Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 I agree. Stan's whole story in on his website, and there are videos there too. Stan's not a doctor, he's a parent researcher, as basically we all are. He could have recovered his son and walked away,but he didn't. I agree that we're all busy, some busier than others. We can't expect one individual to constantly give up time from their job, family, research and everything else to advise other people. That's why we all share knowledge on here. Stan did start this group but that didn't obligate him to stay on here and hold people's hands every step of the way. He probably started the group to inform people of the protocol and for people who were trying it to share their experiences. Stan owes the group nothing. Many of us owe him! Kerrie Yes we are all busy, and we are all in the same situation. Some worse than others. Thats why we all have to take our turns carrying the torch, ( so to speak), So give the guy a break, he has done alot, more than most. Maybe its time for someone else to share the burdonIf there are open ended questions out there, we might just not know the answer.Just my 2 centsOne site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Yes we are all busy, and we are all in the same situation. Some worse than others. Thats why we all have to take our turns carrying the torch, ( so to speak), So give the guy a break, he has done alot, more than most. Maybe its time for someone else to share the burdon If there are open ended questions out there, we might just not know the answer. Just my 2 cents > > He is the originator of the group. > ....We are all busy.......................!!!! > > Re: STAN Kurtz > > > > I'm sure when Stan started this group he wasn't quite as busy as he is now. He was just a parent recovering his kid. Now he's working on all sorts of things, traveling and speaking, and he still has his school to run. > > Kerrie > > > Visit my list of PARENT TO PARENT toy and game suggestions for the holidays! Don't forget to email your suggestions so I can add them. > > PARENT TO PARENT TOY SUGGESTIONS FOR KIDS WITH AUTISM > > > > In a message dated 11/24/2008 2:33:33 P.M. Eastern Standard Time, sandyjramirez@... writes: > I would like to see Stan Kurtz take on a role > as an at least occasional ACTIVE participant. > Active in occasionally answering questions, > say once a week or so... > This group goes on with a lot of unresolved > unanswered questions over time. Even though > it does sort of have a life of its own. > > > > > > -------------------------------------------------------------------- ---------- > One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! > > > > > -------------------------------------------------------------------- -------- > > avast! Antivirus: Inbound message clean. > > Virus Database (VPS): 081124-0, 11/24/2008 > Tested on: 11/24/2008 6:09:17 PM > avast! - copyright © 1988-2008 ALWIL Software. > > > > > --- > avast! Antivirus: Outbound message clean. > Virus Database (VPS): 081124-0, 11/24/2008 > Tested on: 11/24/2008 6:11:44 PM > avast! - copyright © 1988-2008 ALWIL Software. > http://www.avast.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 I’d rather do my own work researching Stan’s stuff that he’s already published and not have him spoon feed it to me and allow him to continue banging on the doors of the AAP and make some progress on a larger scale. He is on the board of DAN! isn’t he? He has to be busy and he does have a family. Stan is an inspiration and I owe him great thanks for giving me hope in the dark days of diagnosis. - Julee http://discoveringnathan.blogspot.com From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ratlenhum@... Sent: Tuesday, November 25, 2008 9:42 AM To: mb12 valtrex Subject: Re: Re: STAN Kurtz I agree. Stan's whole story in on his website, and there are videos there too. Stan's not a doctor, he's a parent researcher, as basically we all are. He could have recovered his son and walked away,but he didn't. I agree that we're all busy, some busier than others. We can't expect one individual to constantly give up time from their job, family, research and everything else to advise other people. That's why we all share knowledge on here. Stan did start this group but that didn't obligate him to stay on here and hold people's hands every step of the way. He probably started the group to inform people of the protocol and for people who were trying it to share their experiences. Stan owes the group nothing. Many of us owe him! Kerrie In a message dated 11/25/2008 12:13:40 P.M. Eastern Standard Time, slacker361comcast (DOT) net writes: Yes we are all busy, and we are all in the same situation. Some worse than others. Thats why we all have to take our turns carrying the torch, ( so to speak), So give the guy a break, he has done alot, more than most. Maybe its time for someone else to share the burdon If there are open ended questions out there, we might just not know the answer. Just my 2 cents One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Let's get back on track! I believe that the first poster who posted a comment in regards to Stan and this yahoo group was only saying that it would be really cool if Stan could comment on some of the posts on this yahoo group. I don't think she was saying he should or that he owes anything to anybody. I also think it would be amazing to hear what he would have to say about some of our posts, but do understand that he is out there fighting for all of us and thank God for Stan and what he's done! I think the "we're all busy" comment from another poster was just out of frustration to another poster's comment. Yes, we're all very busy trying to help our children and I have no doubt that in the future some of us will be doing for others, exactly what Stan is doing for us today. We're all her for the same reason...to help our children!!!!! Subject: Re: Re: STAN KurtzTo: mb12 valtrex Date: Tuesday, November 25, 2008, 9:42 AM I agree. Stan's whole story in on his website, and there are videos there too. Stan's not a doctor, he's a parent researcher, as basically we all are. He could have recovered his son and walked away,but he didn't. I agree that we're all busy, some busier than others. We can't expect one individual to constantly give up time from their job, family, research and everything else to advise other people. That's why we all share knowledge on here. Stan did start this group but that didn't obligate him to stay on here and hold people's hands every step of the way. He probably started the group to inform people of the protocol and for people who were trying it to share their experiences. Stan owes the group nothing. Many of us owe him! Kerrie In a message dated 11/25/2008 12:13:40 P.M. Eastern Standard Time, slacker361comcast (DOT) net writes: Yes we are all busy, and we are all in the same situation. Some worse than others. Thats why we all have to take our turns carrying the torch, ( so to speak), So give the guy a break, he has done alot, more than most. Maybe its time for someone else to share the burdonIf there are open ended questions out there, we might just not know the answer.Just my 2 cents One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 This discussion is probably a good place to ask a question I have wondered about. Obviously Stan is the moderator of this group, but are there any other moderators who are active on the list? Usually with online communities there are active moderators and all users can easily identify them. I have never been able to figure out if we have any of those on this list. I know Stan will handle a problem when it gets reported to him, but I was just wondering if we had anyone else. > > I'm sure when Stan started this group he wasn't quite as busy as he is now. > He was just a parent recovering his kid. Now he's working on all sorts of > things, traveling and speaking, and he still has his school to run. > > Kerrie > > > Visit my list of PARENT TO PARENT toy and game suggestions for the holidays! > Don't forget to email your suggestions so I can add them. > > _PARENT TO PARENT TOY SUGGESTIONS FOR KIDS WITH AUTISM _ > (http://www.ratlenhum.freewebpages.org/toylist.html) > > > > In a message dated 11/24/2008 2:33:33 P.M. Eastern Standard Time, > sandyjramirez@... writes: > > I would like to see Stan Kurtz take on a role > as an at least occasional ACTIVE participant. > Active in occasionally answering questions, > say once a week or so... > This group goes on with a lot of unresolved > unanswered questions over time. Even though > it does sort of have a life of its own. > > > > **************One site has it all. Your email accounts, your social networks, > and the things you love. Try the new AOL.com > today! (http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol? redir=http://www.aol.com/?optin=new-dp > %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 he is now helping with generation rescue as well Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 Re: STAN Kurtz I'm sure when Stan started this group he wasn't quite as busy as he is now. He was just a parent recovering his kid. Now he's working on all sorts of things, traveling and speaking, and he still has his school to run. Kerrie Visit my list of PARENT TO PARENT toy and game suggestions for the holidays! Don't forget to email your suggestions so I can add them.PARENT TO PARENT TOY SUGGESTIONS FOR KIDS WITH AUTISM In a message dated 11/24/2008 2:33:33 P.M. Eastern Standard Time, sandyjramirezverizon (DOT) net writes: I would like to see Stan Kurtz take on a role as an at least occasional ACTIVE participant. Active in occasionally answering questions, say once a week or so... This group goes on with a lot of unresolved unanswered questions over time. Even though it does sort of have a life of its own. One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! avast! Antivirus: Inbound message clean. Virus Database (VPS): 081124-0, 11/24/2008Tested on: 11/24/2008 6:09:17 PMavast! - copyright © 1988-2008 ALWIL Software. avast! Antivirus: Outbound message clean. Virus Database (VPS): 081124-0, 11/24/2008Tested on: 11/24/2008 6:11:44 PMavast! - copyright © 1988-2008 ALWIL Software. No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.10/1811 - Release Date: 11/25/2008 8:29 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 It's tough to know, just from reading responses to posts, who has the experience we're looking for and who is qualified to be dishing out advice. Once you're on here for a while, you begin to get a feel for who knows their stuff, but with Stan answering questions, at least we have the videos to see what he did. and all of his knowledge is out there for us to look at. I'm not saying there's no one on here that I trust, but I understand where the original poster is coming from. If there are other moderators and they were approved by stan, maybe knowing that would help??? Kari > > > > He is the originator of the group. > > ....We are all busy.......................!!!! > > > > Re: STAN Kurtz > > > > > > > > I'm sure when Stan started this group he wasn't quite as busy as > he is now. He was just a parent recovering his kid. Now he's working > on all sorts of things, traveling and speaking, and he still has his > school to run. > > > > Kerrie > > > > > > Visit my list of PARENT TO PARENT toy and game suggestions for > the holidays! Don't forget to email your suggestions so I can add > them. > > > > PARENT TO PARENT TOY SUGGESTIONS FOR KIDS WITH AUTISM > > > > > > > > In a message dated 11/24/2008 2:33:33 P.M. Eastern Standard Time, > sandyjramirez@ writes: > > I would like to see Stan Kurtz take on a role > > as an at least occasional ACTIVE participant. > > Active in occasionally answering questions, > > say once a week or so... > > This group goes on with a lot of unresolved > > unanswered questions over time. Even though > > it does sort of have a life of its own. > > > > > > > > > > > > -------------------------------------------------------------------- > ---------- > > One site has it all. Your email accounts, your social networks, > and the things you love. Try the new AOL.com today! > > > > > > > > > > -------------------------------------------------------------------- > -------- > > > > avast! Antivirus: Inbound message clean. > > > > Virus Database (VPS): 081124-0, 11/24/2008 > > Tested on: 11/24/2008 6:09:17 PM > > avast! - copyright © 1988-2008 ALWIL Software. > > > > > > > > > > --- > > avast! Antivirus: Outbound message clean. > > Virus Database (VPS): 081124-0, 11/24/2008 > > Tested on: 11/24/2008 6:11:44 PM > > avast! - copyright © 1988-2008 ALWIL Software. > > http://www.avast.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Hello everyone, I think everyone is trying to give the best advise as we see it knowing that all of our children are different and repond differently to everything--I read a lot on the groups and research on line so II can know what to ask and discuss with our doctor. We are all trying to find the 100% answer from someone, but collectively we are getting somewhere and many are seeing improvements from the advise on this and other forums. My mistake has been that I went so fast with so much, I can not tell you what was best --or what did what even for my own daughter---- Subject: Re: STAN KurtzTo: mb12 valtrex Date: Tuesday, November 25, 2008, 5:19 PM It's tough to know, just from reading responses to posts, who has theexperience we're looking for and who is qualified to be dishing outadvice. Once you're on here for a while, you begin to get a feel forwho knows their stuff, but with Stan answering questions, at least wehave the videos to see what he did. and all of his knowledge is outthere for us to look at. I'm not saying there's no one on here that Itrust, but I understand where the original poster is coming from.If there are other moderators and they were approved by stan, maybeknowing that would help???Kari> >> > He is the originator of the group. > > ....We are all busy........ ......... ......!!! !> > > > Re: STAN Kurtz> > > > > > > > I'm sure when Stan started this group he wasn't quite as busy as > he is now. He was just a parent recovering his kid. Now he's working > on all sorts of things, traveling and speaking, and he still has his > school to run.> > > > Kerrie> > > > > > Visit my list of PARENT TO PARENT toy and game suggestions for > the holidays! Don't forget to email your suggestions so I can add > them.> > > > PARENT TO PARENT TOY SUGGESTIONS FOR KIDS WITH AUTISM > > > > > > > > In a message dated 11/24/2008 2:33:33 P.M. Eastern Standard Time, > sandyjramirez@ writes:> > I would like to see Stan Kurtz take on a role> > as an at least occasional ACTIVE participant.> > Active in occasionally answering questions,> > say once a week or so...> > This group goes on with a lot of unresolved> > unanswered questions over time. Even though> > it does sort of have a life of its own.> > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----------> > One site has it all. Your email accounts, your social networks, > and the things you love. Try the new AOL.com today!> > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> --------> > > > avast! Antivirus: Inbound message clean. > > > > Virus Database (VPS): 081124-0, 11/24/2008> > Tested on: 11/24/2008 6:09:17 PM> > avast! - copyright © 1988-2008 ALWIL Software.> > > > > > > > > > ---> > avast! Antivirus: Outbound message clean.> > Virus Database (VPS): 081124-0, 11/24/2008> > Tested on: 11/24/2008 6:11:44 PM> > avast! - copyright © 1988-2008 ALWIL Software.> > http://www.avast. com> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 We are using a layered approach in hopes that the combination of therapies accelerates the time to recovery. Like you, we probably will not know which of the therapies was most critical. --penumbra > > Hello everyone, I think everyone is trying to give the best advise as we see it knowing that all of our children are different and repond differently to everything--I read a lot on the groups and research on line so II can know what to ask and discuss with our doctor. We are all trying to find the 100% answer from someone, but collectively we are getting somewhere and many are seeing improvements from the advise on this and other forums. My mistake has been that I went so fast with so much, I can not tell you what was best --or what did what even for my own daughter---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Can anyone tell me if they have or are using Dr. Goldberg’s protocol through him? We just started with my daughter, age 4 ½ and she is on valtrex ¼ of 500mg tab 3x/day for a week and then we up it. I was just wondering if there are pros, cons/successes, etc. Thanks! From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of A Shadow Sent: Wednesday, December 03, 2008 1:08 AM To: mb12 valtrex Subject: Re: STAN Kurtz We are using a layered approach in hopes that the combination of therapies accelerates the time to recovery. Like you, we probably will not know which of the therapies was most critical. --penumbra > > Hello everyone, I think everyone is trying to give the best advise as we see it knowing that all of our children are different and repond differently to everything--I read a lot on the groups and research on line so II can know what to ask and discuss with our doctor. We are all trying to find the 100% answer from someone, but collectively we are getting somewhere and many are seeing improvements from the advise on this and other forums. My mistake has been that I went so fast with so much, I can not tell you what was best --or what did what even for my own daughter---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 We were on the NIDS protocol for 1.5 years. You can contact me privately and I'm happy to discuss. Cheryl~Check out my blog: http://www.gryffins-tail.blogspot.com/ Can anyone tell me if they have or are using Dr. Goldberg’s protocol through him? We just started with my daughter, age 4 ½ and she is on valtrex ¼ of 500mg tab 3x/day for a week and then we up it. I was just wondering if there are pros, cons/successes, etc. Thanks! From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of A Shadow Sent: Wednesday, December 03, 2008 1:08 AM To: mb12 valtrex Subject: Re: STAN Kurtz We are using a layered approach in hopes that the combination of therapies accelerates the time to recovery. Like you, we probably will not know which of the therapies was most critical. --penumbra > > Hello everyone, I think everyone is trying to give the best advise as we see it knowing that all of our children are different and repond differently to everything--I read a lot on the groups and research on line so II can know what to ask and discuss with our doctor. We are all trying to find the 100% answer from someone, but collectively we are getting somewhere and many are seeing improvements from the advise on this and other forums. My mistake has been that I went so fast with so much, I can not tell you what was best --or what did what even for my own daughter---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Thanks much! From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of cher.lowrance Sent: Thursday, December 04, 2008 9:58 PM To: mb12 valtrex Subject: Re: Re: STAN Kurtz We were on the NIDS protocol for 1.5 years. You can contact me privately and I'm happy to discuss. Cheryl ~Check out my blog: http://www.gryffins-tail.blogspot.com/ Can anyone tell me if they have or are using Dr. Goldberg’s protocol through him? We just started with my daughter, age 4 ½ and she is on valtrex ¼ of 500mg tab 3x/day for a week and then we up it. I was just wondering if there are pros, cons/successes, etc. Thanks! From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of A Shadow Sent: Wednesday, December 03, 2008 1:08 AM To: mb12 valtrex Subject: Re: STAN Kurtz We are using a layered approach in hopes that the combination of therapies accelerates the time to recovery. Like you, we probably will not know which of the therapies was most critical. --penumbra > > Hello everyone, I think everyone is trying to give the best advise as we see it knowing that all of our children are different and repond differently to everything--I read a lot on the groups and research on line so II can know what to ask and discuss with our doctor. We are all trying to find the 100% answer from someone, but collectively we are getting somewhere and many are seeing improvements from the advise on this and other forums. My mistake has been that I went so fast with so much, I can not tell you what was best --or what did what even for my own daughter---- Quote Link to comment Share on other sites More sharing options...
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