. I think the length of time someone has been on a medication, or needed medication for a condition might have more to do with the dosage than the physical age of the person. Jan H On Fri, Feb 6, 2009 at 5:25 PM, abijann <no_reply > wrote: > I know as a person gets older, their organs don't function as well and > medication has to be adjusted for them, especially those who are > above 65. Since your Mom is about 85, I was wondering what they > do when they reach that age. Guess, I got my answer. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Thanks, and while you are praying, please pray that I will be able to go Sunday night to hear him. I heard him last year at another church here in town, and he is really great. Sings all types of music. And sometimes he sings in a quartet where he sings all the parts, from high tenor to low bass. When I heard his range last year I couldn't keep myself from actually saying " Wow " If you get a chance to go to one of his concerts, go. Jan H On Fri, Feb 6, 2009 at 5:52 PM, diane chandler wrote: > Jan, > > I am praying for you sweetie. I cannot imagine the stress you are > feeling! I know you will play beautifully but I do understand your > anxiety. I am so glad your brother is able to be there with your Mom. > Enjoy the opportunity to meet Mr. Harness and don't stress too much over > your own abilities. The Lord will lift you up and play through you. Mr. > Harness will blessed, I am sure. Love you and praying! > > Hugs............ > Diane > > ________________________________ > From: Jan Holman <janholman@... <janholman%40gmail.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Friday, February 6, 2009 2:32:40 PM > Subject: Re: Jan > > Thanks Diane - I am sure my mother will be okay until she can get the > surgery to fix it. My brother will stay with her until he knows she can > make it on her own. She has a walker and a cane from when she had the > original hip replacement, so if she can get out of the chair, she can move > around. > > Right now, I am fighting something, cold, allergies, mild flu. Yesterday > seems to have been the worst day, better today. Problem is that I have to > play the communion songs in church on Sunday. Sunday night we are having a > special performance in our church. Some of you may have heard of > Harness, the opera singer. He is going to be at our church on Sunday night, > and may be at church with us on Sunday morning. Hard songs to start with, > cut down on practicing because I haven't been feeling well, and > Harness may be in the congregation when I am playing. I really feel that > God has been helping me because I have been playing better lately than I > ever did before, especially songs for church. But, I may have to take an > extra 1/2 Xanax before church starts. And I am asking for prayers so I > don't goof up badly. Jan H > > On Fri, Feb 6, 2009 at 12:30 AM, diane chandler <dianechandler@ att.net > >wrote: > > > Jan, I am so sorry your Mom has the flu and has ato go through surgery, > > but at least your brother is there and can take care of her. I will be > > praying for her return to health and strength so she can have her surgery > > and start the healing process. I hope the chair is helpful to her. I > > believe it will be. I'm praying for you as well, cause I know your heart > is > > there with her. Love you sweetie! > > > > Warm hugs........ ....... > > Diane > > > > ____________ _________ _________ __ > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp > ort%40yahoogroup s.com> > > Sent: Friday, February 6, 2009 12:49:24 AM > > Subject: Re: Jan > > > > Mom is going home tomorrow. She caught the flu while in the hospital, > can't > > take the flu shot for some reason. Getting better now. It was just what > it > > seemed like, the prior replacement was loose. They will be redoing it > when > > she has fully regained her strength. My brother did get the chair for > her, > > it was delivered today, placed just where she had her other recliner, in > a > > color which goes with the rest of her furniture. They were aware that > > medicare would pay for part of it. My brother will be staying with her > > until she can be left alone, luckily, he is a farmer, grain only, so he > is > > free to do what needs to be done. They have also looked into some home > > health care. I am sure when she does have her surgery to fix it, she will > > have it near where my brother lives. She lives in a small town, 15 bed > > hospital. She seemed in pretty good spirits when I called today. > > > > G=Thanks for your concern. Jan H > > On Thu, Feb 5, 2009 at 12:53 AM, diane chandler <dianechandler@ att.net > > >wrote: > > > > > You're welcome Jan. How is she doing? > > > > > > Hugs........ .. > > > Diane > > > > > > ____________ _________ _________ __ > > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp > > ort%40yahoogroup s.com> > > > Sent: Thursday, February 5, 2009 1:36:00 AM > > > Subject: Re: Jan > > > > > > I don't know if my mom had thought of getting financial help from > > Medicare. > > > She would be able to pay for it herself, but every little bit helps for > > > everybody. Thanks for the info. Jan H > > > > > > On Wed, Feb 4, 2009 at 8:32 PM, diane chandler <dianechandler@ att.net > > > >wrote: > > > > > > > When Terry entered Hospice, I ordered one of these type chairs for > him, > > > > but they had to special order due to his size. Unfortunately, he did > > not > > > > live long enough to get it or need it. However, my BIL has one for > his > > > Dad > > > > who lives in a nursing home. They absolutely love it. It took some > time > > > > for his Dad to get used to it, but now that he is he loves it too. > BTW, > > > > Medicare helped to pay for his. > > > > > > > > Hugs........ .... > > > > Diane > > > > > > > > ____________ _________ _________ __ > > > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp > > > ort%40yahoogroup s.com> > > > > Sent: Wednesday, February 4, 2009 5:15:53 PM > > > > Subject: Re: Jan > > > > > > > > Abijann - I will try to remember to let you know if she does get one > > and > > > > how > > > > it works, they have one picked out, but will depend on what they can > do > > > for > > > > her in the way of surgery. But, i wouldn't mind haiving one myself to > > get > > > > out of my recliner. After my surgery, I had to have help to get out. > I > > > > mentioned the chair around here and it seems there are quite a few of > > > them > > > > in this town with an average age of 67. Jan H > > > > > > > > On Wed, Feb 4, 2009 at 4:08 PM, abijann <no_reply@yahoogrou p s.com> > > > wrote: > > > > > > > > > I hope your Mom does okay. It is good to know that your brother is > > > > > helping her. Can you let me know if those chairs work for her... > > > > > I have seen them but never tried one. My husband's mother has > > > > > a hard time now getting up from the chair in the nursing home and > > > > > I was thinking maybe we should get one for her, when we can afford > > it. > > > > > She is about 87 now, I think. > > > > > > > > > > > > > > > > > > > > > > > -- > > > > Jan H > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Will do! Luv you! Diane ________________________________ To: livercirrhosissupport Sent: Friday, February 6, 2009 6:58:00 PM Subject: Re: Jan Thanks, and while you are praying, please pray that I will be able to go Sunday night to hear him. I heard him last year at another church here in town, and he is really great. Sings all types of music. And sometimes he sings in a quartet where he sings all the parts, from high tenor to low bass. When I heard his range last year I couldn't keep myself from actually saying " Wow " If you get a chance to go to one of his concerts, go. Jan H On Fri, Feb 6, 2009 at 5:52 PM, diane chandler <dianechandler@ att.net>wrote: > Jan, > > I am praying for you sweetie. I cannot imagine the stress you are > feeling! I know you will play beautifully but I do understand your > anxiety. I am so glad your brother is able to be there with your Mom. > Enjoy the opportunity to meet Mr. Harness and don't stress too much over > your own abilities. The Lord will lift you up and play through you. Mr. > Harness will blessed, I am sure. Love you and praying! > > Hugs........ .... > Diane > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup s.com> > Sent: Friday, February 6, 2009 2:32:40 PM > Subject: Re: Jan > > Thanks Diane - I am sure my mother will be okay until she can get the > surgery to fix it. My brother will stay with her until he knows she can > make it on her own. She has a walker and a cane from when she had the > original hip replacement, so if she can get out of the chair, she can move > around. > > Right now, I am fighting something, cold, allergies, mild flu. Yesterday > seems to have been the worst day, better today. Problem is that I have to > play the communion songs in church on Sunday. Sunday night we are having a > special performance in our church. Some of you may have heard of > Harness, the opera singer. He is going to be at our church on Sunday night, > and may be at church with us on Sunday morning. Hard songs to start with, > cut down on practicing because I haven't been feeling well, and > Harness may be in the congregation when I am playing. I really feel that > God has been helping me because I have been playing better lately than I > ever did before, especially songs for church. But, I may have to take an > extra 1/2 Xanax before church starts. And I am asking for prayers so I > don't goof up badly. Jan H > > On Fri, Feb 6, 2009 at 12:30 AM, diane chandler <dianechandler@ att.net > >wrote: > > > Jan, I am so sorry your Mom has the flu and has ato go through surgery, > > but at least your brother is there and can take care of her. I will be > > praying for her return to health and strength so she can have her surgery > > and start the healing process. I hope the chair is helpful to her. I > > believe it will be. I'm praying for you as well, cause I know your heart > is > > there with her. Love you sweetie! > > > > Warm hugs........ ....... > > Diane > > > > ____________ _________ _________ __ > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp > ort%40yahoogroup s.com> > > Sent: Friday, February 6, 2009 12:49:24 AM > > Subject: Re: Jan > > > > Mom is going home tomorrow. She caught the flu while in the hospital, > can't > > take the flu shot for some reason. Getting better now. It was just what > it > > seemed like, the prior replacement was loose. They will be redoing it > when > > she has fully regained her strength. My brother did get the chair for > her, > > it was delivered today, placed just where she had her other recliner, in > a > > color which goes with the rest of her furniture. They were aware that > > medicare would pay for part of it. My brother will be staying with her > > until she can be left alone, luckily, he is a farmer, grain only, so he > is > > free to do what needs to be done. They have also looked into some home > > health care. I am sure when she does have her surgery to fix it, she will > > have it near where my brother lives. She lives in a small town, 15 bed > > hospital. She seemed in pretty good spirits when I called today. > > > > G=Thanks for your concern. Jan H > > On Thu, Feb 5, 2009 at 12:53 AM, diane chandler <dianechandler@ att.net > > >wrote: > > > > > You're welcome Jan. How is she doing? > > > > > > Hugs........ .. > > > Diane > > > > > > ____________ _________ _________ __ > > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp > > ort%40yahoogroup s.com> > > > Sent: Thursday, February 5, 2009 1:36:00 AM > > > Subject: Re: Jan > > > > > > I don't know if my mom had thought of getting financial help from > > Medicare. > > > She would be able to pay for it herself, but every little bit helps for > > > everybody. Thanks for the info. Jan H > > > > > > On Wed, Feb 4, 2009 at 8:32 PM, diane chandler <dianechandler@ att.net > > > >wrote: > > > > > > > When Terry entered Hospice, I ordered one of these type chairs for > him, > > > > but they had to special order due to his size. Unfortunately, he did > > not > > > > live long enough to get it or need it. However, my BIL has one for > his > > > Dad > > > > who lives in a nursing home. They absolutely love it. It took some > time > > > > for his Dad to get used to it, but now that he is he loves it too. > BTW, > > > > Medicare helped to pay for his. > > > > > > > > Hugs........ .... > > > > Diane > > > > > > > > ____________ _________ _________ __ > > > > From: Jan Holman <janholmangmail (DOT) com <janholman%40gmail. com>> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp > > > ort%40yahoogroup s.com> > > > > Sent: Wednesday, February 4, 2009 5:15:53 PM > > > > Subject: Re: Jan > > > > > > > > Abijann - I will try to remember to let you know if she does get one > > and > > > > how > > > > it works, they have one picked out, but will depend on what they can > do > > > for > > > > her in the way of surgery. But, i wouldn't mind haiving one myself to > > get > > > > out of my recliner. After my surgery, I had to have help to get out. > I > > > > mentioned the chair around here and it seems there are quite a few of > > > them > > > > in this town with an average age of 67. Jan H > > > > > > > > On Wed, Feb 4, 2009 at 4:08 PM, abijann <no_reply@yahoogrou p s.com> > > > wrote: > > > > > > > > > I hope your Mom does okay. It is good to know that your brother is > > > > > helping her. Can you let me know if those chairs work for her... > > > > > I have seen them but never tried one. My husband's mother has > > > > > a hard time now getting up from the chair in the nursing home and > > > > > I was thinking maybe we should get one for her, when we can afford > > it. > > > > > She is about 87 now, I think. > > > > > > > > > > > > > > > > > > > > > > > -- > > > > Jan H > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Abijann - I know some of my problems, are caused by medications I take. I am taking other medications to make up for it. For instance, some of my meds cause the body to make uric acid to the point where I ended up with gout. Believe me, if you haven't had it, you don't want it. I had it in my left big toe. You may have heard people say it hurts before you even touch it and I will swear it does, get a finger within an inch of it, and it would hurt more. So, now I take a med to stop it. And I take potassium pills because other meds drain my potassium. But, without the original meds, I would probably be dead. So, I will take two more pills Someday when you are in a frisky mood when you are around your relative, you should tell her and see what she says. [?] Jan H On Fri, Feb 6, 2009 at 8:14 PM, abijann <no_reply > wrote: > Sometimes I think alot of medical problems are caused by the > drugs people are taking...though, they probably don't realize it. > That is kind of scary when you think about it. It must be nice > that you and your mother have each other, though. Even, if > she doesn't always hear what you tell her. > > There was one of my in-laws that if you told her there was > something wrong with you...she had it and it was always > 10 times worse than what you had it...no matter what it was ;-) > Made you think twice before telling her your problem...cause > you knew what the response was going to be. It's true...GRIN > I wonder what she would of said if I told her I was dying of > a disease she never heard about? > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 My sister has gout with her kidney failure. You're right....she said it is the most painful thing she has ever had! She takes a med now everyday to prevent flare ups. So far it's working! I feel for you. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. > Sometimes I think alot of medical problems are caused by the > drugs people are taking...though, they probably don't realize it. > That is kind of scary when you think about it. It must be nice > that you and your mother have each other, though. Even, if > she doesn't always hear what you tell her. > > There was one of my in-laws that if you told her there was > something wrong with you...she had it and it was always > 10 times worse than what you had it...no matter what it was ;-) > Made you think twice before telling her your problem...cause > you knew what the response was going to be. It's true...GRIN > I wonder what she would of said if I told her I was dying of > a disease she never heard about? > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 Abijann - I don't have consistent diarrhea. I used to have bad constipation and I think that is what started the hemorrhoids. I have some medication for the them. The scratching is the general scratching I get all over my body, this spot was just really a bad one, next to my rectum and for some reason really bled and didn't want to stop. I remember having sitz baths after my oldest was born. They used Dreft baby laundry detergent in them supposedly to help heal the episiotomy, I was allergic to Dreft so didn't feel too good after the first time. But I did remember to refuse them with my other three kids. [?] Jan H On Tue, Feb 17, 2009 at 4:26 PM, abijann <no_reply > wrote: > People who have trouble itching or have a sore rectum from having > diarrhea, can relieve this by taking a sitz bath. This is a > plastic toilet like bowl that fits in the top part of your toilet. > It usually has a tube that hooks into the bottom and a bag you can > hang up. You place warm water, the warmest you like it...in the bag. > The tubing has a clamp on it...you stop and start the water from > entering the bowl. The overflow water goes into your toilet as > it fills up. Just taking a regular bath in warm water doesn't do it... > these baths are formed to spread you apart in a relaxed way and it > cleans your rectum and is soothing to the tissues there. You don't > have to use soapy water, plain water will do...the soap may be more > drying. If you soak in that for awhile...you will be surprised at the > relief it will give. > > People who have had hemmoroidectomies and those who have Crohns > or ulcerative colitis...use this either because of surgery or the > rectum being sore from diarrhea. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 Thank you! I love you and my prayers have been answered finding so many new friends here. Lyncia My life is really different now, but it is my life to redefine. From: abijann <no_reply > Subject: Jan To: livercirrhosissupport Date: Tuesday, February 17, 2009, 10:43 PM My husband became ill with this disease very fast. One week he was at the doctor office having blood work done, shots taken and even had a CT scan done. All tests showed good results. The next week he was in the hospital to have an operation and that operation was stopped right before he went into the operating room (he was already prepped) because he was jaundice. He was sent to back to his doctor in one week and from the doctor office to the transplant hospital to be admitted...he was in liver failure. In one week time he became jaundice and the ugliest orange color you ever wanted to see. Whenever I see that color now on anyone else, I get very nauseated and sick. He ended up being evaluated in the hospital to be placed on the transplant list. (that is the reason why I tell people who have cirrhosis to try to be placed on the list before they become so sick they have to be hospitalized and then evaluated) I did not know anything at all about this disease. I read everything I could get my hands on after we came home from the hospital. Caregivers are thrown into this role and it can scare them to death. Suddenly, they are totally responsible for someone elses life and they know they have to be able to tell when something turns into an emergency. I call it, being on RED ALERT, with no training. Caregivers want to learn about the disease, they want to know why things are happening... and then, when an emergency does arise...it isn't quite as scary then and it gives them more confidence in handling the situation. Many transplant centers hold seminars where you can meet other people who have had a transplant and you can listen to the doctors talk about the transplant.. .but unless you live close by and have someone take care of your sick loved one...you cannot go to them, anyways. It definitely wasn't an option for us. It kind of worked out backwards for us also. We should of seen the social worker right away...she could of given us papers to explain at least a little about what we were facing, we never got to see her till the end... right before being placed on the list. Bummer. After the transplant, my husband wasn't doing very well. He had too many life threatening situations.. .so if there was any kind of meeting he could have gone to or I could of gone to, about anything at all, we definitely were not told of them. So many people on the web are looking for information to either understand what is happening to them or to their loved ones. I think it is great that we have others here who have gone through this, like Mac, Bob, Precious Penny, Diane, and many others here that can inform them of what may happen or why it may happen so that they know the information they need to know if an emergency does arise. Sure, people can look things up on the internet...but, they need to know what to look up and sometimes what the medical terminology means to understand what they are looking at. Thank you for your compliment.. .but, if anyone really wants to become a doctor here, I think it would be Mac or even Bob. I know some of the basic things, but both of them have done more research on this then I have. The real experts of all this is the patients themselves. They are the ones going through this all, so they see all aspects of the disease in every way...not just from books and reading. I never heard of using DELPH in a sitz bath. Patients who use them for hemmoroid reasons here are told just plain water. Witch hazel is sometimes used to wipe with or Tucks pads. People with ulcerative colitis or crohns disease are told just to use warm water, also. Desitin is Zinc Oxide cream. It is similar to the cream Bob mentioned except that his cream also contains olive oil, petroleum jelly and menthol. You and Lyncia having so many medical problems...you both are amazing. I wish there was some way that both of you would be able to have transplants and that life would change for the better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 Did I say Delph, must have been a mistype, I meant Dreft. Jan H On Tue, Feb 17, 2009 at 9:43 PM, abijann <no_reply > wrote: > My husband became ill with this disease very fast. > One week he was at the doctor office having blood work done, shots > taken and even had a CT scan done. All tests showed good results. > The next week he was in the hospital to have an operation and that > operation was stopped right before he went into the operating room > (he was already prepped) because he was jaundice. > He was sent to back to his doctor in one week and from the doctor > office to the transplant hospital to be admitted...he was in liver > failure. In one week time he became jaundice and the ugliest orange > color you ever wanted to see. Whenever I see that color now on > anyone else, I get very nauseated and sick. He ended up being > evaluated in the hospital to be placed on the transplant list. (that > is the reason why I tell people who have cirrhosis to try to be > placed on the list before they become so sick they have to be > hospitalized and then evaluated) > > I did not know anything at all about this disease. I read everything > I could get my hands on after we came home from the hospital. > Caregivers are thrown into this role and it can scare them to death. > Suddenly, they are totally responsible for someone elses life and > they know they have to be able to tell when something turns into > an emergency. I call it, being on RED ALERT, with no training. > > Caregivers want to learn about the disease, they want to know > why things are happening...and then, when an emergency does > arise...it isn't quite as scary then and it gives them more > confidence in handling the situation. Many transplant centers > hold seminars where you can meet other people who have had > a transplant and you can listen to the doctors talk about > the transplant...but unless you live close by and have someone > take care of your sick loved one...you cannot go to them, anyways. > It definitely wasn't an option for us. It kind of worked out > backwards for us also. We should of seen the social worker right > away...she could of given us papers to explain at least a little > about what we were facing, we never got to see her till the end... > right before being placed on the list. Bummer. > > After the transplant, my husband wasn't doing very well. He > had too many life threatening situations...so if there was > any kind of meeting he could have gone to or I could of gone to, > about anything at all, we definitely were not told of them. > > So many people on the web are looking for information to either > understand what is happening to them or to their loved ones. > I think it is great that we have others here who have gone through > this, like Mac, Bob, Precious Penny, Diane, and many others here that > can inform them of what may happen or why it may happen so that > they know the information they need to know if an emergency does > arise. Sure, people can look things up on the internet...but, > they need to know what to look up and sometimes what the > medical terminology means to understand what they are looking at. > > Thank you for your compliment...but, if anyone really wants to > become a doctor here, I think it would be Mac or even Bob. > I know some of the basic things, but both of them have done > more research on this then I have. The real experts of all > this is the patients themselves. They are the ones going through > this all, so they see all aspects of the disease in every way...not > just from books and reading. > > I never heard of using DELPH in a sitz bath. Patients who use > them for hemmoroid reasons here are told just plain water. > Witch hazel is sometimes used to wipe with or Tucks pads. > People with ulcerative colitis or crohns disease are told just > to use warm water, also. > > Desitin is Zinc Oxide cream. It is similar to the cream Bob > mentioned except that his cream also contains olive oil, petroleum > jelly and menthol. > > You and Lyncia having so many medical problems...you both are > amazing. I wish there was some way that both of you would be > able to have transplants and that life would change for the > better. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 ooh no dreft for me...........Just want to sleep. Lyncia My life is really different now, but it is my life to redefine. > My husband became ill with this disease very fast. > One week he was at the doctor office having blood work done, shots > taken and even had a CT scan done. All tests showed good results. > The next week he was in the hospital to have an operation and that > operation was stopped right before he went into the operating room > (he was already prepped) because he was jaundice. > He was sent to back to his doctor in one week and from the doctor > office to the transplant hospital to be admitted...he was in liver > failure. In one week time he became jaundice and the ugliest orange > color you ever wanted to see. Whenever I see that color now on > anyone else, I get very nauseated and sick. He ended up being > evaluated in the hospital to be placed on the transplant list. (that > is the reason why I tell people who have cirrhosis to try to be > placed on the list before they become so sick they have to be > hospitalized and then evaluated) > > I did not know anything at all about this disease. I read everything > I could get my hands on after we came home from the hospital. > Caregivers are thrown into this role and it can scare them to death. > Suddenly, they are totally responsible for someone elses life and > they know they have to be able to tell when something turns into > an emergency. I call it, being on RED ALERT, with no training. > > Caregivers want to learn about the disease, they want to know > why things are happening... and then, when an emergency does > arise...it isn't quite as scary then and it gives them more > confidence in handling the situation. Many transplant centers > hold seminars where you can meet other people who have had > a transplant and you can listen to the doctors talk about > the transplant.. .but unless you live close by and have someone > take care of your sick loved one...you cannot go to them, anyways. > It definitely wasn't an option for us. It kind of worked out > backwards for us also. We should of seen the social worker right > away...she could of given us papers to explain at least a little > about what we were facing, we never got to see her till the end... > right before being placed on the list. Bummer. > > After the transplant, my husband wasn't doing very well. He > had too many life threatening situations.. .so if there was > any kind of meeting he could have gone to or I could of gone to, > about anything at all, we definitely were not told of them. > > So many people on the web are looking for information to either > understand what is happening to them or to their loved ones. > I think it is great that we have others here who have gone through > this, like Mac, Bob, Precious Penny, Diane, and many others here that > can inform them of what may happen or why it may happen so that > they know the information they need to know if an emergency does > arise. Sure, people can look things up on the internet...but, > they need to know what to look up and sometimes what the > medical terminology means to understand what they are looking at. > > Thank you for your compliment.. .but, if anyone really wants to > become a doctor here, I think it would be Mac or even Bob. > I know some of the basic things, but both of them have done > more research on this then I have. The real experts of all > this is the patients themselves. They are the ones going through > this all, so they see all aspects of the disease in every way...not > just from books and reading. > > I never heard of using DELPH in a sitz bath. Patients who use > them for hemmoroid reasons here are told just plain water. > Witch hazel is sometimes used to wipe with or Tucks pads. > People with ulcerative colitis or crohns disease are told just > to use warm water, also. > > Desitin is Zinc Oxide cream. It is similar to the cream Bob > mentioned except that his cream also contains olive oil, petroleum > jelly and menthol. > > You and Lyncia having so many medical problems...you both are > amazing. I wish there was some way that both of you would be > able to have transplants and that life would change for the > better. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Thanks Abijann - thought that might be the case, but had never seen it mentioned here. Jan H On Wed, Feb 18, 2009 at 3:06 PM, abijann <no_reply > wrote: > You can have a normal blood pressure and still have portal > hypertension. The blood is finding away around the liver and is > going back to the heart. As long as the blood is able to bypass > the liver effectively, then the blood pressure may stay in normal > range. Pressure in the portal vein comes from the blood not flowing > through the liver and backing up into smaller veins and into the spleen > also. > > Here is a very good link to easily explain Portal Hypertension: > http://www.vdf.org/pdfs/VDFOnePage_PH.pdf > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Abijann - I used to get that page cannot be found message too, thought it was my computer. Does your library have computers? Our library has a lot of computers, and they have wireless so they are high speed and they also let people bring in laptops to hook up after getting the code word for the day. My grandson complains about our server too because even though we have high speed, 24 hour a day internet service, we get shut off frequently. He doesn't like that with his complicated games. Jan H On Tue, Feb 24, 2009 at 8:53 AM, abijann <no_reply > wrote: > Our friends either have dial up, like we do, or don't even have a > computer. There is only one that has high speed and he lives too > far away. We got the 6 x faster finally, but...to tell the truth... > it is really about 6 times slower, but costs more. Our server > hardly lets anything through. I'm constantly getting " page cannot > be found " . It takes about a minute for each page we try to see. > We even changed servers and it seems like when we are first with > them...it goes faster and then starts to decline after that. > I really tried to download the movie you posted, but > it seems our server keeps kicking it out when it gets to 1/4 of > the way loaded....I tried to see if I could watch what did come > in...but it would not show any of it. It gets frustrating at > times, but at least we have a computer to be able to talk to others.. > that is more than alot of people have. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 We can use them here for 1/2 hour and then another 1/2 hour in a row if there is one free. Not sure how many times you can sign up for in a day. We have to sign up too. It is rather funny. I grew up where you weren't allowed to talk above a low whisper in a library. But, here, people are laughing all the time, and when your name comes up on the computer sign up list, they page you so you can hear them anywhere in the library. Life is so different here. Jan H On Tue, Feb 24, 2009 at 8:38 PM, abijann <no_reply > wrote: > Our library does have computers...but you are only allowed to use > them for 15 minutes and have to sign to use them. > Tonight, our server signed off on us 5 times. Lots of fun.... > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Our service is down because of wind as well. UGH. Sent via BlackBerry from T-Mobile Jan Our library does have computers...but you are only allowed to use them for 15 minutes and have to sign to use them. Tonight, our server signed off on us 5 times. Lots of fun.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 I check out 6 to 12 books every two weeks. And we have the movies too, checked out like books, but a security deposit is required, no dress patterns, They used to have the tax forms, not sure they do now, probably get them off the internet, Since people come here in the winter and then leave in the Spring, lots of books get donated when they are cleaning up to leave, and they have a whole room, the wireless computer room, where the walls are covered with books which are for sale. One library in a town I lived in was selling really good books. I asked them why they were selling them. Their two criteria for selling books was if they weren't checked out often enough, or if they had been checked out too often. I thought that was weird. Here, we have a lady who is an excellent book repairer. But they sell the ones where they have more copies than they want. We also have books for the blind on tape. And they operate the adult reading classes out of the library too. I used to volunteer for that, so I was treated like staff and still get some special treatment, like getting books picked out for me when I am recovering from medical problems and can't get up there myself. They just recently put up a special building for a Children's Library and Learning Center next to the town hall where the regular library is. They had a large sale of books and donated items to raise money for new books for the Children's Library. Thrivent, which I belong to, matched the money they raised. I didn't get to help that day because I had another dr. appt. Any community activity which is a benefit to the community can ask to have their funds matched if 6 members of Thrivent work at the event. It is an organization related to my church, and they do the same thing for our church to a yearly limit. So, if any of you are involved in organizations which would qualify, you might want to look into it. Get double the money for the same effort. I had a good day today, but seem to be in a weird mood tonight. Jan H On Wed, Feb 25, 2009 at 5:57 PM, abijann <no_reply > wrote: > Our library is very quiet. I'm glad...I can concentrate better. > I like our library very much, they offer so much. You can take > movies out there for nothing...they have coupon boxes you can > go through to pick out from...they used to have dress patterns, > also, if someone sewed (dont have them now, though); they carry > the forms needed for taxes, people drop off magazines there and > other go in and get them for nothing. They have book sales where > you only pay 25 cents to one dollar for used books. (They use > the money to buy new books for the libraray)..... > I like free things...lots of them. People should check out > their libraries and see what they offer. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Thrivent!!! I am not a member but I have been very blessed by this organization. They are an insurance group that's not out for money! Last July when I was diagnosed with hcc, beginning my evaluation and about to start chemo my family had a benefit to help with our medical expenses. A member of Thrivent happened to pick up a flyer from a resturaunt and present it to her group. Nobody in my family is a member and I had never even heard of them. They gave us $1000 for every $3000 we raised. We raised $9000 from ticket sales and basket auction. So Thrivent donated $3000 bringing the total to $12,000. That may not be alot to some but for my little family it made such an impact. Then.. at the end of the year they pick a benefit from 2008 and give them any leftover money. I got a suprise check for $1597. Thrivent donated a total of $4,597 to my family... complete strangers. They really are an amazing group. I just met with the group leader from western NY yesterday to give her an update and many thanks. > > > Our library is very quiet. I'm glad...I can concentrate better. > > I like our library very much, they offer so much. You can take > > movies out there for nothing...they have coupon boxes you can > > go through to pick out from...they used to have dress patterns, > > also, if someone sewed (dont have them now, though); they carry > > the forms needed for taxes, people drop off magazines there and > > other go in and get them for nothing. They have book sales where > > you only pay 25 cents to one dollar for used books. (They use > > the money to buy new books for the libraray)..... > > I like free things...lots of them. People should check out > > their libraries and see what they offer. > > > > > > > > > > -- > Jan H > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Yes they are amazing, some people might have heard of them as Lutheran Brotherhood and another insurance group with Lutheran in the name. They merged a few years back. Besides the matching funds they give our church, they paid for 4 sewing machines, sewing tables, ironing boards and the material to make 25 quilts for us to donate to the local fire department for Christmas presents for kids from poor families and for kids involved in fires. If anyone is having a benefit, I might be able to contact a Thrivent member in your area. Only 6 members are required to volunteer some time in order to be helped, and if you can't find 6 members, it only costs $10.00 to join for a year. If you paid for 5 members, you would get a lot more back. I do think the members are supposed to be Lutheran. Don't think they check for church membership. Ed is a member, and he doesn't belong to any church now. As far as I know, members don't get any benefits except to qualify for volunteering with credit to the group being helped. Jan H On Thu, Feb 26, 2009 at 8:09 AM, crazygirlmcc wrote: > Thrivent!!! I am not a member but I have been very blessed by this > organization. They are an insurance group that's not out for money! > Last July when I was diagnosed with hcc, beginning my evaluation and > about to start chemo my family had a benefit to help with our medical > expenses. A member of Thrivent happened to pick up a flyer from a > resturaunt and present it to her group. Nobody in my family is a > member and I had never even heard of them. They gave us $1000 for > every $3000 we raised. We raised $9000 from ticket sales and basket > auction. So Thrivent donated $3000 bringing the total to $12,000. > That may not be alot to some but for my little family it made such an > impact. Then.. at the end of the year they pick a benefit from 2008 > and give them any leftover money. I got a suprise check for $1597. > Thrivent donated a total of $4,597 to my family... complete > strangers. They really are an amazing group. I just met with the > group leader from western NY yesterday to give her an update and many > thanks. > > > > > > > Our library is very quiet. I'm glad...I can concentrate better. > > > I like our library very much, they offer so much. You can take > > > movies out there for nothing...they have coupon boxes you can > > > go through to pick out from...they used to have dress patterns, > > > also, if someone sewed (dont have them now, though); they carry > > > the forms needed for taxes, people drop off magazines there and > > > other go in and get them for nothing. They have book sales where > > > you only pay 25 cents to one dollar for used books. (They use > > > the money to buy new books for the libraray)..... > > > I like free things...lots of them. People should check out > > > their libraries and see what they offer. > > > > > > > > > > > > > > > > > -- > > Jan H > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 Thanks,That I can handle after the first of next month. When I was looking, the one that looked as if I could be sure it would work was about $500 which is not feasible when your monthly income is $301. I need one with at least three sections per day, four if they are small. Most of my night meds are rather large. I have two pill sorter things, one with large divisions and the other smaller and the smaller one doesn't hold all the night meds in one division. Thanks, Jan On Mon, May 25, 2009 at 6:53 PM, abijann <no_reply > wrote: > > > > Walmart sell pill boxes with electronic reminders. > > This one will let you set an alarm for 7 different times. > > I'll have to look again after I post this...I didn't see where it says > how many > > pill sections it has or how many days it holds. > > It is in the $25.00 range. > > http://www.walmart.com/catalog/product.do?product_id=6371223 > <http://www.walmart.com/catalog/product.do?product_id=6371223> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 I was the oldest child in my family and my mother wanted to name me after my father whose name was ph, usually called Joe, so she picked a name starting with a J. My grandmother was phine, but she didn't like her so I got Janice. I gave my second daughter phine for a middle name. My middle name starts with a C since my mother's name is Cora, won't tell you what it is because I hate it, mostly because of someone else who had it for their first name. My children have all been given names of something or someone who really made an impression on me and all the middle names are family names. Some of their names they didn't like any more than I like mine. I was Janice until I left home, no nickname and everybody else seemed to have one. So, when I left home I just told everybody I was Jan. Jan H On Tue, May 26, 2009 at 10:54 AM, abijann <no_reply > wrote: > > > abijann is a combination of the two names my mother picked > for me when I was born. > > I wonder how many know who they were named after or how > their mothers came by the name they chose for them. > It might be of interest. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 My given name is Jill....it goes with my twin brother's name--Jack!! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: abijann <no_reply > Subject: Jan To: livercirrhosissupport Date: Tuesday, May 26, 2009, 1:54 PM abijann is a combination of the two names my mother picked for me when I was born. I wonder how many know who they were named after or how their mothers came by the name they chose for them. It might be of interest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 My given name is Lyncia.........my grandmother (dad's mom) said it was after his first girlfriend, but since he was a produce manager, maybe it was after the velencia oranges. hehe Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply@yahoogroup s.com> Subject: Jan To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Tuesday, May 26, 2009, 1:54 PM abijann is a combination of the two names my mother picked for me when I was born. I wonder how many know who they were named after or how their mothers came by the name they chose for them. It might be of interest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 I haven't heard of twins being named Jack and Jill, but I had a friend who named her kids Ann and Andy. Is Jack a nickname of , or is Jack on his birth certificate? Jan H On Tue, May 26, 2009 at 2:23 PM, Jill wrote: > > > My given name is Jill....it goes with my twin brother's name--Jack!! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > > > From: abijann <no_reply <no_reply%40yahoogroups.com>> > Subject: Jan > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Date: Tuesday, May 26, 2009, 1:54 PM > > > abijann is a combination of the two names my mother picked > for me when I was born. > > I wonder how many know who they were named after or how > their mothers came by the name they chose for them. > It might be of interest. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 Nope...it's on his birth certificate....I'm Jill Kathy and he's Jack Kerlin . My sister who's 5 years older than us got to name us! I've always said our names could have been Humpty and Dumpty!! LOL ! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. > > From: abijann <no_reply@yahoogroup s.com <no_reply%40yahoogr oups.com> > > Subject: Jan > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup s.com> > Date: Tuesday, May 26, 2009, 1:54 PM > > > abijann is a combination of the two names my mother picked > for me when I was born. > > I wonder how many know who they were named after or how > their mothers came by the name they chose for them. > It might be of interest. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 thats so funny ________________________________ To: livercirrhosissupport Sent: Tuesday, May 26, 2009 6:47:37 PM Subject: Re: Jan Nope...it's on his birth certificate. ...I'm Jill Kathy and he's Jack Kerlin . My sister who's 5 years older than us got to name us! I've always said our names could have been Humpty and Dumpty!! LOL ! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. > > From: abijann <no_reply@yahoogrou p s.com <no_reply%40yahoogr oups.com> > > Subject: Jan > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Date: Tuesday, May 26, 2009, 1:54 PM > > > abijann is a combination of the two names my mother picked > for me when I was born. > > I wonder how many know who they were named after or how > their mothers came by the name they chose for them. > It might be of interest. > > Quote Link to comment Share on other sites More sharing options...
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