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Re: best probiotic? HELP!

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Ok, this takes the cake.

Probiotics contain strep????????????????

What are the " strep strains " of probiotics?

My son just tested positive for group a strep and started antibiotics

on Wed. I just gave him probiotics last night to counter the antibio

effects. HELP! If I'm giving him more strep, this is a disaster.

>

> From: Christel King <christel76@together

..net>

> Subject: Re: best probiotic?

> To: mb12 valtrex@ yahoogroups. com

> Received: Saturday, December 6, 2008,

12:01 AM

>

>

> probio contains the strep stains if you

have a PANDAS kids or one with strep issues. klaires labs has a high

dose probotic with out strep stains and with out milk issues

>

> Recovering from Autism is a marathon

> NOT a sprint, but FULLY possible!

> Read more about it on my BLOGs at

> http://www.myspace. com/christelking

> http://foggyrock. com/MyPage/

recoveringwishes

> http://www.facebook .com/profile.

php?id=677063169

>

> best probiotic?

>

>

> i know there are many many probiotics

on the market. i am getting ready to switch from culturelle to

another. the culturelle is wreaking havoc with my daughter's

intesitinal system.

>

> i've heard good things about Kirkman's

ProBio Gold. any others that are comprehensive and have little

intentinal repercussions? (i know they affect people differently. ..)

>

> thanks. pp

>

>

>

> --------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.176 / Virus Database:

270.9.13/1826 - Release Date: 12/3/2008 9:34 AM

>

>

>

>

>

> --------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.176 / Virus Database: 270.9.15/1833 -

Release Date: 12/5/2008 7:08 PM

>

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:

12/5/2008 7:08 PM

>

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Thank you! Ok - so bottom-line - strep probiotics ok with PANDAS or

best to avoid?

Also, have you heard of probiotics causing a terrible hive-like rash?

My son who just had a single dose last night of Nature's Way L.

Reuteri mix is having a major hive-like rash but no itching. He

started azithromycin on Wed. with no systemic reaction like this. The

only thing new is the probiotics last night.

> >

> > Ok, this takes the cake.

> >

> > Probiotics contain strep????????????????

> > What are the " strep strains " of probiotics?

> > My son just tested positive for group a strep and started antibiotics

> > on Wed. I just gave him probiotics last night to counter the antibio

> > effects. HELP! If I'm giving him more strep, this is a disaster.

> >

>

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it's not bad strep BUT if you have a strep kid like a PANDAS kid it will trigger the body to MAKE antibodies to strep which actually attacks the brain, joints and heart

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

best probiotic?> > > i know there are many many probioticson the market. i am getting ready to switch from culturelle toanother. the culturelle is wreaking havoc with my daughter'sintesitinal system. > > i've heard good things about Kirkman'sProBio Gold. any others that are comprehensive and have littleintentinal repercussions? (i know they affect people differently. ..)> > thanks. pp> > > > --------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.176 / Virus Database:270.9.13/1826 - Release Date: 12/3/2008 9:34 AM> > > > > > ----------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.176 / Virus Database: 270.9.15/1833 -Release Date: 12/5/2008 7:08 PM> > > > > > > >----------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:12/5/2008 7:08 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: 12/6/2008 4:55 PM

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avoid like the plauge

can be a hives reaction (are they milk based) or in my kids strep also cause scarlet fever rash

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: best probiotic? HELP!

Thank you! Ok - so bottom-line - strep probiotics ok with PANDAS orbest to avoid? Also, have you heard of probiotics causing a terrible hive-like rash?My son who just had a single dose last night of Nature's Way L.Reuteri mix is having a major hive-like rash but no itching. Hestarted azithromycin on Wed. with no systemic reaction like this. Theonly thing new is the probiotics last night.> >> > Ok, this takes the cake.> > > > Probiotics contain strep????????????????> > What are the "strep strains" of probiotics?> > My son just tested positive for group a strep and started antibiotics> > on Wed. I just gave him probiotics last night to counter the antibio> > effects. HELP! If I'm giving him more strep, this is a disaster.> >>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: 12/6/2008 4:55 PM

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As long as the strep is being discussed, I thought I would share our

experience. After 4 mos on zithromax, titers had only reduced ~25%. I

did not know that Magnesium reduces the effect of Zithr. Acc to

pharmacy, these 2 need to be separated by about 6hrs when dosing.

> > >

> > > Ok, this takes the cake.

> > >

> > > Probiotics contain strep????????????????

> > > What are the " strep strains " of probiotics?

> > > My son just tested positive for group a strep and started

antibiotics

> > > on Wed. I just gave him probiotics last night to counter the

antibio

> > > effects. HELP! If I'm giving him more strep, this is a

disaster.

> > >

> >

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:

12/6/2008 4:55 PM

>

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Share on other sites

This is weird b/c I checked the label - no strep strains but still

hive-like reaction. He is not allergic to milk products... Don't know

if it's the probiotics or not. If I dose him again I guess I will

know for sure since the rash has calmed down since this am. Good thing

I have an Epipen on hand for nut allergies. I'll go grab some Benadryl

too to be safe.

The L. Reuteri does not contain milk but the label says " may contain

traces of milk. " Again, no milk allergy so I didn't worry...

So, no strep, no milk, but BIG reaction (if it is the L. Reuteri.)

Thanks Christel and others for your replies :-)

> > >

> > > Ok, this takes the cake.

> > >

> > > Probiotics contain strep????????????????

> > > What are the " strep strains " of probiotics?

> > > My son just tested positive for group a strep and started

antibiotics

> > > on Wed. I just gave him probiotics last night to counter the

antibio

> > > effects. HELP! If I'm giving him more strep, this is a disaster.

> > >

> >

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:

12/6/2008 4:55 PM

>

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Share on other sites

Thanks for the input. His multivitamin contains some magnesium, so we

will space them out. Also, we were told to avoid all dairy products

for 2 hours and space out the probiotics by 2 hours after or before

the zithro as well.

> > > >

> > > > Ok, this takes the cake.

> > > >

> > > > Probiotics contain strep????????????????

> > > > What are the " strep strains " of probiotics?

> > > > My son just tested positive for group a strep and started

> antibiotics

> > > > on Wed. I just gave him probiotics last night to counter the

> antibio

> > > > effects. HELP! If I'm giving him more strep, this is a

> disaster.

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > --------------------------------------------------------------------

> ----------

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:

> 12/6/2008 4:55 PM

> >

>

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I do not believe titers go down very much with antibiotics.My son does IVIG. Each infusion lowered titers by 25 points. Re: best probiotic? HELP!

Thanks for the input. His multivitamin contains some magnesium, so we

will space them out. Also, we were told to avoid all dairy products

for 2 hours and space out the probiotics by 2 hours after or before

the zithro as well.

> > > >

> > > > Ok, this takes the cake.

> > > >

> > > > Probiotics contain strep????????????????

> > > > What are the "strep strains" of probiotics?

> > > > My son just tested positive for group a strep and started

> antibiotics

> > > > on Wed. I just gave him probiotics last night to counter the

> antibio

> > > > effects. HELP! If I'm giving him more strep, this is a

> disaster.

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

> ----------

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:

> 12/6/2008 4:55 PM

> >

>

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if it says may contain traces of milk that means it IS grown on milk....perhaps he IS allergic to milk more then you know?? list what is IN it, and mabey we can help more

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: best probiotic? HELP!

This is weird b/c I checked the label - no strep strains but stillhive-like reaction. He is not allergic to milk products... Don't knowif it's the probiotics or not. If I dose him again I guess I willknow for sure since the rash has calmed down since this am. Good thingI have an Epipen on hand for nut allergies. I'll go grab some Benadryltoo to be safe.The L. Reuteri does not contain milk but the label says "may containtraces of milk." Again, no milk allergy so I didn't worry...So, no strep, no milk, but BIG reaction (if it is the L. Reuteri.)Thanks Christel and others for your replies :-)> > >> > > Ok, this takes the cake.> > > > > > Probiotics contain strep????????????????> > > What are the "strep strains" of probiotics?> > > My son just tested positive for group a strep and startedantibiotics> > > on Wed. I just gave him probiotics last night to counter theantibio> > > effects. HELP! If I'm giving him more strep, this is a disaster.> > >> >> > > > > > >----------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:12/6/2008 4:55 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1835 - Release Date: 12/7/2008 4:56 PM

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Does anyone have any documentation on how strep strains make

antibodies to strep? I have talked to our very well known DAN and

Naturopath and they both have said this isn't the case. But if

people are actually experiencing this I want to be aware. So

documentation that I can read up on and show our dr's would be helpful

Thanks!

> >

> > From: Christel King <christel76@together

> .net>

> > Subject: Re: best probiotic?

> > To: mb12 valtrex@ yahoogroups. com

> > Received: Saturday, December 6, 2008,

> 12:01 AM

> >

> >

> > probio contains the strep stains if you

> have a PANDAS kids or one with strep issues. klaires labs has a

high

> dose probotic with out strep stains and with out milk issues

> >

> > Recovering from Autism is a marathon

> > NOT a sprint, but FULLY possible!

> > Read more about it on my BLOGs at

> > http://www.myspace. com/christelking

> > http://foggyrock. com/MyPage/

> recoveringwishes

> > http://www.facebook .com/profile.

> php?id=677063169

> >

> > best probiotic?

> >

> >

> > i know there are many many probiotics

> on the market. i am getting ready to switch from culturelle to

> another. the culturelle is wreaking havoc with my daughter's

> intesitinal system.

> >

> > i've heard good things about Kirkman's

> ProBio Gold. any others that are comprehensive and have little

> intentinal repercussions? (i know they affect people

differently. ..)

> >

> > thanks. pp

> >

> >

> >

> > --------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.176 / Virus Database:

> 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.176 / Virus Database: 270.9.15/1833 -

> Release Date: 12/5/2008 7:08 PM

> >

> >

> >

> >

> >

> >

> >

> >

> ----------------------------------------------------------

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:

> 12/5/2008 7:08 PM

> >

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:

12/6/2008 4:55 PM

>

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Share on other sites

Our DAN also said the same. But many parents who have PANDAS kids stress staying away from the strep strains

Subject: Re: best probiotic? HELP!To: mb12 valtrex Date: Monday, December 8, 2008, 6:45 PM

Does anyone have any documentation on how strep strains make antibodies to strep? I have talked to our very well known DAN and Naturopath and they both have said this isn't the case. But if people are actually experiencing this I want to be aware. So documentation that I can read up on and show our dr's would be helpfulThanks!> > > > From: Christel King <christel76@ together> .net>> > Subject: Re: best probiotic?> > To: mb12 valtrex@ yahoogroups. com> > Received: Saturday, December 6, 2008,> 12:01 AM> > > > > > probio contains the strep stains if you> have a PANDAS kids or one with strep issues. klaires labs has a high> dose probotic with out strep stains and with out milk issues> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/> recoveringwishes> > http://www.facebook .com/profile.> php?id=677063169> > > > best probiotic?> > > > > > i know there are many many probiotics> on the market. i am getting ready to switch from culturelle to> another. the culturelle is wreaking havoc with my daughter's> intesitinal system. > > > > i've heard good things about Kirkman's> ProBio Gold. any others that are comprehensive and have little> intentinal

repercussions? (i know they affect people differently. ..)> > > > thanks. pp> > > > > > > > ------------ --------- --------- --------- --------- --> > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database:> 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM> > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -> Release Date: 12/5/2008 7:08 PM> >

> > > > > > > > > > > > > >> ------------ --------- --------- --------- --------- --------- -> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:> 12/5/2008 7:08 PM> >> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: 12/6/2008 4:55

PM>

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To get more info about Strep/Pandas just google the National Institute of Health/PANDAS........there is lots of info tere about it.

Subject: Re: best probiotic? HELP!To: mb12 valtrex Date: Monday, December 8, 2008, 6:45 PM

Does anyone have any documentation on how strep strains make antibodies to strep? I have talked to our very well known DAN and Naturopath and they both have said this isn't the case. But if people are actually experiencing this I want to be aware. So documentation that I can read up on and show our dr's would be helpfulThanks!> > > > From: Christel King <christel76@ together> .net>> > Subject: Re: best probiotic?> > To: mb12 valtrex@ yahoogroups. com> > Received: Saturday, December 6, 2008,> 12:01 AM> > > > > > probio contains the strep stains if you> have a PANDAS kids or one with strep issues. klaires labs has a high> dose probotic with out strep stains and with out milk issues> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/> recoveringwishes> > http://www.facebook .com/profile.> php?id=677063169> > > > best probiotic?> > > > > > i know there are many many probiotics> on the market. i am getting ready to switch from culturelle to> another. the culturelle is wreaking havoc with my daughter's> intesitinal system. > > > > i've heard good things about Kirkman's> ProBio Gold. any others that are comprehensive and have little> intentinal

repercussions? (i know they affect people differently. ..)> > > > thanks. pp> > > > > > > > ------------ --------- --------- --------- --------- --> > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database:> 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM> > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -> Release Date: 12/5/2008 7:08 PM> >

> > > > > > > > > > > > > >> ------------ --------- --------- --------- --------- --------- -> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:> 12/5/2008 7:08 PM> >> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: 12/6/2008 4:55

PM>

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I am sorry my first post wasn't clear I was in a hurry. I mean I

need info on how strep strains in probiotics aggravates PANDAS. I

have read info on Strep/PANDAS but can not find any info on how strep

strains of probiotics has anything to do with PANDAS

> > >

> > > From: Christel King <christel76@ together

> > .net>

> > > Subject: Re: best probiotic?

> > > To: mb12 valtrex@ yahoogroups. com

> > > Received: Saturday, December 6, 2008,

> > 12:01 AM

> > >

> > >

> > > probio contains the strep stains if you

> > have a PANDAS kids or one with strep issues. klaires labs has a

> high

> > dose probotic with out strep stains and with out milk issues

> > >

> > > Recovering from Autism is a marathon

> > > NOT a sprint, but FULLY possible!

> > > Read more about it on my BLOGs at

> > > http://www.myspace. com/christelking

> > > http://foggyrock. com/MyPage/

> > recoveringwishes

> > > http://www.facebook .com/profile.

> > php?id=677063169

> > >

> > > best probiotic?

> > >

> > >

> > > i know there are many many probiotics

> > on the market. i am getting ready to switch from culturelle to

> > another. the culturelle is wreaking havoc with my daughter's

> > intesitinal system.

> > >

> > > i've heard good things about Kirkman's

> > ProBio Gold. any others that are comprehensive and have little

> > intentinal repercussions? (i know they affect people

> differently. ..)

> > >

> > > thanks. pp

> > >

> > >

> > >

> > > ------------ --------- --------- --------- --------- --

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.176 / Virus Database:

> > 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM

> > >

> > >

> > >

> > >

> > >

> > > ------------ --------- --------- --------- --------- --------- -

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -

> > Release Date: 12/5/2008 7:08 PM

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > ------------ --------- --------- --------- --------- --------- -

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:

> > 12/5/2008 7:08 PM

> > >

> >

> >

> >

> >

> >

> >

> > ------------ --------- --------- --------- --------- --------- -

> ----------

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:

> 12/6/2008 4:55 PM

> >

>

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in PANDAS antibodies are produced and attack OTHER things as it's autoimuune meaning it attacks the brain, joints, and heart. you can get real strep and trigger it, or taking in things like probiotics or yougurts with strep lines in them and they MISUNDERSTAND the good with the bad and still produce antibodies. we know this from expereince, we have a few of us with PANDAS family members and did a test with probiotics klaire labs detox support and then also the complete. the complete has strep lines in them. we did before blood tests registaring normal levels, then did the complete and sure enough symptoms were with in 24-36 hours of start showing a PANDAS flare. test repeated showing levels high producing ASO and the other one as well....showing the production of antibodies triggered, then did detox and again retested to bring levels down. (OLE has also been used and zpack) we have someone also trying IVIG and her levels should be coming back soon to let us know how effective that is as well, over all our best and most effective in those I have spoken with has been the OLE and avoidence of strep strains in ANYTHING. we have tried the yogurt as well and with in 24 hours have had a PANDAS flare taking WEEKS to get back in control. NOT fun......

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

best probiotic?> > > > > > > > > i know there are many many probiotics> > on the market. i am getting ready to switch from culturelle to> > another. the culturelle is wreaking havoc with my daughter's> > intesitinal system. > > > > > > i've heard good things about Kirkman's> > ProBio Gold. any others that are comprehensive and have little> > intentinal repercussions? (i know they affect people > differently. ..)> > > > > > thanks. pp> > > > > > > > > > > > ------------ --------- --------- --------- --------- --> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database:> > 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM> > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -> > Release Date: 12/5/2008 7:08 PM> > > > > > > > > > > > > > > > > > > > > > > >> > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:> > 12/5/2008 7:08 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: > 12/6/2008 4:55 PM> >>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1837 - Release Date: 12/8/2008 9:38 AM

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Christel,

Was this test something you did on your own or was it through your

DAN?

One of the reasons I have held off on starting SCD yogurt is because

of these issues. I have had that niggling feeling in the back of my

mind that PANDAS MAY be an issue for one or both of my boys. Then,

funny enough, the boys got sick right before our first DAN appt

(which we have been waiting 8 mths for) and they both went major OCD

on me - especially my older boy (not ASD). Their vaccine-response

history, repeated illness history, and the most recent illness

response was enough to prompt the DAN to check both of them for

PANDAS.

Thanks,

>

> in PANDAS antibodies are produced and attack OTHER things as it's

autoimuune meaning it attacks the brain, joints, and heart. you can

get real strep and trigger it, or taking in things like probiotics or

yougurts with strep lines in them and they MISUNDERSTAND the good

with the bad and still produce antibodies. we know this from

expereince, we have a few of us with PANDAS family members and did a

test with probiotics klaire labs detox support and then also the

complete. the complete has strep lines in them. we did before blood

tests registaring normal levels, then did the complete and sure

enough symptoms were with in 24-36 hours of start showing a PANDAS

flare. test repeated showing levels high producing ASO and the other

one as well....showing the production of antibodies triggered, then

did detox and again retested to bring levels down. (OLE has also

been used and zpack) we have someone also trying IVIG and her levels

should be coming back soon to let us know how effective that is as

well, over all our best and most effective in those I have spoken

with has been the OLE and avoidence of strep strains in ANYTHING. we

have tried the yogurt as well and with in 24 hours have had a PANDAS

flare taking WEEKS to get back in control. NOT fun......

> Recovering from Autism is a marathon

> NOT a sprint, but FULLY possible!

> Read more about it on my BLOGs at

> http://www.myspace.com/christelking

> http://foggyrock.com/MyPage/recoveringwishes

> http://www.facebook.com/profile.php?id=677063169

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Hi Rei, Can you mix Dr Pengs herbs with juice? I'm worriedMy son won't drink it. 

Does anyone have any documentation on how strep strains make

antibodies to strep? I have talked to our very well known DAN and

Naturopath and they both have said this isn't the case. But if

people are actually experiencing this I want to be aware. So

documentation that I can read up on and show our dr's would be helpful

Thanks!

> >

> > From: Christel King <christel76@together

> .net>

> > Subject: Re: best probiotic?

> > To: mb12 valtrex@ yahoogroups. com

> > Received: Saturday, December 6, 2008,

> 12:01 AM

> >

> >

> > probio contains the strep stains if you

> have a PANDAS kids or one with strep issues. klaires labs has a

high

> dose probotic with out strep stains and with out milk issues

> >

> > Recovering from Autism is a marathon

> > NOT a sprint, but FULLY possible!

> > Read more about it on my BLOGs at

> > http://www.myspace. com/christelking

> > http://foggyrock. com/MyPage/

> recoveringwishes

> > http://www.facebook .com/profile.

> php?id=677063169

> >

> > best probiotic?

> >

> >

> > i know there are many many probiotics

> on the market. i am getting ready to switch from culturelle to

> another. the culturelle is wreaking havoc with my daughter's

> intesitinal system.

> >

> > i've heard good things about Kirkman's

> ProBio Gold. any others that are comprehensive and have little

> intentinal repercussions? (i know they affect people

differently. ..)

> >

> > thanks. pp

> >

> >

> >

> > --------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.176 / Virus Database:

> 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.176 / Virus Database: 270.9.15/1833 -

> Release Date: 12/5/2008 7:08 PM

> >

> >

> >

> >

> >

> >

> >

> >

> ----------------------------------------------------------

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:

> 12/5/2008 7:08 PM

> >

>

>

>

>

>

>

> ----------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date:

12/6/2008 4:55 PM

>

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there are DANS out ther that DO get this whole concept and DO advise against doing strep lines with PANDAS patients, you can do yougurt with out strep line you just have to make it yourself

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: best probiotic? HELP!

Christel,Was this test something you did on your own or was it through your DAN?One of the reasons I have held off on starting SCD yogurt is because of these issues. I have had that niggling feeling in the back of my mind that PANDAS MAY be an issue for one or both of my boys. Then, funny enough, the boys got sick right before our first DAN appt (which we have been waiting 8 mths for) and they both went major OCD on me - especially my older boy (not ASD). Their vaccine-response history, repeated illness history, and the most recent illness response was enough to prompt the DAN to check both of them for PANDAS.Thanks,>> in PANDAS antibodies are produced and attack OTHER things as it's autoimuune meaning it attacks the brain, joints, and heart. you can get real strep and trigger it, or taking in things like probiotics or yougurts with strep lines in them and they MISUNDERSTAND the good with the bad and still produce antibodies. we know this from expereince, we have a few of us with PANDAS family members and did a test with probiotics klaire labs detox support and then also the complete. the complete has strep lines in them. we did before blood tests registaring normal levels, then did the complete and sure enough symptoms were with in 24-36 hours of start showing a PANDAS flare. test repeated showing levels high producing ASO and the other one as well....showing the production of antibodies triggered, then did detox and again retested to bring levels down. (OLE has also been used and zpack) we have someone also trying IVIG and her levels should be coming back soon to let us know how effective that is as well, over all our best and most effective in those I have spoken with has been the OLE and avoidence of strep strains in ANYTHING. we have tried the yogurt as well and with in 24 hours have had a PANDAS flare taking WEEKS to get back in control. NOT fun......> Recovering from Autism is a marathon> NOT a sprint, but FULLY possible!> Read more about it on my BLOGs at> http://www.myspace.com/christelking> http://foggyrock.com/MyPage/recoveringwishes> http://www.facebook.com/profile.php?id=677063169

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1837 - Release Date: 12/8/2008 9:38 AM

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Other than the detox, what other probiotic do you use?

Subject: Re: Re: best probiotic? HELP!To: mb12 valtrex Date: Monday, December 8, 2008, 11:10 PM

in PANDAS antibodies are produced and attack OTHER things as it's autoimuune meaning it attacks the brain, joints, and heart. you can get real strep and trigger it, or taking in things like probiotics or yougurts with strep lines in them and they MISUNDERSTAND the good with the bad and still produce antibodies. we know this from expereince, we have a few of us with PANDAS family members and did a test with probiotics klaire labs detox support and then also the complete. the complete has strep lines in them. we did before blood tests registaring normal levels, then did the complete and sure enough symptoms were with in 24-36 hours of start showing a PANDAS flare. test repeated showing levels high producing ASO and the other one as well....showing the production of antibodies triggered, then did detox and again retested to bring levels down. (OLE has also been used and zpack) we have

someone also trying IVIG and her levels should be coming back soon to let us know how effective that is as well, over all our best and most effective in those I have spoken with has been the OLE and avoidence of strep strains in ANYTHING. we have tried the yogurt as well and with in 24 hours have had a PANDAS flare taking WEEKS to get back in control. NOT fun......

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace. com/christelkinghttp://foggyrock. com/MyPage/ recoveringwisheshttp://www.facebook .com/profile. php?id=677063169

best probiotic?> > > > >

> > > > i know there are many many probiotics> > on the market. i am getting ready to switch from culturelle to> > another. the culturelle is wreaking havoc with my daughter's> > intesitinal system. > > > > > > i've heard good things about Kirkman's> > ProBio Gold. any others that are comprehensive and have little> > intentinal repercussions? (i know they affect people > differently. ..)> > > > > > thanks. pp> > > > > > > > > > > > ------------ --------- --------- --------- --------- --> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database:> > 270.9.13/1826 -

Release Date: 12/3/2008 9:34 AM> > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -> > Release Date: 12/5/2008 7:08 PM> > > > > > > > > > > > > > > > > > > > > > > >> > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:> > 12/5/2008 7:08 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: > 12/6/2008 4:55 PM> >>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.9.15/1837 - Release Date: 12/8/2008 9:38 AM

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Hi can any one help and tell me which tests I must do for my daugther to know if she is PANDAS ? My daughter is 15years old , she has been very sick from 10 months until her eight year , when she was about four or five years old she has blood poisinning with strep

she is autistic, dosen't speak , lot of bad behaviors;violent, has ataxia,poor motor skils ,....Thanks for helpSoumaya2008/12/9 Christel King

in PANDAS antibodies are produced and attack OTHER things as it's autoimuune meaning it attacks the brain, joints, and heart. you can get real strep and trigger it, or taking in things like probiotics or yougurts with strep lines in them and they MISUNDERSTAND the good with the bad and still produce antibodies. we know this from expereince, we have a few of us with PANDAS family members and did a test with probiotics klaire labs detox support and then also the complete. the complete has strep lines in them. we did before blood tests registaring normal levels, then did the complete and sure enough symptoms were with in 24-36 hours of start showing a PANDAS flare. test repeated showing levels high producing ASO and the other one as well....showing the production of antibodies triggered, then did detox and again retested to bring levels down. (OLE has also been used and zpack) we have someone also trying IVIG and her levels should be coming back soon to let us know how effective that is as well, over all our best and most effective in those I have spoken with has been the OLE and avoidence of strep strains in ANYTHING. we have tried the yogurt as well and with in 24 hours have had a PANDAS flare taking WEEKS to get back in control. NOT fun......

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

http://www.facebook.com/profile.php?id=677063169

best probiotic?> > > > > > > > > i know there are many many probiotics> > on the market. i am getting ready to switch from culturelle to> > another. the culturelle is wreaking havoc with my daughter's> > intesitinal system. > > > > > > i've heard good things about Kirkman's> > ProBio Gold. any others that are comprehensive and have little> > intentinal repercussions? (i know they affect people > differently. ..)> > > > > > thanks. pp> > > > > > > > > > > > ------------ --------- --------- --------- --------- --> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database:> > 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM> > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -> > Release Date: 12/5/2008 7:08 PM> > > > > > > > > > > > > > > > > > > > > > > >> > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:> > 12/5/2008 7:08 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: > 12/6/2008 4:55 PM> >>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1837 - Release Date: 12/8/2008 9:38 AM

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none

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

best probiotic?> > > > > > > > > i know there are many many probiotics> > on the market. i am getting ready to switch from culturelle to> > another. the culturelle is wreaking havoc with my daughter's> > intesitinal system. > > > > > > i've heard good things about Kirkman's> > ProBio Gold. any others that are comprehensive and have little> > intentinal repercussions? (i know they affect people > differently. ..)> > > > > > thanks. pp> > > > > > > > > > > > ------------ --------- --------- --------- --------- --> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database:> > 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM> > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -> > Release Date: 12/5/2008 7:08 PM> > > > > > > > > > > > > > > > > > > > > > > >> > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:> > 12/5/2008 7:08 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: > 12/6/2008 4:55 PM> >>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.9.15/1837 - Release Date: 12/8/2008 9:38 AM

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1839 - Release Date: 12/9/2008 9:59 AM

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PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders such as Tourette's Syndrome, and in whom symptoms worsen following strep. infections such as "Strep throat" and Scarlet Fever. The children usually have dramatic, "overnight" onset of symptoms, including motor or vocal tics, obsessions, and/or compulsions. In addition to these symptoms, children may also become moody, irritable or show concerns about separating from parents or loved ones. This abrupt onset is generally preceeded by a Strep. throat infection.

PANDAS is similar to that of Rheumatic Fever, an autoimmune disorder triggered by strep. throat infections. In every bacterial infection, the body produces antibodies against the invading bacteria, and the antibodies help eliminate the bacteria from the body. However in Rheumatic Fever, the antibodies mistakenly recognize and "attack" the heart valves, joints, and/or certain parts of the brain. This phenomenon is called "molecular mimicry", which means that proteins on the cell wall of the strep. bacteria are similar in some way to the proteins of the heart valve, joints, or brain

One part of the brain that is affected in PANDAS is the Basal Ganglia, which is believed to be responsible for movement and behavior. Thus, the antibodies interact with the brain to cause tics and/or OCD

clinicians use 5 diagnostic criteria for the diagnosis of PANDAS (see below). At the present time the clinical features of the illness are the only means of determining whether or not a child might have PANDAS. Q. What are the diagnostic criteria for PANDAS? A. They are:

Presence of Obsessive-compulsive disorder and/or a tic disorder Pediatric onset of symptoms (age 3 years to puberty) Episodic course of symptom severity Association with group A Beta-hemolytic streptococcal infection (a positive throat culture for strep. or history of Scarlet Fever.) Association with neurological abnormalities (motoric hyperactivity, or adventitious movements, such as choreiform movements)

Q. What is an episodic course of symptoms? A. Children with PANDAS seem to have dramatic ups and downs in their OCD and/or tic severity. Tics or OCD which are almost always present at a relatively consistent level do not represent an episodic course. Many kids with OCD or tics have good days and bad days, or even good weeks and bad weeks. However, patients with PANDAS have a very sudden onset or worsening of their symptoms, followed by a slow, gradual improvement. If they get another strep. infection, their symptoms suddenly worsen again. The increased symptom severity usually persists for at least several weeks, but may last for several months or longer. The tics or OCD then seem to gradually fade away, and the children often enjoy a few weeks or several months without problems. When they have another strep. throat infection the tics or OCD return just as suddenly and dramatically as they did previously. Q. Are there any other symptoms associated with PANDAS episodes? A. Yes. Children with PANDAS often experience one or more of the following symptoms in conjunction with their OCD and/or tics:

ADHD symptoms (hyperactivity, inattention, fidgety) Separation anxiety (Child is "clingy" and has difficulty separating from his/her caregivers. For example, the child may not want to be in a different room in the house from his/her parents.) Mood changes (irritability, sadness, emotional lability) Sleep disturbance Night- time bed wetting and/or day- time urinary frequency Fine/gross motor changes (e.g. changes in handwriting) Joint pains

here is another list from another site

Red flagsThe biggest difference between regular OCD and PANDAS OCD is the sudden onset. OCD usually develops slowly over weeks, months or even years; however, PANDAS OCD seems to come out of the blue with parents saying one day their child woke up a different kid. There are also other symptoms that help differentiate the 2 types of OCD. PANDAS OCD is also characterized by:

Choreiform movements: involuntary or irregular writhing movements of the legs, arm or face

Presence of tics and/or hyperactivity

Irritability, temper tantrums, or mood lability

Nighttime difficulties

Severe nightmares and new bedtime rituals or fears

Separation anxiety

Age regression: going back to younger developmental stage

New handwriting problems, loss of math skills, sensory sensitivities

Q. My child has had strep. throat before, and he has tics and/or OCD. Does that mean he has PANDAS? A. No. Many children have OCD and/or tics, and almost all school aged children get strep. throat at some point in their lives. In fact, the average grade-school student will have 2 – 3 strep. throat infections each year. PANDAS is considered when there is a very close relationship between the abrupt onset or worsening or OCD and/or tics, and a preceding strep. infection. If strep. is found in conjunction with two or three episodes of OCD/tics, then it may be that the child has PANDAS

What to do if you suspect your child has PANDAS

Contact your pediatrician. Advocate for your child by being clear about what you want your doctor to do. In some cases, you may have to find a sympathetic doctor who is willing to learn about PANDAS. The PANDAS Clinic at NIMH may be willing to consult with doctors.

Have your pediatrician do a throat culture of group A B-hemolytic strep. Ask that the specimen be cultured, not just the rapid test.

Your doctor may also do a blood test to assess elevated streptococcal antibodies (Anti-DNAse B and Antistreptolysin titers (ASO)).

You and/or your doctor can get information and treatment guidelines from the National Institute of Mental Health (www.nih.gov); type in PANDAS to access the appropriate link.

Contact the OC Foundation to help locate an expert in OCD in your area.

Have your child retested if there is a resurgence in OCD symptoms.

yes my son and best friend both have PANDAS< my son had scarlet fever and strep throat and deteriorated what felt like over night almost 2 years ago, which we have then seen a pattern with 3 other episodes, which gives him the dx of PANDAS, he gets very OCD over letter and turns extreamly hyperlexic, his hand writting goes, he has melt downs over nothings, lots of tantrums, gets mean and will hurt his sisters for no reason ect. my aspie friend well get really depressed, and emotional, have melt downs, becomes unfunctionable, her immune system crashes and she will over night new allergies to the place she can bearly eat. (she is an adult and it looks a bit different) she was previously dxed with tourettes which I pushed her to get tested as I saw it come and go like my son with his PANDAS flares and sure enough she tested possitive, so now with treatment OLE (olive leaf extract) she is tic free as well. she has the history of tons of strep infection as a child and being on spectrum as well but wasn't caught till this last year. so her peices are coming together now.

I hope this helps you some with examples of both a child and an adult, If I can help you futher please don't hesitate to contact me agian

christel king

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

best probiotic?> > > > > > > > > i know there are many many probiotics> > on the market. i am getting ready to switch from culturelle to> > another. the culturelle is wreaking havoc with my daughter's> > intesitinal system. > > > > > > i've heard good things about Kirkman's> > ProBio Gold. any others that are comprehensive and have little> > intentinal repercussions? (i know they affect people > differently. ..)> > > > > > thanks. pp> > > > > > > > > > > > ------------ --------- --------- --------- --------- --> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database:> > 270.9.13/1826 - Release Date: 12/3/2008 9:34 AM> > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 -> > Release Date: 12/5/2008 7:08 PM> > > > > > > > > > > > > > > > > > > > > > > >> > ------------ --------- --------- --------- --------- --------- -> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.176 / Virus Database: 270.9.15/1833 - Release Date:> > 12/5/2008 7:08 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: > 12/6/2008 4:55 PM> >>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1837 - Release Date: 12/8/2008 9:38 AM

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.16/1840 - Release Date: 12/9/2008 4:53 PM

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