Re: Penumbra -BLINKING & list of supplements

[Guest guest]

Hi Cyndi N,

Thanks for your kind comments about the autism encyclopedia website.

Hopefully this will help our mb12 valtrex community to collaborate more

effectively.

Notwithstanding Crystel's comment about the eyedrops containing

toxins, which may have merit, motor tics typically involve an impaired

methylation pathway effecting the basal ganglia. I realize this is

techno-speak, but it offers a point of departure for research:

ref google: methylation pathway motor tics DAN! Dr. Derth

If you notice the eye tic problem dissipates 30 minutes or so after

the dmb b12 dosing, then I recommend you considered methy-b12

injections or nasal spray.

As a cautionary note about chelation in general (not TD-DMSA). My son

had a language regression after we used oral chelation along with

bentonite clay baths. Metal was removed, as evidenced by macroscopic

metal in the stool.

About 2 months later, we later learned that his glutathione (GSH)

levels were very low. In this scenario, loosely bound metals can be

pulled from connective tissue throughout the body and deposited in the

digestive tract. This is counter to the primary goal of healing the

gut/immune system.

Ultimately, we want to lower the metal burden in the body so that the

brain metal can be drawn out by osmosis (no one knows of a chelating

agent that draws metal out of the brain). Moving it from the bone to

the gut, without sufficient detoxication support may be harmful.

I believe Kim echoes this gut-first approach (as does my DAN! doctor):

see item 1 under common sense:

http://www.autismpedia.org/wiki/index.php?title=Treatments/Getting_Started#Commo\

n_Sense

Finally, to the point, you should consider adding a glutathione

supplement. The easiest route may be Rx TD-GSH or GSH suppositories.

We also like GSH liposomal and broccoli.

--penumbra

>

> Thanks for your response and that link...what a beautiful boy and

such a great resurouce!

>

> Here are the bio-med therapies we are using:

> Rx meds: ketoconazole for yeast (have also used Difulcan and nystatin)

> Chelation: DMSA transdermal

> Ddaily supplements: spectrum complete multi, calcium w/ D, magnesium

citrate, l-carnitine (carnitor), enzym-complete, coq10, selenium,

brainshild's minerals, CLO, candex, therbiotic complete, threelac,

zinc, mb12 powder, folinic acid, p5p, dmg w/ b12 & folinic acid, epsom

salt baths... & I need to add gse and milk thistle.

>

> If you see anything above questionable or missing please let me know.

>

> Thanks!

> Cyndi N

>

> PS We live in northern VA and see Dr Megson (DAN) .

>

>

> [sPAM] Re: new-BLINKING reaction to

dilating drops-tic

>

>

> Yes, it all started with my 5 yo ASD son at age 4 with a blinking tic.

>

> We did an MRI and lumbar puncture, and both were normal. Looking back

> on this stage of our son's regressive autism, the best advice I have

> is to remove gluten and casine (milk) and to increase vitamins, cod

> liver oil is good. Our next step on the journey involved a herbal

> homeopathy called UNDA #s. This and the diet eliminated all tics.

>

>

http://www.autismpedia.org/wiki/index.php?title=Will#Responds_to_GFCF_and_Homeop\

athy

>

> Please report what therapies, if any, you are currently doing.

>

> Welcome,

> --penumbra

>

> > Has anyone ever heard of this? Do you have any advice for me? I

> have one more doctor I can try...his neuro, but she keeps hammering us

> to do an MRI and I think this would send her over the edge. I've been

> avoiding the MRI b/c I'm afraid of regression due to sedation (and the

> ped said an MRI is not a diagnostic tool for tics). did have

> a 24 hour EEG in August to test for absence seizures (he has

> occasional staring spells) but none showed up.

> >

> > Thanks for reading this and accepting me into your group,

> > Cyndi N.

> >

> > PS I forgot to add that is taking Ketoconzaole for yeast

> and I called the pharmacy and they said a possible side effect is

> light sensitivity (which is also a side effect of the Cyclogyl) but

> he's been blinking for 10 days now (even in the dark) and he had been

> on the Keto. more than a week before this started.

> >

>