Re: My Appointment With Hepatologist Today

[Guest guest]

That is wonderful,I was wondering,how do they determine if you take the shots

before or after the transplant. I know it is better to do it before hand,I dont

go to my referal for transplant until Jan 15th,if the mayo clinic site for meld

is close I am a 14 or 15( I think). I have had a biopsy and I have genotype 1a

wich I hear is the hardest to treat.Hugs,

Subject: Re: My Appointment With Hepatologist Today

To: livercirrhosissupport

Date: Tuesday, December 23, 2008, 2:49 PM

Thanks, . Tonight I do another shot. My 4th. I was counting

down from 48 weeks, but now my hepatologist wants me to do 52 weeks

of treatment to make sure I kill this darn dragon (Hepatitis C) and

keep it down. I'm already undetectable after only 6 days of

treatment.

Penny

>

> From: preciouspenny3 <preciouspenny3@ ...>

> Subject: My Appointment With Hepatologist

Today

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Monday, December 22, 2008, 10:14 PM

>

>

>

>

>

>

> I saw my hepatologist today, and he was pleased and a bit surprised

> how well my treatment has been going for me with hardly any side

> effects. I will be needing shots to keep my hemoglobin up soon.

> They don't want it going lower than 12, and it is at 13 now.

>

> I asked about my hematocrit falling, and my bilirubin rising, and

he

> just told me the treatment is causing that and not to worry about

it

> because it is still in normal range.

>

> There was a lady in the waiting room who asked me what I had. I

told

> her a liver, and it will be a year in 15 days, and she said she got

a

> liver too. She asked me how it went for me, and I told her it went

> quite well without any complications. That upset her because she is

> 6 weeks post transplant, and is having problems. She is weak and in

> a wheel chair, and has to wear a mask in public. After her

> transplant, part of the liver didn't work...I'm thinking it was the

> bile ducts, but not sure. Anyway, they had to go back in and fix

> that, and then she got fluid in her lungs, had to spend a whole

> weekend on a trach, and she is just upset about how things haven't

> been going so well for her. Her husband told her not to compare her

> surgery with other people's like mine. I told her to keep her

> spirits up and things will get better. It just takes some people

> longer than others. I felt bad that she was having such problems,

> and I was blessed to have things go well. I hope she feels better

> soon. I may see her again at my next appointment in three months

> because a lot of the same people seem to be there when I am there.

>

> I got a nice, emotional surprise, but also sad too today. My

> coordinator gave me my file and I had to wait for the receptionist

to

> come back to make my next appointment, and while I was waiting, I

> opened up my file to glance through it as I wait, which I have done

> before. It opened up to a page I never saw before, and I have

always

> wondered about. It had my donor's info on it...actually, my donor's

> birthday, so I know how old my donor was, and how old my new liver

> is. They would never tell me anything before except that it was

> young and healthy. My donor's birthday was on January 4, 1983. This

> is very sad to me because the tests were done on her on January 5,

> 2008, which is the same night I got the call that a match was

found.

> This means that she passed away on or near her birthday, and that

is

> so sad to me. She was 25 years old on January 4, 2008. My

> transplant was on January 6, 2008. She was a Capricorn like me. My

> birthday is 9 days after hers on the 13th. Now that I know when her

> birthday was, I have three days I will consider very special as my

> own birthdays... her birthday, my transplant date, and my own

> birthday. I plan to say special prayers for her and her family on

> her birthday. I feel so much closer to her now knowing when her

> birthday was. I hope I hear from her family one day since I

consider

> them as part of my family since part of her is a part of me.

>

> I hope everyone is doing well.

>

> Penny

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I am a genotype 1a too, and it is the hardest to treat. I'm

undetectable already, so I feel blessed, and hope it will stay that

way.

They would actually like you to do the treatment before and after a

transplant. If you do it before a transplant, you still have to do

it after a transplant because it will come back after transplant.

Penny

> >

> > From: preciouspenny3 <preciouspenny3@ ...>

> > Subject: My Appointment With

Hepatologist

> Today

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Monday, December 22, 2008, 10:14 PM

> >

> >

> >

> >

> >

> >

> > I saw my hepatologist today, and he was pleased and a bit

surprised

> > how well my treatment has been going for me with hardly any side

> > effects. I will be needing shots to keep my hemoglobin up soon.

> > They don't want it going lower than 12, and it is at 13 now.

> >

> > I asked about my hematocrit falling, and my bilirubin rising, and

> he

> > just told me the treatment is causing that and not to worry about

> it

> > because it is still in normal range.

> >

> > There was a lady in the waiting room who asked me what I had. I

> told

> > her a liver, and it will be a year in 15 days, and she said she

got

> a

> > liver too. She asked me how it went for me, and I told her it

went

> > quite well without any complications. That upset her because she

is

> > 6 weeks post transplant, and is having problems. She is weak and

in

> > a wheel chair, and has to wear a mask in public. After her

> > transplant, part of the liver didn't work...I'm thinking it was

the

> > bile ducts, but not sure. Anyway, they had to go back in and fix

> > that, and then she got fluid in her lungs, had to spend a whole

> > weekend on a trach, and she is just upset about how things

haven't

> > been going so well for her. Her husband told her not to compare

her

> > surgery with other people's like mine. I told her to keep her

> > spirits up and things will get better. It just takes some people

> > longer than others. I felt bad that she was having such problems,

> > and I was blessed to have things go well. I hope she feels better

> > soon. I may see her again at my next appointment in three months

> > because a lot of the same people seem to be there when I am there.

> >

> > I got a nice, emotional surprise, but also sad too today. My

> > coordinator gave me my file and I had to wait for the

receptionist

> to

> > come back to make my next appointment, and while I was waiting, I

> > opened up my file to glance through it as I wait, which I have

done

> > before. It opened up to a page I never saw before, and I have

> always

> > wondered about. It had my donor's info on it...actually, my

donor's

> > birthday, so I know how old my donor was, and how old my new

liver

> > is. They would never tell me anything before except that it was

> > young and healthy. My donor's birthday was on January 4, 1983.

This

> > is very sad to me because the tests were done on her on January

5,

> > 2008, which is the same night I got the call that a match was

> found.

> > This means that she passed away on or near her birthday, and that

> is

> > so sad to me. She was 25 years old on January 4, 2008. My

> > transplant was on January 6, 2008. She was a Capricorn like me.

My

> > birthday is 9 days after hers on the 13th. Now that I know when

her

> > birthday was, I have three days I will consider very special as

my

> > own birthdays... her birthday, my transplant date, and my own

> > birthday. I plan to say special prayers for her and her family on

> > her birthday. I feel so much closer to her now knowing when her

> > birthday was. I hope I hear from her family one day since I

> consider

> > them as part of my family since part of her is a part of me.

> >

> > I hope everyone is doing well.

> >

> > Penny

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >