Re: HBOT - To Continue or Not to Continue!?

November 22, 2008

Hi Vicky, we are just starting to use HBOT, can you share some more

your experience with me?

We are also targetting with WH questions, she has some already with

Where? What? She is 8years old now. How old is your child? How often

do you do soft HBOT? At what ATA? Do you take a break when reach

40sessions?

thank you so much for your further sharing.

All the best,

Corinna

>

> We've been renting a soft chamber for almost two months and have

> completed over 100 hours. The gains in our son's

> speech, language (who, where and why questions for the first time

> ever!!), and eye contact are incredible. So now we are faced with

> should we continue with soft chamber, should we move on to hard

> chamber, or is it safe to stop it all? At about the 40-hour mark,

we

> also started an antiviral protocol that includes Acyclovir and

> Ketoconazole. We are about 15 days into our 30-day anti-viral

> prescriptions. No rash or other obvious herx reaction so far. But

> overall, he's made some tremendous leaps in the last 6-8 weeks. Any

> thoughts or experience on what happens if you stop/take a break

from

> HBOT?

>

November 23, 2008

Vicky,

I wonder if the meds you started increased the effectiveness of the HBOT? I think that was our experience.

I was told that the more frequent the HBOT treatments where, the more his gains we would see (both my kids went through it) so we had them take 2 dives a day (must be 4 hrs apart). I don't think taking a break would hurt but I also don't think you will necessarily see substantial gains from it either (that is a guess).

My son benefitted from HBOT more than my daughter did but he had farther to go, too. (Aspergers, 19 yrs old.) People are always talking about how important it is to make gains while their child is small and, while I agree with that, I have seen SUBSTANTIAL improvement with my kids, 15 and 19, with these biomedical treatments. My son actually has a future now. That is not small. My daughter can actually do her homework without an aid anymore. She wants to go to college as that was questionable before.

Sorry for the rant. Us Mad Moms get fired up!

sally

To: mb12 valtrex Sent: Sunday, November 23, 2008 12:14:07 AMSubject: HBOT - To Continue or Not to Continue!?

We've been renting a soft chamber for almost two months and have completed over 100 hours. The gains in our son'sspeech, language (who, where and why questions for the first timeever!!), and eye contact are incredible. So now we are faced withshould we continue with soft chamber, should we move on to hardchamber, or is it safe to stop it all? At about the 40-hour mark, wealso started an antiviral protocol that includes Acyclovir andKetoconazole. We are about 15 days into our 30-day anti-viralprescriptions. No rash or other obvious herx reaction so far. Butoverall, he's made some tremendous leaps in the last 6-8 weeks. Anythoughts or experience on what happens if you stop/take a break fromHBOT?

November 23, 2008

Hi Corinna

We are doing soft chamber at 1.3 ATA. We did not stop after 40 hours.

Our DAN! recommended 60 hours in the first month, tapering off to 40-45

the second month. We started at 1.5 hour sessions for the first 2 weeks

and then increased it to 2 hour sessions. We did this 6 days a week for

the first month and are now down to 4-5. Our son will be 5 next month.

We go into the chamber and bedtime with a movie. He is generally happy

to get in and typically falls asleep! We did experience about a week of

aggression and trantrums (something that had subsided a long time ago!)

about two weeks into HBOT. We increased his enzymes and added Grape

Seed Extract. It was after this really tough week, that we began to

notice the language gains! Since then, it's been pretty smooth sailing.

I'm nervous about taking a break...but his language has also improved

so much that he is telling us " I want to stop chamber! "

November 26, 2008

Hi Sally

I'm so happy that your children benefited from HBOT and other

biomedical interventions! I'm so thankful that there are DAN!s and

parents out there to help use sort thru autism puzzle regardless of the

age of the child. Never lose hope! I do think that the HBOT

complimented my son's anti-virals meds. It sounds like it would do the

same if we go back to chelation. For now, we are going to enjoy the

holidays and pray that he continues to make improvements. However, we

will jump back into HBOT if there are any signs of regression. Thank

you for taking the time to share your experience with me/us!

Vicky

November 27, 2008

Hello,

I am thinking of doing HBOT for my son. It is a huge sacrifice for

us, ($$) our DAN wants us to do one hour and a half twice a day, soft

chamber,

it sounds much more of what you are doing

Do you think is too much?

Would you do it?

thank you

>

> Hi Corinna

> We are doing soft chamber at 1.3 ATA. We did not stop after 40

hours.

> Our DAN! recommended 60 hours in the first month, tapering off to

40-45

> the second month. We started at 1.5 hour sessions for the first 2

weeks

> and then increased it to 2 hour sessions. We did this 6 days a week

for

> the first month and are now down to 4-5. Our son will be 5 next

month.

> We go into the chamber and bedtime with a movie. He is generally

happy

> to get in and typically falls asleep! We did experience about a

week of

> aggression and trantrums (something that had subsided a long time

ago!)

> about two weeks into HBOT. We increased his enzymes and added Grape

> Seed Extract. It was after this really tough week, that we began to

> notice the language gains! Since then, it's been pretty smooth

sailing.

> I'm nervous about taking a break...but his language has also

improved

> so much that he is telling us " I want to stop chamber! "

>

November 28, 2008

We rented a chamber & our 6-year old son went in it one time; while he was in there, he freaked out because the chamber pressurized too fast & was screaming & crying to get out since the pressure hurt his ears. His dad was in it with him. We couldn't get him out immediately, of course, because you have to wait 3 minutes for it to de-pressurize. As you can imagine, 3 minutes was an eternity to watch him holding his ears & screaming & sweating (it's extremely HOT in there since they are like being inside a giant raft) and clawing to get out. We were able to get a refund for the chamber, but still had to pay $600 shipping. I am sharing this with you because we thought he would go in it no problem & it ended up being a taxing assumption. So I would recommend finding a chamber to try-out 1st, if possible. I wanted this to work for our son so badly; I was so disappointed that he could not do this therapy. I do think that HBOT is a great tool for recovery. One more thing - we rented the largest "Vitara" available & I personally think it is still too small,

too dark (not enough windows/light coming in) and uncomfortably hot. My husband is an average-size man - there was no way he could sit-up comfortably in it, as claimed. If we were to try it again, I would seek out one of those tent-like chambers where you can sit up comfortably, not a tube. From: To: mb12 valtrex Sent: Friday, November 28, 2008 2:14:27 AMSubject: Re: HBOT - To Continue or Not to Continue!?

If you're considering HBOT, your best bet is a portable chamber in

your home. It's almost impossible to follow the proper protocol if

you have to travel to a doctor's office for treatments.

I carry 5 portable hyperbaric chambers:

Healing Dives Mini, 28" in diameter, 1.2 ATA, $6,995

Healing Dives Midi, 28" in diameter, 1.3 ATA, $7,995

Healing Dives Maxi, 40" in diameter, 1.3 ATA, $13,995

Healing Dives Shallow, 36" in diameter, 1.3 ATA, $12,900

Healing Dives Deep, 34" in diameter, 1.3 ATA/1.5 ATA, $16,900

I offer monthly rentals on the Shallow and the Deep from $1,995 per

month, with 100% of the first month's rent credited towards the

purchase price. You can also purchase a chamber with no money down,

with 0% interest for up to 15 months.

Check out my web site for details - http://www.healingd ives..com.

Diane

dianehealingdives (DOT) com

>

> Hello,

> I am thinking of doing HBOT for my son. It is a huge sacrifice for

> us, ($$) our DAN wants us to do one hour and a half twice a day,

soft

> chamber,

> it sounds much more of what you are doing

> Do you think is too much?

> Would you do it?

> thank you

November 28, 2008

Hi

Our DAN! also suggested that if we could manage it, try to do two

sessions a day. To be honest, we couldn't fit it in. It's a big chunk

of time out of my son's already fully-loaded days. So we made the

decision to do once a day for two hours at bedtime (we started at 1.5),

realizing that it may take longer for us to see gains. It is a

financial sacrifice and I pray that some day insurance will begin to

cover these treatments. Where are you getting your soft chamber from?

Or will you go into a doctor's office?

Please keep me posted.

>

> Hello,

> I am thinking of doing HBOT for my son. It is a huge sacrifice for

> us, ($$) our DAN wants us to do one hour and a half twice a day, soft

> chamber,

> it sounds much more of what you are doing

> Do you think is too much?

> Would you do it?

> thank you

>

November 28, 2008

We own a chamber and we did 2 60 min dives a day for a month. Then

we took 2 weeks off. Since then we strive to get him in 1x a day,

but this doesn't always happen. So if you can find it in your

energy and schedule to make the sacrifice for one month it may pay

off. I guess what I'm trying to express is that it was crazy hard

to get him in 2x a day, but it's not forever.

> >

> > Hello,

> > I am thinking of doing HBOT for my son. It is a huge sacrifice

for

> > us, ($$) our DAN wants us to do one hour and a half twice a day,

soft

> > chamber,

> > it sounds much more of what you are doing

> > Do you think is too much?

> > Would you do it?

> > thank you

> >

>

November 29, 2008

Our largest chamber is 40 " in diameter, and it's big enough for

adults to sit up inside of it. We carry two devices for children who

have problems clearing their ears - the Equalizer, which clears the

ears naturally with air, and special ear plugs for use in portable

hyperbaric chambers. I'm surprised that the company that you rented

your chamber from did not provide you with information on these

products.

Diane

diane@...

http://www.healingdives.com

>

> We rented a chamber & our 6-year old son went in it one time; while

he was in there, he freaked out because the chamber pressurized too

fast & was screaming & crying to get out since the pressure hurt his

ears. His dad was in it with him. We couldn't get him out

immediately, of course, because you have to wait 3 minutes for it to

de-pressurize. As you can imagine, 3 minutes was an eternity to

watch him holding his ears & screaming & sweating (it's extremely HOT

in there since they are like being inside a giant raft) and clawing

to get out. We were able to get a refund for the chamber, but still

had to pay $600 shipping.

>

> I am sharing this with you because we thought he would go in it no

problem & it ended up being a taxing assumption. So I would

recommend finding a chamber to try-out 1st, if possible. I wanted

this to work for our son so badly; I was so disappointed that he

could not do this therapy. I do think that HBOT is a great tool for

recovery.

>

> One more thing - we rented the largest " Vitara " available & I

personally think it is still too small, too dark (not enough

windows/light coming in) and uncomfortably hot. My husband is an

average-size man - there was no way he could sit-up comfortably in

it, as claimed. If we were to try it again, I would seek out one of

those tent-like chambers where you can sit up comfortably, not a tube.

>

> If you're considering HBOT, your best bet is a portable chamber in

> your home. It's almost impossible to follow the proper protocol if

> you have to travel to a doctor's office for treatments.

>

> I carry 5 portable hyperbaric chambers:

>

> Healing Dives Mini, 28 " in diameter, 1.2 ATA, $6,995

> Healing Dives Midi, 28 " in diameter, 1.3 ATA, $7,995

> Healing Dives Maxi, 40 " in diameter, 1.3 ATA, $13,995

> Healing Dives Shallow, 36 " in diameter, 1.3 ATA, $12,900

> Healing Dives Deep, 34 " in diameter, 1.3 ATA/1.5 ATA, $16,900

>

> I offer monthly rentals on the Shallow and the Deep from $1,995 per

> month, with 100% of the first month's rent credited towards the

> purchase price. You can also purchase a chamber with no money

down,

> with 0% interest for up to 15 months.

>

> Check out my web site for details - http://www.healingdives.com.

>

> Diane

> dianehealingdives (DOT) com

November 29, 2008

Marissa,

I’m sorry you had such a terrible experience with the

hbot. Were you trained on the usage of the chamber before renting it,

because unfortunately it really doesn’t sound like anyone told you what

to do – which is terrible, because clearly what happened to you should

not have happened. I cannot imagine what it was like for you watching

that, I am so sorry!

When you compress and especially the first time you compress,

you need to do it slowly, so you give the child’s ears enough time to

adjust to the pressure. In addition, you should have had your son

drinking and eating while it was pressurizing. At the onset of his ear

pain, you should have released the valve at least two turns until his pain

subsided and then slowly repressurized.

Also, you do need to keep the room cool when using the chamber

or have the cooler along with it which cools the air before it is blown into

the chamber. The cooler makes a huge difference in the temperature in there.

It’s odd to me that your vitaeris was dark inside, we have

the same one and don’t find it dark at all. It could be because we

have overhead lighting which seems to do a great job at keeping it lit inside.

And both my husband and I, who are not small people, have no problem with the sitting

up in there comfortably.

If your rental place provided no instruction on how to deal with

ear pain and what to do regarding compression/decompression, I’d push for

a refund on the shipping as well.

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