Re: Thinking of Starting Valtrex but May Still Have Lyme

[Guest guest]

http://www.lymeinducedautism.com

>

> Hi!

>

> We are considering starting Valtrex/Diflucan protocol with our six-

> year-old son. We KNOW that virus has played a role in his

> regression into full-fledged autism at 30 months, which occurred

> after a stomach bug with an extremely high fever.

Retrospectively,

> subtle losses in affect were noticed after a bout of Roseola and

18

> month shots and double ear infection all occurred within the same

> month. Varicella was administered at this time amongs other

> vaccinations.

>

> During the year between this time and the BIG regression, he very

> SUBTLELY started slipping away, and he started getting sick all

of

> the time. After the BIG regression, he stopped getting sick

almost

> all together.

>

> Before his regression, he was highly verbal and knew things like

his

> ABC's. He is, at this point, able to express his wants and needs,

> but something is SERIOUSLY blocking his learning, possibly a virus

in

> his brain or inflammation from an autimmune reaction after the

slam

> at 30 months(?)

>

> He is on SCD w/ high IGG foods cut out or limited, Mb12

subcutaneous,

> nystatin for maintenance/fungus control and basic supplements as

per

> DAN.

>

> Just to make things way more complicated, he got lyme disease two

> Octobers ago from a tick bite and was on almost 3 mos of

antibiotics.

> When the lyme hit, we spent a crapload of $ out-of-pocket to see

> a " lyme-literate " doctor, and the only thing he recommended was

more,

> more, more antibiotics. Our happy medium at the time was the

three

> months' worth. We have seen no more signs of lyme since but

realize

> that the borellia bacteria is likely to STILL be hiding in him

among

> other possible co-infections.

>

> He has shown some signs of stress/agitiation lately that are not

like

> him that is motivating us to stop being complacent with the

progress

> we have seen w/biomed these last 3 years. Ironically, right now,

his

> stool is formed and regular.

>

> Thinking that the lyme might be rearing its ugly head again, we

tried

> a trial of Ceftin, the antibiotic he was on to fight lyme just to

> rule out whether bacteria may be causing this agitation, and have

> seen no changes whatsoever so we stopped.

>

> Here is my fear: If we aggressively fight virus in addition to

> yeast, do you think we are setting up the stage for bad bacteria

> (possibly the lyme and possible co-infections that may be in there

> that we have no evidence of, other bacteria, etc.)to take over?

>

> This is what shies us away from the Valtrex thing.

>

> Oh, another new thing in addition to the agitation is that he also

> has a very light rash of tiny little bumps on his back that can

only

> be seen with a diagonal view in certain light.

>

> If anyone has any thoughts on ANY of this, they would be

appreciated!

>

> Thanks so much for sharing your wisdom on this board.

>

> Also, would 250 mg 2x/day be a good starting dose? He is six

years

> old and weighs almost 50 lbs.

>

[Guest guest]

Have you tried MMS to control the lyme disease?

This stuff is wonderful, I am on it myself!

> >

> > Hi!

> >

> > We are considering starting Valtrex/Diflucan protocol with our

six-

> > year-old son. We KNOW that virus has played a role in his

> > regression into full-fledged autism at 30 months, which occurred

> > after a stomach bug with an extremely high fever.

> Retrospectively,

> > subtle losses in affect were noticed after a bout of Roseola and

> 18

> > month shots and double ear infection all occurred within the

same

> > month. Varicella was administered at this time amongs other

> > vaccinations.

> >

> > During the year between this time and the BIG regression, he

very

> > SUBTLELY started slipping away, and he started getting sick all

> of

> > the time. After the BIG regression, he stopped getting sick

> almost

> > all together.

> >

> > Before his regression, he was highly verbal and knew things like

> his

> > ABC's. He is, at this point, able to express his wants and

needs,

> > but something is SERIOUSLY blocking his learning, possibly a

virus

> in

> > his brain or inflammation from an autimmune reaction after the

> slam

> > at 30 months(?)

> >

> > He is on SCD w/ high IGG foods cut out or limited, Mb12

> subcutaneous,

> > nystatin for maintenance/fungus control and basic supplements as

> per

> > DAN.

> >

> > Just to make things way more complicated, he got lyme disease

two

> > Octobers ago from a tick bite and was on almost 3 mos of

> antibiotics.

> > When the lyme hit, we spent a crapload of $ out-of-pocket to see

> > a " lyme-literate " doctor, and the only thing he recommended was

> more,

> > more, more antibiotics. Our happy medium at the time was the

> three

> > months' worth. We have seen no more signs of lyme since but

> realize

> > that the borellia bacteria is likely to STILL be hiding in him

> among

> > other possible co-infections.

> >

> > He has shown some signs of stress/agitiation lately that are not

> like

> > him that is motivating us to stop being complacent with the

> progress

> > we have seen w/biomed these last 3 years. Ironically, right now,

> his

> > stool is formed and regular.

> >

> > Thinking that the lyme might be rearing its ugly head again, we

> tried

> > a trial of Ceftin, the antibiotic he was on to fight lyme just

to

> > rule out whether bacteria may be causing this agitation, and

have

> > seen no changes whatsoever so we stopped.

> >

> > Here is my fear: If we aggressively fight virus in addition to

> > yeast, do you think we are setting up the stage for bad bacteria

> > (possibly the lyme and possible co-infections that may be in

there

> > that we have no evidence of, other bacteria, etc.)to take over?

> >

> > This is what shies us away from the Valtrex thing.

> >

> > Oh, another new thing in addition to the agitation is that he

also

> > has a very light rash of tiny little bumps on his back that can

> only

> > be seen with a diagonal view in certain light.

> >

> > If anyone has any thoughts on ANY of this, they would be

> appreciated!

> >

> > Thanks so much for sharing your wisdom on this board.

> >

> > Also, would 250 mg 2x/day be a good starting dose? He is six

> years

> > old and weighs almost 50 lbs.

> >

>

[Guest guest]

My son's lyme is borrelia, bartonella and babesia. The other common

one is erhlichia. All 3 coinfections could have been caught at the

same time as borrelia. I read that 60% of one drs pediatric lyme

patients had at least one coinfection in addition to borrelia.

Omincef will treat borrelia and possibly erhlichia, but not

bartonella or babesia. Definitely have those tests run. Bartonella

is a known cause of encephalitis and completely wipes out the immune

system. It is often misdiagnosed as a virus as it can cause stomach

flu symptoms and also rashes. I believe that bartonella is the main

causative in my son's autism.

I do want to say that having lyme does not mean you don't have

viruses too. My son and I are also positive for EBV. But I would

check out lyme coinfections first and you won't be very effective in

riding other infections without tackling these.

Caryn

> > >

> > > Hi!

> > >

> > > We are considering starting Valtrex/Diflucan protocol with our

> six-

> > > year-old son. We KNOW that virus has played a role in his

> > > regression into full-fledged autism at 30 months, which

occurred

> > > after a stomach bug with an extremely high fever.

> > Retrospectively,

> > > subtle losses in affect were noticed after a bout of Roseola

and

> > 18

> > > month shots and double ear infection all occurred within the

> same

> > > month. Varicella was administered at this time amongs other

> > > vaccinations.

> > >

> > > During the year between this time and the BIG regression, he

> very

> > > SUBTLELY started slipping away, and he started getting sick

all

> > of

> > > the time. After the BIG regression, he stopped getting sick

> > almost

> > > all together.

> > >

> > > Before his regression, he was highly verbal and knew things

like

> > his

> > > ABC's. He is, at this point, able to express his wants and

> needs,

> > > but something is SERIOUSLY blocking his learning, possibly a

> virus

> > in

> > > his brain or inflammation from an autimmune reaction after the

> > slam

> > > at 30 months(?)

> > >

> > > He is on SCD w/ high IGG foods cut out or limited, Mb12

> > subcutaneous,

> > > nystatin for maintenance/fungus control and basic supplements

as

> > per

> > > DAN.

> > >

> > > Just to make things way more complicated, he got lyme disease

> two

> > > Octobers ago from a tick bite and was on almost 3 mos of

> > antibiotics.

> > > When the lyme hit, we spent a crapload of $ out-of-pocket to

see

> > > a " lyme-literate " doctor, and the only thing he recommended was

> > more,

> > > more, more antibiotics. Our happy medium at the time was the

> > three

> > > months' worth. We have seen no more signs of lyme since but

> > realize

> > > that the borellia bacteria is likely to STILL be hiding in him

> > among

> > > other possible co-infections.

> > >

> > > He has shown some signs of stress/agitiation lately that are

not

> > like

> > > him that is motivating us to stop being complacent with the

> > progress

> > > we have seen w/biomed these last 3 years. Ironically, right

now,

> > his

> > > stool is formed and regular.

> > >

> > > Thinking that the lyme might be rearing its ugly head again, we

> > tried

> > > a trial of Ceftin, the antibiotic he was on to fight lyme just

> to

> > > rule out whether bacteria may be causing this agitation, and

> have

> > > seen no changes whatsoever so we stopped.

> > >

> > > Here is my fear: If we aggressively fight virus in addition to

> > > yeast, do you think we are setting up the stage for bad

bacteria

> > > (possibly the lyme and possible co-infections that may be in

> there

> > > that we have no evidence of, other bacteria, etc.)to take over?

> > >

> > > This is what shies us away from the Valtrex thing.

> > >

> > > Oh, another new thing in addition to the agitation is that he

> also

> > > has a very light rash of tiny little bumps on his back that can

> > only

> > > be seen with a diagonal view in certain light.

> > >

> > > If anyone has any thoughts on ANY of this, they would be

> > appreciated!

> > >

> > > Thanks so much for sharing your wisdom on this board.

> > >

> > > Also, would 250 mg 2x/day be a good starting dose? He is six

> > years

> > > old and weighs almost 50 lbs.

> > >

> >

>

[Guest guest]

This is a very good question that I would also like to learn more

about. Maybe you could try posting this question on this chatgroup:

BorreliaMultipleInfectionsAndAutism@yahoogroups

They really know a lot about Lyme disease and autism there.

> > >

> > > Hi!

> > >

> > > We are considering starting Valtrex/Diflucan protocol with our

> six-

> > > year-old son. We KNOW that virus has played a role in his

> > > regression into full-fledged autism at 30 months, which

occurred

> > > after a stomach bug with an extremely high fever.

> > Retrospectively,

> > > subtle losses in affect were noticed after a bout of Roseola

and

> > 18

> > > month shots and double ear infection all occurred within the

> same

> > > month. Varicella was administered at this time amongs other

> > > vaccinations.

> > >

> > > During the year between this time and the BIG regression, he

> very

> > > SUBTLELY started slipping away, and he started getting sick

all

> > of

> > > the time. After the BIG regression, he stopped getting sick

> > almost

> > > all together.

> > >

> > > Before his regression, he was highly verbal and knew things

like

> > his

> > > ABC's. He is, at this point, able to express his wants and

> needs,

> > > but something is SERIOUSLY blocking his learning, possibly a

> virus

> > in

> > > his brain or inflammation from an autimmune reaction after the

> > slam

> > > at 30 months(?)

> > >

> > > He is on SCD w/ high IGG foods cut out or limited, Mb12

> > subcutaneous,

> > > nystatin for maintenance/fungus control and basic supplements

as

> > per

> > > DAN.

> > >

> > > Just to make things way more complicated, he got lyme disease

> two

> > > Octobers ago from a tick bite and was on almost 3 mos of

> > antibiotics.

> > > When the lyme hit, we spent a crapload of $ out-of-pocket to

see

> > > a " lyme-literate " doctor, and the only thing he recommended

was

> > more,

> > > more, more antibiotics. Our happy medium at the time was the

> > three

> > > months' worth. We have seen no more signs of lyme since but

> > realize

> > > that the borellia bacteria is likely to STILL be hiding in him

> > among

> > > other possible co-infections.

> > >

> > > He has shown some signs of stress/agitiation lately that are

not

> > like

> > > him that is motivating us to stop being complacent with the

> > progress

> > > we have seen w/biomed these last 3 years. Ironically, right

now,

> > his

> > > stool is formed and regular.

> > >

> > > Thinking that the lyme might be rearing its ugly head again,

we

> > tried

> > > a trial of Ceftin, the antibiotic he was on to fight lyme just

> to

> > > rule out whether bacteria may be causing this agitation, and

> have

> > > seen no changes whatsoever so we stopped.

> > >

> > > Here is my fear: If we aggressively fight virus in addition

to

> > > yeast, do you think we are setting up the stage for bad

bacteria

> > > (possibly the lyme and possible co-infections that may be in

> there

> > > that we have no evidence of, other bacteria, etc.)to take

over?

> > >

> > > This is what shies us away from the Valtrex thing.

> > >

> > > Oh, another new thing in addition to the agitation is that he

> also

> > > has a very light rash of tiny little bumps on his back that

can

> > only

> > > be seen with a diagonal view in certain light.

> > >

> > > If anyone has any thoughts on ANY of this, they would be

> > appreciated!

> > >

> > > Thanks so much for sharing your wisdom on this board.

> > >

> > > Also, would 250 mg 2x/day be a good starting dose? He is six

> > years

> > > old and weighs almost 50 lbs.

> > >

> >

>

[Guest guest]

Very few lyme drs understand and know to test for coinfections.

Valtrex can help a child that has viruses, but a child with

bartonella and viruses will not likely get much imrovement unless the

bartonella is treated. Bartonella is best detected using the Fry

Laboratories photographic blood smear while not using any pathogen

killers for 2 weeks.

Caryn

> > > > >

> > > > > Hi!

> > > > >

> > > > > We are considering starting Valtrex/Diflucan protocol with

> our

> > > six-

> > > > > year-old son. We KNOW that virus has played a role in his

> > > > > regression into full-fledged autism at 30 months, which

> > occurred

> > > > > after a stomach bug with an extremely high fever.

> > > > Retrospectively,

> > > > > subtle losses in affect were noticed after a bout of

Roseola

> > and

> > > > 18

> > > > > month shots and double ear infection all occurred within

the

> > > same

> > > > > month. Varicella was administered at this time amongs

other

> > > > > vaccinations.

> > > > >

> > > > > During the year between this time and the BIG regression,

he

> > > very

> > > > > SUBTLELY started slipping away, and he started getting

sick

> > all

> > > > of

> > > > > the time. After the BIG regression, he stopped getting

sick

> > > > almost

> > > > > all together.

> > > > >

> > > > > Before his regression, he was highly verbal and knew things

> > like

> > > > his

> > > > > ABC's. He is, at this point, able to express his wants and

> > > needs,

> > > > > but something is SERIOUSLY blocking his learning, possibly

a

> > > virus

> > > > in

> > > > > his brain or inflammation from an autimmune reaction after

> the

> > > > slam

> > > > > at 30 months(?)

> > > > >

> > > > > He is on SCD w/ high IGG foods cut out or limited, Mb12

> > > > subcutaneous,

> > > > > nystatin for maintenance/fungus control and basic

> supplements

> > as

> > > > per

> > > > > DAN.

> > > > >

> > > > > Just to make things way more complicated, he got lyme

> disease

> > > two

> > > > > Octobers ago from a tick bite and was on almost 3 mos of

> > > > antibiotics.

> > > > > When the lyme hit, we spent a crapload of $ out-of-pocket

to

> > see

> > > > > a " lyme-literate " doctor, and the only thing he recommended

> was

> > > > more,

> > > > > more, more antibiotics. Our happy medium at the time was

> the

> > > > three

> > > > > months' worth. We have seen no more signs of lyme since

but

> > > > realize

> > > > > that the borellia bacteria is likely to STILL be hiding in

> him

> > > > among

> > > > > other possible co-infections.

> > > > >

> > > > > He has shown some signs of stress/agitiation lately that

are

> > not

> > > > like

> > > > > him that is motivating us to stop being complacent with the

> > > > progress

> > > > > we have seen w/biomed these last 3 years. Ironically, right

> > now,

> > > > his

> > > > > stool is formed and regular.

> > > > >

> > > > > Thinking that the lyme might be rearing its ugly head

again,

> we

> > > > tried

> > > > > a trial of Ceftin, the antibiotic he was on to fight lyme

> just

> > > to

> > > > > rule out whether bacteria may be causing this agitation,

and

> > > have

> > > > > seen no changes whatsoever so we stopped.

> > > > >

> > > > > Here is my fear: If we aggressively fight virus in

addition

> to

> > > > > yeast, do you think we are setting up the stage for bad

> > bacteria

> > > > > (possibly the lyme and possible co-infections that may be

in

> > > there

> > > > > that we have no evidence of, other bacteria, etc.)to take

> over?

> > > > >

> > > > > This is what shies us away from the Valtrex thing.

> > > > >

> > > > > Oh, another new thing in addition to the agitation is that

> he

> > > also

> > > > > has a very light rash of tiny little bumps on his back that

> can

> > > > only

> > > > > be seen with a diagonal view in certain light.

> > > > >

> > > > > If anyone has any thoughts on ANY of this, they would be

> > > > appreciated!

> > > > >

> > > > > Thanks so much for sharing your wisdom on this board.

> > > > >

> > > > > Also, would 250 mg 2x/day be a good starting dose? He is

> six

> > > > years

> > > > > old and weighs almost 50 lbs.

> > > > >

> > > >

> > >

> >

>