Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Wolfgang If you scroll all the way down to where you see in the middle of the page it says Headers.... Then go to the bottom of all that....6 lines up from the bottom you will see List Unsubscribe..... mail to that e-mail and just put in the subject Unsubscribe and then in the body of the e-mail put it again... that should do it... If you have trouble you can get back to us....But this something you have to do...it can not be done for you... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Dear group manager, how do I unsubsribe to this group? I do not find any information in the message. Please unsubscribe me!!!!! Wolfgang wml@... -----Ursprungligt meddelande----- Från: [mailto: ] Skickat: den 19 mars 2001 20:23 Till: Ämne: Digest Number 596 There are 25 messages in this issue. Topics in this digest: 1. Re: Er... 2. RE: Er... 3. 4. Patti 5. Norm Hoffman............... 6. Re: Actigall Shortage From: bbnlu@... 7. Re: articles.......TGIF (early) From: bbnlu@... 8. Re: cool website (off topic) From: bbnlu@... 9. Re: Liver Disease?-Darren From: bbnlu@... 10. RE: Er... 11. Re: cool website (off topic) 12. Re: cool website (off topic) 13. RE: Er... 14. RE: Er... 15. Re: Er...Steve From: bbnlu@... 16. Fwd: First To Know Bulletin 17. on C-Span 18. IBD - News 19. shaky ill 20. Glass Beads 21. Re: shaky ill 22. Fwd: JOKE/since we've all been talking about " it " 23. (off topic) patti, colleen... thanks for the smiles :-) 24. double posts 25. Re: double posts ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Mon, 19 Mar 2001 08:54:29 +0000 Subject: Re: Er... Thanks Garry <g>, It's a good job I am an easy going Englishman or I might take offence <bg>. I'll have you know that I never tell 'ethnic minority' jokes, including Irish ones <te, he>. Did you know that St was French....arrrrrgh! And now a short lesson in humility: I happened to meet a friend of mine yesterday, who I hadn't seen for a few weeks. He asked how I was and because he is one of only a few friends who know I have PSC I proceeded to tell him about my recent PSC history (he is normally happy to listen and comment). After about 30 seconds I noticed he wasn't really listening (you just know these things, don't you?). I asked if he was O.K. He apologized and said he had had a difficult few weeks. " I was in the train crash " he said. I said " Oh goodness " and he explained what had happened to him. About 3 weeks ago there was an horrific train crash about 15 miles from York (where I live). A passenger train that was travelling to London at 125 miles an hour collided with a vehicle that had crashed onto the track. The train was de-railed and hit a freight train that was travelling a 80 miles an hour in the opposite direction. The carnage was total and 10 people died. The accident had left several carriages in the field next to the track. was in one that had rolled over and then disintegrated. He was lucky to be alive and had had several operations on the back of his head and arm. He now has a metal plate holding his head together. When I really looked at him it was obvious that he wasn't himself. The lesson I learned: Don't get so wrapped up in your own problems that you fail to notice the signs of those in others. Take care guys, Steve Lawson. ________________________________________________________________________ ________________________________________________________________________ Message: 2 Date: Mon, 19 Mar 2001 01:36:51 -0800 Subject: RE: Er... wow, steve, that was quite a story you posted! so you're alive and well (with the exception of your PSC, of course)... however your friend, who isn't quite himself due to a metal plate holding his head together (thanks to a train crash requiring several operations), is lucky to be alive. as for that " lesson " you learned ( " ...Don't get so wrapped up in your own problems that you fail to notice the signs of those in others " ), well, that also happens to be a mighty fine way for one to keep a healthy perspective throughout life: i call it " maureen's theory of relativity " (with apologies to albert einstein). in other words, no matter WHAT your situation, while things could certainly be better, they could certainly also be worse (i.e., it's all " relative " ). by focusing ON the problems of others, it has truly helped jim and i to be better able to handle his PSC (well, that, plus the Positive Mental Attitude jim insists upon us having). choosing to direct our focus outward on others has helped keep us sane, when PSC could have driven us over the edge. thank you for sharing. all the best, maureen ________________________________________________________________________ ________________________________________________________________________ Message: 3 Date: Mon, 19 Mar 2001 08:24:42 -0500 Subject: No races, unless you call motoring down the halls of the hospital on crutches a race. Not really much of race when you have to stop half way because you're tired and starting to perspire! I'm really looking forward to having this thing off on April 6th. I hope that the x-rays show that the bone has healed so I can get on with the physio and rehab. I'm glad I saved my crutches from my previous knee surgery, because the new ones they sell you don't have any padding on the hand grips or tops. My arthritic hands don't care for the pressure with the padding so I can't imagine how bad it would be without it. It's somewhat of a blessing that I've already been through this rehab business with my other knee, so I know what I'm facing. Thanks for asking. Off to work. Aubrey ________________________________________________________________________ ________________________________________________________________________ Message: 4 Date: Mon, 19 Mar 2001 08:25:43 -0500 Subject: Patti Really sorry to hear about Mike's not feeling well. That episode sounds pretty unpleasant. I hope it cleared up with resting in bed. I hope you have a good time in Halifax while Mike's band plays. You sound like you deserve and could benefit from a nice night out. Aubrey ________________________________________________________________________ ________________________________________________________________________ Message: 5 Date: Mon, 19 Mar 2001 09:33:41 -0400 Subject: Norm Hoffman............... I hadn't been online for a few days and was unable to retrieve the memorial on Norm... if anybody out there has it, or can forward any address where I might send a card to his family, I would greatly appreciate the info... anything that you have that I can read, thank you so much, Patti _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. ________________________________________________________________________ ________________________________________________________________________ Message: 6 Date: Mon, 19 Mar 2001 08:43:33 EST From: bbnlu@... Subject: Re: Actigall Shortage Ty also started out on Actigal and when the " shortage " hit he was switched to Urso...We live in New Jersey and this happen to us also about 1 1/2 yrs ago... Very strange.... Luanne Ty's mom [This message contained attachments] ________________________________________________________________________ ________________________________________________________________________ Message: 7 Date: Mon, 19 Mar 2001 09:14:56 EST From: bbnlu@... Subject: Re: articles.......TGIF (early) Patti I hear you about the anger thing....If I really stop to think of what Ty has had to go thru and still will have to endure...What has been taken away from him so far and what more will be taken...He has hardly had a chance to begin...He has been a high honor roll student all of HS...now this year being one of his toughest ..health wise...he has no completed grades and gettting into college without some senior grades is difficult.....which is what is happening to him now...For someone who has done so well and now is being held back because he has health problems just does seem fair...He used to want to be a Ped GI and work in the same hosp he goes to...aChildrens Hosp....but even that seems too far away...although he is still thinking about it..he has also thought about teaching Chemistry....which is fine...but the reason he had to come to this discision is what angers me....I can get damn angry...angry to the point you are crying out of control...because the situation is out of your control....But I realize that my energy is wasted .......and letting him know how this situation is depressing to me certainly would not help him....SOOOOO I remain positive...helping him to deal with this....in a positive fight.....maybe fight is not the right word...to negative....but the brain is just not coming up with any other word at the moment... The whole conversation of " sex life " scares me to death.....another thing that will be taken away before he even gets a chance to start it.....He talks about having children all the time....Well I just won't even go there in my head.....this is going to be his future and it ''WILL WORK OUT' On a much lighter note.....Ty was actually feeling better yesterday and the 3 of us went out to dinner.....It was Bobs and mine anniversary....29yrs.....and it was nice to have Ty feeling good enough to go out and be with us.... Bob is also a musician....like your Mike....I think I remember you saying that Mike plays the guitar...so does Bob....is in the same band since HS with all the same people....and my best friend from HS is married to the keyboardist...and then Bob also plays in other bands when ever somebody needs somebody....He plays other things too...so what ever they need....This musical talent is shared by both my sons...Ty and also play many things...both liking guitars best....and they both have played about every horn there is in school bands...marching...jazz...concert... I am so glad that you are getting away...it is always nice....We also haven't been away in quite awhile.....I went to Canada with a HS band trip 2 years ago....as a chaperone....mainly to keep Ty's meds...no one wanted the responsibility...He was on Enbrel then...an injection...and no one wanted anything to do with that...not that they would have had to give it to him...he did it himself...they just didn't want the responsibility of having it.... This yr the trip is to Ohio to a music festival....we are hoping he will be able to go....Bob and I are also planning on going....thats in May some time.... and on April 4 we are taking a train to Chicago to visit with our daughter....and see in a competion...last one with this group..... This will be one of the first trips for the family in a long time...years....so I know how you feel.... Well totally enough for today...Nice talking to you.... Luanne Ty's mom [This message contained attachments] ________________________________________________________________________ ________________________________________________________________________ Message: 8 Date: Mon, 19 Mar 2001 09:28:10 EST From: bbnlu@... Subject: Re: cool website (off topic) Thanks Leigh-Anne...I sent it to Tylers computer...he has been doing a lot of Napster downloading and he has a CD burner..so hes been making alot of them..Now with Napster closing and not working very well this will give him another place to go... Thanks... Luanne Ty's mom... I think music brings everyones mood UP...the louder the better..... [This message contained attachments] ________________________________________________________________________ ________________________________________________________________________ Message: 9 Date: Mon, 19 Mar 2001 09:40:47 EST From: bbnlu@... Subject: Re: Liver Disease?-Darren Darren First ...don't panic....most likely the safest way is to monitor your levels over time....These are not high levels....Most here had them in the hundreds and thousands.... My son who does have PSC is now 18 and was diagnosed 2 yrs ago....He was orginally diagnosed with Crohns when he was 9....He also has Rhuematoid Arthritis, Autoimmune Hep,and Vasculitis.... My other son who is now almost 23(in April) has had UC since he was 3....and has NOTHING else....I worry of course about his future....but don't dwell... You have doctors who you have so far trusted...so I would listen to them....and relax...don't worry yourself sick.... Luanne Ty's mom I hope everything works out for you... [This message contained attachments] ________________________________________________________________________ ________________________________________________________________________ Message: 10 Date: Mon, 19 Mar 2001 06:50:49 -0800 (PST) Subject: RE: Er... Steve and Maureen. Wow -- steve -- your friend's story is increduble. My wishes for his full recovery. Maureen -- I think Jim is right with the PMA -- it can make all the difference in the world. I call it the " There's gotta be a pony in here somewhere! " I'd hate to think I've been digging through a pile of poop for no good reason! Colleen --------------------------------- Quote Link to comment Share on other sites More sharing options...
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