Guest guest Posted March 28, 1999 Report Share Posted March 28, 1999 SAMMYBOY97@... wrote: > > From: SAMMYBOY97@... > > Hi Ronda I'm also from Seattle area I live in Renton probably 15 minutes away > from you. My son is 14 months old just recovering from surgery. Since you have > nursing care your daughter must have a trach, what nursing agency are you > with? I think that all nursing agencies are terrible, having nurses is very > hard to deal with sometimes. Do you have private insurance? We are with > Regence Blue Shield and in december they tried to cut off our nursing care, I > called our social worker at Childrens hospital she gave me the name of an > attorney that concentrates on medically fragile children. This guy wrote our > insurance company a letter and now they have left us alone , he just won a big > law suite defending a 4 year old trach child (not Charge) I don't know what > the settlement was but they are set for life. > Well hope life gets easier for you, hope to hear from you soon. > > > ------------------------------------------------------------------------> Ideas on how we can improve ONElist? > http://www.onelist.com > Check out the Suggestion Box feature on our new web site > ------------------------------------------------------------------------> For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... Hi , Sorry it has taken me so long to get back to you I haven't been on the computer in weeks, there was almost 900 emails to down load and go through. Yes Keresa has a trach she got it at 5 months old, We have had nurses in our home since she came home from childres hospital, June 27th will be 11 years of dealing with nurses. The nursing agency is Health Team Northwest we started out with them when they were still Pediatric Home Care. When she first came home I had private insurance but the cobra extention end back in 1989, we went on a medicaly intensive childrens program that has covered the supplies and nursing since then, a few months ago my ex was ordered to put the kids on his Insurance through work so now we are in the process of switching over to it (Aetna POP) I think all the negotiations are about to be final this week they want to cover 8 hrs. a night and want school to cover the day shift for Keresa to attend school the nurse would be on the bus to take Keresa to school attend with her and meet me at the bus stop after school. I will have to quit my job when this schedule starts. I will probably do babysitting or house cleaning to get some income. I don't want to go back to welfare for income. Well that is a long enough book for now. If you ever want to call me heres my # 253 854-7805 Talk to ya later, Ronda Ronda mom to Keresa (11 CHaRgE) and Krystle (9) Kent WA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.